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CEA........***UPDATED TODAY_07/23,2011***

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

Bloodwork done last Thursday got results Friday...CEA up to 7.4.....CT Scan this week as soon as it gets scheduled she is having it overnighted to see whats up...Last bloodwork 3 months ago was 1.4...Scan 3 months ago as you know showed nothing unusual so praying for nothing but CEA for me is usually on track with activity.....Has anyone ever told ya that this disease sucks ?....
Well I will know later on this week whats going on so I will let you in on whats what when I know details.....til then those that pray.....keep a knee bent, I sure can use some good news for a change...other than that all is well.......love to all.......buzz

*********************UPDATE************************

Well, don't know exactly....its good news to me for now and I take all I can get... CT Scan on Monday 18th, got the results back Thursday 21st.***scan showed nothing...no change...notta !!! Gotta love that...now, we are going to redo the Blood draw this Thursday at 10 am...If the CEA is still up we have already scheduled a PET scan to be done at 1 pm....If CEA is back down then I will be coming home right after blood draw and PET scan will be cancelled.....and all will be well again......The way I see it is that it could be simply a rise due to other issues, or it could be something microscopic or in a node getting frisky or something else....best case scenario is CEA back down...If it is microscopic I think the PET will show what needs to be done...In my opinion if the is anything at all maybe minor (if there is such a thing as minor surgery) or maintenance chemo..But, as of now, Im going for a complete rogue spike in CEA and nothing more...whatever else is involved, I'll deal with it when the time comes.....for now though, I got a duck blind to get built....and I am 100% retiring January 2nd, 2012........thanks for all words of kindness prayers and well wishes...They sure go a long way in keeping ones mind in check and gives us plenty of reason to lower the head and just keep plowing through.......love to all......buzz

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

It does suk, Buzz. 'Cause you can never be sure if the path you have chose is the correct one or not.

I often think of the paths that each of us has had to take. It cost me a year of my life to pick up with treatments after surgery but I had detectable cancer cells present. Yours were clear margins after removal, so when thinking of you, I'm pretty sure I might have chosen the path you took and not take the chemo, especially after the chemo post I wrote after talking to my onc.

The rise has got my attention and I know it has yours too. I'll be one of the many hoping that all will be ok, but will still be there with you if things change course.

-Craig

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Clift,

Yes, this disease sure does suck big time! I will be praying that the CT scan will show things normal and that the CEA rise is just due to some other reason not having to do with the cancer. If there is actually something going on in you, then I pray the CT scan will clearly show what is there (but I'm praying it will be nothing).
Know that you're being thought of and prayed for...

Hugs,
Lisa

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Keep a knee bent huh????? John23 must be rubbing off on me cause I was not thinking right..... I will keep u in my prayers tho...as always.

CEA can creep up for a number of reasons...as u know. My Onc was not concerned until it got over 10. He said then everything BUT recurrance could be ruled out. I am like you as far as CEA being a good marker. Mine has always proved to be something going on when it went up.

Anyway.... I'm looking forward to drinking a brew with you at CP9.... so this will be just another "screw u cancer" taost at the party!!!!! Cheers!

Jennie

rogina2336
Posts: 188
Joined: Apr 2011

Hoping and Praying for you. Kim

PhillieG's picture
PhillieG
Posts: 4907
Joined: May 2005

but not today. Yes, cancer sucks hard in soft places as they say...
I hear you with the CEA, it's not always an accurate guide but mine often is a sign of something although the past year it's been up and down a bit (2-4 full points) for no apparent reason. Hopefully Buzz, that is the same for you with this change in CEA.
I'm pulling for you...
-phil

thingy45's picture
thingy45
Posts: 633
Joined: Apr 2011

HEY Buzz,
Chin up, I keep you in my prayers als allways, ir hopefully is just an OFF day on the CEA count. Positive thinking is part of the battle, walking or swimming is another part.And the third most important part is laughter, I watch often the old Lucille Ball Shows, she can make me laugh anytime.
My knees are bent and my fingers intertwined and a strong word for you went upstairs.
Remember you never walk alone, we are all walking with you.
Hugs, Marjan

sasjourney
Posts: 395
Joined: Jul 2010

Hi Buzz,

I am only thinking positive thoughts and praying for this to be nothing. It will be fine. Stay strong my friend.

Hugs,
Sara

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Get my best vibes from here!.
Hugs!

wolfen's picture
wolfen
Posts: 1325
Joined: Apr 2009

Really don't like to hear this. Hopefully, this is just a reaction to the many stresses you have in your life right now. You are my friend and a "rock" to so many here. Please share the results with us as soon as you know.

Luv,

Wolfen

dorookie
Posts: 1736
Joined: Jul 2007

my prayers like I always do buddy....Try to stay positive, keep your faith...

Love ya
Beth

Annabelle41415's picture
Annabelle41415
Posts: 6470
Joined: Feb 2009

You are in my prayers that CEA is just a bad test result and CT scan comes out great.

