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Survivors living with cancer who are not NED

AnneCan
Posts: 3692
Joined: Oct 2009

I know there are many on this board who are actively dealing with cancer but are not "NED". Some have been doing this for awhile + I would love to hear how you (long + short-term) are doing it. Many talk about this cancer as sometimes "chronic" + that may be how I survive this disease, which I am determined to do. Please share your secrets..I have been at this nearly 2 years (diagnosed the end of March 2009). I attribute my success so far mostly to an excellent medical team. I also credit this forum for keeping me as sane as I am. Friends + family play a huge role. I do try to eat fairly healthy (have degree in nutrition), juice when I can, make green tea lattes + thanks to Graci I have just tried my first buggalo meat. I have reduced, not eliminated red meats, + am more interested in how chickens are treated. I want to increase my exercise. I do take vitamin D daily. I need to talk about some other treatments to see if it's ok to take. We have a local market that sells local foods in the summer. People who are NED have a maintenace issue rather than hrlpint to treat.

luvmum
Posts: 457
Joined: Dec 2010

Dear Anne,

I know you might be feeling a bit down right now, waiting for the results to come out. My friend told me when her CEA was up a few years ago, she felt alright, did not experience any pain. Recently her CEA was lower than before, but she was not well. She learnt not to worry about the results, as long as you are still living and breathing the fresh air.

You can also see my mum's situation. Her prognosis was really bad when she was diagnosed 27Oct2011, but she is doing well. We talked to the liver surgeon this afternoon, he was pretty confident that the liver surgery will go well because her liver function and blood results were all good. We follow some recommendations from Chinese doctor who was recommended by our colon surgeon and oncologist. If you would like to know what has she been taking, I can send you a PM.

Anne, there are many friends and friends' family members fighting this for years and they all live well (with or with liver resection, with or without NED). As long as you believe you will recover, you will.

Take good care and I will always pray for you.
Dora

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

I Bern operated , but one year later recourrece! Then in October after 5 rounds of folfiri and avastin everything had gone , after 4 months wait and see some spots are showing in the scan in my lungs, despite not in the PET, but every body are afraid can be reoccurrence so I'm afraid I will be back to chemo in a short time!, Hope it works and we have another few months or years of tranquility!I'm in perfect shape ( when I got Hair,haha) so would never say I'm ill!.
Hugs!

AnneCan
Posts: 3692
Joined: Oct 2009

It's obvious that one of the tools you use to deal with the beast is your optimism + sense of humour! I wish you good results regarding your lungs.

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

better once in the fight !it always happens to me!
Un bisou!

AnneCan
Posts: 3692
Joined: Oct 2009

Sorry to hear you are down. You have lit up so many of my days with your attitude. I hope you feel better soon; you deserve it.

GaryinUK
Posts: 63
Joined: Feb 2011

Hi Dora

What did you Colon surgeon reccomend in relation to the Chinese doctor? Are you taking any medicines from them?

Regards

Gary

luvmum
Posts: 457
Joined: Dec 2010

Hi Gary,

I sent you a reply yesterday and I've just noticed it's not here... I wonder why! =(

Both the colon surgeon and the oncologist refer Chinese doctors to my mum. They both work in the Chinese medicine division at teaching hospitals (western medicine teaching hospital). We went to the first one and my mum did not have 'click' with the doctor, she had diarrhea after she drank the medicine (we know now it's because of oxaliplatin and 5-fu now). So we stopped going to this one. Then we got another referral and went to see another Chinese medicine from another university. This guy came from China and has been working in the Chinese medicine department at the university of more than 20 years. He knows all the chemo regimens very well and his research interest is also in oncology. He aims to help you to reduce the side effects during chemo treatments, he also helps patients to live their lives without chemo. My mum likes him very much and he will even give recommendations on what we should eat to help improving my mum's overall well-beings. My mum has been taking his medicine for more than 2 weeks now. I notice her side-effects on this round's chemo has reduced a lot and she regains her strength within 10 days. (compare to the first two chemo treatments that sent her to the hospital, I would consider this is very good).

Since she is going to have liver resection end of this month, the liver surgeon asked her to stop taking Chinese medicine as it might affect her liver function. We therefore stopped it a few days ago.

it is very important to find a Chinese doctor who is not after money and specialize in oncology. It's really much better if they know the chemo regimens well, so they know what they can eat, and what they cannot eat.

