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Stage 4 Survivors

lagwag's picture
lagwag
Posts: 76
Joined: Jan 2011

Just looking for those who wish to share being a Stage 4 Survivor.

Having a down day.

Thanks -

dmdwins
Posts: 453
Joined: Aug 2008

Sorry to hear that you are havin a down day :(. I was diagnosed Stage 4 in october 2007. I just had my CT scan last week and I am still No Evidence of Disease! Wishing you hope and healing.

Smiles,
Dawn

dmdwins
Posts: 453
Joined: Aug 2008

Sorry to hear that you are havin a down day :(. I was diagnosed Stage 4 in october 2007. I just had my CT scan last week and I am still No Evidence of Disease! Wishing you hope and healing.

Smiles,
Dawn

janie1
Posts: 753
Joined: Apr 2011

I like good stories, also. Not sure if you are in the U.S., but tonight(6/13)on TV there will be a Republican debate (i know, no politics here), HOWEVER, one of the candidates, Herman Cain, is 7 years out from being dx'd Stage 4. He is a bundle of energy, one of my heroes. He wants to lead a country.....I'm just trying to get back to my small life. Inspiration is sooooo good.

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

this thing soon, we can! Hugs!.

pluckey's picture
pluckey
Posts: 484
Joined: Jul 2009

I had plenty of those, during and after!

I was already pretty sick by the time I got DX'd in March 2009. CEA 1600

During the next 12 months I had an ileostomy, colon tumor resection, 9 tumors on my liver, weekly chemo, several hospitilizations due to dehydration, malnutrition, blockages, feeding tubes, anorexia, infected Port, then, finally, thru a series of research and moments of clarity and connections and miracles, one year after diagnosis, I went to Sloan Kettering in NYC and had 8 of the 9 tumors on my liver removed.

Today, I am one year past my final chemo treatments. 2.5 years post DX. All my hair is back. Except for my Portable catheter, you'd never know I had a 5-month Expiration Date on my head.

I went for a port flush last month and the nurse recognized my name and was flabbergasted I was still amonth the living.

Miracles HAPPEN; There are sooooo many people here that have gone from darkness to light with this awful disease.

I wish for you all that you need to have this be your story as well.

((hugs))

Peggy

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

more often we think,........but also with a little help of doctors and modern medicine! LOL..
Hugs!

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Chemo toke care of it? hugs!

pluckey's picture
pluckey
Posts: 484
Joined: Jul 2009

it's sitting on the hepatic artery so it was ablated and is nice a dried up, not active per Scan!

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Your story gives my heart hope! Thank you for sharing that it IS possible for some to beat stage IV cancer!!

Lisa
(who is still in active treatment at stage IV, dx in Aug. 2007)

atrue
Posts: 29
Joined: Jul 2010

hi i am one year free of the BEAST....i am looking forward to many more. my prayers go out to all who are still fighting...keep smiling it makes you feel better

atrue
Posts: 29
Joined: Jul 2010

hi i am one year free of the BEAST....i am looking forward to many more. my prayers go out to all who are still fighting...keep smiling it makes you feel better

lesvanb's picture
lesvanb
Posts: 911
Joined: May 2008

and doing well, really. Not in tx; working; working out and losing weight slowly but surely, enjoying spring/summer. And waiting on my PET/CT Thurs.; and though I take each day at a time, sometimes the baggage weight I choose to pick up makes the days harder.

lots of love, Leslie

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

I miss you, praying for good PET!
Take Care!

jjaj133's picture
jjaj133
Posts: 869
Joined: Mar 2011

I am sending you a hug. I just had my 2nd resection of the liver and will find out the 22nd if i have to do chemo again. So i am feeling a bit down myself. However, it is ok. we have to let out our fears every once in awhile. I bet you spend a lot of energy protecting your love ones . Putting on a happy face.
Tomorrow will be better. we are going to fight tooth and nail to beat this thing. It ain't gonna be easy, but it will be worth it. Hold tight my dear,take my cyber hand, we will all do this together.
Prayers and hugs coming your way.
Judy

PamPam2's picture
PamPam2
Posts: 376
Joined: Jan 2009

Hi
I went for emergency surgery in Aug 2004, so coming up on 7 yr since. Had total blockage due to tumor that grew through intestinal wall and engulfed overy, lymph nodes positive. Had lesions on liver that have been shrinking/dissapearing on their own, for whatever reason. Did 7 out of 12 chemo treatments, and surgery to remove tumor, half of colon, total hysterectomy, appendix, and lymph nodes. Still hanging in there!
Pam

marqimark's picture
marqimark
Posts: 242
Joined: Jun 2011

I only had 3c and I wouldn't know where to start counting the survivor timeline. Dx (3/10)or end of chemo (10/10).

Anyway --- HUGS to you.

Mark

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Dx Nov 2008, with 4 liver lesions. Liver resection, April 2009. NED since. hang in there! Believe!

coloCan
Posts: 1956
Joined: Oct 2009

or so I've been lead to believe, which stands to reason......its confirmed you got it and you're still around........steve

luvmum
Posts: 457
Joined: Dec 2010

Dear all,

I'm so glad to see all your post here, they give me hope and light up my day.

You are all my inspirations!
Love and hugs to all of you.
Dora

daBeachBum's picture
daBeachBum
Posts: 164
Joined: Apr 2011

Been six months since the dx. Sitting and getting chemo (Avastin) right now.

Feeling great and people who don't know I'm sick are shocked to find out, so no complaints!

Best of luck to us all!

Ray

mom_2_3
Posts: 964
Joined: Nov 2008

I was diagnosed (like Nana) in November 2008 with 5 bilobar liver mets. Colon resection, liver resection and HAI pump implanted in February 2009. Last chemo in November 2009. NED since (29 months) and next scan in August.

