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As ready as I can be for Monday!

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Well, I think I've done all the preparation I can and I'm ready for Monday and the start of the Irinotecan chemo. This may sound silly to some of you who have been off and on chemo for years, but starting this new chemo it's like back to the first day of chemo... when you have no idea what you are getting yourself into. I HAVE been on chemo before... after my surgery in January 2007, I started 8 months of chemo and radiation. I was on FOLFOX (by infusion), then for the 6 weeks of radiation, I was on Xeloda. I finished that chemo in Oct 2007 and went for almost 3 years of no chemo. Last June (2010) I went back on, this time Xeloda. There's something about taking pills that you don't feel like you are on chemo, when in fact you are. The Xeloda stopped working but it could have stopped because we had to cut back on the dosage because of the toxicity.

So this Monday, I start on Irinotecan (infusion), so it will be back to the chemo unit every 3 weeks for a couple of hours in the chemo chair. I haven't sat in one of those chairs since Oct 2007, so you can see why it seems new again to me (although, the chemo nurses are soooo fantastic, I'm not going there with any sense of trepidation :)

How have I prepared myself for the next 6 months or so?

Wellllll ... let me tell you! You all know that I met with a wig consultant and picked out to great wigs (well, I like them and they are now getting custom hand woven so that they will be the ideal fit. No messing around with wigs that look fake or, heaven forbid, don't fit properly. I don't even know how much hair I'm going to lose, but I will be prepared should I lose it all or most of it. And even if I don't, when I'm having a bad hair day... I've got options. So that really boosted my spirits.

I also had my cleaning gal coming in this past Thursday and although she did the usual vacuuming/dusting/tidying of the apartment, I also had her totally declutter the areas that were driving me insane. After the holidays, it seems stuff just gathers and it was getting worse and worse... so she came in on Thursday and I was thrilled with the apartment when I came home! She is going to come in next Thursday and do some other jobs, like repotting my indoor plants and finishing with the decluttering process :D Soooo, this was another treat for myself because I can pretty much guarantee that the furthest thing from my mind will be doing the apartment heavy duty cleaning chores :)

While Bailey, my cleaning gal, was doing my apartment, I was over at a girlfriend's and she taught me how to crochet the cutest little hats that have a 1920's feel to them. Again, if I'm going to lose all my hair, or most of it, then it will be great to have a good selection of hats I can just pull over my head and leave the house :D Now, I probably only will need 4 or 5 of them at the most, but crocheting is like therapy. It keeps ones hands busy while we are constantly sitting around and waiting at doctors' appts. or going for bloodwork, then having to wait an hour or more for the test results to get to the doctor before you can see the doctor. Not to mention, the couple of hours in the chemo chair. I find it too distracting to read, besides, I usually end up yakking with others who are getting their chemo at the same time ... so, voila.. crocheting! I figure, after I've crocheted a few hats for my own use, I will start a collection so that I can leave them at the chemo unit for others who might like a free hat :)

Soooo, last but not least... I got my bloodwork done on Friday, saw my oncologist, and had a chest xray done. One of my questions to her was... the last CT scan I had was in December. I have had a 7 week break from chemo, so what if the lung nodules have grown and when we start the irinotecan it works but in reality the next time we have a CT scan they look no different from the Dec scan. We'll think it's not working. But, as she explained to me... my system is very sensitive to my CEA readings, so we will be able to monitor the CEA every 3 weeks and if it starts going down, we will know the nodules are responding to the Irinotecan. Also, she ordered a chest xray and feels that a couple of the nodules will show up on the xray and we can monitor them by chest xray before we do another CT scan in 3 months. So I can see she has a plan in place, so I'm not concerned. To me, it is really important that you can talk to your oncologist and they take the time to tell you what the plan is and how they are going to monitor the progress.

