Avastin

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herdizziness
herdizziness Member Posts: 3,624 Member
in Colorectal Cancer #1
I ache, I ache, I ache, my shoulders seem like the weight of the world is upon them, every movement hurts. This goes on for a couple of weeks at a time. Does anyone else have this?
Winter Marie
«1

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  • LivinginNH
    LivinginNH Member Posts: 1,456 Member
    #2
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    Hi
    Oh, Winter Marie, I'm so sorry to hear thar you're hurting. :-( I wish I could help to take the pain away... Rick just had his first dose of Avastin today, so he's not having many issues yet. I'll mention this possible side effect to him. Hugs dear, and I hope that you're feeling better soon. Cyn
  • LivinginNH
    LivinginNH Member Posts: 1,456 Member
    #3
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    Hi
    Oh, Winter Marie, I'm so sorry to hear thar you're hurting. :-( I wish I could help to take the pain away... Rick just had his first dose of Avastin today, so he's not having many issues yet. I'll mention this possible side effect to him. Hugs dear, and I hope that you're feeling better soon. Cyn
  • gerryo
    gerryo Member Posts: 50
    #4
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    Wow! My husband just had
    Wow! My husband just had his 3rd round of it. He has been feeling very achey. I didn't realize it was from the avastin. Have you talked to your doctor about this? What did they say? I wish I could take the pain away from all of you. My best to you.

    Gerryo
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #5
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    Aches
    I've been feeling this the past couple of months after infusion. Now mind you, I've had the avastin and Xeloda at the same time, so was unsure of which was the culprit. However, this time, it was the Avastin on Friday, the aches started on Saturday, and because I couldn't afford the Xeloda this time, I can only blame the Avastin, power of deduction, LOL.
    I've been suspecting the Avastin, but because I only had Avastin and ache is back, I know for sure, this seems to last a couple of weeks, goes away for about a week, and then back again after infusion.
    Winter Marie
  • lisa42
    lisa42 Member Posts: 3,625 Member
    #6
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    it depletes minerals
    Hi,

    I used to have bone and joint aches & I haven't had any now for awhile since my naturopath told me that chemo and Avastin deplete minerals in the body & this often accounts for the joint and bone aches. Since I started regularly taking potassium, calcium, and magnesium twice a day, no more aches! It only came back when I ran out for a week- didn't even realize the connection until I went in for an appt and at the end mentioned my aches and "oh, by the way I need to get more minerals- I ran out". He just smiled and said "there you go- the reason for your aches returning. Give yourself a couple of days back on the minerals & I bet the aches will go away." He was right and they did.
    Try it- can't hurt!!

    Hugs,
    Lisa
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #7
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    lisa42 said:

    it depletes minerals
    Hi,

    I used to have bone and joint aches & I haven't had any now for awhile since my naturopath told me that chemo and Avastin deplete minerals in the body & this often accounts for the joint and bone aches. Since I started regularly taking potassium, calcium, and magnesium twice a day, no more aches! It only came back when I ran out for a week- didn't even realize the connection until I went in for an appt and at the end mentioned my aches and "oh, by the way I need to get more minerals- I ran out". He just smiled and said "there you go- the reason for your aches returning. Give yourself a couple of days back on the minerals & I bet the aches will go away." He was right and they did.
    Try it- can't hurt!!

    Hugs,
    Lisa

    Chemo Fog
    Must be that chemo fog I keep forgetting your advice, eating a banana now as I type. Thanks Lisa.
    Winter Marie
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #8
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    Thank you
    thank you Cyn and Gerryo so much for your kind thoughts, it's so tiresome, I guess that's what we call pains now, tiresome. Although I ate a banana an hour ago, and I THINK it's eased up a bit. I think I'll drink a glass of my nice calcium fortified vitamin D milk to the mix and see if that helps as well.
    Winter Marie
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #9
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    the pain
    I told my Onc 3 weeks ago, I didn't know how much longer I could stand this pain. He had x-rays taken and all shows good, so it can only mean muscle aches from the avastin. Will, try a banana a day and at least one glass or two of milk.
    Winter Marie
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #10
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    herdizziness said:

    the pain
    I told my Onc 3 weeks ago, I didn't know how much longer I could stand this pain. He had x-rays taken and all shows good, so it can only mean muscle aches from the avastin. Will, try a banana a day and at least one glass or two of milk.
    Winter Marie

    shoulder pain very common on me !
    feel so sorry!.
    Not solutions given by docs?
  • johnnybegood
    johnnybegood Member Posts: 1,117 Member
    #11
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    pepebcn said:

    shoulder pain very common on me !
    feel so sorry!.
    Not solutions given by docs?

    did not know
    that bananas were good for that.i try to eat alot of bananas to help with the diareah so i guess that why i have not had this joint pain.sorry you are in pain.hope it gets better.
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #12
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    pepebcn said:

    shoulder pain very common on me !
    feel so sorry!.
    Not solutions given by docs?

    No
    He just says he doesn't know why. I do know it's the Avastin though.
    Winter Marie
  • luvmum
    luvmum Member Posts: 457 Member
    #13
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    Dear Winter Marie
    I hope your shoulder pain will go away soon!!!!! My mum will complaint to have aching legs every now and then and I'm not sure if that is due to Avastin.

    Best wishes,
    Dora
  • plh4gail
    plh4gail Member Posts: 1,238 Member
    #14
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    So sorry for your discomfort
    So sorry for your discomfort Winter Marie. I never had Avastin. I will send some good thoughts for comfort your way. I know it sounds petty compared to cancer and chemo...but have you tried a heating pad? I don't know what the effect of Afastin does on the circulatory but the heat would open up your vessels and allow more oxygen and better circulation..maybe some comfort..just a thought? I hope you feel better!

    Love, Gail
  • SisterSledge
    SisterSledge Member Posts: 332 Member
    #15
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    Foods high in minerals
    There are many foods better than bananas for getting potassium: List Of Potassium Rich Foods

    Calcium: List Of Calcium Rich Foods

    Magnesium: List Of Magnesium Rich Foods
  • SisterSledge
    SisterSledge Member Posts: 332 Member
    #16
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    SisterSledge said:

    Foods high in minerals
    There are many foods better than bananas for getting potassium: List Of Potassium Rich Foods

    Calcium: List Of Calcium Rich Foods

    Magnesium: List Of Magnesium Rich Foods

    Some people don't like supplements...
    I know some people avoid using supplements, preferring to get their needs met solely from their diet, but it can be very difficult to consume enough to support needs, especially with cancer issues involved.

    Here's an excerpt from the page on potassium I linked to:
    From 11 years old through adulthood, the suggested amount is 3,100 to 3,500 milligrams of potassium every day. One banana contains 440 milligrams, and a medium baked potato contains 450. Take a look at your diet, and if you are not reaching these numbers regularly, you should adjust your diet or add a dietary supplement.
  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #17
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    lisa42 said:

    it depletes minerals
    Hi,

    I used to have bone and joint aches & I haven't had any now for awhile since my naturopath told me that chemo and Avastin deplete minerals in the body & this often accounts for the joint and bone aches. Since I started regularly taking potassium, calcium, and magnesium twice a day, no more aches! It only came back when I ran out for a week- didn't even realize the connection until I went in for an appt and at the end mentioned my aches and "oh, by the way I need to get more minerals- I ran out". He just smiled and said "there you go- the reason for your aches returning. Give yourself a couple of days back on the minerals & I bet the aches will go away." He was right and they did.
    Try it- can't hurt!!

