VERY SAD TO REPORT THE DEATH OF MY BELOVED HUSBAND AFTER MIE SURGERY

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VIC123
VIC123 Member Posts: 13
in Esophageal Cancer #1
MY HUSBAND, WAS DX IN DECEMBER WITH EC STAGE 3, NO METASTASIS, 2 LYMPH NODES INVOLVED.
WE DID CHEMO AND RADIATION, AND THE TUMOR DISSAPEARED, THE LYMPH NODES WERE RESOLVED, ONE WAS A LITTLE SWOLLEN, BUT HIS RESPONSE TO TREATMENT WAS VERY GOOD. WE TRAVELED TO UPMC PITTSBURGH TO HAVE SURGERY WITH DR. JAMES LUKETICH. MERCY HOSPITAL THERE WAS NOT GOOD AT ALL, THE HYGIENE IN THE HOSPITAL WAS NOT GOOD, THE NURSES WERE NOT THAT PLEASANT AT ALL. THEY DISLIKED VERY MUCH THAT I STAYED DAY AND NIGHT NEXT TO MY HUSBAND. THANKS GOD I DID!.
HE WAS PLACED THE PEG TUBE DURING SURGERY. AT THE TIME TO START FEEDING HIM, IT DID NOT FLUSH, WAS DEFFECTIVE. THE SURGEON WHO TOOK CARE OF MY HUSBAND, DR. OMAR AWAIS,SAID HE WOULD PLACE A NEW ONE. THEY TOOK HIM TO RADIOLOGY AND 3 TECHS ATTEMPTED 3 TIMES BEFORE THE DOCTOR CAME,FINALLY DR. AWAIS CAME AND PLACED THE TUBE AND ORDERED ANTIBIOTICS FOR MY HUSBAND FOR ALL THAT WENT ON. MY HUSBAND ALWAYS COMPLAINED THAT IT HURT, HE COULD NOT TURN TO THAT SIDE, BUT HE WAS FED THROUGH THE TUBE. 2 WEEKS AFTER SURGERY, WE WENT IN ER, THEY TOLD US IT WAS PNEUMONIA. IT ENDED UP BEING A PERICARDIAL EFUSSION CAUSED BY A HOLE THEY PERFORATED THE PERICARDIUM AT THE TIME THE MIE WAS DONE. HE WENT IN THE O.R. AGAIN TO REMOVE THE FLUID, IT WAS NOT PNEUMONIA. THE FLUID WAS REMOVED AND WE SPENT ANOTHER 2 WEEKS IN THE HOSPITAL. MY HUSBAND DID NOT FEEL WELL ONE DAY, THEY KEPT TELLING US " HE WAS DECONDITIONED", THAT WAS THEIR SLOGAN. I DID CHEST XRAYS AND BLOOD TESTS, RESULTED OK. THEY NEVER ORDERED A CAT SCAN. WE CAME BACK TO MIAMI AFTER 5 WEEKS. HE WAS TOLD HE WAS OK AND GIVEN A RELEASE TO COME. WHEN HE CAME HE CONTINUED TO BE IN PAIN AND NOT DOING WELL, WE WENT IN THE ER, HE HAD A MAJOR CASE OF PERITONITIS, THEY REMOVED THE PEG ON APRIL 12, ARRIVED MIAMI ON APRIL 16TH, AND THE HOLE NEVER CLOSED, THE ONE ON THE INTESTINE (IN THE INSIDE, IT CONTINUED TO LEAK CAUSING A PERITONITIS. HE WAS OPERATED BUT THE LEVEL OF INFECTION WAS WAY TOO LARGE AND HE WENT INTO A SEPTIC SHOCK. MY HUSBAND DIED CANCER FREE, AND DIED BECAUSE OF THIS COMPLICATION. WE ARE VERY UPSET AS YOU MAY IMAGINE, HE WAS ONLY 52, LEFT BEHIND HIS TWO DAUGHTERS AND WIFE, AND SO MANY PEOPLE WHO LOVED HIM.
THIS SHOWS YOU THAT NO MATTER WHAT SACRIFICES YOU MAKE, IF THINGS ARE MEANT TO GO WRONG, THEY WILL. A CASE LIKE MY HUSBAND WITH LIVER NODULE PATIENT, STAYED IN MIAMI, DID THE SURGERY IVOR LEWIS AND RECEIVED A SPECIAL TYPE OF RADIATION FOR THE LIVER, AND HE IS DOING GREAT. IAM VERY SAD AND UPSET, PLEASE FEEL FREE TO CONSULT OR ASK ME ANYTHING. I WILL HELP AS MUCH AS I CAN FOR THE LOVE I HAD FOR THE GREATEST HUSBAND, DAD, AND BUSINESS PARTNER THERE WAS. MY HUSBAND!. REGARDS, MARIA VICKY

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  • birdiequeen
    birdiequeen Member Posts: 319
    #2
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    So sad to read your post
    I was very sad to read about your experience and the loss of your husband. Your pain is very raw and understandable.
  • linda1120
    linda1120 Member Posts: 389
    #3
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    Prayer
    Dear Maria,

    I am so very sorry for your loss. I cannot even imagine losing my husband who has been through the MIE as well.