Another thing that struck me as caring... especially after hearing some of the horror stories on these boards about how some of you can't seem to get information from your doctors, or it seems the insurance companies are telling you what you can and can't do, and then of course, having to depend on family/friends for caregiving because again your insurance companies do not seem to be in the business to actually help the people who are paying them every month. My oncologist's intern asked me what I need in the way of help. Help? I told him that if all goes according to plan, then I shouldn't be feeling too sick so therefore I figure my life will continue on as normal, or does he know something I don't know?? He said that I was right, my life SHOULD continue on as normal and if for any reason I do have side affects like nausea or diarrhea, then I'm to get in touch with them asap and they will get that fixed up. But he was thinking more along the lines of, since I live alone, do I need help with things like housecleaning, grocery shopping, meal preparation, rides to/from appts. I told him no, I have plenty of friends on stand-by and some of them live in the same apartment building, but hey, it's good to know homecare services are available and that they can order them for me should I ever find I'm really not capable of looking after myself or needing help! Hahaha... I'm surprised he couldn't tell by looking at me that I'm obviously more than capable of looking after myself and/or making arrangements with friends if I need help... but I guess this is part of his practicum. He has to make sure he offers, because it's all part of learning to be a caring, compassionate oncologist :)

Sooooo... apartment is clean, I have a stock of yarn and crochet hooks, I have a heap of brand new books I haven't read, I have plans for bad hair days and I'm ready to start chemo on Monday! Bring it on!! :)

Cheryl

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Sounds lke you've done everything you can to be prepared for this. That's the "beauty" of doing it a second time, I guess. Really just kidding with that one. I know there's no beauty in it.

Good luck with it. I'll be thinking of you!

*hugs*
Gail

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Sounds lke you've done everything you can to be prepared for this. That's the "beauty" of doing it a second time, I guess. Really just kidding with that one. I know there's no beauty in it.

Good luck with it. I'll be thinking of you!

*hugs*
Gail

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Do you mind sending Bailey over this way for a couple of days?
Winter Marie
(You really have a hand on this, I'm proud of you for taking control and not letting the cancer take over)

TMac52's picture
TMac52
Posts: 358
Joined: Aug 2010

Hey Cheryl,
I wish you luck with the new treatment your about to start. I do my Folfox mop-up #5 on Monday as well. I hope it gos well for you and the side effcts are minimal.
Tom

AnneCan
Posts: 3692
Joined: Oct 2009

Cheryl,

I have been thinking of you, knowing that you are starting back on chemo Monday. I hope all goes smoothly for you. I know you have also prepared your bedroom with the tv, etc. I have a nice tv/vcr/dvd player setup in my bedroom also, + it is so nice. I just have to make sure I don't spend all my time there, it is so cozy! It sounds like you have done a fantastic job of getting ready; good luck!

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Cheryl,
You are an amazing gal with a wonderful, wonderful spirit. I'd say you are set for Monday. I will be thinking about you on Monday and sending my warmest thoughts your way.
I think you should ask Bailey is she needs to warm up some. I could really use her here. She sounds like a gem.

Sending you hugs my friend.

Aloha,
Kathleen

Lovekitties's picture
Lovekitties
Posts: 3341
Joined: Jan 2010

Sounds like you got it covered...and how!

When you get a hat made how about posting a pic? Would love to see a "Cheryl Creation".

I too am into crocheting, so if you got a pattern that you would like to share I would be glad to help making them for the chemo folks.

Best wishes for an easy go on the chemo trail.

Hugs,

Marie who loves kitties

jararno's picture
jararno
Posts: 189
Joined: May 2010

I will be thinking about you and hoping that you breeze through the treatments.
the hats sound cute...I haven't been able to crochet with my neuropathy. (I bought a wig and a tuban but never lost my hair...hoping to donate these to the local hospice soon )

Wow your docs sound great. Around here they don't care if you have help, the insurance companies seem to call the shots! Time to leave the hospital according to the insurance! ( In Japan your employer tells the doctor how long you can stay in the hospital!!! )

A cleaning lady sounds great....I'm afraid I would't know where to have her start...things are quite a wreck around here!

Sending great vibes.....

Take Care,

Barb

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Cheryl,

Sounds like you have made yourself as ready as can be expected & have a pretty good attitude about it all. I know it's tough to have to go back to "being in the chair" again. I'll be thinking about you Monday.
You take care and let us know how it goes!
Oh, and how wonderful that your cleaning gal was able to do so much for you- how very, very nice!

