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Some hope- my CEA has gone down!

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Just wanted to share with everyone- I got the results today of my CEA, which was drawn on Tuesday right before getting chemo... it went down! It went from 277 the time before (4 wks ago) to 216. That's still quite elevated of course, but it WENT DOWN!! It had been going up, up, and up and I was going to fall apart if it went up again this time after all the things I've been doing. Since the last test at 277, my onc upped my Gemzar dose some, I changed from Xeloda back to the 5FU pump (that was due to severe hand/foot syndrome- don't know if that would have affected the CEA or not), AND I've been working with a naturopathic doctor- went on a cleanse/detox, cut out sugar and beef, and have been eating really healthy and also am on some supplements prescribed by the ND, and I'm working on keeping my ph at a healthy level.
It's working!! I will definitely continue what I've been doing. My onc gave his blessing to doing what the ND (naturopathic doctor) recommended, but said I should stop 24 hrs before getting chemo & not resume until 24 hrs after I get the pump unhooked. Since I get chemo every 2 weeks now, that means 5 days out of every 14 I won't be taking all the supplements. But I can still eat healthy every day, of course. My onc also ok'd what the ND recommended for metal detox- infrared sauna therapy to sweat it out- just don't do too near chemo days. I will be doing that a few days next week.

Anyhow, with all the stresses of life going on right now that aren't even related to my cancer, I was definitely in need of some good news today- and I got it!

Hugs,
Lisa

maglets's picture
maglets
Posts: 2589
Joined: Jun 2006

lisa that is good news.......I love downwward CEA.....well done

mags

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

are you allowed to eat?, can you put an example of a regular day menu?
Hugs!

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Pepe,
I am still figuring out what I can eat! The test showed me as gluten intolerant and lactose intolerant. That gets rid of a whole bunch of food right there (all milk products- I am a cheese addict- that one's really hard to give up), plus being allergic to wheat, rye, and corn. Most people who are gluten intolerant go with things that are made from corn meal- well I'm also allergic to corn. That includes everything with corn meal and high fructose corn syrup. I feel like there's almost nothing I can eat!
So, being honest, I don't think I can totally stick to this- rice, veggies, fish, chicken, and turkey is about it. I went through Taco Bell for my daughter on the way home & was realizing that I can't have beef, I'm also found to be allergic to three types of beans- pinto beans included, so not even a bean burrito would work. I'm allergic to both wheat and corn- so a corn tortilla vs. a regular tortilla made of wheat flour- neither one is good for me. I guess on some things I will just have to decide which gives me the least amount of problems by experimenting.
Last night for dinner, I made my family spaghetti & I ate tilapia (a white fish) with brown rice and asparagus. I thought it was quite good, but it does get hard to make separate meals. The rest of my family (except for one daughter) won't eat fish & hubby doesn't like chicken- just beef.

I will do what I have to do, though- I've used my family's interests and dislikes as an excuse for too long now & I'm not going to anymore- I will do what I have to do!!

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Lisa that is so great! Woo, hoo!! I wish your hubby would eat better too, but that is his own battle, really it is. You continue to do what you have to do! What you are doing is working!!
I eat Tilapia, orange roughy and cod with a rubbing mixture of Dijon mustard, olive oil and lemon.

So very happy for you!

sasjourney
Posts: 395
Joined: Jul 2010

Lisa,

I am so happy to hear your news!!! I am so glad that all your hard work is paying off. Keep it up no matter what the family says...they will come around and may even begin to actually try some of the healthier alternatives. I know how hard it is to keep everyone happy...I have the same problem here. We will have to share recipe and menu ideas.

Keep it up girlfriend!

Hugs,
Sara

Crow71's picture
Crow71
Posts: 681
Joined: Jan 2010

This is great Lisa. Forget how high the CEA is. Your plan is working. That's exciting. The number will be where you want it to be soon.

I hope that whatever other stresses you have in your life will float away soon.

You're awesome. Keep up the good work.

Roger

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Lisa do you like sauteed greens, garlic, onion, northern beans? I have some recipes that I make in bulk then then take them out of the freezer.

