Hello again......I'm back ;)

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I've finaly done something I've been telling myself to do, for waaay too long. I first joined this group back in the summer of 08, after completing my treatment for stage four, base of tongue, squamus cell cancer. I kept in touch until the summer of 09, when low & behold, my computer was hit by a virus, followed quickly by my own bout with swine flu. I recovered, my computer didn't. I'm glad it wasn't the other way around! Anyhoo....My computer was replaced, and I eventually got my strength back. During the commotion of replacing my home computer, I lost track of my log-in and password. I've told myself to be content with just lurking, however I've felt guilty at times, knowing that perhaps sharing some of my experiences could help some of you. Those of you regulars that are constantly helping others deal with our "issues" have my humble gratitude. While I haven't contributed in a long time, I have been following pretty closely for the last 3 years. It hurts to see so many newcomers...but then I feel good that they have found such a wonderful source of support and information. I wish my dear husband would have known about this site during my treatment days. We made it through the rough times with the support of a wonderful loving family and a terrific team of doctors. All that said, I'll wrap this up with a quick summary of "me".
I was diagnosed on 9/21/07 at the age of 58. (non smoker/ very light drinker).I had no symptoms, other than a swollen lymph node on the left side of my neck. A doctor had felt it several times and felt it was "nothing to worry about". After more than six months, the same doctor asks me if I'm worried about the same swollen spot, and silly me say's "not really..you said not to." His response was "Well, now you should be". Within the week I had my diagnosis.
My treatment was like most here. Three rounds of Cisplatnin, and radiation from Oct 1st to around the middle of Dec.(twice on Fridays) They hit me hard, and a lot of that time I was hospitalised. Fortunatly the hospital and cancer center are about 15 minutes from our home.
In late January they did a disection on my left side, removing a lot of nodes. They all came back clear. Well over a month later, after a sudden onset of extreme pain, they diagnosed me with a massive staph infection, near the surgery site. They tell me today, my life was more at risk during the next month than it was during my chemo/radiation treatment. That was about another month of hospitalization. I am left with massive fibrosis, from ear to ear, although worse on the left side. No one seems to know if the infection had anything to do with it or not. Also...lots of swallowing issues that I deal with on a daily basis. I am back to work full time (love my job...but that's another post...this is already way too long!) Seems now that I've started....it's hard to stop ;)
I look forward adding my imput whenever I feel I can help, and I admit to looking forward to asking for some opinions on dealing with issues I have from time to time.
I will be going in for Cat's & scopes in a couple weeks. I plan to share all my good news with all of you!
Fondly,
Judy

Comments

  • hawk711
    hawk711 Member Posts: 566
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    HI Judy
    I joined in January 2010 and had the same diagnosis as you, only without surgery. I'm glad you're back posting. I too take some time off due to work and other time constraints, but I too come back and lurk here reading all the news...
    Again, glad you're back. I'll try to post mor often also to help the newbies. We all were a newbie once and we need to give back more often....
    all the best,
    Steve
  • Judy.2
    Judy.2 Member Posts: 21
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    hawk711 said:

    HI Judy
    I joined in January 2010 and had the same diagnosis as you, only without surgery. I'm glad you're back posting. I too take some time off due to work and other time constraints, but I too come back and lurk here reading all the news...
    Again, glad you're back. I'll try to post mor often also to help the newbies. We all were a newbie once and we need to give back more often....
    all the best,
    Steve

    Thanks, Steve,
    My biggest

    Thanks, Steve,
    My biggest issue at the moment is trying figure out how to get my picture to show up on my post. I somehow managed to get to show on the Expressions Gallery..but not here. I must be missing something......
  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member
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    Welcome Back
    Welcome back. Look forward to reading your posts.

    John
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
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    Judy.2 said:

    Thanks, Steve,
    My biggest

    Thanks, Steve,
    My biggest issue at the moment is trying figure out how to get my picture to show up on my post. I somehow managed to get to show on the Expressions Gallery..but not here. I must be missing something......

    Judy Judy Judy....
    As Gary Grant would say.....LOL

    You probably just need to REFRESH your brower ...

    But here's how you post your photo from scratch...;

    My CSN Space (upper left)
    edit
    picture
    Upload picture
    Browse: where uou have it the one saved you want to upload..also it must not be any bigger than 150 x 150 pixels.
    Submit

    Refresh your browser (tools on the Internet Explorer Tool Bar at the top...

    Glad to see you back and posting.