Sorry in the end my reply comes late and I hope you'll find this information useful.

Best regards,
Dora

luvmum
Posts: 457
Joined: Dec 2010

Hi Gary,

My mum will stop taking Chinese medicine one day before chemo and will start drinking them one day after chemo. It's only our preferences. Some Chinese doctors will say they won't affect the chemo results, but I don't want Chinese medicine affect the chemo results. Some people will stop drinking Chinese medicine during their chemo period. Besides, you need to let your oncologist know that you are taking Chinese medicine because it will also affect CEA to some extend. Since all the doctors in my mum's medical team know she is taking Chinese medicine, so when they read her blood test results, they will take this into account.

My best wishes to you!
Dora

AnneCan
Posts: 3692
Joined: Oct 2009

Yes, waiting for CT results is the pits when you know your CEA has been rising. I am glad to hear your Mom is doing well. You are a fantastic daughter. Don't forget to take care of yourself too!

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

Well, you have to count me, Annie:)

I've got no secrets - I just use "blood and guts."

I'll probably never walk a longer mile of track than these past years have given me.

I just fight is my secret...

-Craig

AnneCan
Posts: 3692
Joined: Oct 2009

Thanks for checking in. Fighting is a good tool; an important one in this challenge.

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

I am one living with cancer. My oncologist told me chemo for life when I had my recurrance/continuation of progression of cancer. I didn't like that statement. But then I responded really well to FOLFIRI and Avastin, so I graduated to maintanence chemo after 8 tx instead of the planned 12. I hoped that after maintanence for a bit, I could even consider a break for the summer. I was planning on riding RAGRAI again (a week long bike ride across Iowa), and getting back to my lifelong healthier eating (which I have not been able to do on chemo). I was told that we didn't know how long of a break I would get from progression - 2 months, 2 years, or what. I'm a realist and didn't think I was cured.

I had one cycle of 5-FU only several weeks ago (was supposed to get Avastin too, but the delivery didn't come in the winter storm), and I got an extra week off for vacation with family. Three weeks later, and my CEA is now up from 2 to 4.2. It stayed down at 2 for months on FOLFIRI, with a clear scan after 8 tx. So it looks like a repeat for me. My CEA went down to 2 and stayed there on FOLFOX and I had a clean scan and we thought I was cured. But at my very first labs we found out that was wrong. Cancer is such a rollercoaster ride. Up and down, over and over. I was celebrating being clear and graduating to maintenance chemo - making plans for the future based on being off the nastiest chemo cocktails. Only to find out a short few weeks later that my celebration was premature...

So, for now, one day at a time again. I had Avastin again this cycle - hoping that is the drug making the difference, not the Irinotecan. Without the Irinotecan I still don't like chemo, but it is doable. I've still got teenagers - I have to stick around at least a few more years, so I will do what I have to do. One day at a time. Make informed choices, with the little information we do get. That is about all we can do.

I'm a "baby" in this journey - only diagnosed 18 months ago. I know of many that have lived with cancer for lots of years. I plan to join them.

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

I went from Stage 2 to Stage 4 in the blink of an eye........Its a number only....as long as we don't go to stage 5 its just a number...We will always be forever looking over our shoulder but Im trying to see good things behind me as well as ahead instead of looking back thinking it might be the boogeyman....ya gotta remember, theres no such thing...so I look back and think about what a great day I just had, and plan for the next to be just as great...........love to ya, buzz

AnneCan
Posts: 3692
Joined: Oct 2009

You are right; rollercoaster is a good way to describr this journey. I have always liked your attitude; you have dealt with the ups + downs with grace + determination.

PhillieG's picture
PhillieG
Posts: 4907
Joined: May 2005

I'm taking a guess that's it's Bison/Buffalo?
I just passed the 7 year "living with cancer mark" last week. Believe it or not, my onc is still looking at this as being able to cure me. I'm not sure if she means like a Slim Jim or what! Thankfully, while I have been in continual treatment for this time with a break of a month or a few months here and there, the majority of my tumors have been staying small and mostly stable. I get to the point where they start to act up (CEA increases as does their size) and then I get an RFA.

