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Linda -- Congrats - Please make a new thread for "embolization"

nempark
Posts: 683
Joined: Apr 2010

Thank God Linda, you give all of us hope. You are surely not only thinking of yourself but all of us here!!!I am kinda sad my friend who was diagnosed last July with Lung cancer passed away this weekend. It would be so much easier if you could post a new subject on embolization. Only if it is not a problem. God bless June

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

I make it a habit to find the old post thread and add updates to it because I like to think of this Board as a resource for the ladies that will come after us. If someone is researching radioembolism, I want them to be able to follow my whole experience with it, from beginning to end, in one place.

Thursday I have labs at 8 am and my 'mapping' to see if I am a candidate anatomically for the radioembolism. I found this post on a blog about what the mapping will be like:

"You will be asked not to eat for a specific amount of time before your evaluation. You will bring labwork and recent scans for review. You will be prepped for the procedure and your interventional radiologist will make a tiny incision in your leg and carefully place a small but long, flexible plastic tube called a catheter into the femoral artery (which is the major blood vessel in the leg). He/she will use an x-ray that allows him to view the inside of the body on the screen as he guides the catheter through the blood vessels to the hepatic artery (which is one of two blood vessels that feed the liver). He will ease the tube into the branch of the hepatic artery that feeds the cancerous tumor(s) in your liver. This process will ensure that the microspheres are going to be distributed appropriately. It will also indicate whether or not they will be likely to go into areas that could be dangerous - such as the lung or abdominal cavity. Sometimes blood flow will have to be redirected. You will be awake for the procedure and can even watch the monitors if you so choose. You may feel some pressure but should not feel pain. Once the procedure is complete, the catheter will be carefully removed and pressure will be applied to the incision. You will have to lie flat for several hours to ensure that bleeding does not occur. If all goes well and Yttrium 90 Microspheres therapy is possible, then a date for the procedure will be set and you should be able to return home shortly after the evaluation."

susangr
Posts: 64
Joined: Oct 2010

I will be sending all the positive thoughts and vibes I have your way on Thursday as you undergo the first phase of this process. I, like so many others on these boards have read your numerous thoughtful, realistic, uplifting and educational postings. You truly are an inspiration and I wish you only success on this next part of the journey.

Sincerely Susan

denyingarea
Posts: 11
Joined: Oct 2010

This is very exciting news! The science of this is a little over my head, but I'm sending you positive energy on passing this "mapping" test.

(And I appreciate your efforts to keep topics threaded together. I have the hardest time navigating this website. Does it allow us to put intrasite links in these threads? I.E., to go back on the old thread and put a post saying "Continues at ~link to new thread~")

maggie_wilson's picture
maggie_wilson
Posts: 616
Joined: Nov 2009

will be thinking of you tomorrow and sending all radiant white energy to you so that you are a prime candidate for the embolization. nothing else is acceptable.
sisterhood and love,
maggie

Kaleena's picture
Kaleena
Posts: 1910
Joined: Nov 2009

Linda:

My thoughts and prayers are with you for tomorrow's first phase.

Kathy

Pat51
Posts: 130
Joined: Feb 2011

I am sending you good wishes and cyber hugs for tomorrow. I hope that you have an easy time with the procedures and good results so that you are able to proceed as soon as possible. We appreciate your posts and updates, giving us all hope and inspiration.

Pat

HellieC's picture
HellieC
Posts: 524
Joined: Nov 2010

I never know with the international time zones whether I am wishing you good luck before or after your procedure! Doh! But good luck anyway - sounds amazing - like something from a "sci fi" movie! But great news that you are a candidate thus far. Fingers crossed that the mapping goes well and you can have the full procedure.
Helen

lkchapman's picture
lkchapman
Posts: 106
Joined: Jan 2011

This whole board is sending positive thoughts your way today!
Laura

Rewriter's picture
Rewriter
Posts: 496
Joined: Dec 2009

with positive thoughts and prayers that everything goes well today.

