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Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

Contemplated some bad stuff in reference to the Folfiri, this stuff is nasty to me, no diarrhea at all, exactly the opposite and thinking that is part of my issue, along with the never ending reflex gag when I smell anything cooking. I am tired and sick almost everyday due to nausea and just plain old sick as a dog...and tomorrow we start again...I get a CT then go to Vandy the 28th to see whats what...We started this with a baseline of 67. Thought it was lower but nope...Mentally, I am fine...heads on straight and all thoughts about all of this are gathered, I'll check back in later....Love ya all.....Buzz

ketziah35
Posts: 1154
Joined: Jun 2010

Buzz,

Sorry to see that you are having such a hard time, but I am very happy to see you post.

Ktz

Buckwirth's picture
Buckwirth
Posts: 1271
Joined: Jun 2010

I don't remember what it is, but they add something to the mix to prevent the cramping that can be caused by Irinotecan. Whatever it is, it also causes constipation. With our ostomies, that can cause some painful elimination (square pegs and round holes kind of thing).

Ask the infusion nurse about it, maybe they can back off the dosage a bit.

Blake

laurettas
Posts: 372
Joined: May 2011

Yea, this chemo stuff is no fun, is it? My husband has more of the opposite problems with Folfiri as well. He started trying to remember to take a stool softener the morning of his treatment. When he did, things seemed to go a little more smoothly!

I don't know if it would help you, but for Jake, eating non-starchy foods all the time really helps with the nausea. For several days after his treatments, he would basically need to start the day with food going in his mouth. If we waited very long in the morning before he ate, the nausea would get ahead of him and he had a lot more trouble with it.

Hope that your body gets a little more acclimated to this treatment and you begin tolerating a little better. It is miserable feeling sick all of the time.

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

I know this folfiri is a crap but works Buzz! just hang there , hope your docs find a solution to your issues!
Keep you in my prayers!

Annabelle41415's picture
Annabelle41415
Posts: 6691
Joined: Feb 2009

Welcome back to the board but sorry you still aren't feeling well. Wish they could give you something to help. Hope you feel better soon.

Kim

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

You were one of the first people I found on this board when I dropped in from out of the sky in August...glad to see you are back---in rough shape it sounds---but back.
It's good to "hear" your voice. You were missed.
:)

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

We missed you in Chicago, Buzz.

Folfiri busted me up just like it's doing to you...seems like you and I react the same way to it. I was sick like you all but 5-6 days of the month, so I know what a grind it is and how bad you're feeling.

I think it was Blake who mentioned a drug to help the cramping - I believe that is ATROPINE. That's what I was taking.

I'm glad you're mental outlook is good.

Take care, buddy
-Craig

pscott1
Posts: 207
Joined: Jan 2011

I'm so sorry you're not feeling well but so glad you posted. I worry about you always! I pray things will start going easier for you the more treatments that go by. Take care of yourself and please keep us up on how you are progressing. Praying this will be effective treatment for you. You are always on my mind. Hang in there....

SisterSledge's picture
SisterSledge
Posts: 342
Joined: Feb 2011

<3 Keep on keepin' on! <3
Janine

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

It's nice to see you back Buzz, we were all quite worried about you. Rick has the opposite problem, but it's still a balancing act between Miralax and Imodium. His suggestion - try drinking some apple cider before bedtime, it can help. Hugs, Cynthia

Fight for my love
Posts: 1530
Joined: Jun 2009

It's nice to see your post.Hope for the best result from CT.Take care.

buckeye2
Posts: 428
Joined: Jul 2011

Glad to have you back and praying for better days ahead. Lisa

buckeye2
Posts: 428
Joined: Jul 2011

Double post

christinecarl's picture
christinecarl
Posts: 545
Joined: Sep 2009

It is good to hear from you. I am sorry the chemo is causing such pain for you, I only hope it is doing what it needs to do and that the end justifies the means.

