Update on Pam

tabur
tabur Member Posts: 71
Hello everyone. Pam is at the hospice center and I came home to do a quick load of laundry to take her some clean clothes. Waiting for the dryer so I thought I'd give you an update.

Last week, 2 things started happening at once. The distention in her abdomen got worse and the vicodin became less and less effective in pain control. The nurse arranged for a morphine prescription and an appointment at the hospice center this past Tuesday. A weekend with Pam on morphine was quite the experience. She had no pain but I had a hell of a time dealing with her. She had hallucinations and kept getting out of bed on her own. I finally had to put her bed rails back on. The last night at home I got about 1 hour sleep cause she kept yelling for me to check the oven because my cake will burn! People, I have never baked a cake in my life and I sure as hell wasn't baking one at 3am!

On Tuesday, the clinical director of hospice examined her and it was decided to try to drain any fluid in her abdomen that may be causing the distention. He also changed her pain medication to the Fentanyl Patch.

On Wednesday, the surgeon informed me that there was very little fluid in her abdomen and the distention is due to her enlarged liver, tumors and bile ducts. Damn.

After 24 hours on Fentanyl, she has zero pain but is still very confused. Now they suspect High Ammonia Levels and the symptoms seem to fit. They drew blood this morning and I hope to hear the results when I return.

Sorry this update is so choppy but I haven't gotten much sleep in the past few days. I'll update again when I get time. Please keep her in your thoughts.

I've been off the grid for a few days...has anyone heard from John23 yet? Man I'm worried about him.

Al
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Comments

  • jararno
    jararno Member Posts: 186
    Wishing you The best
    I am sorry to hear about all the problems. You are an angel here on earth. Know that you are doing all of the things that you can.

    Will be thinking about both of you. Try to get some rest.

    Take care,

    Barb
  • AnneCan
    AnneCan Member Posts: 3,673
    Al
    I want to send you + Pam hugs. I am so sorry for what you are both going through. You are taking good care of Pam. We haven't heard from John23 yet.
  • idlehunters
    idlehunters Member Posts: 1,787
    AnneCan said:

    Al
    I want to send you + Pam hugs. I am so sorry for what you are both going through. You are taking good care of Pam. We haven't heard from John23 yet.

    Hi AL....
    I had very high amonia levels a while back and they had to cart me off in an ambulance to the ER.... I was out of my mind crazy.... I don't know what high amonia levels does to the brain but I was out of it....just like you are describing Pam....only worse... I lost control of all body functions...it was a mess!! But as soon as they realized what it was it was an easy fix..... got back to normal immediately.

    Keeping you both in my prayers. I am so worried about John23 too. Sure wish we would here something.

    Jennie
  • AnneCan said:

    Al
    I want to send you + Pam hugs. I am so sorry for what you are both going through. You are taking good care of Pam. We haven't heard from John23 yet.

    This comment has been removed by the Moderator
  • angelsbaby
    angelsbaby Member Posts: 1,165
    unknown said:

    This comment has been removed by the Moderator

    I am sorry,
    You are a wonderful husband and i will be thinking of u and pam .

    michelle
  • pepebcn
    pepebcn Member Posts: 6,331

    I am sorry,
    You are a wonderful husband and i will be thinking of u and pam .

    michelle

    Al I'm very sorry for Pam,s problems! you are great man!
    Take care of you too, sending my prayers for Pam, hoping she is not suffering any more!.
    Hugs!
  • geotina
    geotina Member Posts: 2,111
    Dear Al:
    I am so sorry it has come to this. May Pam have a peaceful and pain free end to her journey here on earth and may you find peace and comfort in knowing that you did absolutely everything you could for her.

    I will keep both of you in my thoughts and prayers.

    Hugs - Tina
  • lisa42
    lisa42 Member Posts: 3,625
    Thinking of you and Pam
    Hi Al,

    Thanks for giving us the update on Pam- I just wish it was better news. I'll be thinking of you and praying also for you both.
    Don't have any advice- sorry, wish I could be of more help or encouragement. Interesting about what Jennie wrote about her experience of having high ammonia levels- sounds like that could fit Pam's symptoms too.

    You take care & try to get some rest now-
    Lisa
  • Patteee
    Patteee Member Posts: 945
    Oh Al
    I am so thankful that

    Oh Al
    I am so thankful that you are there for Pam and relieved you allow us to be there for you. Thank you to all the powers that be that she is pain free! I so hope in the upcoming hours and days that you both can find and maintain some peace. It is time for that, eh?
  • herdizziness
    herdizziness Member Posts: 3,624
    Al
    I hope they can help with the being out of it more, would be nice if it was the ammonia quick fix. I'm so sorry to hear about how Pam is doing, you both are in my heart, and all the cyber hugs I can said both your ways, I am.
    I've pm'd John23, (we've had a lot of pm discourse over time about his TCM ways), and he hasn't opened it. So indeed, I've been worried, and could just kick myself in the arse for not having more information, like normal email to write and ask him or his wife how he is doing.
    Take care, and keep away from that baking.
    Winter Marie
  • Crow71
    Crow71 Member Posts: 679
    Hey Al
    Thanks for the update. It sounds hard. Keep up the good work - the GOOD work. Get some sleep. Pam's lucky to have you.
    Take care. Roger
  • Nana b
    Nana b Member Posts: 3,030
    Crow71 said:

    Hey Al
    Thanks for the update. It sounds hard. Keep up the good work - the GOOD work. Get some sleep. Pam's lucky to have you.
    Take care. Roger

    I'm sorry to hear this! I'm
    I'm sorry to hear this! I'm thinking about you! Dang it!
  • tabur
    tabur Member Posts: 71
    Hi folks
    Thanks for the replies and well wishes. I just got back home to catch a few hours of sleep. Well, Pam's ammonia level is 45. Normal range is 32 - 34. However, 45 is not considered dangerously high.

    Jennie: Do you recall what your level was?

    They put her on a medication to try to bring the ammonia levels down. She is still very confused and lethargic. A little trouble breathing so they have her on oxygen also. The other thing they did was to cut in half the dosage of the Fentanyl. These new (to her) pain meds may also be contributing to the problem. The good news is she is no longer in any pain, at all.

    Now for a 4 finger bourbon and off to bed. Bless you all.

    Al
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    So sorry
    I'm so sorry. Wish things were so much better.

    *hugs*
    Gail
  • tabur
    tabur Member Posts: 71
    Prognosis bleak...
    Had a long, private talk with the doctor yesterday. He was very compassionate. There is not much more they can do for her except keep her comfortable. Her appetite is way down and she is incoherent most of the time. He estimates she has 1 to 3 weeks left. We are still at the hospice center but I plan to bring her back home on Monday. Thursday, March 3rd will mark our 32nd wedding anniversary. As long as she is comfortable, I sure would like her to achieve that milestone with me.

    Al
  • tabur said:

    Prognosis bleak...
    Had a long, private talk with the doctor yesterday. He was very compassionate. There is not much more they can do for her except keep her comfortable. Her appetite is way down and she is incoherent most of the time. He estimates she has 1 to 3 weeks left. We are still at the hospice center but I plan to bring her back home on Monday. Thursday, March 3rd will mark our 32nd wedding anniversary. As long as she is comfortable, I sure would like her to achieve that milestone with me.

    Al

    This comment has been removed by the Moderator
  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    tabur said:

    Prognosis bleak...
    Had a long, private talk with the doctor yesterday. He was very compassionate. There is not much more they can do for her except keep her comfortable. Her appetite is way down and she is incoherent most of the time. He estimates she has 1 to 3 weeks left. We are still at the hospice center but I plan to bring her back home on Monday. Thursday, March 3rd will mark our 32nd wedding anniversary. As long as she is comfortable, I sure would like her to achieve that milestone with me.

    Al

    Dear Al
    So sorry to hear your news about Pam.

    You are a very good husband and caregiver bringing her home to spend what time is left together. I pray that she will find peace of mind being there with you and that you have that anniversary together.

    Hugs,

    Marie who loves kitties
  • AnneCan
    AnneCan Member Posts: 3,673
    tabur said:

    Prognosis bleak...
    Had a long, private talk with the doctor yesterday. He was very compassionate. There is not much more they can do for her except keep her comfortable. Her appetite is way down and she is incoherent most of the time. He estimates she has 1 to 3 weeks left. We are still at the hospice center but I plan to bring her back home on Monday. Thursday, March 3rd will mark our 32nd wedding anniversary. As long as she is comfortable, I sure would like her to achieve that milestone with me.

    Al

    Thinking of you both
    Thinking of both of you during this difficult time. I hope you will get Pam home + that all goees beautifully for your 32nd anniversary.
  • JoyceSteele
    JoyceSteele Member Posts: 145
    tabur said:

    Prognosis bleak...
    Had a long, private talk with the doctor yesterday. He was very compassionate. There is not much more they can do for her except keep her comfortable. Her appetite is way down and she is incoherent most of the time. He estimates she has 1 to 3 weeks left. We are still at the hospice center but I plan to bring her back home on Monday. Thursday, March 3rd will mark our 32nd wedding anniversary. As long as she is comfortable, I sure would like her to achieve that milestone with me.

    Al

    you are in my thoughts
    Al, have read all the posts and just want to say I am praying for you and your wife. What a blessing for her to have a devoted husband like you. I hope you can get her home and spend this anniversary with her. God Bless you both. You are in my thoughts. Joyce
  • Lori-S
    Lori-S Member Posts: 1,277
    tabur said:

    Prognosis bleak...
    Had a long, private talk with the doctor yesterday. He was very compassionate. There is not much more they can do for her except keep her comfortable. Her appetite is way down and she is incoherent most of the time. He estimates she has 1 to 3 weeks left. We are still at the hospice center but I plan to bring her back home on Monday. Thursday, March 3rd will mark our 32nd wedding anniversary. As long as she is comfortable, I sure would like her to achieve that milestone with me.

    Al

    Al
    I am sending you love and prayers. May you get pam home so that you can have your milestone together in your own home. HUGS