CSN Login
Members Online: 3

You are here

CSN Outage 7/29/21

CSN will be down briefly for maintenance 7/29/2021, starting at 10pm EST. We apologize for the inconvenience. 

DIET post Apology from Joe

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

I got a PM from Joe asking me to pass on an apology for any offence his post caused.

i thought i'd keep this short and not stimulate heaps of discussion.

i made it a new post so his apology stands out clearly and its not lost with the discussions in scam post on the diet post.

i have hesitated about this apology post for a few hours not wanting to cause any more arguments, so if this post gets away from being loving and caring. i'll just pull it.
i felt joe apology request not unreasonable so here it is.

i don't have an email to contact him, i hope he comes back. as i really need some help getting my vegan lifestyle off the ground.

i am having a very bad reconnection day, and long posts are impossible for me. i probably won't be commenting on any replies if they come.

hugs,
pete

Buckwirth's picture
Buckwirth
Posts: 1271
Joined: Jun 2010

Appreciate the forward.

Edit:

You can still PM him.

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

I really would of thought if he had sent a PM of apology it would have certainly went to scambuster his arch defender instead of you. Odd.
Winter Marie

tootsie1's picture
tootsie1
Posts: 5065
Joined: Feb 2008

Love you Winter, but let's just let it be, okay?

*hugs*
Gail

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

Wasn't odd. Pete reached out to him to learn more and apologize for our rude behavior and Joe simply replied back to him.

Lisa P.

PhillieG's picture
PhillieG
Posts: 4912
Joined: May 2005

Sometimes things don't always come out the way we intend them to.
I'd like to see more posts about alternatives, there are as many ways to get through cancer as there are ways to get cancer.
I wasn't on my best behavior that day.
-phil

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Now that my brain is beginning to de-fog from dang chemo....I'm ready to try to learn something new about healthful possibilities! There is soo much I really don't know where to begin. All the vitamins and supplements I started for the oxy neuropathy seem to be so much but maybe if I just add a little at a time? I don't know....where do I begin???

Thinking makes me dizzy, Gail

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

Get the book "Anticancer" by Dr David Servan-Schreiber and it will explain and describe so much that you can do for yourself.

Easy and reasonable stuff too, it is all about lifestyle changes. Yes there are some "drastic" kinds of things folks in the thick of the battle can do but it is a really easy to read and educational resource.

I remember my first trip to a health food store. I was so intimidated and just wandered around looking at brands, costs, and labels. All I bought was an O magazine but I went back the next weeks to learn some more.

Good for you for at least thinking about it.

Lisa P.

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Hi Lisa...I need to get that book! You are sure not the first to tell me to get it so I better do it. I do want to make some changes and now that I'm waking up from the fog I was in it's time! Raquel gives so much good information and Lisa too. It just gets overwhelming and then I end up doing nothing...

Gail

ellamenno's picture
ellamenno
Posts: 145
Joined: Aug 2010

I would like to give the guy another chance, I mean, remember how John23 was received. And look at him now, diplomacy and all.

Phil, Love your reference. I really thought it would end "as there are hairs on your head" LOL

Pete, please get some rest and forget about it at least tonite...I mean today.

Peace, Laurie

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

I agree with your thoughts totally.

Anonymous user (not verified)

This comment has been removed by the Moderator

ellamenno's picture
ellamenno
Posts: 145
Joined: Aug 2010

You're so sweet. I like the way your heart thinks:)

Peace, Laurie

Scambuster's picture
Scambuster
Posts: 973
Joined: Nov 2009

Thank you Pete for passing on Joe's message.

I am on another forum and one of their rules is 'Be Nice to Newbies'. I noticed Joe had only done 13 posts so regardless some opinions, I viewed him as a newbie.

Maybe this should become part of the T&C's of this site.

We need more posts about success stories and less about recurrences and suffering.

Joe you would be very welcome back to share your story, and let other know what you are doing that works for you.

Scam

Anonymous user (not verified)

This comment has been removed by the Moderator

Annabelle41415's picture
Annabelle41415
Posts: 6711
Joined: Feb 2009

Scam you can't possibly think that this board is only about posting success stories and should shy away from recurrences and suffering. I'm sorry (I've not gotten in this discussion until now), but that is part of life and cancer. This is not a fun day at the park and make it a rosey disease. He would be welcomed back by all means, but this discussion board is about our daily life, our scans, doctor's appointments, and yes suffering. I'm on this board to want to share my experiences, especially with others, whether it be good or bad. I'm not going to sugarcoat anything. Thanks Joe for your apology.

