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Nephrostomy tube and Kidney functions

bspangler47's picture
bspangler47
Posts: 145
Joined: Sep 2010

The last few months I have been having a hard time urinating 100 percent due to the urters (sp) blocked etc. So I have a stint in the right urter (sp) and a few months ago they put the Nephrostomy tube in. It has been very uncomfortable at times. But I am remaining positvie. I go for another renal scan on Tuesday. I seen the kidney dr he said the last scan I had should that the left one wasnt blocked. So if it shows the samething then next Friday I will be able to get the tube removed!!!! Yea I am excited. Then we discussed my right kidney is only working 20 percent. He said there are 3 options, surgery to have the kidney removed, or have a stint in then have it exchanged every 3 monthsr, or just remove the stint and see what happens. I dont feel I will be able to handle the surgery weighing 84 lbs.

Barbara

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

But I expect the best results for you! .
I will pray for it!
Hugs!

smokeyjoe
Posts: 1428
Joined: Feb 2011

I don't have any experience with this either, sorry you are having this issue. Why are your ureters blocked? Is it because of a tumor or scar tissue from surgery? Nice to see you back posting, you've been gone a while. Hope your chemo. is going well. Leena

bspangler47's picture
bspangler47
Posts: 145
Joined: Sep 2010

Hi Leena,

Right now I am in remission have been since last yr. They say the blockage is from the radiation/chem I had plus scar tissue. We just moved out of military housing and bought a house for my son and I. Its hard I cant pack like I used to before I got sick. It takes alot out of me.

Barbara

ron50's picture
ron50
Posts: 1721
Joined: Nov 2001

BIG (((((hugs))))). Sorry you are having kidney problems. I have damaged kidneys fronm either the original chemo or 13 years of fleet colonoscopy preps. My filters are all scarred and I lose up to 3 grams a day of protein thru them. They keep it in check with blood pressure meds. I have passed three lots of stones but my worst experience was a kidney biopsy. That hurt. I really feel for you as kidneys must be connected to every pain receptor in the body. I hope it all goes well for you and you don't need an op,Ron.

bspangler47's picture
bspangler47
Posts: 145
Joined: Sep 2010

Hi Ron,

They said that my urter on the right side is blocked due to radiation/chemo and scar tissue. I am looking forward to having the tube removed this upcoming Friday. And will have them leave the stint in and just have exchanged every three months.

I am trying to remain positive but it is hard sometimes. I get tired very easily.

Thanks
Barbara

BettyJoM's picture
BettyJoM
Posts: 86
Joined: May 2011

Hi Barbara,
don't have any experience in kidneys, Im sorry.

I feel your pain with your children. dont you have any family close by to help you, like your mom? I cant imagine how difficult it would be to go through cancer treatment being a single mom with such young children. My heart goes out to you. May I ask why you are 80 lbs? are you too sick to eat?
I wish you were closer, I would help you when I could. Make you soup. LOl
God Bless you
Betty Jo

kluong
Posts: 23
Joined: Nov 2010

Hi Barbara,

My hubby has a stent placed in his kidney when he was first dx. His onc said it would be a good idea because my hubby would be having lots of chemo and he needed the kidney to be in the best possible shape. It was an excellent idea. He has been on chemo for 1 1/2 years and his kidney is doing great. It is call black beauty and they can switch it out once a year not every 3 months like your doctor said. Maybe there are different type of stents out there but our works great. The procedure is out patient and you don't even know you have the stent there. We switched it out two months ago because there were some crests around the stent but otherwise it is doing great.

I hope the best for you.

Kim

bspangler47's picture
bspangler47
Posts: 145
Joined: Sep 2010

Kim,

Thank you for all the support. I appreciate it. I have done with treatments. And still in remission. Thank God. I have the right stent in for months. It has been exchange a few times now. I wish I would of had the option when I was going thru treatment.

Barbara

bspangler47's picture
bspangler47
Posts: 145
Joined: Sep 2010

Hi Betty Jo,

I have family around they are my older two children and son in law. My daughter is 25 with 2 small boys and this time her husband is deployed. And she doesnt drive. So as long as I feeling fine I go help her out. But my oldest son whose 22 isnt speaking to me right now. Hes in the military and came where we live to help me out with my 2 small children. It was stressful at times with him. He didnt help with cooking and cleaning etc. And other things happened with him, making negative comments while I was in the hospital, like he wasnt going to help me all the time. So when I got retired from the military I bought my own house, and told him he couldnt live with us anymore because of him not helping with the cleaning etc. It was 2 stressful. I havent heard from nor seen him for over a month. I figured since I survived and in remission I cant live like anymore.

Regarding my weight, I am having a hard time gaining weight. They arent sure why. I know I have had several surgeries with my colon. Plus having loose stools. I do eat just in smaller amounts. I get tired very easily.

Barbara

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

barabara,
i hope it goes well and you feel better.
hugs,
pete

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bspangler47's picture
bspangler47
Posts: 145
Joined: Sep 2010

I had a renal scan done yesterday. It showed my left kidney is working and the right one is at 27% last time it was at 20%. So after I had the scan done, I asked it they can take the tube out, they said yes. What a difference to have the tube to come out. It is so different. My little son is so happy that I dont have it in. He said we should have a "tube party".

I spoke to the kidney dr that was covering for my dr since he is TDY. He said I am not a text book chase. I go on the 26th to see my dr. Not sure what they will tell. But I am praying everything is better.

ron50's picture
ron50
Posts: 1721
Joined: Nov 2001

I hope things level out and start to improve. I saw my nephrologist on monday. He is concerned that there is no name associated with my problems. I lose protein thru my kidneys ,i have neuropathy in both feet legs and left hand. He thinks it is all interelated and may be some sort of auto-immune vasculitis.It has brought on psoriatic arthritis and odd things like bi-latteral frozen shoulders. I will do a 24hr urine collection next week and if the protein loss is not at the stable levels of the last couple he is talking another kidney biopsy. All the best Ron.

bspangler47's picture
bspangler47
Posts: 145
Joined: Sep 2010

I will find out more when I go see the dr on the 26th. I still have probelms with loose stools due to the colorectal cancer, which gets to be to much at times. Moved into a new house and havent really unpacked.

You are in my thoughts and prayers. Keep me posted.

Barbara

RickMurtagh's picture
RickMurtagh
Posts: 584
Joined: Feb 2010

so glad you kidney function is improving and the nephrostomy has been removed without complications!

I have only one working kidney. My left utterer became blocked and over time my left kidney stopped working. I had a nephrostomy for 3 months hoping to see the kidney start to function again. It did not. Your kidney is working 27% and improving - OUTSTANDING!

So much to celebrate!

wishing you the very best!

bspangler47's picture
bspangler47
Posts: 145
Joined: Sep 2010

thanks I am trying to remain positive :) go see dr on the 26th of May

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