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Not very good support group here,, I new should havevknown better, probably better off just facing the truth.

Kathyl768
Posts: 13
Joined: Mar 2011

It's cool , I kinda know where I stand any way. Just got my hopes up . Bye

catcon49's picture
catcon49
Posts: 398
Joined: Aug 2008

This is a very good support site. Sorry I missed your post.

stayingcalm's picture
stayingcalm
Posts: 656
Joined: Feb 2007

I did get that she was on Tarceva & having trouble eating but that wasn't much to go on. An impatient patient =)

3Mana
Posts: 829
Joined: Aug 2010

Deb,
When did Kathy post & where?? Too bad she got the wrong impression. We are all very supportive, right??? Carole

Kathyl768
Posts: 13
Joined: Mar 2011

Sorry just been feeling really down, and sick from side affects. Just having a bad day. Didn't mean to sound like a cry baby.

3Mana
Posts: 829
Joined: Aug 2010

Kathy,
Sorry if you got the wrong impression. Guess I didn't even see your post, but I'm sure if you post something again, you'll get responses.
Please let us know how we can help you, okay?
I don't or didn't have cancer, but my husband did. He passed away just 1 year ago last thursday (25th). I came on this site and have found so much support and even though none of us has ever met, we've become friends cause we understand.
Please post again!!! Carole

lekkerone
Posts: 199
Joined: Jan 2011

Perhaps when you posted you were upset as what you typed what very difficult to figure out.
I hope you will give us a second chance so that we may support you. Diane

Kathyl768
Posts: 13
Joined: Mar 2011

Sometimes it's not that easy to talk about, besides I'm waiting to see if the tarceva is working or not . Maybe a little scared. Heck I don't know what I'm doing anymore.

stayingcalm's picture
stayingcalm
Posts: 656
Joined: Feb 2007

Is this the basics of what you posted:
Stage 4 lung with mets to skull, neck, collar bone and pelvic
12 treatments of Carboplatin & Alimta
Started Tarceva in March - no appetite and diarrhea, nausea?

The stomach trouble that comes with the Tarceva territory can be controlled with Immodium, unless your doc says no. Nausea, too - there are a lot of anti-nausea drugs out there. Again, clear it with your doc first.

I hope any pain you are having from mets is under control?

My best to you, stayingcalm

*as far as spelling goes, remind me to tell you sometime how long it takes me to type a sensible message since my recent tumor removal =(

mamacita5's picture
mamacita5
Posts: 254
Joined: May 2010

Don't give up on us. We promise not to give up on you. We are all in this big ugly boat together. Take care

Kathyl768
Posts: 13
Joined: Mar 2011

Thank you , I was just having a bad day. It's been a year . That's the long term they gave me if I took chemo six months without . When I got so sick I started thinking the worst. I feel better today. I was being a wimp. I wish the best to us all.

Kathyl768
Posts: 13
Joined: Mar 2011

Thanks , I've tried, a few nausea medicines, they didn't work. Funny I knew I would have problems with my tummy. So sensitive. I go back to my onc the 5th , maybe he can lower my dose of tarceva,. Thanks for the help.

Kathyl768
Posts: 13
Joined: Mar 2011

I hope you're doing ok. I'm sorry my message was so jumbled , I don't type very good. We all go thru so much with this cancer. Everyday is a new day , right now I'm thankful to have that. Every time I see my daughter smile it's like a breath of fresh air. I love her so much !!!! I got a great nephew too. You havens great day , thanks for listening. : )

Glenna M's picture
Glenna M
Posts: 1576
Joined: May 2009

Sorry you are having such a difficult time right now but please don't go away, sometimes we may be a little slow in responding but we care and will help you in anyway we can. I can't offer much advice because my treatment is different than yours as are my cancers but I will always be here to comfort and support you.

Stay strong,
Glenna

Kathyl768
Posts: 13
Joined: Mar 2011

Thank you so much, sometimes even among friends and family I sometimes feel alone. I don't won't them to worry , but I do want them to understand my sickness. I have a trip someone plan for me to new Orleans , I sure want to go. By amtrak for the quarter festival. Got a cabin on the train , rooms at parc saint charles . But I would like to feel better than I feel right now or i may not get to go. Just a little blue I guess. Hey thanks everyone for letting me vent a little . In was wrong you guys are great !!!!!!!!