I found lots of hope in "meeting" other long-term survivors here when I was first diagnosed. It's the least one can do to share hope with another.

I hope you find strength in these posts,
Amy

PS. Our best friend's father just had his 7 year clean scan since diagnosis of Stage IV. This particular survivor had extensive lymph node mets throughout his chest and neck and became NED via colon surgery for primary and chemo only (Folfox/Avastin) for lymph mets. I just saw him last month at a birthday party and is he is feeling great!!

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

to smash the lymph nodes by chance? .I know is a difficult question ! Hugs!

mom_2_3
Posts: 964
Joined: Nov 2008

Pepe,

He did 6 months of chemo and then had colon surgery. The six months cleared the nodes as the doctors told him no surgery if nodes were present. After surgery I think he did an additional 3 months of "insurance" chemo.

Hugs to you!

lmchils57's picture
lmchils57
Posts: 60
Joined: Feb 2010

I was curious how bad your liver mets was? My son also has bilobar liver mets and they have said because it is in both lobes he can not have a liver rescetion. Basially from what I get that they are saying it is the location of the tumors in his liver that keep him from being able to have a resection. We have not had a third opinion so that is why I am asking how bad your was.

mom_2_3
Posts: 964
Joined: Nov 2008

I have heard others state that because they had bilobar liver mets the doctor sad that they were inoperable. I always found that confusing as I did have mets on both sides of my liver. The original oncologist I went to, did tell me I was inoperable but the second oncologist (who I see now) said no such thing. Position of the mets on the liver can obviously impact operability.

In my own case I had 3 mets on the left lobe, 1 in the middle of the left and right and 1 (the largest at 5 cm prior to chemo) on the right lobe. During my liver resection I had the entire left lobe removed and 2 wedges were removed in the middle and right lobe. According to the surgeon about 40% of the liver was removed.

During that surgery I also had an hepatic arterial pump (HAI) placed and I had 7 months of systemic and direct liver chemotherapy after surgery. B the intention of the HAI pump was to prevent recurrence. This treatment is also used to attempt to make inoperable patients operable. I have mentioned before that I have met more people than I can count on my fingers and toes that were originally operable and became so via the pump. At my last doctor appointment I was talking to my doctor about her perception on the Internet and she said she found it hard to understand the negatives people post about her (long waits in waiting room, not friendly/personable) given that she has more colon/liver met patients alive than any other doctor. She has data on patients greater than 15 years. Most oncologists don't have such a record. This particular oncologist at memorial Sloan kettering is the lead doctor in the HAI field. If you want her name and info, please PM me.

Good luck,
Amy

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Mine were in both lobes. But can't remember their placement. Hope he gets there!

lagwag's picture
lagwag
Posts: 76
Joined: Jan 2011

Love seeing such positive posts.

Thank you and thank you for making today a better day than yesterday.

Liz

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

this post.i feel sometimes i just need encouragement to just keep going.i was dx stage 4 in jan.2011 and am currently doing chemo.here lately i am just sick of doing chemo,so far i have had 7 treatments.i have got 2 more to go and then another ct scan.but we all know the more poison we get to kill the cancer i feel it is also slowly killing me.i love hearing the success stories from stage 4 people....Godbless....johnnybegood

mukamom's picture
mukamom
Posts: 402
Joined: Oct 2010

currently on erbitux and campostar (bad, nasty rash). Colon resection, liver resection x2, cyberknife to liver, hernia repair and ilieostomy revesal, close to 50 chemo treatments, folfri with and without avastin. Has continued to work all thru except for sx recovery.
How he does it, I don't know. One tough man, my dear hubby!

Angela

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

Stage IV
7-years Active Fighting Since Dx
3 Recurrences
3 Wins!

Just finished up my last year of protocols in this round of battles with Full Thoracotomy, 30 tx of IMRT radiation w/24 hour for 6-wk 5fu pump. Also 12 rounds of Folfiri w/pump as well.

Current scan found no new growths and things looked clear in rectum, liver, and lungs.

It's not been easy, but I've had it 3x times and got rid of it 3x - that's a pretty good record here in the cancer world.

If this is not a "feel good" story, then I'd be hard pressed to find it.

JB - you hang in there. I know how rough it is to be on the chemo. Some of us it just hits harder than it does others. Your mom read my article on chemo that I had written recently and I think it really put it in perspective for her how hard it is to continually take that abuse. I know it must hurt her to see you hurt so much. Hurts me too, 'cause I do get it.

Let's hope we see some good news after the next 2 tx's. I'll be here cheering you on! I know you can finish this chemo regime so you can rest up.

Lag, hope today is a little bit better. Things lose their perspective at times when we are in the throes of treatments. Sometimes seeing something good can give one hope and I hope that my story does just that.

-Craig

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

sometimes we just need a good cheering section.all the best to you and ((((HUGS)))...Godbless....johnnybegood

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

I took a very unconventional route but I'm here and doing great!

I'm in what they call non-surgical remission since my lung and liver mets died/went away on their own, well with a jump start from chemo and finish up with different alternatives.

This board helped me so much when I had my bad days. There were great people here then and there still are!!

Lisa P.

Betsydoglover's picture
Betsydoglover
Posts: 1254
Joined: Jul 2005

Hi - I am in what I call "semi surgical" remission. Diagnosed 5/05 with liver met. Lap sigmoid colon resection in 6/05. Six cycles Xeloda/oxaliplatin/Avastin. NED after 2 cycles. Lung recurrence in 11/08 - removed via VATS in 4/09. Did 6 cycles of Xeloda/Avastin followed by Avastin only up thru 4/26.

Currently NED.

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