I just made a post so I guess I'm joining the crowd after learning lots from this forum the last four weeks. I had surgery for hlrcc (hereditary leiomyoma renal cell carcinoma) at NIH four weeks ago---it was an open partial nepherectomy and removal of my lymph nodes in the kidney area. I'm finding the recovery plenty hard and wondered how other's experiences have been. I am finally doing better but I just got off pain meds a week ago (I take one hydrocodone still at night) and still struggle with a lot of pain but mostly exhaustion. There's NO keeping me from lying down quite a few times a day. I have a very physical job (I'm a potter and gallery owner) and can't return to that right now at all tho it's our busiest season. Fortunately I have a husband who is going the extra 10 yards and beyond as we are self employed. I use tylenol and ice and heat to ease the backache etc.
I know I'm getting better and feel progress but sometimes I judge harshly my inability to walk long distances, drive or do the things some people seem to be able to do. I'm 59 and consider myself in good shape---took as good of care of myself as I could before and after the surgery. I eat a good diet and normally exercise routinely. I know, compared to other's stories I am very very lucky and will come out of this. We're thinking it really is going to be a while until I can return to the physical demands of my job (25 # boxes of clay, throwing at the wheel, etc etc.) for quite a while and would appreciate other's views of when they really began to feel their old selves. I know it'd different for everyone. Meanwhile, off for a nap with my kitty and book and hope I fall into a nice restful sleep.
Good luck to all-