Kim

Fight for my love
Posts: 1530
Joined: Jun 2009

Buzz,you are in my prayers.

Jane822's picture
Jane822
Posts: 50
Joined: May 2010

Sending good thoughts and prayers ....... we can never let our guard down.

tesslee's picture
tesslee
Posts: 97
Joined: Apr 2010

that all is well.

ron50's picture
ron50
Posts: 1729
Joined: Nov 2001

Best of luck with the scan mate. If there is a poitive I guess it is that your cea acts as an early warning system. Even at my worst mine never got over 2.8.
I had tests done on kidneys last week .Protein loss has been steady under 400 mg per day for 18 mos. Suddenly it has gone up to 1500 mg so I am looking at a kidney biopsy next week. Not my favourite test. It's not ca but whatever it is it looks like I am out of remission too. My thoughts are with you ,Ron.

ketziah35
Posts: 1154
Joined: Jun 2010

Praying for you!

janie1
Posts: 753
Joined: Apr 2011

Currently on bended-knee. That seems to be a frequent, but beneficial position i've been in lately, praying for all those here fighting this sucky battle. Hope all will be just fine.

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Buzz,
You're in my thoughts and prayers my friend.

Aloha,
Kathleen

Erinb
Posts: 295
Joined: Apr 2010

Hi Clift,
ERRR! You all go through so much. It weighs heavy on my heart. I keep you in my prayers & will be thinking about you.
Erin

luvmum
Posts: 457
Joined: Dec 2010

Dear buzz,

I will be praying for you too. You are such a strong person and have been through so much! Please take good care of yourself and stay positive!

Best wishes and hugs
Dora

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Get off your knee, your too d@mn stubborn to have a worry.
Love at you hon,
Winter Marie

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

you in my prayers and in my heart.just think positive...Godbless....johnnybegood

tanstaafl's picture
tanstaafl
Posts: 1292
Joined: Oct 2010

and prepare for worse is what we did at this point. Focusing on obliteration or excision, preparation was a life saver. Allowed us to pick up dropped balls and add cheat codes.

We tight space the blood and biomarker data, 21-30 days if "normal", 10-17 days if there are any questions on progress or treatment changes, also dependent on expected response times for a particular change. We've been stepping up the immunochemo series ever since and are starting to hit full throttle on some items.

Wife feels great, no chemo sick days, just took a short overseas trip with the kids. Had forgotten about the second surgery as a twinge or limitation in less than 6 weeks after the second major surgery for the missed para aortic nodes.

Best wishes.

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

I am coming to grips that this may be "the" battle that will be one of the hardest fights...I feel and sense whats going on and think I know what I am up against...I am just starting to look at options...Somehow, my sixth sense is telling me that I really need to get prepared for this one.....not sure how, but am getting my game face on for whatever it is to run full force into it hoping to come out not much worse for wear on the other end...I have to redirect my thinking and know that my kids will be ok ...as long as I am confident that they will in time be ok then I will be fine. I am not in the field academically to where I can diagnose or medically induce, intervene or interpret what may or may not help me physically, but I am capable of mentally establishing a point to where as long as I have my family in a state of stability and know that whereever I land in all of this that in time they will financially and physically / mentally be ok then I can find a void to place myself in to where if it turns out to be a major catastrophe it just is what it is and myself, not afraid to die...but to have that mindset I have to be mad at my attacker, then I address the situation that if I die, it does too...so it doesn't win, it never will, not with me.
Yeah, I know...kind of a weird way to view it all..but this disease makes you do a lot of things that we normally wouldn't do so if it works for us then thats what should be done.
Still awaiting the call from Imagery Clinic to get a date set for CT scan then we will see ( with the help and opinions from all of you) what my next move will be, and where.......
Be patient with me...Im slowly getting the paint on...I will be ready when the time comes.......buzz

lesvanb's picture
lesvanb
Posts: 911
Joined: May 2008

and waiting with you as everything unfolds.

all the best, Leslie

christinecarl's picture
christinecarl
Posts: 545
Joined: Sep 2009

I am sorry to hear the CEA is up, it must be nothing, because you promised me a lot more years and I am going to hold you to it.

pamness
Posts: 513
Joined: Nov 2007

I haven't been on the board in quite some time. My CEA has fluctuated and CT scans have shown no problem. I am currently 4 years out of treatment. I pray that your CEA will be a one time thing. Mine goes up and down with no particular pattern. Yes the disease sucks. All the best.

Pam

pscott1
Posts: 207
Joined: Jan 2011

Buzz,
Whenever I get on the board I look for your name first. I think of you often and pray that everything is going well with you. Remember; I told you just a couple of months ago that my CEA was at 337; I found out yesterday it is down to 2.9. Yet, I have 30 lesions in my liver (mets from the colon cancer). They do say the lesions are shrinking and there aren't any new ones. It still is just a scary thing having that many tumors existing inside of you not knowing quite how this will all end. I will be praying for you my friend and believing that the CT scan will be clear. You are a wonderful, strong person Buzz and your strength has kept me going since my diagnosis. Hang in there and know that all of us are pulling for you. Let us know as soon as you hear something!