    I will keep you and your family in my prayers.

    Linda
  • Unknown
    Unknown
    #4
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    This comment has been removed by the Moderator
  • sandy1943
    sandy1943 Member Posts: 824
    #5
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    Maria, So sorry to hear of
    Maria, So sorry to hear of your loss. It is so hard to understand all the why's. One can do well and another has complications. It can be so unexplainable.
    My husband stayed with me around the clock for thirteen days. The nurses loved him,because he would do things for me that helped them out. They didn't consider his being in the way.
    Fifty one is so young and I know there will be a great loss in your and the children's life. My thoughts and prayers are with you, Sandra
  • Donna70
    Donna70 Member Posts: 852 Member
    #6
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    sandy1943 said:

    Maria, So sorry to hear of
    Maria, So sorry to hear of your loss. It is so hard to understand all the why's. One can do well and another has complications. It can be so unexplainable.
    My husband stayed with me around the clock for thirteen days. The nurses loved him,because he would do things for me that helped them out. They didn't consider his being in the way.
    Fifty one is so young and I know there will be a great loss in your and the children's life. My thoughts and prayers are with you, Sandra

    just so sad to hear all that you and your husband went thru
    Dear Maria,
    So very sorry for your loss. Your husband went thru so much and then not to go forward to recovery is such a terrible experience. You have been thru a traumatic loss and I wonder if you could find a counselor maybe from the hospital in Miami who is trained in traumatic loss and talk some of this trauma thru with them. My prayers will be with you and your family, I know there are no words that I could say that can make this better. take care,
    Donna70
  • mrsbotch
    mrsbotch Member Posts: 349
    #7
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    I am so sad for you
    It is with heartfelt sorrow that I am writing you. As loretta said an unclean hospital should not be tolerated. I know how you feel Maria concerning the lossof your husband . May God Bless you



    My prayers are with you and your family


    barbara
  • jojoshort
    jojoshort Member Posts: 230 Member
    #8
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    Deepest condolences
    Very sad to hear of your husband's death. I can only think it's just so not fair. I'm so sorry for your loss and your family's.
  • unclaw2002
    unclaw2002 Member Posts: 599
    #9
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    Maria,
    I am so sorry to hear
    Maria,

    I am so sorry to hear of the complications and loss of your husband. I will keep you and your family in my prayers during these difficult days ahead of you. May you find some comfort in the loving memories of your life together.

    Hugs to you,
    Cindy
  • VIC123
    VIC123 Member Posts: 13
    #10
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    birdiequeen said:

    So sad to read your post
    I was very sad to read about your experience and the loss of your husband. Your pain is very raw and understandable.

    Thanks very much.
    I appreciate your love. Sincerely, Maria
  • VIC123
    VIC123 Member Posts: 13
    #11
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    linda1120 said:

    Prayer
    Dear Maria,

    I am so very sorry for your loss. I cannot even imagine losing my husband who has been through the MIE as well.

    I will keep you and your family in my prayers.

    Linda

    Thanks
    Thanks Linda. I pray your husband continues to be a case of success. We
    all need our husbands so much. God Bless, Maria
  • VIC123
    VIC123 Member Posts: 13
    #12
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    unknown said:

    This comment has been removed by the Moderator

    Thank you Loretta and Bill
    First, thanks for being the amazing beings that you are.

    I do not regret one minute anything I did. God knows my intentions were the
    best, and being able to go and spend 5 weeks in Pittsburgh was thanks to God.

    Gaspar spent 12 days in the Hospital after the surgery. I never saw him well,
    he was very worried and nervous. He would feel something up in the throat that
    made him feel he was going to choke. He asked me all the time not to leave his
    side. I never did, not even in ICU. They did not like it, but he needed me, and
    I am glad I fought hard to stay by his side. All I did was to care for him and
    the nurses took care of the medicines. The hospital was dirty, and not only did
    I repoerted it, I also have sent letters and surveys that I completed as well.