Take care,
Lisa

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

We all know you can handle it but there is still a need to be cuddled and made to feel special on a day such as tomorrow ...Everyone needs that warm wanted feeling....Keep all good thoughts running and keep us in your heart, we sure do you....Have a good day tomorrow ..........buzz

soccermom13's picture
soccermom13
Posts: 226
Joined: Feb 2010

are coming your way on Monday! Way to take care of yourself and start this off positive.
Hugs
Shanna

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CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Hehehe... I know all of you would appreciate the "organization" that goes into prepping oneself, both physically and emotionally. When I did my first chemo (FOLFOX), I didn't know what to expect and, of course, thought the worst. Well, the FOLFOX treatments weren't as bad as I had imagined... but it was no walk in the park either ... although , I did manage to run a full-time box office, as manager, supervising 14 volunteer staff and making sure we got houses of 1200+ every night for seven weeks. This was in the middle of one of the most gorgeous parks, sooooo, I guess I can say it was a "walk in the park" in they physical sense . But, it was a pain because of the 48 hour pump... carrying that around and trying to work around it, then having a few of the symptoms like I was really sensitive to heat and that summer was really warm (and we were an outdoor theatre), the fatigue, and that's when I first experienced neuropathy because of the Oxi. But, if memory serves me well, I managed to work around it all and other than the neuropathy, I think I had a fairly easy time of it. Of course, we all know that memory for anyone who has been on chemo, can be very faulty... and my oncologist did stop the oxi after 9 treatments because I was apparently having such a bad time with it (amazing how my memory can block the worst out, no?).

I think it was Pete who said in another topic that he kind of likes keeping the rose-tinted glasses on and would rather see things as going well and going to get better, than dwell on how bad a treatment might be and dwell on the bad things that could happen. Of course, I'm human, so I can get scared just like the next person... but I do talk myself into preparing myself for the treatments, but expect to sail through them ;)

I fully intend on continuing with my Publicist job and have lots that has to be done in the upcoming weeks. I did do quite a bit this weekend so that this coming week will be light, more so so that I can figure out how/what symptoms/side affects I may or may not get.

BUT... drum roll please.... I was thrilled to find out that one of the meds I'll be taking before the chemo infusion and then every 12 hours for 3 doses, is that steroid Dexamethasone. I know some people complain about it because it gives you a buzz/high energy and then you can't sleep, hence insomnia. But for me, it is a wonder wonder WONDER drug for the arthritis!! OMG!! I am soooo looking forward to this next 6 months with relief from the 24/7 severe arthritis pain!! I don't mean to sound flippant, but I did tell my onc that it's worth going on chemo just to be able to take this med and get some relief. Now, I know my arthritis has gotten somewhat worse since the last chemo infusions (FOLFOX) but I'm counting on the Dex to help out now too. Celebration time if it does!!! Just in time for spring, which is around the corner, and maybe, just maybe, I'll be more mobile and can take my dog out for walks again!! :D

Speaking of my dog... I better take her out to the back lane ... she is getting ready to go to bed for the night :) :)

Cheryl

mommyof2kds's picture
mommyof2kds
Posts: 522
Joined: Mar 2009

It is good to mentally prepare yourself for all situations, and then it won't be as bad as you thought. HUGS.. Petrina

maglets's picture
maglets
Posts: 2596
Joined: Jun 2006

oh best wishes and break a leg today darlin.....good luck with that Dexie....I am one who just flew on it and could not sleep....so happy it will give you some arthritis relief

thinking of you today.....

mags

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pepebcn
Posts: 6352
Joined: Aug 2010

Have a smooth day!
Hugs!

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Wishing you all the best with treatment today. Let me say again/....LOVE the wigs...and it is nice to have them on bad hair days....soooo convenient. Take care

Jennie

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Nana b
Posts: 3045
Joined: May 2009

Thinking about you!!

lesvanb's picture
lesvanb
Posts: 911
Joined: May 2008

and hoping all goes smoothly for you. Love your wigs!

all the best, Leslie

Hatshepsut's picture
Hatshepsut
Posts: 340
Joined: Nov 2006

Break a leg, Cheryl.

You are in my thoughts today.

