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Treanda Knowledge is POWER

Posts: 164
Joined: Feb 2011

I searched Bendamustine on Youtube.com and found some good listening material. Did not hear/mention of side affect rash/itching during treatments, but maybe Michele will have a better ear for picking up on it than I did. There are positive vibes for everyone in these videos! even one from M.D. Anderson in the States!

Latest videos uploaded March 15, 2011 American Society of Hematology (ASH)
http://www.youtube.com/watch?v=AxsUA4vNtps ASH 2010 history 50 years old
http://www.youtube.com/watch?v=cEDRVueEYp0 ASH 2010 mantle cell lymphoma 2003 Europe Study
http://www.youtube.com/watch?v=iMhNVAtQ6TE&NR=1 ASCO 2010 Dr Rummel

Older but still valuable in my opinion:
http://www.youtube.com/user/ecancertv?blend=19&ob=5#p/a/u/2/OjYznUXT9Ac Prof Karol Sikora – on UK health care vs US
http://www.youtube.com/watch?v=rEDNldZeYfE Sept 16, 2010
http://www.youtube.com/watch?v=tqmlzk_9ZdA ASH Dec 18, 2009
http://www.youtube.com/watch?v=JOvvZFF2F4k&feature=related July 10, 2009 M.D. Anderson, US

http://www.youtube.com/watch?v=poWiTIcwbKg&feature=related watchful waiting from a personal experience
http://www.youtube.com/watch?v=08GQNcwXjnM&feature=related anxiety & the fear from a personal experience

A fun version: Gene Wilder Talks about Non-Hodgkins Lymphoma 2007

as of 4/26/11 Gene Wilder is alive and will be 78 on 6/11/11 as 11+ year survivor of NHL (if my calculations are correct) http://www.deadoraliveinfo.com/dead.nsf/wnames-nf/wilder+gene


allmost60's picture
Posts: 3184
Joined: Jul 2010

Hi Janelle,
Wow..you have been a busy bee! I've saved your post to my documents and will go back and check all of this out later today. How nice of you to share this with us. Have a good day.
Love...Sue (FNHL-2-3A-6/10)

Posts: 164
Joined: Feb 2011

sometimes it takes time to find the right terms to search with to get an answer, but I'm finding that the professionals don't know or don't want to admit they don't know.

allmost60's picture
Posts: 3184
Joined: Jul 2010

Yep..you are sooo right. I don't work, so I spend a lot of time researching and it has helped me more than anything doctors have told me. I'm not the type to just go with the flow and hope for the best...I need to know ahead of time whats going to be happening. Thanks for sharing your info...Love...Sue (FNHL-2-3A-6/10)

JoanieP's picture
Posts: 573
Joined: Mar 2010

Hey Sue, Could you watch alll the videos and write all the things we need to know:) Just asking:)

Posts: 164
Joined: Feb 2011

thanks for today's laugh Joanie!

btw....You and Sue look alike in your pictures! Sole Sisters I'm guessing! :)

dixiegirl's picture
Posts: 1043
Joined: Apr 2006

I agree LOL.. Sue better get on the ball woman!

Love ya,

COBRA666's picture
Posts: 2413
Joined: May 2010

It is sad to say and sometimes we have no choice ,but we are really taking our lives in our hands when we go to the Drs.They all want to specialize now. The money is better. Then a lot of them don't know what they are talking about. I am not talking thru my...well you know what,but I have gone thru this several times in my 62 years.I am a researcher as well. I want to know what is going on and coming. John(FNHL-1-4A-5/10)

Posts: 168
Joined: Mar 2011

Janelle,I'll check them out.Have searched high and low for answers.Hugs,Michele DX95FNHL3

miss maggie
Posts: 929
Joined: Mar 2010

Dear Janelle,

Where do you get the time? I don't work, and I have no time.

Thank you, thank you. I too will save your post to my computer files (documents).

God Bless you. Love Maggie

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