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What cancer patients, their families, and caregivers need to know about COVID-19.

3 down and 9 to go! :)

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

I had my third folfox yesterday and I slept through a lot of the 6 hour day. Makes me a little more tired and some nausea, but I use my meds and I'm still eating ok I think. The main thing is the cold sensitivity is worse this time tingly fingers were hurting and I wore my Target gloves all day today. And my hands began the cramping and drawing up again too. I think keeping them in the gloves helped. And yes, it does feel like there is something sharp stuck in my throat when I drink even tap water, and now it seems to be on the tip of my tongue too. I'm not liking it!.....but it's 3 down and 9 to go.

Feels like I have glove fuzz in my eyelashes and mouth. lol

I hope you all have a peaceful night's rest and have something good happen for you soon!

plh4gail

p.s. in case you were ever wondering....the plh is for peace love & happiness :)

AnneCan
Posts: 3692
Joined: Oct 2009

Gail thanks for explaining plh. Congratulations on finishing your 3rd round, you are 1/4 of the way there.

soccermom13's picture
soccermom13
Posts: 226
Joined: Feb 2010

I remember the sharp feeling in my throat when I would drink anything but HOT liquid. That was the worst for me. Then I would get so sleepy after chemo day and sleep for 2 days straight. Find your happy place, warm your gloves in the dryer and put on thermal socks!Rest easy.
Hugs!
Shanna

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

Keep on keeping on. I'm so proud of you. I know those target gloves are a life saver. I bought so many that I can wear a different color everyday and the rest I bought I donated to my chemo lounge. (calling it a lounge to make it sound better Ha!) Now if they'd dim the lights, turn on the disco ball, play a little jazz and serve something lounge like, that might be interesting.

Take care, keep warm and get your rest. HUGS buddy!

Muzzy's picture
Muzzy
Posts: 178
Joined: Sep 2009

Gail congrads on number 3. i am 18 months done with my 12th. the cold thing goes away a few days after the treatment but get longer each time. i would just drink bottled water that i had at room temp. good luck.
Jeff
Just Happy to be here!!!!!!!!!!!

okthen's picture
okthen
Posts: 232
Joined: Jun 2010

Good for you Gail! Are you getting the cal/mag before treatment? I really think that helped Jack, his side effects were very mild.

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Gail,

Sorry the fuzzy tongue, mouth cold sensitivity, tingly hands,cramping, etc. is coming into play more. Keep those gloves on! To be expected, unfortunately- maybe not, though- did you say before if your onc is giving you the magnesium and calcium combo in your iv infusion when you get the oxaliplatin? I never got it myself, because I had Folfox 3+ yrs ago & I don't think they knew about then. Craig on the board was the first here I ever heard mention such a thing, maybe a little over a year ago & I know many other people get it now & claims that it does help. I think I even heard one person say that because they get that, they don't even have any pins or needles or sensitivity to cold. If you're already getting it, maybe they can up the dose. If you're not getting it or aren't sure if you are, most definitely talk to your onc about asap so they can prepare and get it for you for your next treatment!

I'm still kind of wiped out from my chemo this week- also yesterday. My onc withheld the xeloda from me this time- my hands are the worst they've ever been with the hand/foot syndrome- really horrible in my hands this time. It's now been 8 days since I stopped the two weeks of taking xeloda pills & my hands are continuing to peel and be very, very sore and sensitive. They're even shaking and I keep dropping things. Supposedly that's not supposed to happen with just Xeloda or the Gemzar I'm taking, but it is happening. The onc will re-evaluate next week if I should start the xeloda then, change to the 5FU pump again &(not thrilled w/ that option), or just reduce the dosage of Xeloda. I don't know what the answer is, but I feel like the Xeloda is so reducing my quality of life right now. I'm really bummed to admit this, because I begged my onc a few months back to switch from the 5FU to Xeloda because I felt like the 5FU pump reduced my quality of life. I guess I just need to be grateful that I do have life! (but I want a better quality, don't we all!)
Sorry for going on about myself, but thought I'd give you the update since we spoke last on the phone- meant to call you & will try to do so soon, but have been overwhelmed w/ my own issues and dealing w/ stuff w/ my 15 yr old daughter.

