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Hi..... GUESS WHAT? ........

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

I went to see my Onc today and got CT results. I have had radiation pneumonia in my right lung from Cyberknife for several weeks now. It appears that has gotten slightly worse. Onc said I needed to continue with steroids but by the time I finished the first round of them my chest was hurting so bad I thought I was having a heart attack. No way am I doing that again. So he said we would try a different kind of steroid. That is the only thing to help radiation pneumonia since it is not a bacterial infection. OK...I can go with that.

My biggest concern was the 4 spots in the lungs. One team of docs said it was pnemonia inflammation areas but my Onc said no way.. its cancer. Which was the main reason for the follow up CT scan. he said if spots decreased in size then it would definately indicate pneumonic activity. GUESS WHAT????? All spots decreased in size and 1 is even gone..YAY!...YAY!.... YAY!!! WBC count got up in the high range last week....way down this week...which shows a decrease in infection... yep..THAT's what I'm talkin bout!

CEA rise from 5.3 to 7.7.... normal rise attributed to inflammation. Onc said we should start to see decrease.

I have been having a horrible time with deeply embedded scabs in my sinus cavity. Raw areas that won't heal. ENT says it won't heal till I am off Avastin. Onc has taken me off Avastin till all that heals up.

I told my Onc I was really thinking about giving up chemo period....this is where he went physco.... I told him I wanted to get HEAVY into juicing, diet change...supplements...whatever.... he said he would lower my dose of maintenance chemo.... and for me to go ahead...have at it with the alternatives...build up that immune system...take whatever supplements I want..but PLEASE do not give up the chemo...use them together.... it has gotten me very far in my journey with manageable side effects... dang... I gave it some thought...Ya, I can roll with that...for now anyway.

Tomorrow is the start of major diet changes..MAJOR juicing.... ooops..better get them Chocolate covered strawberries eaten up today!!! I am so happy...so blessed...and so lucky to have you all to share this with....people that can related to how wonderful this news is...who know how I feel...Love you guys! Take care.

Jennie

P.S. To all those who answered my post about being so sleepy....you were right...the pneumonia IS a big factor...especially now that I know it got worse...thank you all for your comments on that.

Lovekitties's picture
Lovekitties
Posts: 3327
Joined: Jan 2010

Dear Jennie,

So very happy for you...all this sounds great...even if you still have the pneumonia.

Glad to that your onc agreed to your wanting to move to the supplements, juicing etc and that you are comfortable with a modified chemo plan.

Keep up that fantastic recovery!

Hugs,

Marie who loves kitties

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

happy to know it was just a false alarm! CONGRATULATIONS! Jennie !
HUGS!

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Thank you so much for thinking about me... You're so sweet! take care...

Jennie

coloCan
Posts: 1956
Joined: Oct 2009

as "regular" pneumonia? I ask because bad case of pneumonia in 1995 resulted in scarring my lungs a bit, which may show as other things on scans.......Hope none of this in your case....steve

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

How's it going? Yes, radiation pneumonia does leave scarring right alongside the scarring from the radiation itself!!! How long did it take to rid yourself of the pneumonia you had? You take care.

Jennie

coloCan
Posts: 1956
Joined: Oct 2009

and was out another week and a half (that was a week after my 45th birthday when I thought i was in great shape!!!!), then biopsied in Dec '96... The pneumonia probably was beginning of lung problems ultimately Dxed as COPD in Nov 2000, tho I continued smoking cigs(35 years worth) til July 2001......usually I remind onc and radiologist that I have scar tissue on lungs after each scan, tho I think they know that by now.....Hoping all goes well for you from here on out.....

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Thanks for the well wishes

Jennie

AnneCan
Posts: 3692
Joined: Oct 2009

Sounds like good news to me!

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Definately good news.....

Jennie

geotina's picture
geotina
Posts: 2117
Joined: Oct 2009

Wonderful news for you. Good idea to keep on the maintenance for a while. Please though ease into the juicing and stuff. Remember Donna went all in and got sick as dog from it. Send Emily a pm, she will get you started, and then every few days increase it. Keep a journal or notepad so you know when you started stuff, what you did, etc. Make sure you buy your supplements from a reliable source. Again, Emily can probably point you in the right direction on that also. Just be careful what you are buying, anyone can set up a fance webiste, ok girl! And prices, they are all over the place, expensive does not necessarily mean the best.

Now go celebrate, do something fun, then continue your battle........

Hugs - Tina

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

im glad you got all that straitend out and good luck on the new diet..Godbless...johnnybegood

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Johnnybegood! Thanks for the well wishes. How are things going with you? You take care.

Jennie

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Thanks for all the good advice. I have been emailing Scouty with all kinds of questions...she has been very helpful. My Naturopathic Doc is great on a lot of this...she has been holding back...waiting on my to give her the go ahead on a full fledge plan of action.... I won't see her until March 2nd so until then I am winging it and going strictly on research and what I have learned here from many. How is George doing? Take care.

Jennie

Fight for my love
Posts: 1530
Joined: Jun 2009

Wow,this is amazing news!Keep going,Jennie.

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Hum...... does that put me in a class with the Everready Bunny???? LOL.. Thanks for the encouraging words!

Jennie

lesvanb's picture
lesvanb
Posts: 911
Joined: May 2008

YAY!!!!

all the best, Leslie

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Hey..you do the Vitamin C infusion right??? Have you found that to be an advantage?

Jennie

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

I am so glad that it is figured out!!! And that (it sounds strange to say...) the lungs problems are pneumonia.

And what a great onc you have!!! Willing to consider other treatments as well as the traditional!!!

I am sending big hugs to you, my dear!!!