Jill

Northwoodsgirl
Posts: 498
Joined: Oct 2009

Linda, I am thinking of you and imagine by now you are recovering nicely from the procedure and am praying for good news! Know that there are so many of us praying for you! And thank you for posting the techincal description of what you are or have gone through.
(((HUGS)))
Lori

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

What a long day! I was at the hospital from 8 to 8 to have the Sir-Spheres treatment to the right side of my liver. We had to wait for the Sir-Spheres to come in from Boston, and then for them to prep the room like a Haz-Mat area, so I wasn’t in the operating room until noon. (The room last to be prepped with a dispobable floor and the door sealed and once the radioactivity enters the room, no one can leave until the end when everyone had to dispose oif their booties and gowns and be geiger-countered. The surgeon was in a plastic bubble during the treeatment. It was fascinating to be awake for the procedure, but it did turn I into an endurance marathon with 3 hours in surgery and 4 hours in recovery, flat on my back and not allowed to raise my head or move my legs. My back was killing me from being still for so long It felt like when you make a too-ling road trip). I also got nauseated even during the surgery and had to have Zofran added, and later I threw up in recovery and pretty much had the dry heaves all the way home. I was too uncomfortable to sleep, and still throwing up the tea and water I was trying to get down. I think walking around last night really helped work the gas I was having because the back pain is gone and I am left with just tenderness in the area of my liver. I can see that I am on the mend already. TONS of new pills to take over the next 12 days, and I am radioactive and have to keep my distance from everyone.

The radiation interventionist said he gave me the maximum dosage for my size and volume of cancer. I am soooo hoping this will work for me. I wonder how long I will feel crappy? I'm tired today but excited by the possibility of this treatment.

norma2's picture
norma2
Posts: 486
Joined: Aug 2009

So glad you posted about what is going on with you. I thought of you all day yesterday and prayed. Sending you lots of positive vibes and the best of wishes for a speedy recovery. Norma

upsofloating's picture
upsofloating
Posts: 473
Joined: Dec 2009

What an undertaking Linda!!! Sounds more like a sci-fi movie - you're quite cutting edge. I hope the after effects ameliorate quickly and allow you to recover to be ready for Part Deux.
Here's to a successful outcome for you.
Annie

Rookerbird's picture
Rookerbird
Posts: 100
Joined: Feb 2011

Wow! What an amazing procedure. You are a warrior. It's one thing to have a long procedure while under anaesthesia...quite another to be awake yet have to be perfectly STILL for so many hours.

Hoping that you are back to your normal active, peppy self pronto! How long will you be radioactive?

-Kathy

Kaleena's picture
Kaleena
Posts: 1910
Joined: Nov 2009

Linda:

I am glad that this part of your treatment is over for you. You really do give a very visual discription of your treatment as I can see everyone being geiger-countered and all sealed up.

I commend your courage, your strength and your spirit in trying this treatment. You are truly a remarkable lady. Thank you for sharing your experience. I continue to pray that this treatment will work for you and that you start to feel yourself again.

Looking forward to hearing about your progress.

Kathy

Ro10's picture
Ro10
Posts: 1579
Joined: Jan 2009

So glad you have had the procedure completed, and I too pray that it works for you. It sounds like it was quite an ordeal of preparing the room and the people. Sorry you are not feeling so good though. Hopefully some of the TONS of pills help you feel better. I hope each day you feel a little better. Thanks for keeping us updated. You remain in my thoughts and prayers. In peace and caring.

HellieC's picture
HellieC
Posts: 524
Joined: Nov 2010

So glad you made it through Linda - but sounds like an incredibly tiring and uncomfortable day. You've been in my thoughts and prayers and I SO hope that this works for you. Thank you for sharing the details with us so soon after the procedure - I hope you are feeling well again very soon.
Hellie

Cindy Bear
Posts: 570
Joined: Jul 2009

I don't know how many people would have your courage, faith and determination to go thru all of this, esp. since they have told you it's palliative, not curative. Still it is exciting and cutting edge and I have a really good feeling about this treatment.
Hoping you feel better soon!

hopeful girl 1
Posts: 454
Joined: May 2010

Linda,
So glad the procedure is done for you.
Nice that they gave you the max for your size and cancer.
I have a good feeling that this is going to work well for you.

Hugs and healing,
Cindy

Double Whammy's picture
Double Whammy
Posts: 2826
Joined: Jun 2010

You understand your disease and your treatments and do it all with style and grace, Linda. And then you take the time to share and educate us about it all. I'm so pleased that you were able to quality for this treatment and that you're a real part of it. I hope those markers plummet soon and you can tolerate the remaining treatments.