I also attribute my "success" to a great medical team over at Sloan Kettering and to Ben & Jerry and their miracle ice cream cancer cure. Well, I'm not sure if it will cure me but it hasn't killed me yet either. One has to indulge in some luxuries. I also credit family and friends not to mention that there is something in my genes (other than cancer) since my Mom defying the odds and doing well considering "old age" and things going here and there. I take things seriously in life but I also can find humor in everything, even in my cancer. I do try to eat well but I don't go overboard. Unfortunately, it costs a fortune to do that and I am not in a position to do that. Yea, I know...give up the B&J.
You can pry it from my cold numb fingers

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

i will reply underneath two of the best fighters i know on this board. i was NED for 2 years and just found out about a recurance in my liver and lung in jan.so i guess i fall into the surviving with cancer post.i will start my chemo next week so here we go again.but its people like buzzard and phillieg and so many others on here that give me the hope to keep fighting...Godbless...johnnybegood

maglets's picture
maglets
Posts: 2596
Joined: Jun 2006

Annie I was diagnosed in 2005 so this is just past my sixth year and I feel as if I am a chronic case.
If it is not surgery or chemo....then as kathleen said ////it is living in the constant parallel universe of cancer. I cannot tell on most days how often I think....oh Right! I have cancer.....lots of times and it invades my dreams too.

I too try to eat a healthy diet, take Vit D and cod liver oil and a basic senior vitamin pill. I have red meat perhaps once or twice a month but I really am trying to exercise daily. I joined the local y....and go to gentle fit and stretch classes. I love my yoga class and try to spend some time each day with quiet positive imaging and breathing.....

With very best love to you with a hug

mags

AnneCan
Posts: 3692
Joined: Oct 2009

You are an inspiration to me! I think exercise is great for helping to deal with this; I need to do more of it! HUGS right back to you!

AnneCan
Posts: 3692
Joined: Oct 2009

Me too! They give me that hope too + as long as you have hope you have a chance. I know this is a tough time for you + I hope your chemo goes really well.

AnneCan
Posts: 3692
Joined: Oct 2009

You caught me - you are right; it is "buffalo" meat! I need to read my posts more carefully; I saw another typo in there too - + it won't let me edit now!!! Buggalo meat does sound intriguing though....

I like seeing the "c" word (cure)! You are a great example of someone "living with cancer" + it sounds like you lead a good life. If Ben + Jerry's is what it takes I will have to make the supreme sacrifice + have some! Thanks for your thoughts on this.

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

You can count me in the "Living with cancer" group :) I have never been NED and unless they find a way of taking my two lungs out and I'm able to breathe fine without them, then I'd say I will never see that term NED as a description of me :) But, if truth be known... NED really is not the be all and end all of anything because as we all know, NED = No Evidence of Disease. No evidence as far as our technology can find. Hey, I'm the first to say I'm in awe of how fantastic our medical technology is and the things it can do... it's quite mind boggling. But when someone gets the NED diagnosis, all that means is that as far as our imagining machines can tell, nothing shows up on the images. The cancer cells are too small to show up on any images and if ones' CEA is a good indicator for them (it isn't for everyone but for some of us, it is very good) and the CEA is low, then yipppeee... ones' cancer is too small to be detected and the CEA shows there is nothing acting up anywhere in the body (that can be detected). Someone who has NED status then gets a break from all treatments... yipppeee! But, I find NED to be a little deceiving as well. Yes, there are some people who have been declared NED and they remain NED for years and years and years! We all strive for that, but alas... not everyone gets to attain that level. Many many people get diagnosed as NED and it can be a matter of months, a matter of half a year, or even a year, and then they get the news on a regular scan or blood work that something has been detected. I don't know how often we have seen that here on this forum and when it happens, the person is devastated. They don't understand why they had to get a reoccurrence when they were doing so well. But the reality is... even though they were declared NED, they still had cancer cells, they just weren't big enough to be seen on any image... eventually they grow and eventually technology will find them. So that is why I don't like the term NED... we should have a different term... something like "BREAK TIME", meaning the cancer is so small, you get a break from any kind of treatment until further notice ;)

