Jun 12, 2011 - 3:33 pm
Our son, who is 34, has GBM. He had surgery on April 18, and only enough tissue was removed to get a biopsy. He is currently midway through radiation and Temodar treatment. However, since he started radiation, he has really declined, especially re: gait, fine motor, and speech. Last week, the docs were concerned that maybe it was tumor progression rather than radiation induced. They doubled his Decadron to 24 mg a day, and we did see some improvement...nothing dramatic... so they're thinking it's radiation. However, he still is much worse now than after surgery.
I'm wondering: has anyone experienced a dramatic decline while on radiation? if so, did gait, speech improve after radiation was done? I'm concerned that this may be permanent.