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More Good News

Posts: 39
Joined: May 2011

We have more chemo tomorrow, started pre-meds today, Dexamethasone 8mg orally 2xdy. So far, so good. The new good news is, though, that my husband had a bizarre rash spreading over his chest that the onc. was totally baffled by...after his mental reaction I did a TON of research, and discovered all of the "weird" stuff was side effect of Levodopa toxicity. I pulled him down to half the dose, and even the rash disappeared completely. Why the Doctor$ couldn't figure this one out is beyond me...if he had stayed toxic the next phase was renal failure followed by death...GRRRRRR. Blood count tomorrow should show me if I stopped it in time. I'm so thankful I quit work to care for my honey...if I'd been working, I might have lost him completely. As much as I may gripe about never having a minute to myself, I'm glad I've been home to care for him. With his amazing response to his Levodopa being reduced, I don't feel nearly as overwhelmed and frustrated as I used to. He's almost completely back to his old ornery self, and I am so damn thankful to have him back :D

mswijiknyc's picture
Posts: 421
Joined: Oct 2010

it's all in the little stuff isn't it? glad you caught it - keeping the happy thoughts coming :)


Posts: 39
Joined: May 2011

The little stuff always ends up leading to the big stuff. Also, tenative dx is now, Squamous Cell Carcinoma (primary cutaneous) with local mets. Not the worst thing possible.

Posts: 15
Joined: Apr 2011

Good for you!!! That is awesome you investigate on your own. Did you take a picture of the Doctors' faces when you told them their error? Sorry, I can't control my sarcasm. Heehee. But seriously, way to go! I will keep you in my prayers.


Posts: 221
Joined: Oct 2010

I am super glad to hear your husband is doing better and that you got more good news. You're doing a fantastic job of being his advocate; he is very lucky to have you. I hope cancer gets its butt kicked; best of luck and many prayers.

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