Are you taking the Aloe now?

I have to figure out what this one supplement is. It's like C20 aome thing or other. Some one mentioned it here and then yesterday someone mentioned it at a doctor's office, but, forgetful me!

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

That is awesome news about your CEA!!!! I see a pattern here and it is going your way. I gotta tell ya girl.... I am so sold on the ND everything and I know you are feeling it to. Keep it up Lisa.... I am so happy for you!!

Jennie

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Raquel,

I'm not a big fan of onions- some can be cooked and hidden away in what I eat, but not too much :) I'm definitely interested in any yummy recipes you may want to pass my way, though!
Yes, I am taking the Aloe- a capful (about a tsp) 3x a day. I'm almost out & need to get some more. The Aloe is supposed to help with sugar cravings and with yeast/candida detox, that's why the ND has me on it. I've read elsewhere, however, that it also helps against the cancer. Who knows- my onc ok'd it too, so I'm going to keep at it.

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Love seeing those CEA's going down, down, down. I'm glad you got the good news when you needed it!!!
Winter Marie

AnneCan
Posts: 3692
Joined: Oct 2009

I am so happy for you that the CEA is coming down!

PhillieG's picture
PhillieG
Posts: 4891
Joined: May 2005

Lisa, that's great. Every bit counts...
-p

dmdwins
Posts: 453
Joined: Aug 2008

That is great news Lisa! I am also so glad to hear about your efforts with your diet. It really is a life style change and not an easy one especially when you have a family to cook for as well.

Ive been at it for almost 3 1/2 years now......my family now eats many of the things I do. Even in the last year it had become easier to eat gluten free....many restaurants now have gluten free items PF Changs is my favorite. I have tried may products over the years as well and many recipes. If you are interested Id be happy to share some of my favorites.

We have pasta frequently as I am Italian.....I make rice pasta( or corn but I know you are allergic) for myself and regular pasta for the family although my kids will eat my pasta too...just not my hubby yet. Trader Joes makes a good rice pasta and its reasonably priced. Im a cheese addict as well. Have you tried sheep milk feta or other sheep milk cheese? Pecorino Romano is usually made from sheeps milk and I use it any recipes that call for Parmesan. There is goat milk cheese as well but I never could get used to that but like the sheep milk varieties.

Let me know if I can help in anyway.

Smiles,
Dawn

Erinb
Posts: 295
Joined: Apr 2010

I just bought the rice pasta from trader joes but haven't tried it yet.

Lisa, It is wonderful your CEA went down. We travel about once a month to trader joes or whole foods to get food for the month. We buy frozen organic veggies in bags, they are good roasted in the oven with herbs. You could also buy organic fruits in bags to make sorbet if you are eating fruits. Ask your naturapath about coconut oil. I drink a couple tablespoons every once in awhile. It is supposed to be a great anti-fungal and it curbs the temptation for sugar. My husband won't drink it, but I do cook with it often. It is one 'healthy oil' that can withstand high heats without becoming rancid.

Keep up the hard work.
Erin

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Erin,

I posted on your other thread how glad I am that your husband's CEA went down! I do now know about the coconut oil & have some, but I actually haven't used it yet. I've used mostly olive oil so far. I didn't know about the anti fungal qualities in coconut oil, though, so I will start using it. My ND has me take a tsp of Aloe 3x a day for the same thing- anti fungal and curbing the sugar temptation.

I will keep it up & reading about you and your husband inspires me to do even more. :)

Lisa

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

Congratulations. Isn't it nice to get some positive news like that? HUGS

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

I do hope it's okay to call you that. There is already a semi-colon baby lisa so that is all I can come up.

YAHOOOOOOOOOOO for you. You certainly deserve it with all the hard work you are putting in.

There are brown rice pastas out there too. I ate lots of ground elk since I had a local farm to get it from. I also have a wicked mushroom ragu recipe that is like spagetti sauce with just mushrooms and onions. You can add meat and you are supposed to put it on egg noodles but I just made it like a stew and ate it by the bowl. Did you know tomato products (like spag sauce) help your immune system? I lived alone when I was going thru my changes and would make a big batch and eat it for several days.