    The doctors were excellent, but not the nursing staff. I know what you say because
    I also went to Presby, there is no comparison. Presby is a clean and great hospital,
    but not Mercy.

    On day # 13 Gaspar was short of breath at the apartment we rented and I had to rush him
    to the ER. He was then DX with possible pneumonia. It was not pneumonia, it was the pericardial efussion caused by the perforation that took place during surgery which I
    believe its a possible risk. This I learned after reading the surgery report, no one
    told us before. The doctor here mentioned that was the cause for the efussion. He went
    into the OR again, and we stayed another 11 days at the hospital. I never told the nurses
    what to do?. I showered them with attentions and gifts, I did not find them qualified as
    the nurses from ICU in Miami nor professional either. That was my experience.

    We left the hospital April 4th, saw Dr. Awais for follow up on the 7th and Dr. Luketich on the 12th. Did blood and chext x ray on the 11th and it was ok. In this time I also took him to the cardiologist who ordered another Echo as I told him I did not see him getting better, and that is when they told me " he was deconditioned", same terms were used by the office of Dr. Awais and Dr. Luketich.The echo showed no additional or recurrent efussion, looked well.

    It was the feeding tube, some people called it peg tube, not sure now that you say that. But it was the feeding tube what was placed on him and it was deffective, then replaced by techs until a 3rd time when doctor came to radiology. This was removed on the 12th at Dr. Luketich's office and internally never closed. This was the cause for the pernitonitis.

    Bill, my dear Bill, you were the inspiration, the rock, and the example that kept my husband optimist at all times. How can I not believe your story?. But the truth is that this EC is a beast, and its agressive as it can be, and I thank God for those like you who are here to inspire men like my husband. Gaspar was a business man, he could not have taken a negative prognosis, so thanks to Bill and Loretta, he remained positive during the pre operation period of chemo and radiation and even after surgery. Towards the end, he was very tired and uncontent which is understandable. He felt very bad, saw no progress, and had been in the hospital too long. We saw Dr. Luketich on the 12th, returned to Miami on the 16th, did blood again on the 20th, and he was ordered a cat scan, did it on the 22 and it showed peritonitis. All tests I did outpatient because he did not want to even think to have to go in the hospital again. We went in the hospital April 22, good friday, got operated on the 22, and died on May 8th after a long fight to overcome the peritonitis and septic infection. He passed on Mother's day. I have 2 girls and we are devastated. But yes,I will always be thankful to Loretta and Bill for giving us that hope and inspiration that no many can.

    I hope I answered all, I love you and will be in touch.God Bless, Maria
    patient
  • ecourtney
    ecourtney Member Posts: 39
    #13
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    unclaw2002 said:

    Maria,
    I am so sorry to hear
    Maria,

    I am so sorry to hear of the complications and loss of your husband. I will keep you and your family in my prayers during these difficult days ahead of you. May you find some comfort in the loving memories of your life together.

    Hugs to you,
    Cindy

    Pain the world over
    Maria,
    I write from 3500 miles away in Scotland to express my condolences on the passing of your husband in such tragic circumstances and in a situation where you both might have thought that at least you had some time on your side.
    Having just lost my brother, a stage 4b two weeks ago, I know that even when all the signs tell you that the worst is about to happen the end still comes as a shock to everyone. I can only imagine how distressing it was for your husband, your children and you as the negatives started to stack up against you. I would not begin to try to offer words of comfort at this point as I'm sure you are pretty numb and still have so much to do to. Please be assured that we are all with you. God bless.
    E Courtney
  • hopper52
    hopper52 Member Posts: 108
    #14
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    MY HEARTFELT CONDOLENCES
    Maria,

    I am still relatively new to the fight. Staged T3N0M0 in April so I'm still in chemo/radiation. Reading your story it saddens me to hear the trials you have been through. Just know that we have been praying for you (and now your daughters) while you struggle with the events that have occured. Sometimes I wonder why God allows some things to happen but I go by faith that it's all according to His purpose and the Bible says our thoughts are not like His thoughts nor our ways like His ways. When I was first diagnosed I thought, "Okay, it doesn't matter what the outcome is as long as God can use it for His glory." It's easy for me to waver sometimes about it but when it's all said, done and thought about, that's they way I still feel deep inside of me, which comforts me beyond no end. Please know that we'll continue to pray for you and your girls for strength.
  • K_ann1015
    K_ann1015 Member Posts: 500
    #15
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    MAria
    so sorry to hear all
    MAria

    so sorry to hear all that you have been through... My prayers are with you.
    kim

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