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going on a trip and upcoming tests- *update*

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Everybody, (update at bottom of this top post)

I'm just checking in and letting you all know that I will be gone on a trip from Oct 7-17th. Hubby and I are flying to Miami and going on a 5 day cruise with stops in Jamaica and Grand Caymen Island. When we return to Miami, we're renting a car and driving around Florida for a few days. I hope that I feel well enough- about 2/3 of the time lately, I've been feeling nauseated and have also had some pain again lately in the rectal area. No fun. I almost wonder if I have some kind of bacteria, as I don't know that the cancer itself would be causing such nausea even on my off chemo week, although when I was so bad back when I went to the hospital in June, they tested me for various bacterias & everything came out negative. So, I don't know what is causing this. I know what's causing pain, but I also feel sick to my stomach often even when there is no pain.

Tomorrow (Tuesday), I have chemo and my CEA will be drawn. It was last drawn 4 weeks ago. That's when I had good news that it had gone down 80 points in 4 weeks from 359 to 279. I hope and pray that tomorrow's CEA also shows it going down. I should know on Thursday.
My next PET scan is due the last week in October- my prior scan had been the beginning of July.

I'll be okay- even if I'm not feeling super great, I'm definitely looking forward to this trip and cruise!

Take care-
Lisa
----------------------------------------
Update on CEA:

I actually got my CEA results back a day sooner than I thought I would. My CEA gets tested every 4 weeks. It had been going up and up and a high two months ago of 359. Last month it made a wonderful drop of 80 points in 4 weeks. I attributed that to the fact that I had been slacking on my supplements and then in those four weeks I really stepped up taking everything & thought it was the supplements that helped with that 80 point drop. Well, I've continued on the supplements, but today I found out that my CEA this time has gone up 38 points since the 4 weeks earlier.
I just don't get it- I don't know if I have any control over the CEA or not. I don't know now if anything I've been doing or taking makes a real difference or not. I'm back to my down-up pattern that I had a few weeks ago. Then, it seemed to not matter what I did or took- it'd be down one time, up the next, down the next, etc. I guess I'll continue the supplements anyhow and see what happens next time. The scan will be last week of Oct.

Lilmiss82's picture
Lilmiss82
Posts: 257
Joined: Dec 2009

I did that same cruise for my honeymoon 4 years ago and loved it. The water in the Caymens is beautiful. Crystal clear. Enjoy yourself and forget about cancer. Maybe a destressing environment will help you feel better. Worry tends to make me sick to my stomach, maybe you too?? Keep us post and we'll miss you in the time being. To smooth sailing-Melissa

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Awesome! Have a great time my dear! Make sure you take the nausea meds with you just in case.

Love ya buddy, gail

ps....can I please stowaway in your suitcase?

smokeyjoe
Posts: 1428
Joined: Feb 2011

Have a wonderful trip, I loved the cruise we went on it was from Miami to Bahamas. Enjoy!!

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

You're kicking a$$ this year on your Vacation Touor, Lisa....you're off to another destination location:)

One day I hope to be able to travel as much as you've been able to do. It's great that you've been able to go see and do. I hope we'll be in a position to do just what you're doing one year if we continue to work hard.

It's a big deal just for me to get to Chicago, I got a super-saver flight with Southwest Airlines - they fly up to 2 bags "free." That should take care of me and Kim. LOL! LOL!

Well, enjoy yourself and best of luck with your tests and today's chemo.

-Craig

laurettas
Posts: 372
Joined: May 2011

Can't wait for the report when you get back.

luvmum
Posts: 457
Joined: Dec 2010

Have a wonderful holiday my dear friend and try to forget about everything when you are having fun on the cruise!

I hope the next chemo won't give you too much unpleasant experience and your CEA continue to drop!!!!!!!

love and hugs,
Dora

Annabelle41415's picture
Annabelle41415
Posts: 6652
Joined: Feb 2009

That sounds like a lot of fun. Just try and enjoy yourself as much as you can. Hope that you are feeling better though. Maybe just getting away for awhile will help you. Have fun.

Kim

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Praying for another drop on your CEA!
Hugs!

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

Who is taking care of that adorable little dog in your profile picture while you are gone? :)
Enjoy Lisa...and I look forward to hearing all about it over some coffee.
Big hugs~

mom_2_3
Posts: 965
Joined: Nov 2008

Lisa,

I hope you enjoy your trip and have a fantastic time! I pray that your CEA continues to trend down and that you get good news before you leave. Sounds like a second honeymoon!!

Amy

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Lisa,
I love that you and your husband are going on a cruise!!! Wonderful my friend. Relax and have fun. I will keep you in prayer during your cruise.

Aloha,
Kathleen

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Enjoy, enjoy, enjoy the cruise, hoping cancer gets to take a back seat for a little while for you so that you can do the activities you want to.
Winter Marie

buckeye2
Posts: 428
Joined: Jul 2011

Hoping your test results comeback good and that you have a great trip. The Caymens are a great place to snorkel. Lisa

buckeye2
Posts: 428
Joined: Jul 2011

Double post

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

update at top- bumpin up

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

Hi Lisa

I feel that sense of disappointment in your voice. I know it's discouraging for you. I've watched you do everything that you could possibly do to help yourself. I know you're in a rough spot and I know that you know that too. I've always admired your fortitude with how you've stepped up and handled your fight and given it all that you've got to give.