Hugs, Kathi

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Girl.... you know I had to kick rocks on this..... Gotta make sure I get to CP9 cause we sure had fun at CP8!!!! I said a prayer this morning before I left asking for it please to be pneumonia..... afterwards I thought..... who would have ever thought I would be praying FOR pneumonia..>LOL.... strange... Take care girlfriend!

Jennie

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Jennie,

Hey, this is all really GOOD news! I'm so glad to hear it! I was a bit worried when I first clicked on your thread, but so relieved to hear the lung spots are shrinking & that one actually disappeared!
You go on the natural stuff! I agree w/ the onc- with stuff still being there, I would not give up the chemo- do it at the same time.
I follow up w/ my naturopathic dr. tomorrow & I'll let you know how that turns out- we can compare notes.
Take care of yourself and get well soon!

Hugs,
Lisa

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Ya...I'm thinking it's a good idea too to stay put with the chemo...can always make a decision later on that. I am so excited to exchange info on ND's and what we are doing and how it is going. You gonna make it to CP9 this year???? Hope so! Take care

Jennie

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

Oh Jennie - that's wonderful news! I'm so very happy for you! :-) Best wishes, Cynthia

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Thank you! I am just so excited not to be facing MORE mets.... you take care.

Jennie

SisterSledge's picture
SisterSledge
Posts: 342
Joined: Feb 2011

I love hearing good news and am so very happy for you :)
Janine

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Thank you soooooo much........ I love hearing good news too!!!! Take care

Jennie

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

Its gotta be the daughter look we get in the avatar that keeps your good news rolling in.....good for you sweetheart...........love ya, buzz

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

That"s great! I love your enthusiasm. Keep it going!

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Love the pic of you guys!!!...gals...whateva! Thanks for your support...take care!!!

Jennie

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

dang right I am the "shizzle" I don't know what that is but it sounds good! Love ya back!!!

Jen

BTW.... The daughter in my Avatar is my "Oldest"... now 31 (shhhhhhhhh!) I now lie about her age....not mine!!!!

mom_2_3
Posts: 964
Joined: Nov 2008

Great news Jennie!!! So happy for you.

Amy

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Thank you sooooo much!!! Take care

Jennie

HollyID's picture
HollyID
Posts: 951
Joined: Dec 2009

Great News!!

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

How you doin???? Thanks for your comment! You take care Girl!!!

Jennie

mommyof2kds's picture
mommyof2kds
Posts: 522
Joined: Mar 2009

yeh,, so happy to hear your good news... Celebrate... Petrina

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Thanks so much for your kind words.... You doing good? take care

Jennie

Crow71's picture
Crow71
Posts: 681
Joined: Jan 2010

Get those strawberries eaten. Tomorrow we juice. I'm talking serious swamp water. Kale, Swiss chard,beat greens...
Okay, maybe we'll just start with some nice carrot juice and go from there. Scouty will show the way. (Em too) Let's get those enzymes working for us.

I haven't responded to your posts in a while. Your smiling face and kick *** attitude continue to inspire me. I love the new pictures. Great smiles. But where's my ******* Camero?!

Burning big time sparks for you.

Roger

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Dude... I sooooo love you!!!! YOU friggin rock man! You are off the chain and always make me laugh...... "where's your ****ing Camaro"???? LOL...you come to CP9 and I'll let ya drive it... real talk no chit.. There are so many options with the juicing... I have been doing it on the low down but now...tomorrow...I am getting kick arse serious with it. So good to see and talk to you..... How you feeling??? Take care my friend.....luv ya! Hows that woman of yours...tell her I said HEY!

Jennie

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Jennie,
I am so happy you have pneumonia. :) I know that sounds sick but really, it is good news. You are strong and you will be well soon and the pneumonia will be gone. I think you came up with a great compromise with your onc. Good for you for telling him what you would be doing. You're going to have great results.

Aloha,
Kathleen

angelsbaby's picture
angelsbaby
Posts: 1171
Joined: May 2008

Jennie Good news

michelle

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Thank you..and what about your test? ..... any news yet??? Take care

Jennie

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

I know..it sounds silly to be so happy for pneumonia.....but definately the lesser of 2 evils!!! So it's all good!! How is Dick doing? Thanks for the well wishes..Hang Loose!

Jennie

Sonia32's picture
Sonia32
Posts: 1078
Joined: Mar 2009

Awwwww even though your still ill, I'm glad there is nothing sinister. You young lady need to look after yourself, and that means resting. lol Man I just turned into Buzz/Kerry for a second. lol

Luv ya

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

whats up Sonia!!!!! Love the buzz/kerry statement!!!! Laughed my rear off..... luv ya back!! You take care too...

Jennie

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

What?

:)

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Guess What??? Chicken butt...5 cents a cut...want a slice???? LOL..no idea what that means but it's something my Mom always said....she had wierd sayings like that... "colder than a well diggers arse".......does it hurt?...only when I touch it...don't touch it!!!.... anyway....I have missed you...that's whats up!!! How you feeling and ain't treatment over soon? What are the doc's saying on progress..ok, thats it..you're dismissed.. :)

Love you!

Jen

sasjourney
Posts: 395
Joined: Jul 2010

Jennie,

Good luck with the juicing. I have been doing it daily for a month or so and it is really not bad tasting at all. I feel more energetic and healthier. The more greens the better.

Hugs,
Sara

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Glad to hear you are having success with the juicing....REALLY glad to hear the tasting part. I am having a hard time with the greens..... ewe... Guess I will figure it out..You take care

Jennie

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

I thought maybe you were pragnat!!!

You do what feels right to you. I think doing them both is a great idea.

Brooks

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