Hatshepsut

Trapbear's picture
Trapbear
Posts: 109
Joined: Sep 2009

Hi Cheryl,
I will be thinking of you today as you start chemo. I know you will be just fine. My hubby has to go back on irinotecan next Monday for lung mets as well. He did fine the first time on folfiri, make sure you get atropine before infusion and load up on anti-nausea drugs as well.
Hang in there, you will be fine,
Bill

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Hey Everyone.... here I am!! And today was a no-brainer :D Went as smoothly as smooth could go... although, I didn't get the hat I was crocheting finished... but I did get a heck of a good start on it :) :) Will show pictures when I get a couple of them done :)

I arrived at the BC Cancer Agency, 6th floor Chemo Unit at 9:11am, which is a totally uncivilized hour for MOI to be out and about, let alone at a destination. It takes me a few hours in the morning to get the old arthritic joints oiled and mobile, so it meant getting up at 7am :)

Infusion started right on time... first, took my two Dex steroids (yayayaya), my Ondestane for nausea and, before I left the apartment, I took two immodium just to be on the safe side . I can handle a lot of stuff, but the two things I can't handle are uncontrollable diarrhea and uncontrollable vomiting. Once I had taken my pills, Lisa, my chemo nurse hooked me up and away we went. I was in a 3 chair room, by myself for the first 45 minutes... just Lisa and me. I'm kicking myself because today turned out to be a sunny, clear day and I didn't think to bring my camera... the view from my room was overlooking the city and mountains... tres gorgeous. I'll remember next time.

About halfway through my infusion, I felt kind of weird. I couldn't tell if it was nausea, gas, or cramping... just weird. So Lisa had me take one of the prescription 50mg Gravol pills. That sort of helped, but then my eyes started feeling a little weird. Not the usual "running" or "overly wet", just weird. Lisa said that if they were watery, that usually is an indication of potential diarrhea problems but since I couldn't say for sure they felt watery, she decided to err on the safe side and gave me a shot of Atropine. Sure enough, within a few minutes the eyes cleared up. Bingo! So, I told her I guess I should ask for an Atropine shot every time if I find my eyes starting to feel weird and she said no to worry about it. Once they give a patient an Atropine shot, then this will be a standard med they give every time as part of my infusion.

When the Irinotecan had finished after 90 minutes, normally I would be free to go except she said she was going to keep me there for an extra 15-20 minutes to finish off my back of fluids. That will help with any dehydration. She says one of the most common problems with people having diarrhea and nausea is that they do not hydrate before, during and definitely after an infusion. 8-10 cups of fluid/day at a minimum... and coffee doesn't count since coffee will make you pee and you'll end up peeing any hydration that you have been trying to give to yourself ;) Luckily, I'm not a big coffee drinker, so it's not like I drink coffee all day long... I drink it if I go to a restaurant for any meal. So, if one is a coffee drinker, don't count it as your hydration fluid :)

I've been home since just after 1pm (the Cancer Agency is only a 10 minute drive from my apartment)... and yes, I did have a long nap when I got home but I put this down to two things... 1) I had to get up at 7am after falling asleep around 2:30am and 2) the stronger Gravol made me feel sleepy. So, between the Dex that should speed me up and make me hyper and an insomniac and the Gravol that makes me sleepy, chances are I'll end up being totally normal and sleeping through the night :)

Oh, and since it's been 3+ years since I was last a regular chemo patient on the 6th floor, there is a new service for chemo patients as they are sitting in the chairs. There are volunteers who come around with complimentary coffee, tea, water, juice, as well, they have snacks if you should be so inclined or having cravings. They have always had this service, but they have added to it now. They have about 12 portable DVD players and a fairly decent selection of DVD Movies. So, if you want, you can watch a movie while being infused :) How kewl is that?? Of course, I had my crocheting with me so I didn't take them up on the offer, but nice to know it's there if you wan to just sit back and watch a movie :)

Right now, I have a bit of that weird feeling... sort of like a knot in my upper stomach, or perhaps the start of heartburn... but I am going to make some soup and a Grilled Cheese sandwich. I will then take the Dex tablet after I've eaten. Today is my "be lazy, don't do anything, you have the right to be a tv-watching-book-reading slob... but only for today!" Tomorrow, I'm back to harrassing producers and casts, and working on Publicity budgets and ads :)

THANK YOU, THANK YOU everyone for your thoughts!! I beez a Happy Iri Girl!!! :D

Cheryl

PS: BIll, if your hubby is starting the Iri on Monday for the same reason I am... then lets compare notes/reactions since we'll probably be taking it for the same length of time. I'll dust off the pompoms and cheer him on!! :D

AnneCan
Posts: 3692
Joined: Oct 2009

I am glad it went so well! I have the atropine shot too; it really helps with the cramps.

Keep up the good attitude!