I've heard you mention on more than one occasion that you were 'desperate' and if it doesn't hurt, why not try it?

I think those words have stuck with me the most as I walk along with you on your journey. Often times, I've tried to put myself in your place to try and imagine how you must feel and what you are going through on a daily basis. What are the fears that you wear every day? How you tried to portray strength to your family and us here on the board. How you must feel at times that you just really want to say to everybody, "I'm scared."

I know somewhere deep down inside you that is how you must feel at times. And even though you talk about knowing where you will go, you have fought very hard to stay here:)

As veteran war horses, we know that there are folks who look to long term fighters to help show them the way - so it's hard sometimes to admit that we feel vulnerable and are not always as tough as we make out SOMETIMES. We set the bar too high and it can get very hard to reach on some days.

Somehow though, knowing you the way that I have come to, I sincerely doubt you would ever back down from anything in your life. I'd draft you on my team anyday and be proud to have you. You are a warrior.

I stand in awe at your longevity - yes, longevity as you're still here. I've gotten to know you alot over the last 28 months since I got here. I think you've done more living than I could ever hope to. And you've got a nice vacation coming up, that I have no doubt will help with a little healing for the soul.

Lisa, I wrote a bunch of other stuff and then changed my mind and deleted it. Would just cause a firestorm. Perhaps one day I will PM you what I was going to say. Right now, I don't want to detract away from you and your story.

I hope the CEA takes a nosedive for the end of month checkup. Until then, you got another great vacation coming - and there's nothing that cancer can do about it either.

Just best wishes!

-Craig and Big Billy

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Craig,

Thanks for your very heartfelt reply. You are most definitely a warrior as well- an example in kindness and leadership abilities to others (as well as a damn good author!) :)

I will keep up the fight & yes, I admit, I'm scared, but I'm not going to let that take the fight out of me!

I plan on enjoying this vacation- each time I take a new trip, I always wonder if this one will be my last, but I still have too many places to go see for that to be the case, lol! I know I have been blessed by being able to do as much traveling as I have done, though.

Hugs to you,
Lisa :)

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

Hi Lisa, I hope that you're feeling better soon so that you can forget about cancer for a while and simply enjoy your vacation. Warm weather, sand, sun and a beautiful vista - sounds like a prescription that every doctor should order! Best wishes, Cyn

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Thanks, Cyn, for the well wishes!

Lisa

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Sorry about that darn CEA Lisa.... I say pack for that wonderful trip and have a great time with your hubby. Splurge a little on the food when you feel like it and back off if you're just not wanting it. Rest some and enjoy A LOT!!

Love you buddy! gail

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Your reply made me smile. Thanks! :)

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

:))

marqimark's picture
marqimark
Posts: 242
Joined: Jun 2011

Take a vacation from the scans and CEAs and just enjoy your cruise.

Keep up the supplements. You shouldn't give up something that, while not perfect, might be helpful.

Hugs

Mark

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Then the next CEA count should be down.
I sincerely hope you can give cancer a vacation away from you while your on the cruise.
Enjoy it, and let us know how great it was, so we can enjoy it vicariously through you!!!
Thinking of you,
Winter Marie

buckeye2
Posts: 428
Joined: Jul 2011

The increase is probably very concerning but over the two months you are still at a decease so I wouldn't change a thing. Lisa

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

dear lisa,
don't forget your juicer and supplements. only joking sort of.
sorry to hear the cea edged higher, sometimes faith is all we got.
in god, each other, in ourselves and what we are trying.
keep the faith.
if all my supplements, meditation, tcm eytc etc exercise buys me an extra minute on this planet it will be worth it for me. now if its 2 minutes i'll throw a party and any more then i'll just smile.
hugs,
pete

laurettas
Posts: 372
Joined: May 2011

Have a wonderful trip and tell us all the details when you return so we can live vicariously for a bit! That darn CEA is a nuisance to you, isn't it, but I guess by now you know it doesn't mean too much. Going up isn't a sign of a negative trend for you, it sounds like, so that's good! Enjoy, enjoy your time away from home and "reality"!

sasjourney
Posts: 395
Joined: Jul 2010

Lisa,

I am so sorry about your CEA results, but maybe it will drop significantly at the next check. I really hope you have a wonderful trip with your husband and you are able to put cancer out of your mind and enjoy every second. I know it is not easy, but just pretend that you are completely cancer free and have the time of your life. You so deserve this!!!!

Look forward to hearing all about it!

Hugs,
Sara

janie1
Posts: 753
Joined: Apr 2011

Thanks for the update. IMO it seems you are doing very good things for your health....i just think the cea is confused. It makes sense to me. It's impossible though, not to be scared. I'm the biggest wimp of all times. Anyway, the trip will also do wonders. You and hubby will have a wonderful time. Way to go in making those plans!!

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