Kim

Scambuster's picture
Scambuster
Posts: 973
Joined: Nov 2009

Sorry Kim, Maybe I should have been a little more explicit.

Having people post their success stories here will perhaps motivate some to widen their attack on cancer, and I believe this can be done in a number of ways and diet is one of them, and an important one.

I have focused my research and studies towards people who have survived and beaten this disease, and how they did it. I also study the many alternative therapies which are curing people, and there are plenty.

I am not inclined to take advice of someone in their 2nd or 3rd recurrence who is still running with orthodox treatments and not paying attention to diet and lifestyle. That's just my approach.

I did not intend to suggest that all other stories, experiences etc not be posted and shared. Not at all. My comment was intended to say that I believe if more people paid attention to the success stories (instead of blasting them) them maybe there would be fewer sad posts available i.e. less recurrence stories, less stories of pain and suffering

I think that more good news can be created if people broadened their approach to treatments. I think that was the whole intention of Joes original post but is the only one who can verify that.

Sorry for any confusion caused.

Scam

Joecham
Posts: 13
Joined: Dec 2010

Once again I would like to apologize the way I conducted my first posts, i know I must of upset some of you as how direct and arrogant I sounded and now when I look back at it, that's exactly what it sounded like. My intentions were truly to try and spread the word of my success through other methods,I did not want to upset people. Pete was very kind and explainded to me that people are very sensitive about what they are doing and when someone like me comes on the site and basically starts giving claims it can upset some people. I understand that preaching is not the way no matter how passionate I am about something because it defiantly came out like a sales pitch. So for the people I have offended please accept my sincere apology.

The claim I made about turning cancer on and off I was quoting Dr Colin Campbell from the china study and the new documentary forks over knives. It is the largest study conducted over 25 year work in the relation to nutrition cancer and disease.

Some of you have PM me to post my story again in a different manner as they were interested in alternative methods. From this point I will tell you what I have done and what I have been taught, I will not make any claims or promises and people can always pm me for questions you feel would be inappropriate for the board.

So firstly I would like to say hello my name is Joseph and in 2008 I was diagnosed with a satge 4 colon/ rectum cancer with a metastasis to my right lobe in my liver. The first oncologist I met with told me I had a 5% chance of cure and that I needed to start treatment right away if I was to have any chance. I was 32 years old. My father is a plastic surgeon and both my uncles are doctors and they all urged me to start treatment ASAP. I did what I was told, but first I went on a vacation to the keys with my wife and my 3 best friends because I knew I was going to have a tough road and I wanted to have a vacation before I got my butt whipped.