I was diagnosed in December 2006. Sooooo, I passed the 4 year mark this past December. When first diagnosed, I did the surgery, the chemo (8 months of FOLFOX) and 6 weeks of daily radiation. That all ended at the end of Oct 2007. Now, I was NOT NED at that time, because I had multiple nodules in both lungs... but they were considered "indolent" (aka very lazy). So, this was like being NED in that these nodules were not doing anything.. they weren't growing (not even slowly), yet they weren't disappearing either... I was in limbo. But I may as well have been NED because it meant I got to have a break from treatment since all the nodules (except for one) were very small and not growing. For that one that was larger than the others, we did an RFA procedure and had it zapped... which ended it's life :) My period of no treatment lasted from Nov 2007 until June 2010. Not bad, huh? That was like 2 1/2 years of no chemo, no nothin'... other than the every 3 month scans and blood work. We ALMOST got to where we only needed scans/blood work every 6 months... but alas, the little critters decided to wake up and start growing in the spring 2010. So, back on chemo I went... this time, Xeloda. Well, we all know how that went for me. Major problems with heel pain... but the first 3 months was brilliant. All those once lazy nodules that started to grow, well they all shrunk by 33%. Yayayaya!! So, I suffered the heel pain and continued on with the Xeloda. In Dec 2010, we found that the Xeloda had stopped working (booooo hissssss). My oncologist said that we would take a short 6 week break and then change chemos... to Irinotecan. And that's where we are now. I had the port installed in January... and my first Irinotecan treatment was Feb 7. Ha! Again, we all know how that went... baaaaaad! I have never been so sick in all my life! I was on a schedule of every 3 weeks. But my first treatment I was deathly ill for 2 out of the 3 weeks. There is no way I can do the standard 8 treatments and be sick 2 out of 3 weeks... so, today I was in to see my oncologist to decide how we are going to handle this. I will stop here because I will be starting a topic to discuss it, etc.

But in answer to your question about how does one live/survive having a chronic disease or chronic cancer... that's exactly what I do. I treat this as "This is my life" and I'm not willing to be a statistic, nor will I accept that just because I have cancer it's a given that I must suffer. Wrong. It seems that the majority of "suffering" when one has cancer comes from the side affects from the medications we have to take to keep our disease either under control or medications to kill off the disease. Well, there are two parts to living with cancer... making sure you are getting treatments that are actually effective for what you are going through and then making sure you have treatments or medications to make sure you are not suffering unnecessarily from side affects. Lucky for me, I have an oncologist who believes this as well. She says it is NOT acceptable that I am sick for 2 out of 3 weeks. She says there may be side affects, but we must make sure that we treat the side affects as well as the cancer and if we have to juggle the schedule, juggle the dosages of medicines and find medicines that combat the side affects, then that is what we must do because the end result should be that we are working on keeping the disease under control while still living the life we are used to having.

If you had (and many people do) diabetes... would you see this as an end to your life? No, of course not! You would be tested, you would be given medication and if that medication did not agree with you, then it would be adjusted so that you can continue living your life. You may have to make some lifestyle changes... and I think any illness may require that... but no chronic illness should make your life miserable.

Does that make sense?

Cheryl

Vickilg's picture
Vickilg
Posts: 281
Joined: Jan 2011

I realize you are going through a lot and have your right to express your opinion but so do I. Your post was truly the most depressing and lack of hope post I have read on this site. I wish I had not read it. Although I am not naive to the way cancer behaves I believe in hope. I believe that one's attitude about beating cancer is half the battle. To live without the mind set that I will beat this would be settling. I do not settle. I fight.

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

we all want to believe we can be NED and stay NED but cherylhutch you said it very well.you see i am one of those statistics who thought the word NED meant i was cured.no doc ever told me after 2 years and 4 months of being first dx that there is a chance this could come back.I THOUGHT I WAS CURED!!!!!! My radiologist even told me 4 months ago(i was still seeing him to help me with radiation damage and meds for neuropathy)that since i was past the 2 year mark that i had a great chance that this would not even come back.so there are people out there who get NED and stay NED but i truly believe you have to make it past the 5 year mark and even then i have read some posts about people who come back to this site who had cancer several years ago and then had a recurrance.cheryl you are one of those survivors on here who i look up to.you were on here when i was first dx and i wish i had your smiley attitude.as you remeber the oxy was very hard on me and i am fixing to hit it again.i believe (this is my opinion)that this board is here so we can help one another get thru this cancer life the best we can.we dont need to sugar coat it.cancer is what it is and we have to accept it and fight this together...Godbless...johnnybegood

maglets's picture
maglets
Posts: 2596
Joined: Jun 2006

Vicki I am so sorry that you find cheryl's post to be negative. I do not find it that way at all. At all cost I would like to avoid conflict on this forum.
Cheryl just tells her story in usual wonderful rambly way....in fact as a fellow Canadaian I can see that she is actually making light of things and even laughing at herself.

