The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Still here...

Buzzard
Buzzard CSN Member Posts: 3,043 Member
in Colorectal Cancer #1
Contemplated some bad stuff in reference to the Folfiri, this stuff is nasty to me, no diarrhea at all, exactly the opposite and thinking that is part of my issue, along with the never ending reflex gag when I smell anything cooking. I am tired and sick almost everyday due to nausea and just plain old sick as a dog...and tomorrow we start again...I get a CT then go to Vandy the 28th to see whats what...We started this with a baseline of 67. Thought it was lower but nope...Mentally, I am fine...heads on straight and all thoughts about all of this are gathered, I'll check back in later....Love ya all.....Buzz
Like Care
«1

Comments

  • ketziah35
    ketziah35 CSN Member Posts: 1,145
    #2
    Buzz,
    Sorry to see that you
    Buzz,

    Sorry to see that you are having such a hard time, but I am very happy to see you post.

    Ktz
    Like Care
  • Buckwirth
    Buckwirth CSN Member Posts: 1,258 Member
    #3
    Buzz,
    I don't remember what it is, but they add something to the mix to prevent the cramping that can be caused by Irinotecan. Whatever it is, it also causes constipation. With our ostomies, that can cause some painful elimination (square pegs and round holes kind of thing).

    Ask the infusion nurse about it, maybe they can back off the dosage a bit.

    Blake
    Like Care
  • laurettas
    laurettas CSN Member Posts: 372
    #4
    So wonderful to hear from you, Clift!
    Yea, this chemo stuff is no fun, is it? My husband has more of the opposite problems with Folfiri as well. He started trying to remember to take a stool softener the morning of his treatment. When he did, things seemed to go a little more smoothly!

    I don't know if it would help you, but for Jake, eating non-starchy foods all the time really helps with the nausea. For several days after his treatments, he would basically need to start the day with food going in his mouth. If we waited very long in the morning before he ate, the nausea would get ahead of him and he had a lot more trouble with it.

    Hope that your body gets a little more acclimated to this treatment and you begin tolerating a little better. It is miserable feeling sick all of the time.
    Like Care
  • pepebcn
    pepebcn CSN Member Posts: 6,331 Member
    #5
    laurettas said:

    So wonderful to hear from you, Clift!
    Yea, this chemo stuff is no fun, is it? My husband has more of the opposite problems with Folfiri as well. He started trying to remember to take a stool softener the morning of his treatment. When he did, things seemed to go a little more smoothly!

    I don't know if it would help you, but for Jake, eating non-starchy foods all the time really helps with the nausea. For several days after his treatments, he would basically need to start the day with food going in his mouth. If we waited very long in the morning before he ate, the nausea would get ahead of him and he had a lot more trouble with it.

    Hope that your body gets a little more acclimated to this treatment and you begin tolerating a little better. It is miserable feeling sick all of the time.

    Buzz my friend ,glad to see you posting again !
    I know this folfiri is a crap but works Buzz! just hang there , hope your docs find a solution to your issues!
    Keep you in my prayers!
    Like Care
  • Annabelle41415
    Annabelle41415 CSN Member Posts: 6,744 Member
    #6
    Welcome
    Welcome back to the board but sorry you still aren't feeling well. Wish they could give you something to help. Hope you feel better soon.

    Kim
    Like Care
  • tommycat
    tommycat CSN Member Posts: 790 Member
    #7
    You were one of the first
    You were one of the first people I found on this board when I dropped in from out of the sky in August...glad to see you are back---in rough shape it sounds---but back.
    It's good to "hear" your voice. You were missed.
    :)
    Like Care
  • Sundanceh
    Sundanceh CSN Member Posts: 4,392 Member
    #8
    Ol' Buddy
    We missed you in Chicago, Buzz.

    Folfiri busted me up just like it's doing to you...seems like you and I react the same way to it. I was sick like you all but 5-6 days of the month, so I know what a grind it is and how bad you're feeling.

    I think it was Blake who mentioned a drug to help the cramping - I believe that is ATROPINE. That's what I was taking.

    I'm glad you're mental outlook is good.

    Take care, buddy
    -Craig
    Like Care
  • pscott1
    pscott1 CSN Member Posts: 207 Member
    #9
    Buzz,
    I'm so sorry you're not feeling well but so glad you posted. I worry about you always! I pray things will start going easier for you the more treatments that go by. Take care of yourself and please keep us up on how you are progressing. Praying this will be effective treatment for you. You are always on my mind. Hang in there....
    Like Care
  • SisterSledge
    SisterSledge CSN Member Posts: 332 Member
    #10
    Good to see you, Buzz!
    <3 Keep on keepin' on! <3
    Janine
    Like Care
  • LivinginNH
    LivinginNH CSN Member Posts: 1,456 Member
    #11
    It's nice to see you back

    It's nice to see you back Buzz, we were all quite worried about you. Rick has the opposite problem, but it's still a balancing act between Miralax and Imodium. His suggestion - try drinking some apple cider before bedtime, it can help. Hugs, Cynthia
    Like Care
  • Fight for my love
    Fight for my love CSN Member Posts: 1,522 Member
    #12
    It's nice to see your
    It's nice to see your post.Hope for the best result from CT.Take care.
    Like Care
  • buckeye2
    buckeye2 CSN Member Posts: 428 Member
    #13
    Glad to have you back and
    Glad to have you back and praying for better days ahead. Lisa
    Like Care
  • christinecarl
    christinecarl CSN Member Posts: 544 Member
    #14
    It is good to hear from you.
    It is good to hear from you. I am sorry the chemo is causing such pain for you, I only hope it is doing what it needs to do and that the end justifies the means.

    I hope that the Drs can come up with some solutions for you.

    fcking cancer :(

    Take care,
    chris
    Like Care
  • buckeye2
    buckeye2 CSN Member Posts: 428 Member
    #15
    Double post
    Double post
    Like Care
  • karen40
    karen40 CSN Member Posts: 211 Member
    #16
    Buzz
    Seeing your face has just brought a smile to my mine.
    You've really been missed here. I hope things get better for you and soon.
    I'm keeping you in my prayers.
    Karen
    Like Care
  • johnnybegood
    johnnybegood CSN Member Posts: 1,117 Member
    #17
    karen40 said:

    Buzz
    Seeing your face has just brought a smile to my mine.
    You've really been missed here. I hope things get better for you and soon.
    I'm keeping you in my prayers.
    Karen

    i knew
    you would not let go of that rope.sorry you have been so sick..the oxy was bad on me in 2009.funny how we are all affected differently....Godbless....johnnybegood
    Like Care
  • tanstaafl
    tanstaafl CSN Member Posts: 1,312 Member
    #18
    ping
    Glad to see you up, Clift. Sounds like a rough ride on the -IRI railroad. Let us know...
    Like Care
  • Kathleen808
    Kathleen808 CSN Member Posts: 2,342 Member
    #19
    Clift
    Clift,
    It is always good to hear from you. Crap, that you are suffering so. I pray this round is a bit gentler. I hope and pray you get a break. You are a good man.

    Aloha,
    Kathleen
    Like Care
  • Brenda Bricco
    Brenda Bricco CSN Member Posts: 579 Member
    #20
    I think of you often Buzz...
    I think of you often Buzz... GOD bless you.
    Brenda
    Like Care
  • herdizziness
    herdizziness CSN Member Posts: 3,624 Member
    #21
    So sorry
    That it's affecting you that way, dang it. Glad to see your face though there buddy.
    Hoping it goes smoother. Thinking of you.
    Winter Marie
    Like Care

Discussion Boards