I hope that the Drs can come up with some solutions for you.

fcking cancer :(

Take care,
chris

karen40's picture
karen40
Posts: 211
Joined: Aug 2011

Seeing your face has just brought a smile to my mine.
You've really been missed here. I hope things get better for you and soon.
I'm keeping you in my prayers.
Karen

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

you would not let go of that rope.sorry you have been so sick..the oxy was bad on me in 2009.funny how we are all affected differently....Godbless....johnnybegood

tanstaafl's picture
tanstaafl
Posts: 1299
Joined: Oct 2010

Glad to see you up, Clift. Sounds like a rough ride on the -IRI railroad. Let us know...

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Clift,
It is always good to hear from you. Crap, that you are suffering so. I pray this round is a bit gentler. I hope and pray you get a break. You are a good man.

Aloha,
Kathleen

Brenda Bricco
Posts: 579
Joined: Aug 2011

I think of you often Buzz... GOD bless you.
Brenda

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

That it's affecting you that way, dang it. Glad to see your face though there buddy.
Hoping it goes smoother. Thinking of you.
Winter Marie

luvmum
Posts: 457
Joined: Dec 2010

You are always strong and tough! Hang in there and hope things will get better soon!

Take good care!

thingy45's picture
thingy45
Posts: 633
Joined: Apr 2011

So glad to see the post. I wish I had a magic wand to make it all go away for all of us.
When we were Kids, a mothers kiss could make any auwie go away. That was magic.
Now we have tenacity, and a strong will to live and the friends and family on the board to keep us going.
Hang in there Clift. One day, one minute, one hour at a time.
Marjan

wolfen's picture
wolfen
Posts: 1328
Joined: Apr 2009

Very happy to see that handsome face again. So sorry the chemo is kickin' your butt. Guess you'll just have to kick back. Stay in touch when you can. We all love you.

Luv,

Wolfen

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Clift,

Sorry you've had such a time with the irinotecan. That stuff kicked me pretty hard too. No nausea meds helped me and I actually went out and got my medical mj card cause I was desperate. Used it once, then had a scan & my tumors had advanced, so off the irinotecan I went anyhow. I was always kind of paranoid about the mj, so I didn't ever use it again after I stopped the Folfiri/irinotecan. I had actually been on it quite awhile- it really did shrink my tumors for awhile. I hope and pray that your nausea has been worth it & that your tumors will show up having shrunken when you get the CT done.
Blessings to you- you definitely deserve some blessings after all you've been through this past year or so.

Hugs,
Lisa

pokismom's picture
pokismom
Posts: 153
Joined: Jul 2009

Oh so sorry to hear that you are so sick. I too am on folfiri and I get pretty sick for about three days, they give me a shot of atropine so I don't get the cramping and runs. But I too get constipated, I started taking a stool softener on Tuesday and Wednesday before my Thursday treatment and it seems to help. Hope you feel better!
Aloha
Donna

jjaj133's picture
jjaj133
Posts: 869
Joined: Mar 2011

Missed you, and glad you checked in. as for your side effects, so sorry you are having such a rough time. Hang on. prayers continue.
Hugs,
Judy

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

your mind is strong and your body too. if your body needs a hand, then you know what i have tried, it may help.

hugs,
pete

geotina's picture
geotina
Posts: 2122
Joined: Oct 2009

Love right back at you. My George is on the CPT-11 part of Folfori and I agree, it is much harder than the Folfox which he seemed to breeze thru. The odd part is it works, so just one day at a time.

Take care - Tina

ddpekks's picture
ddpekks
Posts: 162
Joined: Sep 2011

So good to see your face again:) I don't have much time now for the boards, but several times a day I click in to see if there is a post from you. You made my Monday! Sorry you are having such a time, but don't let go of that rope.

Hugs...
Deb

janie1
Posts: 753
Joined: Apr 2011

I hope some adjustments, like pre-meds can be done. I'm on about the same. Take good care!!!

coloCan
Posts: 1956
Joined: Oct 2009

ya take a lickin but keep on tickin.......steve

Kenny H.'s picture
Kenny H.
Posts: 503
Joined: Aug 2010

We all need breaks from this board from time to time. Just dont stay away to long.
Hoping for better results from your next scan.

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