    Hugs,
    Lisa

    go lisa go
    i took one of everything in the vitamin shop, it worked. only joking.
    i would try lisa approach for a couple of weeks and see how you felt.
    we don't need to reinvent the wheel for each chemo, if its works fantastic if not well you tried.

    just sorry your in pain winter marie

    hugs,
    pete
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    #18
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    Avastin
    Try exercise maybe? I know that may sound strange but sometimes lack of mobility can cause pains. I did Avastin over 7 years ago, it had just been approved by the FDA so I got to do 6 months of it prior to my first surgery. I also got myself a kayak shortly after being DX. My thinking was that I wanted to get into as good of shape as I could before the operation so I'd bounce back quicker. I wound up kayaking for 81 consecutive days. I would take my pump and seal it in a baggie and go out, usually in the mornings. I did not start out with that in mind, one day turned into two, then three and so on. I stopped 2 days before my operation. I really didn't ache much at all during that time.
    Now is a different story...I take a nap and wake up sore. I'm finding that I do not do enough exercise at all. I have gone out one or twice and I've been busy with yardwork at my house and taking care of my Mom's yard too. Still, I must be using muscles I thought I had!
    Have a glass of wine:

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  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #19
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    PhillieG said:

    Avastin
    Try exercise maybe? I know that may sound strange but sometimes lack of mobility can cause pains. I did Avastin over 7 years ago, it had just been approved by the FDA so I got to do 6 months of it prior to my first surgery. I also got myself a kayak shortly after being DX. My thinking was that I wanted to get into as good of shape as I could before the operation so I'd bounce back quicker. I wound up kayaking for 81 consecutive days. I would take my pump and seal it in a baggie and go out, usually in the mornings. I did not start out with that in mind, one day turned into two, then three and so on. I stopped 2 days before my operation. I really didn't ache much at all during that time.
    Now is a different story...I take a nap and wake up sore. I'm finding that I do not do enough exercise at all. I have gone out one or twice and I've been busy with yardwork at my house and taking care of my Mom's yard too. Still, I must be using muscles I thought I had!
    Have a glass of wine:

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    Think glass of wine is the best solution!LOL.
    Highly recommend a good " vega Sicilia" from ribera del duero. Spain.LOL.
  • mukamom
    mukamom Member Posts: 402
    #20
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    pepebcn said:

    Think glass of wine is the best solution!LOL.
    Highly recommend a good " vega Sicilia" from ribera del duero. Spain.LOL.

    I know you
    had your surgery in Dec, and they did ALOT...I do know when surgeons start mucking about your insides, especially around the diaphragm, you can get shoulder pain. apparently there are nerves that run to your shoulders around that area. Robert has suffered with shoulder pain ever since his first liver resection in July 09. That has been his main complaint since that sx. Mobic seems to help some. Hope you are feeling better!!

    Angela
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #21
    Options
    PhillieG said:

    Avastin
    Try exercise maybe? I know that may sound strange but sometimes lack of mobility can cause pains. I did Avastin over 7 years ago, it had just been approved by the FDA so I got to do 6 months of it prior to my first surgery. I also got myself a kayak shortly after being DX. My thinking was that I wanted to get into as good of shape as I could before the operation so I'd bounce back quicker. I wound up kayaking for 81 consecutive days. I would take my pump and seal it in a baggie and go out, usually in the mornings. I did not start out with that in mind, one day turned into two, then three and so on. I stopped 2 days before my operation. I really didn't ache much at all during that time.
    Now is a different story...I take a nap and wake up sore. I'm finding that I do not do enough exercise at all. I have gone out one or twice and I've been busy with yardwork at my house and taking care of my Mom's yard too. Still, I must be using muscles I thought I had!
    Have a glass of wine:

    \     /
     \_/
      |
      |
     ---

    Phil
    Heck, I'm running from class to class all day, chasing my grandson at night, pulling weeds, mowing the lawn, walk around the blocks,tr i m m i n g (they think trimming is a bad word here so have to space it out)the bushes that are 12 foot high, I think I'm getting quite a bit of exercise!!
    so GOING FOR THE WINE!!

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