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It's growing. :(
 |
Mar 23, 2011 - 11:06 pm
Went for the results of the most recent ct. A portion of the tumor has started to grow. Certainly not encouraging news. From here, we test for the ALK mutation, and if positive, start crizotinib. If not, then it's pemetrexid. To say this was like a kick in the stomach is an understatment. My wife has been doing so well. Climed 40 stories a few weeks back, and we just walked 4.5 miles yesterday. |
Joined: May 2009
NayPaul
So sorry to hear that your wife's tumor is growing but it sounds like her doctors have a game plan.
Stay strong and keep the faith, there is hope.
Please keep us posted.
Glenna
Joined: Nov 2010
Paul
Sorry to hear the news about your wife's tumor growing. I recently signed a waiver so I could be tested for ALK and possible Crizotinib participation. In the meantime, It is Alimta and cisplatin for me. My oncologust and I are convinved that Alimta will produce even better results that Gemzar. I still am hopeful for the Crizitinib trial!
Best wishes always to your wife and to you.
John
Joined: Jun 2010
Paul
Sorry to hear this news. I totally understand as my wife had been in remission for 9 months when we got similar news except that in her case it was mets to the brain (with no other sign anywhere else). These have been dealt with by the cyberknife, but we were devastated to hear this news. We quickly got our legs back under us and are fighting again. Keep your spirits and faith up. She needs you now more than ever!
May God Bless You and Your Wife!
Dave
Joined: Sep 2010
stay strong
I hope the new treatment takes care of the tumor and that you all remain in good spirits.
Karen
Joined: Aug 2010
Not good news
So sorry to hear that your wife's tumor is growing. I hope whatever step she takes is going to be helpful. Just keep telling her how much you love her and appreciate every day you have with her. Take care. Carole
Joined: Nov 2010
NayPaul
I am so sorry to hear about your wife. I will keep you and your family in my thoughts and prayers.
Joined: Feb 2007
Ah, NayPaul, I'm sorry :'(
And here I am, naively and selfishly hoping to hear only good news, while the world went on without me :(
I hope Crizotinib will be the magic bullet for your wife!
Deb
Joined: Oct 2010
thanks everybody
Yesterday, we felt sucker punched..... u all know the feeling. Today was tough as well, but we did start planning. We hope crizotinib will be available to us. She has adenocarcinoma, nonsmoker, female, tested negative for efgr. All of those up her chances of being alk positive, but still a one in four shot.
We researched many trials available within a 500 mile radius, the other hopeful one seems to be lucanix...a vacine. However that is a double blind..... nd I don't think we want to risk that before trying Alimta..... anybody have experience with lucanix?
Thanks again.
Joined: Jan 2011
NayPaul
I am so sorry to hear you got that kind of news. Don't give up the fight. I hope the Chemo is the answer.
Joined: May 2010
So sorry....
Keep fighting the good fight. I will be keeping you all in my T&P.
Be good to yourself
Elysia
Joined: Oct 2010
Thank you
Thanks Elysia.... I too lost my mother in 2010 (July). From metastic breast cancer so I appreicate your situation with the loss of your mother. Hope you getting there.
Joined: May 2010
Everyday is different...
But I am getting there. Trying to live by her example and continue her legacy of loving life and being happy. It can be a struggle at times, but I know that is what mom would want for me.....
Be good to yourself.....