I am currently trying to drop a few pounds while also trying to figure out what my "explosive diarrhea" trigger/triggers are so I just dropped all grain and dairy products for 6 weeks. I've learned a great deal and feel awesome! My running and other workouts are the best ever and it has been really interesting how creative you can be. Lettuce wraps are my new thing. BLTs, burgers, tacos......everying I used to eat in between bread I now put into lettuce leaves!

Also remember the basic "cleansing veggies": steamed broc, cauliflower, and asparagus along with sauteed spinach. Avocados will give you some of the much needed good fats. I've never eaten them that much but now crave them.

Again great news and you just keep on keeping on!

Lisa P.

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Thanks for the support everyone! Lisa/Scouty- yes, it's okay to call me the "Other Lisa" :D I love mushrooms, so that sounds good, but my sensitivity testing revealed that I have a problem with mushrooms, among many things. I've always eaten lots of mushrooms, but guess I should cut them out now. :( Yes, I know about the cleansing veggies- fortunately I love brocolli and cauliflower and have no allergies or sensitivities to them.
I'll have to start doing the lettuce wrap thing- I know it's becoming an option at more restaurants now instead of buns or bread. I do also love tomatos and spaghetti sauce & have no problem w/ them, so I will consume a lot of them. I also love avocados and Fallbrook is considered the "avocado capital" (but we don't get them for a cheap price- what's up with that?!).

Raquel and Dawn- I'd love to see any recipes you want to share- send them to me as a PM, if you don't mind. Thanks- :)

Roger- I'm glad you're sold on the naturopathic path now too :)

Jennie- Well, I commented to you on your other thread, but I'm so thrilled that you're doing the natural stuff too & feeling good from it!

If I missed anyone- well, thanks for the support and encouraging words!!

I actually am suffering from bad indigestion right at the moment- I gave in and went out for pizza tonight for dinner- had a salad and just one piece of pizza, but I think that maybe my body is reacting more than it normally would just because I've been off the stuff lately. I do have some tablets for lactose, which I should have taken right before the pizza (because of the cheese). I took my digestive enzymes, but forgot the lactose pill. Too bad they don't make pizza with goat cheese.

Oh- someone commented on sheep cheese- never heard of that possibility, but will look into trying it soon.

Cheers everyone,
Lisa

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Lisa, try queso fresco, it is very gentle on the stomach. It would probably make a good pizza with tomatoes, artichoke hearts, and garlic! lol

Forgot you can't have pizza. It may be good in a roasted tomato though.

2bhealed's picture
2bhealed
Posts: 2085
Joined: Dec 2001

Hi other Lisa,

:-)

I highly recommend the book DANGEROUS GRAINS by Dr. Braly. I hope after reading it you'll think twice about eating pizza with gluten flour since you've tested positive for a wheat/gluten allergy. It wreaks havoc on your intestines when you're sensitive and can CREATE intestinal cancers. At least you know your body is revolting against that piZza. You can find gluten free pizza crusts (my daughter loves the Glutino ones) and you can top it with your own goat cheese.

I, too, have gluten, wheat and corn issues. I cut out all grains 18 months ago and many other foods due to Mast Cell Activation Disorder, so I completely understand the eating conundrum. Legumes trigger anaphylaxis so I'm really limited. I'm even allergic to Swiss Chard for crying out loud. But scouty's suggestion of using lettuce wraps is a mainstay in my meals. Try it. You'll like it. :-) I use the big green romaine lettuce like tortillas to wrap stuff in and they're sooooo yummy!

I saw a Dr. Oz episode with elizabeth (from the View--her last name escapes me) who has Celiac Sprue and Dr. Oz said that even a tiny amount of gluten can be dangerous for gluten intolerant people.

