Treanda Knowledge is POWER

CountryGal7557
CountryGal7557 Member Posts: 164 Member
I searched Bendamustine on Youtube.com and found some good listening material. Did not hear/mention of side affect rash/itching during treatments, but maybe Michele will have a better ear for picking up on it than I did. There are positive vibes for everyone in these videos! even one from M.D. Anderson in the States!

Latest videos uploaded March 15, 2011 American Society of Hematology (ASH)
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ASH 2010 history 50 years old
ASH 2010 mantle cell lymphoma 2003 Europe Study
ASCO 2010 Dr Rummel

Older but still valuable in my opinion:
http://www.youtube.com/user/ecancertv?blend=19&ob=5#p/a/u/2/OjYznUXT9Ac Prof Karol Sikora – on UK health care vs US
Sept 16, 2010
ASH Dec 18, 2009
July 10, 2009 M.D. Anderson, US

watchful waiting from a personal experience
anxiety & the fear from a personal experience


A fun version: Gene Wilder Talks about Non-Hodgkins Lymphoma 2007


as of 4/26/11 Gene Wilder is alive and will be 78 on 6/11/11 as 11+ year survivor of NHL (if my calculations are correct) http://www.deadoraliveinfo.com/dead.nsf/wnames-nf/wilder+gene


Janelle

Comments

  • allmost60
    allmost60 Member Posts: 3,178
    Thanks...
    Hi Janelle,
    Wow..you have been a busy bee! I've saved your post to my documents and will go back and check all of this out later today. How nice of you to share this with us. Have a good day.
    Love...Sue (FNHL-2-3A-6/10)
  • CountryGal7557
    CountryGal7557 Member Posts: 164 Member
    allmost60 said:

    Thanks...
    Hi Janelle,
    Wow..you have been a busy bee! I've saved your post to my documents and will go back and check all of this out later today. How nice of you to share this with us. Have a good day.
    Love...Sue (FNHL-2-3A-6/10)

    knowledge is power
    sometimes it takes time to find the right terms to search with to get an answer, but I'm finding that the professionals don't know or don't want to admit they don't know.
    ;)
    Janelle
  • allmost60
    allmost60 Member Posts: 3,178

    knowledge is power
    sometimes it takes time to find the right terms to search with to get an answer, but I'm finding that the professionals don't know or don't want to admit they don't know.
    ;)
    Janelle

    I hear ya..
    Yep..you are sooo right. I don't work, so I spend a lot of time researching and it has helped me more than anything doctors have told me. I'm not the type to just go with the flow and hope for the best...I need to know ahead of time whats going to be happening. Thanks for sharing your info...Love...Sue (FNHL-2-3A-6/10)
  • COBRA666
    COBRA666 Member Posts: 2,401

    knowledge is power
    sometimes it takes time to find the right terms to search with to get an answer, but I'm finding that the professionals don't know or don't want to admit they don't know.
    ;)
    Janelle

    Knowledge
    Janelle,
    It is sad to say and sometimes we have no choice ,but we are really taking our lives in our hands when we go to the Drs.They all want to specialize now. The money is better. Then a lot of them don't know what they are talking about. I am not talking thru my...well you know what,but I have gone thru this several times in my 62 years.I am a researcher as well. I want to know what is going on and coming. John(FNHL-1-4A-5/10)
  • Michele23
    Michele23 Member Posts: 168
    COBRA666 said:

    Knowledge
    Janelle,
    It is sad to say and sometimes we have no choice ,but we are really taking our lives in our hands when we go to the Drs.They all want to specialize now. The money is better. Then a lot of them don't know what they are talking about. I am not talking thru my...well you know what,but I have gone thru this several times in my 62 years.I am a researcher as well. I want to know what is going on and coming. John(FNHL-1-4A-5/10)

    Thank you bunches
    Janelle,I'll check them out.Have searched high and low for answers.Hugs,Michele DX95FNHL3
  • miss maggie
    miss maggie Member Posts: 929
    What a sweetheart
    Dear Janelle,

    Where do you get the time? I don't work, and I have no time.

    Thank you, thank you. I too will save your post to my computer files (documents).

    God Bless you. Love Maggie
  • JoanieP
    JoanieP Member Posts: 573
    allmost60 said:

    I hear ya..
    Yep..you are sooo right. I don't work, so I spend a lot of time researching and it has helped me more than anything doctors have told me. I'm not the type to just go with the flow and hope for the best...I need to know ahead of time whats going to be happening. Thanks for sharing your info...Love...Sue (FNHL-2-3A-6/10)

    Sue
    Hey Sue, Could you watch alll the videos and write all the things we need to know:) Just asking:)
  • CountryGal7557
    CountryGal7557 Member Posts: 164 Member
    JoanieP said:

    Sue
    Hey Sue, Could you watch alll the videos and write all the things we need to know:) Just asking:)

    LOL
    thanks for today's laugh Joanie!

    btw....You and Sue look alike in your pictures! Sole Sisters I'm guessing! :)
  • dixiegirl
    dixiegirl Member Posts: 1,043 Member

    LOL
    thanks for today's laugh Joanie!

    btw....You and Sue look alike in your pictures! Sole Sisters I'm guessing! :)

    Joanie
    I agree LOL.. Sue better get on the ball woman!

    Love ya,
    Beth