It is a long long hard path....I did not discuss the endless pain and illness that I have endured but it's there...we all do....

please be assured Cheryl is fighting ......we are all fighting....oxy is tough tough ....cancer is a tough old fight....

please let's stick together....

hugs for all

maggie

AnneCan
Posts: 3692
Joined: Oct 2009

I am sorry you found this post depressing; I found it the opposite. My belief is there is more than one way of "beating" it. Some poeple are never "cured" or it takes a long time for them to be "cured", so living with cancer is how they "beat" it. I truly hope that one day I will have "beaten" this by being cured. Right now I am trying to live as well as I can with cancer, + wanted to hear open discussion on how people are doing it. Sometimes NED seems like an exclusive club, + I am really happy for those who belong, but I want to know best methods of dealing with this beast even if I am never allowed into this club. I think the group of people not NED has a lot to offer in terms of survivorship, + I am really happy people are contributing to this thread. My journey with this is almost 2 years since diagnosis + some of these people have been dealing with it a lot longer. I am in awe.

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

I'm so sorry to read that you found my post depressing and lacking in hope... when in fact, it is the exact opposite. As most people who have been around here can attest, my posts tend to be on the long, rambling side, because I really do try to get a lot explained in each post. Of course, there is no way one can put a full 4 years into one post... for a run down of what I've been through and how I don't let it interfere with my life, you can always read my ongoing journal/blog (Cheryl's Blog).

There are some of us who have not ever been NED. There is evidence of disease each scan we have. I was diagnosed over 4 years ago and I have never had even a month of NED... so should I be depressed? I feel fine, for the most part, until just this past treatment, I have tolerated my treatments well because my oncologist has been on top of managing my side affects. And because of that, I am living a very full life... and still do all the things I love doing. Now that I'm retired, I can spend all my days doing the things I love doing... should I be depressed about that?

I don't dwell on being NED... if I wasted my time and energy feeling sorry for myself because I hear others have been told they are NED and I'm not, then I'd be leading a miserable life which, chances are, I'd blame on the cancer. If my oncologist were to say, "I have no idea how this happened, but your tumours have disappeared. There is no evidence of disease on any of your scans and your CEA is back to normal", of course I would be happy... but I would not say I was cured. I couldn't say that until 2016 when I had clear scans for 5 years. And if, at anytime in the next 5 years spots were to show up on my lungs again, it would not come as a surprise, because I know NED does not = cured and it would mean it was time to go back on treatment.

There is a whole group of us here on this forum that do not belong to the NED club... and chances are, in the foreseeable future, we won't. Does that mean we can't talk about how we survive this disease? I would have thought for those who are new to being diagnosed, that you want to hear all the success stories. The stories of those who were Stage 1 or 2 and cured with a surgery, or possibly a surgery/chemo combo. Likewise, the success stories of those who were dx'd as Stage 3 and 4... of which there are lots of success stories. There are also success stories of those of us who are fighting the battle and continue to fight the battle for years after being diagnosed... and, as I understand the title of this topic, Anne started it because she wanted to know how others who are NOT NED, surviving the day to day life of living with cancer. I have re-read my post and I still don't see where I was being negative because I am very happy with my life, love my oncologist and although I had an incredibly rough time with this first round of Irinotecan, we are changing the schedule and hopefully today's chemo will be much easier on me. If not, we will readjust it again. I find that incredibly positive that I have an oncologist who will work with me on what I can and can't tolerate.

Again... I'm sorry if you find this depressing... but for those of us who have been living with/fighting the battle, Anne's topic of "Survivors living with cancer who are not NED" is a very real topic. Just how do us long term survivors cope when we are not NED and may never be NED? It's important for those of us who continue to fight the battle, and it's important to those who thought they were NED, were told they were NED and then find out that, in fact, they aren't. I hope with all my heart you find yourself NED or even better, cured. But if you find it's an ongoing battle, then I'm here to say that life goes on and it is as good as you want to make it, because not being NED is not the end of the world.