Just wanting to give you some encouragement. I so understand what you're going through with your diet changes.

peace, emily

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Emily,

Thank you for the advice and info (along with so many others)- I will definitely start trying lettuce wraps. Wow- sounds like your diet issues are still ongoing. I will check out the book you mentioned. I am going to google mast cell activation disorder. I know the mast cells have to do with allergies and sensitivites- that's about all I know. Sounds like it's a problem where the mast cells turn the body against itself or many things you eat or are exposed to?

Thanks for chiming in and letting me know how you understand- it does help. Honestly, I used to think of people such as yourself and few other people I know who are "into health" so much as kind of kooky and extreme- my apologies for that- I've been brought to my knees on that front! Hard to believe here I am eating so healthy and being a "health nut"! :)

Thanks again,
Lisa

tanstaafl's picture
tanstaafl
Posts: 1292
Joined: Oct 2010

Congratulations, Lisa. Great progress.

We use a PSK clone, the Coriolus mushroom extract developed in Japan, that is mostly polysaccharides and only a small part peptide. The ND might opine about whether polysaccharide extracts, avoiding the bulk mushroom would be satisfactorily hypoallergenic.

My wife has now built her WBC back up (8.1) to pre-operative (8.0) levels now, with progress on platelets and RBC, too. Although I give some credit other things like diet and anti-inflammatory supplements (e.g. fish oil, bosweila, niacinamide, more ginger+turmeric), watching the blood work, I credit PSK most.

We tried to add higher dose PSP, a Chinese Coriolus cousin with higher immunogenic protein content, and WBC went even higher, but the RBC and platelets eroded, so PSK it is for us.

Since we are in the continuous chemo lane, WBC, RBC and platelets, along with ESR, determine chemo dose and duration.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

and your onc sounds very supportive
i had pizza as a treat for my kids a few nights ago, the first time in 8 months i've had any, it was sooo gooood!!
but i did feel a bit guilty, back to the veges and strict diet for me.
i have gained 12 kg in 2 months since xmass while on chemo.

i appreicate the detail in all of these naturopathic posts, its given me a practical background that i can goto my naturopaths and be more discerning re treatments.

keep up the great work lisa and i hope the stresses disolve and your cea continues to fall.

pete

dianetavegia's picture
dianetavegia
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Lisa I am so happy to hear this. I continue to lift you in prayer for healing!

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Sundanceh
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Just wonderful, Lisa:)

I'm watching all of you and observing.

-Craig

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angelsbaby
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good news, have a wonderful weekend

michelle

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lisa42's picture
lisa42
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Hi Graci,

I have not been continuing the colloidal minerals, for now anyhow. I had heard so many great things about them, but some things did concern me too. I meant to ask my naturopath about them, but forgot- will do that next time I go in & don't want to take them until I get his thoughts on them.

Thanks for the encouragement Graci-
Lisa

scouty's picture
scouty
Posts: 1976
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Other Lisa,

I think you will like to know that I had all sorts of sensitivities when I first starting detoxing. Beans, black pepper, dairy, lots of stuff I had forgotten about. I just hunkered down and ate what my ND told me to and tried to forget all the things I was missing. After 18 months or so I found myself eating "things" I had gone so long without that I forgot they had bothered me. Surprise, surprise they didn't bother me anymore!

I think our bodies get so stressed and overloaded trying to deal with all the things we are cramming into it that the only thing it can do is reject, reject, reject. Once we stop abusing it and it has time to clean out, calm down, and build back up the sensitivities go away.

Today 5 years later, none of those sensitivities are still there and now the things I don't eat are because I don't want to or I don't trust the quality of the food. Patience grasshopper and keep up the great work!

Lisa P.

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Scouty,

Thanks for the encouragement- to know that you actually got over some of the sensitivities is very encouraging to me. Maybe that will happen to me too. Having my CEA go down really is going to boost me onward and forward in this whole cleanse and detox thing! I plan on starting the sauna therapy next week (after my husband's payday) & will hope that metal detoxing can only help me even more.

Yes, patience is something I'm working on and praying for!

