Dissapointing News Today

mamacita5
mamacita5 Member Posts: 254
I have been having some lower back pain for a few weeks now. An xray showed nothing but some arthritis. My doctor had me go in for a bone scan today and before I was out of the hospital parking lot he called me to say that the area where I was having pain had "lit up" as well as two spots on my neck. He said he would schedule a bone biopsy of my spine immediately so the are can be tested to see if it mets from my NSCLC. I am just devastated as I have been feeling very well other than the lower back pain which actually is feeling much better now. He says if it is mets I will be starting Tarceva. I am usually pretty positive, but I am stomping my feet and throwing a bit of a fit right now. I am only 57 and have a whole lot of living I still want to do.
«13

Comments

  • grannylove
    grannylove Member Posts: 183
    So sorry Mamacita
    You have every right to be mad as heck! Go ahead and throw that tantrum, kick, scream, yell and cry! Then get tough as you have done before. I am praying that it is something other than mets. Keep that positive attitude that you have so often encouraged others with in their fight and struggles. You are a strong woman and can overcome this hurdle. You are right, you are a young woman and have a whole lotta living to do and you will do a whole lotta living. My daily prayers will be with you. Keep us posted on the results of the bone bio. Sending positive thoughts and hugs. Agape. Cheryl
  • z
    z Member Posts: 1,411 Member
    Mamacita
    So sorry for the results of the bone scan. I really don't know a lot about bone scans, but could inflammation light up also. I know that with pet scans the inflammation will surely light up. I am praying that it is just inflammation. If would happen to be a metasis, it must be very small, as we are always being scanned. Lori
  • lekkerone
    lekkerone Member Posts: 199
    Damn
    I am so sorry you got that news. Kick the walls (or the cat) and scream if that helps. Then get that fighting spirit in gear and beat the monster again. All the best and please keep us in the loop. You are in my prayers for sure. Diane
  • sissylu1
    sissylu1 Member Posts: 66
    so sorry
    I am so sorry to hear this news...I read this site more than I write on it and know that you have always been a wonderful source of positive support and encouragement for others including myself...you deserve to throw a pity party for yourself but after you do keep the good fight going strong-we are all pulling for you!
  • Dan620
    Dan620 Member Posts: 220
    sissylu1 said:

    so sorry
    I am so sorry to hear this news...I read this site more than I write on it and know that you have always been a wonderful source of positive support and encouragement for others including myself...you deserve to throw a pity party for yourself but after you do keep the good fight going strong-we are all pulling for you!

    Postive
    mamacita wishing you nothing but good news from bone scan, as z said hopefuly just inflammation. Stay postive. ...... Dan
  • Ex_Rock_n_Roller
    Ex_Rock_n_Roller Member Posts: 281
    That does just stink. Let me
    That does just stink. Let me take a back seat to nobody in wishing you well and hoping for the best possible outcome.
  • NayPaul
    NayPaul Member Posts: 230
    What stinky News!
    When we discovered my wife had bone mets, she went on zometa, then later xgeva. The zomaeta gave her flu like symptoms for 24-48 hours and was administered through her port. The xgeva is a shot, but much more expensive. BUT.... both have worked for quite a while.

    You still have a lot of living to do! :)
  • dennycee
    dennycee Member Posts: 842
    Similar Experience
    Had my back x-rayed due to pain. Turned out to be a compression fracture of the vertebrae. All the rads, chemo and steroids weaken those bones. MRI and ct's showed no cancer at that location. There really is more than one reason x-rays light up. I hope yours is one of the more benign reasons. With everyone else, I will think positive thoughts and strength your way. This is one messed up roller coaster ride we are on.
  • soccerfreaks
    soccerfreaks Member Posts: 2,788
    hope
    I'm not sure xrays light up as dennycee suggests, but his point is well taken. Scans can light up for reasons that have nothing to do with cancer, mamacita. At one time, I was diagnosed with as little as 10 months to live following a scan of my lungs that showed pervasive metastasis of SCC from my head/neck cancer. Fortunately, I was taking an antibiotic for cellulitis, and when they next scanned me, almost all of the lung "nodes" were gone: the antibiotic had also cleared up a lung infection that apparently lit up the night :). Their bad, my good.

