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To eat..or not to eat...that is the question

pascall5
Posts: 25
Joined: Aug 2011

Hi everyone. Scheduled for first Oxaliplatin infusion and Xeloda tomorrow. Onc didn't tell me if I should eat prior to this. I get it mid morning. What do ya think?

Mary

Patteee's picture
Patteee
Posts: 950
Joined: Jul 2009

I always ate before infusion. Didn't seem to bother me at all.

pascall5
Posts: 25
Joined: Aug 2011

Thanks Patteee, appreciate your getting back to me. Take care.

karen40's picture
karen40
Posts: 211
Joined: Aug 2011

Hey Mary,
I am currently on the same regimen as you. I am 2 weeks into my 5th cycle of oxaliplatin and xeloda. I never had a problem eating before or even during my infusion. It is after my infusion that I have had a few problem with food and drink. One such problem is first bite syndrome. The first bite of anything sends a piercing pain to my jaw, but once I get passed the first bite, the problem ceases to exist. I also can not drink anything cold for at least ten days. It feels like swallowing broken glass. It was a challenge trying to figure out what fluids I could tolerate warm. I'm not a coffee or tea drinker. I did find hot cocoa to suffice.( I know it's summer - Ugh!) I also try to make sure that I am well hydrated before the infusion.
Stay Strong,
Karen

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

Not just sweets but something nutritional, like chocolate...J/K....I would however eat and then try some variations of drink. My taste in drinks changed so much...I use to drink coffee constantly, during treatment couldn't stand the smell...Try Sunkist Orange or Crangrape at ambient temps...sometimes sweet tea with lemon did it...every day was different but when something was not good, it was really really not good. There's usually nothing "middle of the road" during treatment........buzz

khl8
Posts: 810
Joined: Nov 2009

I actually packed a lunch and ate while I was being infused. And one day a week, an organization would come around with a sandwhich cart for all the patients.

pascall5
Posts: 25
Joined: Aug 2011

So, you feel okay during the infusion, enough to eat? I think I will pack a few snacky things to take with me and bottled water. Hope you're doing well...
Mary.

pascall5
Posts: 25
Joined: Aug 2011

Hey Buzz, Boy I'm sad to learn that I will lose my taste buds. I am a FOODIE. Love to cook and have travelled all over Europe on my belly. Hope it comes back when I'm done with the chemo. Will be dreaming of French cheese, crusty bread and a good glass of red wine! Any food that has settled well with you while on treatment? Take care..Mary

pascall5
Posts: 25
Joined: Aug 2011

Hi Karen, I am trying not to stress about tomorrow. I've heard about that "first bite" syndrome. So, only the cold drinks are unpleasant? I could drink berry or herbal teas, etc?
I have read a lot on this discussion board about staying hydrated and so I've been drinking plenty of water with a little cranberry juice for taste. How about nausea? Do you have a port? Facing the unknown has been terrible! How many cycles will you be having? I'm supposed to have 24 weeks over 8 cycles with a cycle = 3 weeks. Is it the same for you?

Mary

karen40's picture
karen40
Posts: 211
Joined: Aug 2011

Hey Mary,
I would not stress about tomorrow. I believe that you'll be fine. For me it was a day of discovery. Take it as it comes. You'll probably have sensitivity in your hand to cold. It's a very unusual feeling. Just go with the flow and don't freak out. I carried a list of side effects around with me, so as things popped up, I would check the list to see if it was a typical side effect or not. As for your question on cold drinks, I think for most, cold drinks are the only drinks that are unpleasant. I think I may be a little more sensitive than most. Room temperature fluids for me are even unpleasant. Today is day 10 since my last infusion and as I sit here and drink my room temperature water, it registers in mouth as cold. This probably won't be the case for you and don't think it is for most. If drinking teas are palatable for you than it sounds like the way to go.
My nausea did not kick in until after my 4th infusion. There is or at least seems to be a cumulative effect going on. The nausea has kicked me in the butt these last 2 times.(I also have a very low white blood cell count) The meds. don't seem to work for me. Eating crackers and junk food all day tends to keep the nausea at bay but I can't recommend that. I do have a port. I just pretend it's not there until I need to use it. I am on a 8 cycle course of treatment. (8 cycles * 3weeks = 24 weeks) The exact same as you. If I can help in any other way, let me know. I'll do my best to answer any of your questions but just to be clear I'm not a doctor or even close to it. I'm just speaking from my own experience. Stay Strong, Karen

ketziah35
Posts: 1154
Joined: Jun 2010

That is why I never put a pic on my avatar or give information about me. I can't vent if it is not anonymous.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

Often poached eggs, spinach, tomatoes, mushrooms and a veg juice.
But I was well during my folfoxchem excet for diarrhea. I views it as the last time my body would get good nutrients as the chemo damages our stomach linings.
Hugs,
Pete
Ps I hope you feel well, goodluck

Annabelle41415's picture
Annabelle41415
Posts: 6212
Joined: Feb 2009

I've never eaten in the morning so I'd never eat before treatment, but it's best if you have something. Hope your treatment goes well tomorrow.

Kim

pascall5
Posts: 25
Joined: Aug 2011

Thanks everyone. Appreciate your advice and good wishes. Let the games begin!
Love to ya's.
Mary

k1
Posts: 220
Joined: Dec 2009

My doctor actually told me to pack a lunch for my first chemo. That seemed like such a weird idea. I was dreading it as much as you were. I only took some pretzels and nuts and a piece of hard candy last Friday, but next time I will actually listen to the advice and pack a sandwich. I understand now that I won't feel like eating much afterward so that is why it makes sense to eat substantially beforehand. I bought myself a very cute lunchbag for the next round to help me get motivated.

K1

maglets's picture
maglets
Posts: 2589
Joined: Jun 2006

I ate before and had hubby go for sandwiches during infusion.....eat eat eat

helped me with nausea....

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