Glenna M's picture
Glenna M
Posts: 1576
Joined: May 2009

We all understand what having a bad day is like and we usually vent here because we know that everyone else understands. I'm 18 months post treatment and I still have my bad days but most of them are good so I can usually handle the few bad ones that pop up.

Please check with your doctors to see if there is anything they can do to alleviate your side effects as I think you really need this trip to New Orleans. I envy you, I've never been there but my niece has several times for different celebrations and she loves it there.

Keep us posted so we will know how you are doing.

Stay well and stay strong,
Glenna

grama17's picture
grama17
Posts: 14
Joined: Mar 2011

I was reading through the posts and wanted you to know that I have only gotten on this site a few times since last week and I look forward to having time to visit with people that are so supportive. I find it a bit time consuming to look through so many posts that I want to respond to, and that is why I have to set aside time to visit here. I am sorry I didn't get on this last weekend to answer your post also. I would have told you, that you have found a good place to receive caring and support.
I try to make light of all of the feelings and worry that goes with the cancer issues, so others around me don't worry too. But then there is no one close I can vent to without making them feel bad that they can't do something to fix it. This site and the people that are a part of it have already help me a lot. I lost a husband to melanoma back in 92. By the time they found it, it was in his brain and everywhere else. He lived 9 months after the surgery and DX and he was such a trouper while keeping his sense of humor. He is my Hero, and I struggle trying to be more like him with my cancers and surgery's.
I guess what I am getting to is, we need to have somewhere to go to visit, rant and support others and this is a good place to do that.
Take care Kathy, & to all of you! I will try to come back often. Thank you

Kathyl768
Posts: 13
Joined: Mar 2011

Thanks so much , I have to remember im not alone. I'm glad I came here . Thanks every one for listening. I have to call my onc tomorrow as to a new problem I discovered tonight . A nott on the left side of my head. Great ! What next?

grama17's picture
grama17
Posts: 14
Joined: Mar 2011

I hope you keep coming to this site for support. I hope you have a good visit with your doctor and they find is nothing serious.
You are not alone, but I know it sure feels like it sometimes even when there are people all around you. Take Care and I will be praying for you.

Kathyl768
Posts: 13
Joined: Mar 2011

Thanks, I'm still waiting for a call from my doctor. I hope for good news.

3Mana
Posts: 829
Joined: Aug 2010

Kathy,
Thanks so much for giving us all a chance. I can understand how you could've been having a bad day when you first posted. It's hard enough to deal with someone who is suffering from cancer, but being diagnosed with it has to be even more frustrating. You probably feel like you've been given a death sentence, but remember this is 2011 and they can do so much for cancers now. I have read about some good results from Avastin which was the one that cost my husbands death. He just was one of the RARE ones that had the RARE side effects of hemmorraging. He only had one chemo treatment with that & 2 other chemos. And a second treatment without Avastin. Too late, though as the damage was already done. I lost him last March 25th. I was very shocked & hated everyone and was mad at the doctor for giving that too him. When you're under stress sometimes you say & do things you would never do.
Please let us know what you found out from your doctor, okay? I see your last posting was on Mar. 29th, so I hope it was good news. We are all here for you to rant & rave 24/7!!
Take care! Carole

grannysb
Posts: 21
Joined: Dec 2010

I do understand your having a bad day, I think we all do. Its important to have support and understanding. I am a colon/rectal survivor of 25 yrs and now have SCLC. I think we all understand. Please continue to come here and converse with others facing the same thing you are. Draw from the strength here.
Hugs & Blessings

jejohn
Posts: 48
Joined: Nov 2010

Sounds like we have the same problems. My dr. thought mine was under control and took me off carbo after 6 treatments. Wrong! Now I am on taxotere. Just praying it will work. I hope you are feeling well most days. I am physically fine, mentally a mess. HAve you ever thought abt. a clinical trial? Are there a lot of them out there?

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