Enjoy your weekend too-
"Other Lisa" :)

Buzzard's picture
Buzzard
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and I am so very happy to see some sunshine back in your face...keep the faith sweetie......buzz

and my dog looks exactly like yours except mine is silver...... :)

taraHK
Posts: 1961
Joined: Aug 2003

Hoorah! SOO glad to hear about the dropping CEA! Way to go!

Love,
Tara

tootsie1's picture
tootsie1
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This is definitely a step in the right direction!

*hugs*
Gail

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Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Lisa,
I love that your CEA is down! Yes, keep going down, down, down. You will stay in my prayers.

Aloha,
Kathleen

2bhealed's picture
2bhealed
Posts: 2085
Joined: Dec 2001

Lisa,

That's so exciting.

YOU GO GIRL!

Doesn't it just motivate you to work your program for healing? You're seeing results. I'm so happy for you!!!!

peace, emily

herdizziness's picture
herdizziness
Posts: 3642
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I was just thinking about you, know I already commented. But I'm glad you have a bit less stress on you with the CEA going down. I hadn't realized I guess that it had been rising on you.
What breed is your doggie? Still loving the pic of her. (mine are Lhasa Apso's, Romeo and Julietta with their one puppy we kept Kiwi Chu Chu Chin #2) And how are her puppies doing?
Winter Marie

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Marie,

It's nice to know you're thinking about me- thank you :)
Yes, the CEA started steadily going up about the past 4 months- I guess I didn't talk about it much, as I didn't want to dwell on it or alarm anyone. So, it has been sooo nice to now see a downturn in it and feel like I know why!

My dog in the pic is a shih tzu. I like Lhasas too- they're pretty similar looking to shih tzus except they're slightly bigger and have longer snouts. Zelda is actually cuter looking now than in the picture, I think- she had mats in her ears and the fur had to be cut short there. The ears are longer now & she looks more now like the traditional shih tzu pictures (but with the "puppy cut", as they call it- no long hair top knots for us- I think that looks too snooty and fussy, anyhow). The puppies will be 3 wks old on Wed. & are fat and sassy and so cute! One puppy is now up and walking on all fours- the others are still doing the crawl, but will follow suit soon, I'm sure. Then the fun (and more work) begins! I love it, though. :)

Hugs and you take care-
Lisa

Fight for my love
Posts: 1530
Joined: Jun 2009

Thanks for the good news,Lisa.I am really happy for you.I totally agree with you that making seperate meals is difficult,but I am pretty sure every effort will be worth of it.I am amazed that how quick the naturopathic method is working,and I am amazed that how fast your body st is reacting with the herbs.Anyway this is really a good start,keep going,very good luck with it.Take care.

grannyc's picture
grannyc
Posts: 63
Joined: Oct 2010

I meet with my "new" oncologist on Wednesday and am hoping that my CEA is down some also.

I have been meeting with a nutricionist and a ND. I am on seceral supplements and a high protein diet. I will be gettin the results of the blood tests the ND did in about 2 weeks...i hope I am not allergic to as many things as you are Lisa!!!

Since I started on the supplements I feel so much better and they also seem to be helping me with some of the side efeects of Xeloda.

Keep up the good eating!!!!

GrannyC

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

I'm so happy to hear your CEA is on the way back DOWN! Heading the right direction!

mom_2_3
Posts: 964
Joined: Nov 2008

You go girl!!! So happy to hear this news. You are always in my thoughts.

Amy

Love2Cats's picture
Love2Cats
Posts: 127
Joined: Dec 2010

I am very happy for you, and I hope your levels continue to decrease. Sounds like you are doing everything right, to be proactive in your treatment. Congratulations, and keep up the good work!

Love2Cats's picture
Love2Cats
Posts: 127
Joined: Dec 2010

I am very happy for you, and I hope your levels continue to decrease. Sounds like you are doing everything right, to be proactive in your treatment. Congratulations, and keep up the good work!

krystiesq's picture
krystiesq
Posts: 242
Joined: Jun 2008

That news is fantastic. You're such an inspiration. I really admire your determination and fight!

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