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when to get a 2nd opinion

jejohn
Posts: 48
Joined: Nov 2010

Hey! This is my first time to post on here. I have stage 4 lung cancer with met. to bones. I was on carbo, alitma, and avastin and after 4 treatments, I had an excellent PET in December. After 2 more treatments, my dr. took me off of carbo. My PET last week now shows my cancer has spread to several spots on my spine, where before it was only in my right arm. It has also spread in tiny spots to my lungs. I was so disappointed and feel naive and stupid for thnking I could get this disease in remission. My dr.had said he thought since I was doing so well, it could go in remission and he would radiate the tumor. I start a new chemo tomorrow. I dont understand why the tumor has not already been radiated or why he took me of carbo. I am just wondering if anybody else has been in this situaton. I am so down and am losing hope.

phoobear
Posts: 39
Joined: Apr 2011

hi all, i keep check on everybody, but have been so tired i can hardly do anything else. i have had 4 chemo treatments now, and 4 rads. my throat is getting a little sore as well. i am not sick but just do not want anything too eat. i have a terrible rash all over my feet, arms, and legs. they are larege and purple and scab over. burn really bad. my hair is all most gone now, which is a minor thing if i can get well. i am having a memory problem. i will be thinking of one thing and before long some other thought takes it over totally unrelated, but very frustrating. when i feel my self getting depressed i read about all you brave and couragous friends i have made on here. will keep you posted. has anyone ever had any of these problems with there skin and memory? god bless each and every one of us. phoobear

phoobear
Posts: 39
Joined: Apr 2011

hi all, i keep check on everybody, but have been so tired i can hardly do anything else. i have had 4 chemo treatments now, and 4 rads. my throat is getting a little sore as well. i am not sick but just do not want anything too eat. i have a terrible rash all over my feet, arms, and legs. they are larege and purple and scab over. burn really bad. my hair is all most gone now, which is a minor thing if i can get well. i am having a memory problem. i will be thinking of one thing and before long some other thought takes it over totally unrelated, but very frustrating. when i feel my self getting depressed i read about all you brave and couragous friends i have made on here. will keep you posted. has anyone ever had any of these problems with there skin and memory? god bless each and every one of us. phoobear

phoobear
Posts: 39
Joined: Apr 2011

sorry everyone about the 3 exact posts. i think i have really lost it. lol sorry god bless phoobear

phoobear
Posts: 39
Joined: Apr 2011

hey everyone. well i just finished up my carbo and tax 3 weeks ago. i had some pretty rough day, beause the radiation makes you so tired and my stomach hurt really bad. i guess this goes along with it. i had a pet scan and my tumor had shrunk 1/3. happy about that, i went back too oncologist thursday and he is going too do another one too see if there is any more shrinkage. my cancer is 3b and inoperable. 3 days ago my neck and hand and arm started paining really bad. the pain meds do not help a lot. i was wondering if anyone else had this problem after they finished treatments. also my dr gave me prednisone mixed in with my chemo and i have gained a lot of weight. quit smoking as well and i am sure that has a lot too do with the weight as well. i am having a lot of trouble with swelling in feet and legs. it was so bad he gave me lasix through my port. has anyone else had this problem? i am sorry if i sound like poor mr, i certainly do mot mean too. i dread waiting on the report of pet scan again. you guys are wonderful on this site and i am so glad we all have each other. i will let everyone know. my eyebrows and lashes are coming out now. i had all ready lost all my hair. you know what they say bald is beautiful. lol i had not read any of the posts for awhile and glad too catch up on everyb ody.each and everyone of you are in my daily prayers. god bless each and everyone of us and maybe there will be a cure soon. phoobear

phoobear
Posts: 39
Joined: Apr 2011

hey everyone. well i just finished up my carbo and tax 3 weeks ago. i had some pretty rough day, beause the radiation makes you so tired and my stomach hurt really bad. i guess this goes along with it. i had a pet scan and my tumor had shrunk 1/3. happy about that, i went back too oncologist thursday and he is going too do another one too see if there is any more shrinkage. my cancer is 3b and inoperable. 3 days ago my neck and hand and arm started paining really bad. the pain meds do not help a lot. i was wondering if anyone else had this problem after they finished treatments. also my dr gave me prednisone mixed in with my chemo and i have gained a lot of weight. quit smoking as well and i am sure that has a lot too do with the weight as well. i am having a lot of trouble with swelling in feet and legs. it was so bad he gave me lasix through my port. has anyone else had this problem? i am sorry if i sound like poor mr, i certainly do mot mean too. i dread waiting on the report of pet scan again. you guys are wonderful on this site and i am so glad we all have each other. i will let everyone know. my eyebrows and lashes are coming out now. i had all ready lost all my hair. you know what they say bald is beautiful. lol i had not read any of the posts for awhile and glad too catch up on everyb ody.each and everyone of you are in my daily prayers. god bless each and everyone of us and maybe there will be a cure soon. phoobear