    I am hopeful that something along the lines of what dennycee is suggesting is also responsible for your 'lights'.

    In any event you are in my thoughts.

    Take care,

    Joe
  • Glenna M
    Glenna M Member Posts: 1,576
    My heart is breaking....
    My heart breaks a little more each time I read of someone having a recurrence or mets or who are even concerned that this may be happening. I know how scary and disappointing this is, I was also feeling pretty good and was becoming more active when out of the blue my scans started to light up.

    I'm 57 also and want to be able to enjoy many more years with my family and friends so I am going to fight this with everything I've got and try to keep a positive attitude. For now you are right...scream, cry, throw things...whatever it takes to make you feel better and calm yourself down. I allowed myself one day for a pity party and then moved on to my fighting mode, hope you can do the same.

    You have always been such a wonderful support to me through all of this and I want you to know that I will be keeping you in my prayers each day. Praying this turns out to be anything but cancer.

    Stay strong,
    Glenna
  • mamacita5
    mamacita5 Member Posts: 254
    Glenna M said:

    My heart is breaking....
    My heart breaks a little more each time I read of someone having a recurrence or mets or who are even concerned that this may be happening. I know how scary and disappointing this is, I was also feeling pretty good and was becoming more active when out of the blue my scans started to light up.

    I'm 57 also and want to be able to enjoy many more years with my family and friends so I am going to fight this with everything I've got and try to keep a positive attitude. For now you are right...scream, cry, throw things...whatever it takes to make you feel better and calm yourself down. I allowed myself one day for a pity party and then moved on to my fighting mode, hope you can do the same.

    You have always been such a wonderful support to me through all of this and I want you to know that I will be keeping you in my prayers each day. Praying this turns out to be anything but cancer.

    Stay strong,
    Glenna

    Thank you Friends
    Thank you all for your positive words of encouragement. You are the ones who "really" know what I am feeling, how much this worries me, and the thoughts I am thinking when I cannot sleep.

    Okay, enough of that. I have "Grandparent's Day" and my grandchildren's school today and I am off to make some memories!
  • medi_2
    medi_2 Member Posts: 505
    mamacita5 said:

    Thank you Friends
    Thank you all for your positive words of encouragement. You are the ones who "really" know what I am feeling, how much this worries me, and the thoughts I am thinking when I cannot sleep.

    Okay, enough of that. I have "Grandparent's Day" and my grandchildren's school today and I am off to make some memories!

    Hey Girl!
    I'm thinking about you and sending good thoughts your way...You are one strong woman and you will beat anything that is thrown at you, I'm sure.
    Take care!
    Medi
  • smneider
    smneider Member Posts: 20
    So sorry to hear. My prayers
    So sorry to hear. My prayers are with you. It is just a lousy disease.
  • Hondo
    Hondo Member Posts: 6,636 Member
    Bad news
    It is always when we start to feel good stuff like this happens to pull you back down again. Through it all stay the fighter that you are and beat its azz again.

    Wishing you the best
    Hondo
  • The roar of the crowd
    The roar of the crowd....I could hear them all, routen for you.
    Yea its nerve racking so many questions why now, why me etc...like I tell Mom have your party that nobody wants to be a part of than get back on board with that go gettem attitude that you have and kick it if thats what it turns out to be!!
    Continue to stay positive...
  • stayingcalm
    stayingcalm Member Posts: 650
    Dear Mamacita,
    I hope for you that it isn't mets at all, that it's just a scan aberration or something!
    ♥ stayingcalm
  • kado4
    kado4 Member Posts: 80
    I am praying for you
    Hi mamacita5...I am sorry to hear about the spots on your neck...I dont write much about my dad stage 3nsclc, but you and ex rock n roller were some of the first people that responded to my questions. I have to say, don't loose hope.Lets wait for the biopsy and see what you have first.Remember,you are alive, and have all intentions of staying alive, emotions are strong right now...pray for strength and we know that in these times, we all must be patient and enduring...you have so much to live for.I pray that my dad's PET probably sometime in Octobe is NED.Believe me,I can understand you worry.We here at CNS pray for you and hope for favorable biopsy results...Sincerely, Kado.
  • mamacita5
    mamacita5 Member Posts: 254
    kado4 said:

    I am praying for you
    Hi mamacita5...I am sorry to hear about the spots on your neck...I dont write much about my dad stage 3nsclc, but you and ex rock n roller were some of the first people that responded to my questions. I have to say, don't loose hope.Lets wait for the biopsy and see what you have first.Remember,you are alive, and have all intentions of staying alive, emotions are strong right now...pray for strength and we know that in these times, we all must be patient and enduring...you have so much to live for.I pray that my dad's PET probably sometime in Octobe is NED.Believe me,I can understand you worry.We here at CNS pray for you and hope for favorable biopsy results...Sincerely, Kado.

    I received my biopsy results
    I received my biopsy results today...not good. I do have mets to my spine and since I am positive for the EGFR mutation I will be starting on 150mg of Tarceva. I am not sure what this means for me. I am not one to ask my doctor on my prognosis, but I do wonder how long I will have with my family. As my name denotes, I have 5 beautiful children I want to spend more time with, and a husband that I want to grow old with. I am feeling very sorry for myself right now. I wish Deb was here so I could "talk" over the whole Tarceva thing with. If anyone else out there can give some pointers in that area I would be grateful.
  • z
    z Member Posts: 1,411 Member
    mamacita5 said:

    I received my biopsy results
    I received my biopsy results today...not good. I do have mets to my spine and since I am positive for the EGFR mutation I will be starting on 150mg of Tarceva. I am not sure what this means for me. I am not one to ask my doctor on my prognosis, but I do wonder how long I will have with my family. As my name denotes, I have 5 beautiful children I want to spend more time with, and a husband that I want to grow old with. I am feeling very sorry for myself right now. I wish Deb was here so I could "talk" over the whole Tarceva thing with. If anyone else out there can give some pointers in that area I would be grateful.

    Mamacita
    Hello, I am sorry for the biopsy results. I don't know about Tarceva, but I do know I visit the Inspire web site and there are many long time Stage IV survivors that are very knowlegable. I hope that you will visit that site. Deb used to be on that site and thats why I went there. There are many survivors. I know I have read where patients will have radiation and zap the met out. I know I have also read where the Tarceva will make the mets dissapear. Please keep us updated. Lori
  • grannylove
    grannylove Member Posts: 183
    mamacita5 said:

    I received my biopsy results
    I received my biopsy results today...not good. I do have mets to my spine and since I am positive for the EGFR mutation I will be starting on 150mg of Tarceva. I am not sure what this means for me. I am not one to ask my doctor on my prognosis, but I do wonder how long I will have with my family. As my name denotes, I have 5 beautiful children I want to spend more time with, and a husband that I want to grow old with. I am feeling very sorry for myself right now. I wish Deb was here so I could "talk" over the whole Tarceva thing with. If anyone else out there can give some pointers in that area I would be grateful.

    Anita
    Breaks my heart to hear the results of your biopsy and I can only imagine what you are feeling. I am so very sorry you are going thru this. I don't know anything about the Tarceva except what others have posted but it appears to have very good results. I know your emotions are all over the place, and rightfully so. But I also know you are a strong individual who will never give in to this dreaded disease. You are a fighter Mamacita and I have faith that you can overcome this. You might be feeling down right now but with your optimistic and positive attitude, you won't be down for long. I am hoping that someone will post with some info on Tarceva for you, so you can have some idea of what to expect. I also go to the website LungLoveLink.org it seems to have alot of resources as well. Know you are in my prayers Mamacita. Stay strong! Agape
    Cheryl