Trapbear's picture
Trapbear
Posts: 109
Joined: Sep 2009

Cheryl,
I am so glad today went so well! My hubby needs two atropine injections during the irinotecan infusion. I will let you know how things
go on Monday. Let's hope the Iri puts the brakes on these pesky lung nodules!
Big hugs from California,
Bill

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jararno's picture
jararno
Posts: 189
Joined: May 2010

I think I'll go too! Sounds great except the weather! I'm not very hardy when it comes to freezing to death! I do see many Canadian cars headed south for the winter! I live in Virginia and kind of laugh at the people here who think it is soooooooo cold here. We have quite a few people move here for the "warm" winters. ( The hot, humid summers are not fun! )

Maybe we need to visit Pete in Australia....seems a bit hot there right now! I prefer Spring and Fall temps. ( My son and his lovely bride live in California.....they may get a visitor soon!)

Have a great day! ( How does that song go? "Oh Canada.........")

Take Care

Barb

AnneCan
Posts: 3692
Joined: Oct 2009

You would both be great additions to Canada! Now you have to decide if you are a "snow" person; where Mags, Tina + I live there is a lot of snow right now. Mags get much more than I do as she is further north. Where Cheryl lives, there is seldom snow, but often rain. And you can always drive into the mountains if you want snow. I am not sure how much snow Kathi gets; I have not been in that area in the Wintertime.

Graci, I love your stories!

Barb, a lot of Canadians, especially from Ontario + Quebec, go south to places like Florida or North Carolina during the winter.

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

I believe Kathi is out my way, as is RobInVan (who is currently in the hospital, but he lives in the same neck of the woods as I do. Kathi is not that far away, as far as the crow flies , so all three of us would get the rain in the city and surrounding areas (keeps the roads and sidewalks clean ) but if you miss the snow, it's just a hop skip and jump up the local mountains. Whereas the Ontario/Quebec neighbours go south to places like Florida/Texas, etc.... the BC'ers head south to Arizona, or fly over the pond to Hawaii. Hawaii is only a 5-6 hour flight from Vancouver... whereas Arizona is about a 4 hour flight (or you can drive to Arizona) ;D

Cheryl

jararno's picture
jararno
Posts: 189
Joined: May 2010

So happy that you had a great day! It sounds like they are really on top of things there! The place I go is brand new and pretty fancy looking, but infusions are done in two large rooms. One room has at least a dozen patients and their families along with 3 to 4 nurses....very hard to bolt to the restroom with your IV Pole and get around all of those people. The second room is a bit better...maybe 10 patients with smaller ,more private areas. No TVs, no DVDS, just music. No food service although you can go get coffee or tea yourself and if you are lucky your $10,000 treatment will get you some crackers or chips too!

Canadian treatments sounds so much more pleasant.....At least they listen to you! ( I became
horribly ill from the nausea and vomiting and they were kind enough to imply that it was my fault...not the poisons! They tried to give me stuff to "relax" me instead of treating the nausea! ) I think the insurance companies influence the medical care to the extent that we are not given the best medications if they are expensive )

Hope that you slept well and had sweet dreams! Try to take it a bit easy today!

Take Care,

Barb

PhillieG's picture
PhillieG
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Joined: May 2005

I hope all went well and that you kick cancer's butt.
-p

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

just one step at a time.

Goodluck Monday.

Love Pete

maglets's picture
maglets
Posts: 2596
Joined: Jun 2006

well done there girl...one down

I hope you just lie low today and see how you feel.....maybe a little crochet...

hugs

mags

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Thanks again, everyone! I always find the first treatment (and days following) to be the baseline as to what one can expect for the remaining treatments. Granted, the longer you go, the more accumulated chemo you have in your system, but over all if you are going to have a rough time at the beginning, then chances are it will be rough every time so you have to figure out how to beat that. If you have an easy go of the first time, then chances are you can expect much the same. That has been my theory for the past 4 years and so far it has seemed to work.

Day 1 (infusion): queasy feeling about 45 minutes into the infusion, followed by a headache before I left. Atropine really did help with the queasiness but the headache was something I forgot the Dex can create. I got home feeling great... well, great because I didn't have any sign of nausea/vomiting or diarrhea. Kewl! But, I have to admit, for Day 1 I did have queasiness and headache which lasted all day and into the evening. Hahaha... I did go to bed early (9:30pm) but alas, I had oodles of television shows that I had PVR'd, so needless to say I didn't actually fall asleep early. Probably fell asleep about midnight...