phoobear
Posts: 39
Joined: Apr 2011

hey everyone. well i just finished up my carbo and tax 3 weeks ago. i had some pretty rough day, beause the radiation makes you so tired and my stomach hurt really bad. i guess this goes along with it. i had a pet scan and my tumor had shrunk 1/3. happy about that, i went back too oncologist thursday and he is going too do another one too see if there is any more shrinkage. my cancer is 3b and inoperable. 3 days ago my neck and hand and arm started paining really bad. the pain meds do not help a lot. i was wondering if anyone else had this problem after they finished treatments. also my dr gave me prednisone mixed in with my chemo and i have gained a lot of weight. quit smoking as well and i am sure that has a lot too do with the weight as well. i am having a lot of trouble with swelling in feet and legs. it was so bad he gave me lasix through my port. has anyone else had this problem? i am sorry if i sound like poor mr, i certainly do mot mean too. i dread waiting on the report of pet scan again. you guys are wonderful on this site and i am so glad we all have each other. i will let everyone know. my eyebrows and lashes are coming out now. i had all ready lost all my hair. you know what they say bald is beautiful. lol i had not read any of the posts for awhile and glad too catch up on everyb ody.each and everyone of you are in my daily prayers. god bless each and everyone of us and maybe there will be a cure soon. phoobear

phoobear
Posts: 39
Joined: Apr 2011

hey everyone. well i just finished up my carbo and tax 3 weeks ago. i had some pretty rough day, beause the radiation makes you so tired and my stomach hurt really bad. i guess this goes along with it. i had a pet scan and my tumor had shrunk 1/3. happy about that, i went back too oncologist thursday and he is going too do another one too see if there is any more shrinkage. my cancer is 3b and inoperable. 3 days ago my neck and hand and arm started paining really bad. the pain meds do not help a lot. i was wondering if anyone else had this problem after they finished treatments. also my dr gave me prednisone mixed in with my chemo and i have gained a lot of weight. quit smoking as well and i am sure that has a lot too do with the weight as well. i am having a lot of trouble with swelling in feet and legs. it was so bad he gave me lasix through my port. has anyone else had this problem? i am sorry if i sound like poor me,certainly do mot mean too. i dread waiting on the report of pet scan again. you guys are wonderful on this site and i am so glad we all have each other. i will let everyone know. my eyebrows and lashes are coming out now. i had all ready lost all my hair. you know what they say bald is beautiful. lol i had not read any of the posts for awhile and glad too catch up on everyb ody.each and everyone of you are in my daily prayers. god bless each and everyone of us and maybe there will be a cure soon. phoobear

phoobear
Posts: 39
Joined: Apr 2011

hey everyone. well i just finished up my carbo and tax 3 weeks ago. i had some pretty rough day, beause the radiation makes you so tired and my stomach hurt really bad. i guess this goes along with it. i had a pet scan and my tumor had shrunk 1/3. happy about that, i went back too oncologist thursday and he is going too do another one too see if there is any more shrinkage. my cancer is 3b and inoperable. 3 days ago my neck and hand and arm started paining really bad. the pain meds do not help a lot. i was wondering if anyone else had this problem after they finished treatments. also my dr gave me prednisone mixed in with my chemo and i have gained a lot of weight. quit smoking as well and i am sure that has a lot too do with the weight as well. i am having a lot of trouble with swelling in feet and legs. it was so bad he gave me lasix through my port. has anyone else had this problem? i am sorry if i sound like poor me,certainly do mot mean too. i dread waiting on the report of pet scan again. you guys are wonderful on this site and i am so glad we all have each other. i will let everyone know. my eyebrows and lashes are coming out now. i had all ready lost all my hair. you know what they say bald is beautiful. lol i had not read any of the posts for awhile and glad too catch up on everyb ody.each and everyone of you are in my daily prayers. god bless each and everyone of us and maybe there will be a cure soon. phoobear

phoobear
Posts: 39
Joined: Apr 2011

can any one tell me why my posts are coming up twice? thanks

phoobear
Posts: 39
Joined: Apr 2011

can any one tell me why my posts are coming up twice? thanks

phoobear
Posts: 39
Joined: Apr 2011

can any one tell me why my posts are coming up twice? thanks

phoobear
Posts: 39
Joined: Apr 2011

can any one tell me why my posts are coming up twice? thanks

phoobear
Posts: 39
Joined: Apr 2011

can any one tell me why my posts are coming up twice? thanks

phoobear
Posts: 39
Joined: Apr 2011

can any one tell me why my posts are coming up twice? thanks

phoobear
Posts: 39
Joined: Apr 2011

can any one tell me why my posts are coming up twice? thanks

phoobear
Posts: 39
Joined: Apr 2011

can any one tell me why my posts are coming up twice? thanks

phoobear
Posts: 39
Joined: Apr 2011

can any one tell me why my posts are coming up twice? thanks

phoobear
Posts: 39
Joined: Apr 2011

can any one tell me why my posts are coming up twice? thanks

stayingcalm's picture
stayingcalm
Posts: 654
Joined: Feb 2007

CSN sometimes takes a long time to post a comment, so you want to refrain from re-pressing the "post comment" key, even though it's tempting :) Other than that, I don't know, sorry.

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