When I got back from the keys I went to the Cleveland clinic in Weston Florida as one of my uncles knew of a good colon surgeon there. I was told they were going to give me the most aggressive treatment because of my age and they thought I could handle the treatment. I did oral chemo with about 3 months of radiation with once a week chemo through my port. I then went tthrough a large operation about 2 months later and they removed about 2 feet of my colon and part of my liver. They also gave me a illiostem bag, I developed an very bad infection which put me in the er twice and they had to drain it for about 2 weeks. For about 9 months after the surgery I did five Fu, oxiplatin, zeloda and avastin. I smoked a lot of marijuana during this time as it really helped me get through the chemo. I had a reaction to one of my last chemo sessions and my intestine twisted, they could not operate on me because of the avastin which causes hemorrhaging, I spent 3 days with a tube in my throat I was in pretty bad shape the docs did not know if I would make it. My intestine finally opened by itself and after a week or so they let me out, I was skin and bones but I recovered. I got reconnected from my illiostemy at the end of 09 and spent the next month on the toilet literally( got some good reading done,lol). I went back to the doc after another pet scan and It still lit up in the pelvic region, my oncologist did not like this and wanted me to keep doing chemo and more treatment, he now gave me a 20-30% of cure. I decided not to do anymore treatment and take my chances else where, I dodged 2 bullets already and I truly felt I would not dodge the third, so i told my ontologist to take my port out. My mother ironically enough was a yogi and into alternative health her whole life and she wanted me to detox from all the chemo and poison in my system. If it wasn't for my family and my wife I probably would have not made it through those treatments, they made me want to live.
From this point on my life changed dramatically, I started to learn about health and nutrition, I watched the documentary healing cancer from the inside out, that really pissed me of but was an important transition for me, and then I went to a center where they teach you how to detox and strengthen your immune system so it can help fight illness in your body. Your immune system is so important in healing your body and that is what I do on a daily basis to make sure my canceridles not come back. I eat 100% raw foods I juice green vegetables with wheat grass anI cut out all sugar ,fruit and cooked grain and cut out all animal protien. This is just part of what I do to strengthen my immune system. I am following what other successful people have done for about 50 years, I have met many other people during my stay there that were in the same boat and are also doing great. this is not my protocol, I don't even know if I can explain every little detail, all I know is that my tests have been coming out negative. I took my last MRI ct scan in April and I'm still clean. I do confess I miss my steak and fries no question about it, but I feel with the knowledge I have learned and the experiences I have been through I made the right choice for me and my family. I try to help people in my area stay on this diet and I teach them how to sprout and make raw foods more interesting. It is more a mental challenge more than anything else. I have been on this lifestyle for almost 2 years now and I fall of the wagon once in a while and a eat a bag of kettle chips, I'm only human. For the most part it has been a great experience and I embrace and accepted the fact that I have got cancer because it has taught me a lot. It was a wake up call for me to change my life and possibly help others if I can. Or at the very least start p new conversations and have people explore new avenues.
I hope I was not too direct or too invasive. Please if you have any questions for me please feel free to ask me or pm me.
Sorry for the novel, I don't really like to discuss all the chemo bit because when I think about it I feel like vomiting, does that happen to anyone else?
God bless
Joseph

sharpy102's picture
sharpy102
Posts: 371
Joined: Apr 2009

@Joe: Apology is not needed in my case...I was not mad at you even then, and even now. I actually just got tired how people trying to "pull apart" ones sentence and attack it...I'm not saying you stated things the best way possible...you weren't, but hey, who is there not to make mistakes...we all do. Sometimes greater, other times smaller...but we all do. And I was just getting a bit "sick" of scrolling through the whole thread and seeing how everybody is "munching" so deeply on almost each sentence you made...clearly, saying that you can "Cure cancer" was a big one that you should've not done...it sounded BAD...because if you could cure cancer there would not be chemo anymore, and people would not die of it, eh? The doctors are not idiots (true, some can be pretty short minded and restrict their perspective only to drugs- which are also not good. Again...human nature...). Anyway, just thought I'd let you know, I, personally, am not mad at you, and I never was. I wish you the best, I will not post to this topic further, or even check it...it might going to "overflow" again of which I'm not interested. :)
Please take care,
- Sophie

Ps: others! Don't get offended that I'm not interested in this thread, okay? I still love you all! You guys are still my family! :)

wolfen's picture
wolfen
Posts: 1329
Joined: Apr 2009

Apology accepted and thank you for returning to the board and explaining your motives. Some of our members are very protective(not a bad thing), and although your original post was not threatening, it came across as a "sure cure" for all cancer which is a red flag here. This really is a great family, and like all families we have misunderstandings and are sometimes too quick to judge others. I'm sure many will welcome you back and be interested in your methods. I'm glad those methods are working for you. Others will wish to continue with more traditional methods which are working for them.

My wish is for the best for all of you.

Luv,

Wolfen(JBG's Mom)

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

seeing joe's post here is good karma.

i think i'll make the green transition a little more smoothly now.

at least it will taste better.

hugs,
pete

Anonymous user (not verified)

This comment has been removed by the Moderator

thingy45's picture
thingy45
Posts: 633
Joined: Apr 2011

I am new here as of this year. I was the one who asked for more info because I was planning to go the green way, since I am NED at the moment.
Personally I feel it is induvidually what ever road we want to walk, the traditional way or the neuropathic way,or the green way whatever we like to call it, we all have choices to make, this was your choice and I have to make my choice.
thank you again for explaning the road you chose. I am still learning from evey member on this board.

2bhealed's picture
2bhealed
Posts: 2085
Joined: Dec 2001

Hello Joseph,

Well, I missed the original bruhaha with your post, but I am fascinated with your story. It's always great to meet other folks on here who give green a chance. I'm so happy for you that you are having excellent success with your choices.