    Best,
    John
  • Judy.2
    Judy.2 Member Posts: 21
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    Skiffin16 said:

    Judy Judy Judy....
    As Gary Grant would say.....LOL

    You probably just need to REFRESH your brower ...

    But here's how you post your photo from scratch...;

    My CSN Space (upper left)
    edit
    picture
    Upload picture
    Browse: where uou have it the one saved you want to upload..also it must not be any bigger than 150 x 150 pixels.
    Submit

    Refresh your browser (tools on the Internet Explorer Tool Bar at the top...

    Glad to see you back and posting.

    Best,
    John

    Thanks Steve....
    Wish mine was as big as your's. Fish, that is ;)
    Judy
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
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    Judy.2 said:

    Thanks Steve....
    Wish mine was as big as your's. Fish, that is ;)
    Judy

    Steve, Cary or John
    LOL, I guess that should have been Cary not Gary, and John not Steve...LOL...

    JG
  • Judy.2
    Judy.2 Member Posts: 21
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    Skiffin16 said:

    Steve, Cary or John
    LOL, I guess that should have been Cary not Gary, and John not Steve...LOL...

    JG

    Too funny.....
    I'm so sorry, John.....
    And I didn't catch the Cary/Gary thing either. Yup....I've heard Judy,Judy,Judy a lot. Not as much, the older I get ;) Poor Steve...he's probably wondering why I wish I had something as big as his!! Now....is that a Grouper your holding? We don't see many of those in Wisconsin...but I think I ate one (or some) last time we were in Cozumel.
    Judy
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
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    Judy.2 said:

    Too funny.....
    I'm so sorry, John.....
    And I didn't catch the Cary/Gary thing either. Yup....I've heard Judy,Judy,Judy a lot. Not as much, the older I get ;) Poor Steve...he's probably wondering why I wish I had something as big as his!! Now....is that a Grouper your holding? We don't see many of those in Wisconsin...but I think I ate one (or some) last time we were in Cozumel.
    Judy

    Cary Grant
    I'm telling my age aren't I.....though just a little younger than you. I loved watching all of those Cary Grant movies as a kid...It's a shame that young people these days miss out on all of those old time movies, Cary Grant, Bing Crosby, Fred Estaire, Frank SInatra, Dean Martin, Jerry Lewis, Bogart, Edward G., Vincent Price, Peter Lorre...Gagney, and the old TV shows...Jackie Gleason, Red Skeleton..Art Linkletter....

    Anyways, back to the future...the one in my avatar is a Redfish... If you look in my expressions, or on my recent Gaggin post, that's a grouper, link below;

    John's 28" Grouper

    JG
  • Hondo
    Hondo Member Posts: 6,636 Member
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    Hi Judy
    I like so many others here just welcome you back home again

    ╠╣ONDO
  • Pam M
    Pam M Member Posts: 2,196
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    Hello
    Hi Judy,
    Another base of tongue cancer survivor, here. Glad you've returned "to the fold".
  • Hal61
    Hal61 Member Posts: 655
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    Welcome back
    Hi Judy, glad to have you're posting again. We have almost the same history. Swollen glands, SCC BOT, Cisplatin and radiation. Left side dissection after the treatments finished. I got lucky in one aspect though. My lymph gland on the left side of my neck became swollen. I looked ont he Internet and several places I read that if a lymph gland stays swollen over two weeks, see your doc. So, after two weeks I went to my MD. She felt my neck--it was nothing special just swolen lymph gland, not huge--and she said, see a specialist, and get it biopsied. She didn't give me antibiotics and send me home, and I know a lot of people here had that experience. I've always been grateful to her for that, and have told her so. I too still have problems from the treatment. Hope your fibrosis is getting better.

    best, Hal
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
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    Hal61 said:

    Welcome back
    Hi Judy, glad to have you're posting again. We have almost the same history. Swollen glands, SCC BOT, Cisplatin and radiation. Left side dissection after the treatments finished. I got lucky in one aspect though. My lymph gland on the left side of my neck became swollen. I looked ont he Internet and several places I read that if a lymph gland stays swollen over two weeks, see your doc. So, after two weeks I went to my MD. She felt my neck--it was nothing special just swolen lymph gland, not huge--and she said, see a specialist, and get it biopsied. She didn't give me antibiotics and send me home, and I know a lot of people here had that experience. I've always been grateful to her for that, and have told her so. I too still have problems from the treatment. Hope your fibrosis is getting better.

    best, Hal

    Ding Ding Ding....
    I was in that category you speak of Hal....

    My GP (since replaced), cost me nearly four months, playing around with anti-biotics, knowing I had been already having issues for nearly two months.

    JG