Suzanne

daisy366's picture
daisy366
Posts: 1493
Joined: Mar 2009

But you are your usual trooper self!! Thanks for the vast info. Hope you get some rest today and that the pills and treatment do the trick for you.

My very best to you, Mary Ann

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

Although I am still gradually being weaned off steroids and have to stay on prescription Prilosec another couple of weeks, I did want to let you know that I am fully recovered now from the radioembolism last Wednesday (8 days). In fact, I weeded all morning, lounged in the new pool with a friend all afternoon, and the grandkids will be here soon to sleep over tonight, with plans for us to go for brunch & to see KungFu Panda 2 in 3-D early tomorrow afternoon. Maybe it's the false energy of the steroids, but I feel like my old healthy energetic self again. I was very sick the 1st few days following the procedure, but really worked at hydrating, eating healthy and doing what exercise I could and I think the excellent care I gave myself made a huge difference in how quickly I bounced back. My bowels are somewhat loose (I go within an hour of eating every time), but I am not uncomfortable.

The radiation will continue to work in me killing cancer for another week. Then it will be at least 3 weeks before any reliable testing can be done, to see if there are any early indicators of effectiveness. I still have to get the other half of my liver radioembolized in July, but at least we did the side with the vast majority of the cancer already. So I have returned to my symptom-free, side-affect-free blissful existance. Extensive liver mets and a CA125 last measured at 8500,...and yet I feel GREAT! Cancer is one wierd beast!

paris11
Posts: 159
Joined: Oct 2010

Always forging ahead - always with love and spunk. I just read about your new challenge. You are amazing.

As for me, I have been in Florida for most of the winter - no computer, no TV, but great friends, stacks of books, and, of course, the ocean. It has been about a year since the lymph node was detected. I completed IP in December, 2010. So far, so good.

Let's have a spectacular summer !!!

Love you, and all our warriors,

Connie

Ro10's picture
Ro10
Posts: 1579
Joined: Jan 2009

I am so happy to hear you are feeling good again. I was happy to see you post in the evening, too, and not the early morning hours. I hope that means you are getting some sleep. How about your weight. Are you maintaining your weight, or have you lost more? I hope you are maintaining, or gaining. With all those steroids I would think you would gain. You have been taking excellent care of yourself, and glad you recognize that.

So glad you enjoyed the day, and you have fun activities with the grandkids. Emily especially will be happy to see Grandma back to her usual self. Enjoy the time with them.

I do hope this radioembolism works for you. I bet you are not looking forward to the July treatment, knowing what you know now. Hopefully you will hear good result from this treatment before you go for the other side to make it more tolerable.

Continue you "blissful existance" and find joy in each day. You are such an inspiration. Thanks for sharing all your experiences with us. In peace and caring.

Kaleena's picture
Kaleena
Posts: 1910
Joined: Nov 2009

Linda:

It so good to hear you're feeling better. Your energy portrays over the internet. I am glad you are enjoying all of your pleasures you like to do (working in garden, being with grandkids, etc).

I hope you are having an excellent day with the grandkids!

Kathy

Rewriter's picture
Rewriter
Posts: 496
Joined: Dec 2009

I just wanted to add my comments to those of your loving community here. You so deserve to feel energetic; to enjoy your time in the pool, with your family (grandkids, especially) and friends, gardening; and to have the first part of a SUCCESSFUL treatment behind you. My thoughts are with you, and may this cutting edge treatment give you many, many years to enjoy your life.

Jill

upsofloating's picture
upsofloating
Posts: 473
Joined: Dec 2009

Glad to hear you have recovered and are raring to enjoy your summer fun with family and friends. Enjoy your break and with this experience under your belt the next go-round might just 'go better'.
You sure don't let the cancer beast get you down!
Annie

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TiggersDoBounce
Posts: 413
Joined: Oct 2009

Glad you are getting back to your old (young) self!!

Laurie

sleem
Posts: 92
Joined: Feb 2010

So glad you are feeling better, enjoying the family, and going to the movies. Bless you for keeping all of us informed.

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