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Hi...new member

ginnimp
Posts: 9
Joined: Aug 2011

Hello All….

New to this forum but have been reading your entries for the last few days...ya'll are inspirational, informative and funny! I was diagnosed with Stage 4 colon cancer in January of this year, had surgery to remove cancerous polyp along with lymph nodes, and have been on chemo since March. I’m down to my last 2 out of 12…yay.

Here’s one for ya’ll….don’t have nausea or diarrhea from the chemo but terrible bouts of trapped gas! Anyone else experiencing this? I’ve tried all the OTC’s but nothing seems to work; it’s primarily at night when I’m trying to sleep. Any suggestions for remedies?

Buckwirth's picture
Buckwirth
Posts: 1272
Joined: Jun 2010

Welcome to the club no one wants to belong to!

What chemo regimen are you on this time? Folfox? Folfiri? Are you getting Avastin?

Was your tumor genetically tested for the KRAS mutation?

Sorry for all the questions, but knowing a bit of this will help in the long run.

Yours,

Blake

ginnimp
Posts: 9
Joined: Aug 2011

Hi Blake

I'll have to ask my onc about the KRAS mutation issue...not familiar with it.

I'm currently on eloxatin/leucovorin cocktail with fluorouracil pump for 48 hours. My chemo sessions are every other wednesday, but I had to delay #10 for a week because my platelet count was too low.

Don't mind the questions at all...the more info the better.

Thanks,

Ginni

Buckwirth's picture
Buckwirth
Posts: 1272
Joined: Jun 2010

Where are you located? Some answers are country/state dependent.

ginnimp
Posts: 9
Joined: Aug 2011

Hi Blake

I'm in Mississippi

buckeye2
Posts: 428
Joined: Jul 2011

Welcome. I am also a recent member and have learned more from this discussion board than any other place. I feel empowered with this information. Lisa

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hello and welcome to the board.
Sounds like you're on Folfox. No fun with the neuropathy. Hopefully you aren't having too bad of a time with it. Taking alpha lipoic acid and vitamin B-6 helps with the neuropathy. Also having the onc nurse give you a magnesium/calcium combo in your infusion is also supposed to help.

Something I discovered within the past few months that is greatly helping me with my red blood cell count and my platelets is to take spirulina and chlorella. My onc okay'd them and has been amazed that ever since I started on them, my platelet count has been smack in the middle of the normal range & I was really having problems with them being too low before I started this. He response recently was, "Well, whatever you're doing seems to be helping, so keep it up". I am!

So far as the gas, I wish I could help you on that one- that gets me too. I do take simethicone (anti gas pills) when that happens. It doesn't get rid of the gas problem, but allows to escape instead of being trapped.

Take care & glad to "meet" you!

Lisa

ginnimp
Posts: 9
Joined: Aug 2011

Hi Lisa

Thanks a bunch for all the info you provided, especially about the neuropathy. The tingling in my finger tips and my toes started going to pain after my 8th chemo.

....glad to "meet" you too!

Ginni

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Okay, here's a remedy that might work for you. Get on your hands and knees, stretch your hands straight out past your head, resting your chest on the floor or bed keep your knees bent and your butt in the air. This will often release the trapped air, as it naturally forces it out.
Hope this helps.
Winter Marie

Buckwirth's picture
Buckwirth
Posts: 1272
Joined: Jun 2010

What Marie refers to is a yoga position referred to as Childs Pose

According to my wife, it is well known for producing embarrassing moments in yoga classes. :smile:

yoga
Posts: 87
Joined: Feb 2011

Sorry you have to be on this board, but welcome! I too was diagnosed with stage 4 CC (in July 2010). I have had gas problems all along, sometimes it can be quite embarassing when relief finally happens. Quite like the idea of trying the Child's Pose! I know that it sometimes causes me (or those around me) problems during yoga so maybe it would be good to try at other times as well. I often find that getting up and moving helps with this gas problem - going for a brisk walk in the evening often gets things cleared up before bedtime. Warm hugs being sent to you.

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

I've never been near a yoga mat in my life, but apparently I know YOGA!!! LMAO.
Glad Blake could refer you to the right picture for positioning. It will help I'm sure.
Winter Marie

Kimo Sabe's picture
Kimo Sabe
Posts: 64
Joined: Aug 2011

I too am a newbie. Please allow me to introduce myself.

I am a family man and we will be married 40 years next week. I am starting my fourth three week round of XELOX (Oxaliplantin and Capacetabine) for stage IIIB   colon (cecal) cancer. 

Until the last couple of weeks I had not really done much reading or research or any other investigation. I just thought cancer was cancer, and especially adenocarcinoma of the colon which is 95% of a very common cancer. Duh, I don't have to tell you how wrong I was.

I have learned that everybody is different including the issues mentioned in the question above. My Xeloda is harsh, but I am making it. I do experience symptoms and they go beyond annoying. 

I could say more but perhaps I should do that in a separate posting. I am wondering if there are instructions somewhere on using this board. And also what is our place to put more personal information. Why do people use aliases? Does it keep the snake oil vendors away?  I have a website about health care, but I wonder if I should link to it? Is that a reckless thing to do?

I do like my name on the site because Kimo Sabe means trusted friend as some of you might remember. Also as I'm on chemotherapy and I speak Spanish, you probably  know what that means. 

I find this site to be quite full and rich with information and kindness. Any suggestions are greatly appreciated. In the words of Arnie, " I'll be back", on this board and in life.

So, Kimo Sabe, Ciao.

Kimo Sabe

keystone's picture
keystone
Posts: 134
Joined: Dec 2010

Yes you can put more about your diagnoses/treatment on this forum. If you look at the top of the page it will say "Welcome Kimo Sabe" go to the right of this and click on the about me. I wish more people would put in this info so we all know how their story started and how they are dealing with this disease. Stephanie

Kimo Sabe's picture
Kimo Sabe
Posts: 64
Joined: Aug 2011

Thank you for your response. I've had a chance since my first post to drill into the site a little bit and get a better sense of what it is about.

I will get more information up as you suggested. I feel comfortably oriented at this time.

FYI I am on round four of chemo for stage IIIB colon cancer.

Norm

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