Day 2: ... and I guess it was the Dexie but I woke up, wide awake at 5:30am. BUT... no more queasiness... all gone :) Still had the headache and after having some breakfast this morning, had the last of the Dexie for this round. Headache remained so took some pain meds that would normally be for the arthritis... but they are working on the headache. And yes, I'm soooo excited... the arthritis is MUCH better already today!!

Sooooo, I plan on spending part of the day being lazy and either reading, crocheting or watching some more recorded programs ;) BUT, I also have work to do on the computer and to get some PR tasks done and out of the way. We have a production "Here on the Flight Path" closing this weekend and another one "The Dining Room" opening next weekend, plus the musical "42nd Street" opening for the month of April. So never a dull or quiet moment when doing the publicity for all three :) Lucky for me, 80% of it can be done at home, on the computer and sent out by email.... so I don't actually have to dress up and get out and pound the pavements (so to speak) :)

Hahahaha Gracie and Barb!! Sure, come on and move up to Canada.... although you may find it easier to marry a Canadian husband to gain entry ;) I know for BC Medical, you have to be a resident in BC for 3 months before you are entitled, but I think you also have to be a Canadian citizen or a landed immigrant. But, I think you will find that southern BC is actually very mild when it comes to climate. Not all of Canada is covered in ice/snow in the winter . Our winters here in Vancouver and the surrounding areas are very mild... they can (and usually are) very WET but then Vancouver is a city that is built in the middle of a rainforest (as is all of the Pacific Northwest). So if you aren't afraid of rain.... then the PNW is more mild that probably most of the East Coast of North America :)

Bill... I'll remember that about the Atropine. If it gets any worse than what I had yesterday, at least I'll know that I can have up to two shots. Lisa, my chemo nurse yesterday said she only gave me a half-dose to see how that went and it did really help. Now, in hindsight, if I had had one complete dose I may not have had that mild queasiness that I had when I got home.

Ok... I think my break is over .... time to get some Publicity photos organized :) La-di-da-di da!! :D

Cheryl

Trapbear's picture
Trapbear
Posts: 109
Joined: Sep 2009

Cheryl,
Great news! Glad it your first treatment is going so well. Christopher always gets the first atropine before they start the infusion, then another if he starts to have the sweating, queasiness, etc.
I forget why they are not giving you 5FU and Avastin with the irinotecan?
We live in the SF Bay Area and have been having very mild/warm weather the lasts couple weeks. We need the rain, though, so send the jet stream South!
Big hugs,
Bill

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Hey Bill,

I did the 8 months of 5FU, and then the 6 months of Xeloda. The Xeloda (which is really just the pill form of 5FU) stopped working for me. We aren't sure if it was just the cancer has become immune to the med or if it was because we had to cut back on the dosage (got way too toxic for me and really does a number on my feet and heels, to the point I am in excruciating pain and can't walk) so the dosage was not high enough... but 5FU seems to be not a good one for me anymore. And definitely can't go back on the Oxi in any form because it is what did permanent damage to my nerve-endings from the knees down, including both feet.

Soooo, my onc is starting me on just Irinotecan. If that works well, then great! If not, we will have to start adding to it, be it Avastin and/or Erbitux (which I'm going to be tested for the K-RAS gene in case we have to go that route). But for now, starting off on Irinotecan and, of course, I am hoping it will do good work all by itself, saving some of these other options for down the road if I need them :)

Hey, I'll be more than happy to send the rain down your way! I have nothing against rain, but it would be nice to have a few longer stretches of dry weather just so everything can dry up a bit :D :D

Cheryl

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

Hi cheryl,

Some of my ideas were getting a bit extreme and now I just take 1/2 a dex tablet.
So I am half as extreme. Some people have somewhat predictable runs and most I think have variable side effects. My motto in life with chemo is to EXPECT THE UNEXPECTED while still being positive.

We are doing strange things to our bodies to survive, no wonder they protest on occaision.

Its my 7th treatment and I am just getting this nuropathy in my feet.

I enjoyed reading about your treatments, its so entertaining.

goodluck,
Pete

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Kathleen808
Posts: 2361
Joined: Jan 2009

Cheryl,
Glad it is going OK. I have been thinking about you a lot. I know it was hard to get back in this but you do it with grace and a wonderful sense of humor. Hope the closing and opening at the theater go well.

Aloha,
Kathleen

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