Hugs,

Pam

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Oh, dear.

I just hate to read this post! Praying that it's just not anything at all to worry about, but I know you're going to be on high alert until you really know what you're dealing with. I know you can handle it, and I'm not surprised to read your comments that you just want to make sure your kids are okay.

Please let us know when you find out. I'll be praying you have good news for us!

*hugs*
Gail

aggie0053's picture
aggie0053
Posts: 110
Joined: Mar 2011

only talked one time but it only takes once to know your a friend, prayers are with you buddy

aggie0053's picture
aggie0053
Posts: 110
Joined: Mar 2011

only talked one time but it only takes once to know your a friend, prayers are with you buddy

aggie0053's picture
aggie0053
Posts: 110
Joined: Mar 2011

only talked one time but it only takes once to know your a friend, prayers are with you buddy

aggie0053's picture
aggie0053
Posts: 110
Joined: Mar 2011

only talked one time but it only takes once to know your a friend, prayers are with you buddy

aggie0053's picture
aggie0053
Posts: 110
Joined: Mar 2011

only talked one time but it only takes once to know your a friend, prayers are with you buddy

aggie0053's picture
aggie0053
Posts: 110
Joined: Mar 2011

only talked one time but it only takes once to know your a friend, prayers are with you buddy

Vickilg's picture
Vickilg
Posts: 281
Joined: Jan 2011

Hi, Buzz... I wish you only the best. I have not been on here for a while and was sad to see your post but have faith. Based on the comments, what I gather is that you had the cancer cut out and then did not do post chemo therapy. Is that true? How long have you been cancer free?

TMac52's picture
TMac52
Posts: 358
Joined: Aug 2010

I have not been on here much either (Vickilg good to see you) Buzz sorry to read this post a lot of people have helped me here this past year but none as much as you have. You ask for prayer? you got it!! you need anything else just say the word no matter what it is.
I love you man!!!
Tom

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

Vickilg......I had the tumor removed and there were no nodes involved and all clear margins, there was nothing in my blood draws sighting anything was rogue so the post op chemo to me wasn't necessary because it was like it was a one shot thing that could have been dormant and simply decided to come alive..It could have just as easily not...I opted not to do any type of post op chemo and the Onc agreed, there was actually nothing to try and irradicate at that time and in my opinion it was a regimen that I could pass on...I am still glad I passed on it...I am just trying to juggle the lesser of two evils and try to determine which is more likely to cause more harm...
"kinda like having to choose whether to take a bite out of a possum or a skunk".....Im not gonna like either one, but one is what I had to choose.......Im not looking at quantity anymore.....quality now....I have close to all my ducks in a row, now I will give it a good ole fashion butt kickin' and move on again.....and it is good to see you Vicki.....

PhillieG's picture
PhillieG
Posts: 4907
Joined: May 2005

If it's between a opossum, a skunk, or a duck, I'd go for quality and have the duck.
I agree that quality counts more than quantity. Here's hoping you have quantity and quality Buzz...
-phil

AncientTiger's picture
AncientTiger
Posts: 130
Joined: Mar 2011

I would recommend telling the possum the skunk slept with his wife, let the possum eat the skunk, then eat the possum a day later.

But, being the hillbilly that I am, I'd probably say kill 'em both, mix em up and deep fry 'em.

Hoping you don't have to eat EITHER of them Buzz, and it was something else that made the marker jigg wildly for some reason.

fedester
Posts: 757
Joined: Jul 2004

all the best to you.
never,ever give up!!
be well
bruce

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

My CEA has always been a good indicator. I know it isn't for everyone. There still is a chance that something eles is causing the elevation.

I'm glad you are having a scan to find out what is going on. Hoping for good results for you.

Paula G.'s picture
Paula G.
Posts: 596
Joined: Apr 2009

Hi Buzzard. I don't post at all anymore and really don't look much since John (JR) passed away. I had to respond to this one and if you have anymore info please share. I am wishing you the best. Love to all you old timers and newbies. Paula

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

dear buzz,

next time i am at church with bent knee i'll pray for you.
going to my sons kindy class mass in a few days.

hugs,

pete

dorookie
Posts: 1736
Joined: Jul 2007

Do you have a date for the test yet?

Just checking in..

HUGS
Beth

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

Thanks everyone......buzz

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Praying for same good results on CEA!.
Hugs my friend!

JDuke's picture
JDuke
Posts: 443
Joined: Nov 2009

I don't post much on the CRC board anymore but I have been anxiously awaiting your update post. I can assure you that this wonderful news has made my day! I am so releived that rising CEA is all that seems of concern. I will be praying that it was just a fluke.
Hugs,
Joanne

christinecarl's picture
christinecarl
Posts: 545
Joined: Sep 2009

That is GREAT, I hope the followup shows it to be nothing!!!!!!!ds

Patteee's picture
Patteee
Posts: 950
Joined: Jul 2009

no matter what, you are on this!

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