My story is Stage III colon cancer, 2/19 lymph pos, zero mets, dx'ed 8/2001. My 33 year old sister died of intestinal cancer in 1992. I watched what she went through during her chemo and radiation and so when I was dx'ed with colon cancer 9 years later, I said NO WAY to the adjuvant chemo of 5FU and leucovorin that was advised by the Mayo CLinic. Thankfully my oncologist agreed to work with me regardless of which protocol I chose to follow. I chose Eastern healing modalities but Western diagnostics (and surgery which saved my life).

Juicing became my foundation on which I built my protocol of vegan/macrobiotic diet, Traditional Chinese Medicine, acupuncture, massage, yoga, exercise, prayer, detoxing, coffee enemas, Essiac Tea....you name it, I may have tried it. I consulted with a Naturopathic doctor who tweaked my diet and provided supplements and direction. My TCM practitioner did all the hands on stuff along with counseling. Going to her weekly was like going to a spa. How many folks can say that about their cancer treatments, eh? ;-)

I know what you mean about cancer being a wake up call. Cancer is a symptom of a deeper root problem, and if we don't address the root cause, we may end up dealing with the disease over and over and over. It's a journey and a process, and even 10 years later I am still learning new things and tweaking my diet. Two years ago I removed all grains from my diet. What a huge improvement that proved to be!!

When I came to these boards I was just starting out on my journey and didn't find one compadre who was using alternatives. As the years went on and I kept staying NED, my tone of voice, due to my passion for sharing a different path, grated many people on here. A dear friend on these boards gently pointed this out in love, much like Pete must have done for you. I have survived a maelstrom of attacks for my position but have also received umpteen posts and PMs looking for hope and information. These boards have come a long way tho', I have to say, in being more open to alternatives with just a few getting their undies in a bundle.

So YAY! I, for one, am glad you're here and had the courage to 1) post your original thread (that I didn't read) and 2) make an apology.

Welcome to the Semi-colons!

peace, emily

Joecham
Posts: 13
Joined: Dec 2010

Emily
I want to say that I respect what you did so much as you made a decision against so much pressure and took the path less travelled that took real courage. I was fortunate enough to be given a second chance at life to be able to take another path that has worked for me. I hope one day soon that the best treatments from Convential medicine and alternative medicine will be combined and be one standard treatment that works. There's are only a few pioneers doing this right now, I hope it will be mainstream one day soon. My original post was definitely not written with compassion for the other people on this board and Pete help me see that but I will make up for that by being as helpful as I can for people that want some advise on what I have done. Your post and story is very touching and I am glad to see that there are some people here that get it. Your health is so important it is everything.
Nice to meet you Emily
Joseph

relaxoutdoors08
Posts: 520
Joined: May 2011

Joseph,
As a newbie, I missed the fine points of contention. I am trying to cover all bases 1. used breathing techniques instead of anti naseau medication while doing Folfox and 2. being encouraged by the Integrative Medicine Nurse to step it up a notch and do Tai Chi as part of my Survivorship Plan. I too am returning to the Mayo for scans and blood tests every 3 months. But I am trying to put together a more naturalistic approach to changing my life with diet, exercise, prayer from family, friends from all faiths, meditation and trying to keep a positive attitude towards life.

I blew it at my first Cancer support Group. They introduced new members first and I was currently half way through my Folfox treatment with issues so I said I would be so happy to be done with chemo. Later the group members introduced themselves and many shared they were on chemo for life. I felt they were an inspiration for me but I felt I "hurt others" sharing I was going to be so happy to be done with chemo.

Welcome back. Please share your journey.
NB

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

if we don't share our happiness this will be one god aweful depressing board or even the support group.

people come here and goto support groups to share. i come here to share the good, the bad and ugly. not all at once.

I know you may have felt guilty, but my take on it is its great to breathe, just live well.

Another friend died of cancer today, so much life lost but at least its not life thats undervalued.

