Jul 06, 2011 - 1:25 pm
My son David apparently had a seizure in his sleep on July 2/3. He doesn't remember it but he woke up in the middle of the night with a chunk bitten out of the side of his tongue--a big chunk. There were some other indications that it was a seizure too. He called his dr and spoke with the resident on call and the resident told him that he would go over David's last MRI and make sure that they hadn't missed anything--that made us feel pretty uneasy. He also told David to call the office on Tuesday. They couldn't schedule an MRI right now and David has an appt for his regular 3 month MRI on 7/14, so we are going to wait and see what that MRI shows. That really amps up the usual stress level that we endure for his MRIs....
His neuro-oncologist is referring him to another doctor--a neurologist who specializes in seizures. That dr is booked up and it will be "a while" before David can see him. In the meantime, his neuro-oncologist prescribed Keppra. I read up on it and I didn't like the user feedback...major issues with moodiness, personality changes, suicidal thoughts, extreme fatigue, leg pains....etc etc.
Can those of you who take Keppra tell me what your experience has been like? David is reluctant to take another drug with unpleasant side effects. I am also concerned that his dr. prescribed it over the phone and did not even mention any of the side effects. Are they so rare that they don't rate mentioning?
Any input will be very much appreciated...also, any information or experiences about seizures would be helpful too. I'm in totally unknown waters now and I don't even know the right questions to ask.
Love and blessings,