CSN Login
Members Online: 7

You are here

Maint Rituxan cancelled today

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Hi guys,
Well...got my labs done(looked fine) and after seeing my onc he decided to not do my Rituxan today until a new set of scans are done. He didn't like the swelling under my left arm or the tender area in the left breast tisue. He also checked the left side of my neck and said it was indeed swollen. Between the area's of swelling and the headaches I've been having he thinks it's better to be safe and get new scans...he wants pelvic, stomach, chest and neck. I go in on Wed morning at 7:45.Scheduled to go back in to see him next Monday for the results. If the scan is clean, he will send me back to the chemo room to get my second dose of Rituxan...if it isn't...well...I guess he will tell me whats next. He did say if the scan is ok, he would probably prescribe an antibiotic to see if that clears up the sore throat/swelling in the neck. So...thats the scoop for today. Glad I got an early scan time on Wed...I hate doing them late in the morning or afternoon. It will be done with contrast, so lets keep our fingers crossed that I don't light up!..ha!
Love ya...Sue (FNHL-2-3A-6/10)

forme's picture
forme
Posts: 1162
Joined: Aug 2010

Hi Sue,
Gosh, I am sorry to hear of your ongoing troubles. I am happy that your doc is on the job. I'll be thinking only positive thoughts for wed. hang in, I know that the waiting is so very hard.
Lisha

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

I am also saddened by your need for the scan but Whoopee he listed to you. Thank goodness. I am proud of you for bringing it up. Also very happy to hear the early morning time, I love my 6:45's.

Hopefully it's nothing to worry about, but always better to be on the safe side.

Take care, '
I love you all

Beth

She514's picture
She514
Posts: 47
Joined: Mar 2011

Nothing worse than postponing an appointment but this is for a good reason. Hopefully no "light up" Wednesday and you are able to resume your Rituxan schedule. Possitive vibes to you Wednesday morning!

Rosie

cookingirl's picture
cookingirl
Posts: 183
Joined: May 2010

Sue - so sorry all these thinga are cropping up for you! Know you hate waiting for CT scan results and worrying about these new pop up nodes - bummer! I'll be saying prayers all goes well for you and you'll be worry free very soon! Your attitude is always so positive and let's hope it's nothing and the Doc is just being extra careful.

Keep us posted and we're cheering for you! Love, Fran

truckingalong
Posts: 444
Joined: Aug 2010

Sue,

I am sorry to hear of your bumps along the road - keep in mind they are temporary and then you will have better days - good luck on Wed. Thinking of you with positive thoughts.

Love,
Liz

onlytoday's picture
onlytoday
Posts: 601
Joined: Jun 2010

Sue,

So sorry to hear - hopefully it's a big nothing. No lighting up on Wednesday. I'll keep you in my prayers as always. Keep your amazing attitude!

Love,
Donna

NMZ NHL Stage iv 05/10 REMISSION 01/11/11

onlytoday's picture
onlytoday
Posts: 601
Joined: Jun 2010

Sue,

So sorry to hear - hopefully it's a big nothing. No lighting up on Wednesday. I'll keep you in my prayers as always. Keep your amazing attitude!

Love,
Donna

NMZ NHL Stage iv 05/10 REMISSION 01/11/11

Michele23
Posts: 168
Joined: Mar 2011

Hi Sue,Hope this isn't anything major and your scans come back O.k.Good their being safe.More waiting....Take care,Michele Dx95FNHL3

miss maggie
Posts: 929
Joined: Mar 2010

Dear Sue,

Sorry you go in for one thing, and get news totally unexpected. Your doctor seems to be on
top of things, great.

As always, I think of you always, but especially on Wednesday, and next Monday. We are always playing the waiting game. That's the story of our lives.

7:45 AM for a scan. Oh my. I am glad the time in the morning works for you. Even though I
get up early, I am not the type to run out early.

Bless you, stay strong as always. Love Maggie

yesyes2
Posts: 567
Joined: Jul 2009

Oh My goodness Sue you certainly suprised me with your post. I am so sorry you have more tests to do. I thought everything was going pretty good for you, didn't realize you were experiencing swelling and pain in your neck, breast and underarm. And you had been keeping all this to your self.

I'm very glad that your Onc has ordered a complete scan and that you don't have to wait too long to have your results. I know how maddening it is for you to wait, grrrr. Did your Onc order a CT or a PET this time? Lets hope that you are just experiencing an infection that will clear up with antibiotics in no time at all. And that next Monday will be just another Rituxan day.

I'm sending lots and lots of hugs and prayers your way. Try and stay calm, I know it's hard to do, at least for me.

Love ya my friend,
Leslie

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Hi Leslie,
One of the problems with constantly researching our cancer is reading all of the side affects we might experience. I just assumed(from researching) that the swelling under my arm and tender breast might be caused from the R. The swollen glands in my neck I associated with spring weather..sinus drainage, etc....headaches..same thing..probably weather related. So..I just rolled with it and figured it was best to not jump to conclusions until seeing my Onc. I gave it a month of ignoring, and since it's an indolent cancer I didn't feel like waiting would make that much difference one way or the other. I AM glad my Onc is going to check it all out through scans...at least we will know for sure this way. My scan is CT-with contrast..no PET. Don't know why he always goes with CT, but the contrast will light me up if anything is going on. Ya know...I really think it's all going to be fine.
Love ya too...Sue (FNHL-2-3A-6/10)

KC13167's picture
KC13167
Posts: 215
Joined: Jun 2010

Sue,

I'm sorry to hear about this new situation. Do you think that you should have a mammogram too? More importantly......Let them know that you need to be fixed soon 'cause that Baby Lizzie will be here soon! I love my grands!

Kellie

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Sue,
You know we are all behind you. Always have been and always will be. John(FNHL-1-4A-5/10)

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

I agree, I did the mammogram first because I was due and breast pain scares me. My mom died of bc and with my cancer already you never know.

Here's my take on the Rituxan side effect thing. Did you have this same sensation during the entire time you did the CVPR. You've been having the rituxan all along young lady. You have already had any side effects I would imagine. You haven't had these problems until recently. Your body changed. Pay attention and quit riding things off. I don't care if it's indolent, it doesn't matter. Speak up, don't worry about being a silly goose, you come first.

Ok I am done getting onto you. Just take it from someone who's had this crap 4 times, what seems minor May be minor. Let your doctor determine, but he has to know about it first! A phone call is all it takes. Please promise me that you will NOT put off for tomorrow what needs done today?

I love you sue, please am I going to have to come West to beat you up???

Beth

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Nope...you won't have to come here and kick my butt...blue birds honor..ha!!(wasn't a scout)ha! Yes... I am very relieved to get in for the scans in the morning. It will put all of our wondering to rest, and if there is a next time..I WON'T wait to call my Onc. I was just trying to give the R time to do it's thing, but your right...new symptoms always need to be addressed, sooner than later. Ok now...you need to rest and save your butt kickin energy for that little twit co-worker that gave you a hard time. She doesn't want to piss all of us off..hahaha! Love ya...Sue (FNHL-2-3A-6/10)

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

I thought I was in a calm gentle place and now I found out I am associated with a bunch of violent A$$ kickers. John

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

You have anyone messin with you right now? Just let us know...we will "talk" them to death on here..ha! It's easy being tough on the key board..hahaha!

Subscribe to Comments for "Maint Rituxan cancelled today"