The premium on my time is incredilbly high now.

thanks for welcoming joe. I am also glad he came back, he is a good old chap.

hugs,

pete

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

I've been kind of looking into a "part time" vegan lifestyle, and believe it or not, the WEB is full of ideas and help, you really don't have to rely on one person to provide ideas for you.
If you need some ideas, just type in "vegan lifestyle" and you will be rewarded with many, many options.
Also, I know that "supplements" like to be touted, but if you try to do an overall good diet, the supplements would not be as needed.
Living in a land surrounded by sea water, I'm sure there are plenty of fish to be had. I'm from Alaska originally and was raised on shrimp, crab, halibut and salmon, I'm pretty sure if I hadn't of eventually resided in the outside and discovered bread and antibiotic supplemented cows that I might not have colon cancer now. So, I ask you to consider not a complete vegan diet, but consider perhaps and research your fish world as well.
Hope this helps you out.
Winter Marie

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

fish sounds great. still had a chicken leg tonight, gee it was good.
still had los of veg today. yum.
hugs,
pete

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Try to eat everything , not doc.will tell you that a vegan diet is healthy, try others like Mediterranean diet, lots of olive oil ,don't cook with butter but with olive oil, lots of Fish, grilled vegetables with lots of oil, and of course some meat as well! just balanced !.Is your choice but just a suggestion from a good friend!.Any hospital will tell you that Med. is the healthiest diet currently.
I got a big juice nearly every day except when got diarrhea , it goes very worst , at least in me!.
Take care Dearest friend!

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

vegan and mediterranean and aussie.

my diet is all over the place.

off to fiji in 3 days, will try the fijian diet over there.

hugs,

pete

BettyJoM's picture
BettyJoM
Posts: 86
Joined: May 2011

Hope you feel better Pete. your having a tough time
Betty Jo

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Hugs!

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

i appreciate the kind thoughts, its not fun reconnection struggles, but my challenges are of just poo, not life and death so
i am grateful.

they say "this to will pass"

i say but why so bloody often!
ha ha ha.

hugs,
pete

Joecham
Posts: 13
Joined: Dec 2010

Don't worry
It will pass, I remember those days. I had to be pretty close to the bathroom and after a while you get so sore and irritated. I used aloe fresh aloe from the garden for the sore areas and I also had to wear diaper for a while just incase, not my proudest moment but it is all a faint memory now, and it is a blessing not to have that bag anymore. Did they stitch you up wear the bag used to be, because they left mine open to drain, that was a little freaky but it healed ok. How is the food situation is it helping with the stool? And did your doc give you any pepto I remember that helped until my bathroom trips were 3 -4 times aday rather than every hour.
Good luck Pete

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

basically the same as you, last 4 days almost normal.

no bag is good. so glad mine is gone.

left me open to drain anddrain i did, but all healed now.

hugs,
pete

BettyJoM's picture
BettyJoM
Posts: 86
Joined: May 2011

I dont pretend that I have nearly as much knowledge as you pete.
I wish I had the income for a naturopath or the supplements. I am coming along slow but sure. scared as hell that its all going to come back, does that ever stop?
Follow the brat diet for a couple of days, helps the poops. heal a little then go natural again. not sure if you saw my other post that Graci was thrown off csn, she isnt sure why. I encouraged her to join Daily Strength, the colon cancer group. People need your knowledge there too
Betty Jo
PS
I went to your site and saw your pictures. Its an amazing world, beautiful pictures

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

dear bettyjo,

life changes fast doesn't it, see my post about fiji. i just spent $700 on about one to two months supply of my whole sup[plement mix for fiji, new and unopenned.

I love my photography, its a beautiful world. even the collagen i am taking will keep my skin flexible, supposed to help it shrink back as i have lost all this wait.

Alot of friends have said i like 10 years younger, so hopefully i'll give my body a chance and look better to boot.

what can we say about graci. I love her , she was great. i have been busy for a few days.
its so sad. we loose people to cancer not to bickering or csn fine print.

I'll look into daily strength.

just do your best and rest, its so dumb to get stressed about cancer coming back. I am focusing on being healthy and living really well. the things out of my control i'll leave to god, the rest i'll just do the best i can do.

my advice is to add to your regim piece by piece. mind you a good naturopath i think is essential. to me it seems pretty specialised, to many pills and potions to nativigate wisely.

Whatever knowledge i have picked up its been from others here on csn, or the doctors, naturopaths and seminars i have attended.

lets just live healthy,

hugs,

pete

Subscribe to Comments for "DIET post Apology from Joe"