Cheryl

AnneCan
Posts: 3692
Joined: Oct 2009

Thanks for weighing in on this one, I was hoping you would because I know you have been dealing with this awhile. I think you made so many good points but the one that really stands out for me is the one about two parts dealing with cancer; it is so true you can almost miss it. I admire the way you live your life with cancer + I really appreciate your input.

here4lfe
Posts: 306
Joined: Jan 2010

You sound like my wife! I am in awe of her. The way she has handled the past 2 years of this walk is inspiring:

"When things go wrong as they sometimes will
When the road you're travelling seems all uphill
When the funds are low and the debts are high
And you want to smile but have to sigh,
When care is pressing you down a bit
Rest if you must, but Dont You Quit"

Author Unknown

Best

geotina's picture
geotina
Posts: 2120
Joined: Oct 2009

How do people survive with Stage IV, I dont' know, they just do. They have no other options. George was diagnosed with advanced Stage IV in March, 2009, has never been off chemo except for a short break of about a month or so or when we skipped a treatment to take a short vacation. Chances are he will never be off treatment except when all available treatments fail him and there is nothing more to be done. Thats just being honest.

Right now, he is doing ok, so we take that and run with it. When he is not doing so ok, well, we will deal with that bend in the road when we get to it.

I don't dwell on the cancer 24/7 like I used to, it served no purpose except to create depression and anxiety. It is what it is.

George has what the doc now refers to as a chronic disease that most likely one day will take him from me but...not today!

Hugs - Tina

AnneCan
Posts: 3692
Joined: Oct 2009

I am glad to hear Geaorge is doing OK. You both are such inspiration to me. How did you make the move to not dwell on cancer so much? I think this is key in living with it, but I am having a hard time getting there. Thanks for responding to this thread.

here4lfe
Posts: 306
Joined: Jan 2010

My wife said, "I have cancer, the doctor is dealing with it, so I'm not going to worry". I wish I could do that.

She has never heard the words NED. In fact, whenever she is off chemo, her tumors come right back. But they get treated, she gets up, and goes back to work. Strongest person I know.

Soon we are going on the vacation she has always wanted. No worries about finances, sickness, whatever. Just Go. No time like the present!

Best

AnneCan
Posts: 3692
Joined: Oct 2009

Wow, your wife has the right attitude; I want me some of that! She sounds amazing! I hope you have a wonderful vacation.

here4lfe
Posts: 306
Joined: Jan 2010

Thanks,

We just got our income tax refund, and we intend to bring none of it back except great memories.

Best

taraHK
Posts: 1961
Joined: Aug 2003

Hi. I was diagnosed over 8 years ago. I have had four recurrences. Currently on treatment for bone mets. Over the past 8 years, I have had some great stretches (1.5 or 2 years each time) when I was NED. I seem to have a somewhat unusual pattern where I get small recurrences about once every two years.... At this stage, I will probably be on some sort of chemo for life (hopefully with some chemo breaks) and it's unlikely I will ever be "cured". I am definitely one of those who is looking at cancer as a chronic health condition -- and I believe I can live like this for a long time.

I won't talk about specific diet things I do -- generally, I just try to eat healthily, most of the time. What has been the most helpful to me (in addition to wonderful support from family and loved ones) is attitude. I try to make the most of the time periods when I am NED -- and also of the days when I am feeling good (these days, it tends to be 10 out of every 14 days - not bad!). I accept invitations, make plans, and say 'yes' a lot. If i have to cancel things, or go home early, so be it. Although it sounds cliche, I count my blessings every day, and try to look on the bright side of each situation. Although this can be shocking (nauseating?!) on occasion -- to others -- it really helps me. In particular, I am grateful for the oncologist I have. I have a strong personality (!), and take a VERY active role in decisions about my medical care -- and I am so blessed to have an oncologist who not only accepts but embraces that.

Tara

AnneCan
Posts: 3692
Joined: Oct 2009

Thanks for commenting + sharing. I was hoping you would - I know you have been at this awhile + seem to do a lot of activities, which I think is fantastic,

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

Always remember and say this when it gets unnerving sometimes " Cancer is an unwanted visitor that I will not cater to in my home" and walk out from under the umbrella it seems to have over your head...It resides in a wonderful human being and it has no right, so show it no resolve or no mercy, in fact show it no feeling at all. Completely ignore it, do your thing, your way. For every minute you think about it is a minute lost for no good reason...So from now on when you start to think about your cancer, relate it to a bad cold and know that it will pass. Get in your mind that all of us will leave this earth someday, inevitably, we will.....whether it be natural, disease, car , truck, fall, phone bill, whatever, it does no good to allow material things to direct the way we live our lives...You are a beauty in this world...go out and share the beauty that's inside you as you do with us with someone that yearns for it. Then see how fast your life becomes GREAT again..You see, there is a method to this madness..Love to all of us....buzz

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