Hugs to you and prayers being said for you-
Lisa

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

I just woke up from a "nap" on the couch. For like 3 hours, now it's bedtime, mmmm. Thank you everyone for the love and support, it really does help me! Lori I bought more Target gloves! Ha ha....I wasn't sure how they washed and wanted to have enough around. Lisa I'm sorry you're having to go through the hand and foot stuff too. I'm wondering isn't Xeloda the pill form of 5FU? If so, hmm ..symptom's seem to both be not so nice on us. Not fair, but hopefully busting up those mutant cells. Oh, yes they premedicate the heck out of me. At least I think so. I get Magnesium Sulfate, Calcium Chloride, Zofran, Decadron, and Ativan, then the Oxipilatin and another dose of the Mag and Cal. Then it's the 5FU bolus and the 48 hour "friend" and Im off to pick up another prescription for Decadron tapered dose to take at home.

Okay(yawn), it's bedtime. Night everyone.

peacelove&happiness to you all, Gail

ron50's picture
ron50
Posts: 1729
Joined: Nov 2001

Don't let anybody tell you any different. The job that cancer and treatment does on our bodies ,emotions and relationships, leaves us sick,tired ,dispirited and alone with our feelings. It is not easy and at times it seems it would be easier to quit. Then I look around on this board and I have to smile at what tough little sob's we are. You get knocked down here and there is a hundred people here to rush to your aid and lift you up.Hugs Gail I'm hoping that you are soon at the end of your course of chemo and from then on things will just better and better,,,,wishing you peace love and happiness from an old codger who has forgotten the meaning of those words:)...Ron.

maglets's picture
maglets
Posts: 2592
Joined: Jun 2006

don't worry about all the napping Gail....any time you can spend sleeping and ignoring oxy is time well spent in my books. also hon I really believe one at a time.....just think of the does you have done ...one two three!!!!! let those others just dangle out there in space somewhere and let time take care of them.

peace and very best love and some happiness to you and a hug

mags

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Aww Ron, thank's so much for your words. They are all so true. The treatment is tough and I sure have my days when I'm knocked down physically or mentally or both. But I do crwl back up and I'm always coming here to this board for a new attitude and idea. I love all of my friends and commrades on here and wish we could all meet in person to share the cyber hugs we send so often.

You take care with all that flooding on your side of the world. And I'm sending you some of my...

plh from Gail

ron50's picture
ron50
Posts: 1729
Joined: Nov 2001

It is as if the state is under attack.It has been pouring rain again in the south-east ,some of the flooded areas have had another six inches of rain in the last 48 hrs resulting in some serious flash flooding. The flood has peaked in Rockhampton but they are expecting at least a week before the level starts to subside. With the advent of small commuter cars there is a real risk of losing a car in some of the potholes that appearing in roads as the water recedes. I'm glad I have a 4x4 but I have enough sense not to go out unless it is absolutely essential. The current heavy rain (up to 4 inches a day) is expected to continue till next wednesday. Might be time to build an ark. Hugs Ron.

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

I have two lovelly flatheadsin the fridge. It was so much fun. first time fishing in a boat for years. I prefer spearing.
Peace, love, happiness and health back at you to.
cheers,
Peter

sasjourney
Posts: 395
Joined: Jul 2010

Gail,

Sorry to hear you are suffering with the side effects. I haven't forgotten how tough they are, but you will get through it. We are so much stronger than we think we are. Sleep is the best thing to do when you can. Keep counting them down...

Big hugs,
Sara

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

I don't have my gloves on yet today :) I slept great last night despite getting up for two bathroom trips (but only 2). I seem to curse the resection symptom's, and am sooo grateful to have that do deal with instead of the other option. When I had the tumor I was up with everything nasty and evil, bleeding, clots, mucus, something that would be called poop. EWW....so yes, I'm glad I got up twice to go to the bathroom last night. I feel energized right now mentally, but my body could easily lay down and watch something on TV. I will take it easy but need to start planning on dinner for my little ones. If I don't start thinking now, time will pass and I won't know what to do and go the easy way out and get them a burger.

peacelove&happiness to you both

plh4gail

Annabelle41415's picture
Annabelle41415
Posts: 6373
Joined: Feb 2009

That is the positive way to look at things is the countdown. The more chemo you have the more symptoms you will feel and they will last longer but hopefully you can tolerate it, if not they can reduce it. Isn't that wierd about the throat thing. Always felt like there was something stuck back there. Like the PLH.

Kim

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

this is the way!
Hugs!

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Kim I hate the thing with the throat, and you know what now? This last one is making my teeth feel funny. Did that happen to you? It feels like they are achey or loose, but they aren't thank goodness. It's still creepy, I'm afraid they are going to fall out :(

Feel better Pepe :)

plh to you, Gail

TMac52's picture
TMac52
Posts: 358
Joined: Aug 2010

Hi Gail,
I am happy to hear another treatment bites the dust. Sorry bout the side effects but you know they will subside a bit soon. I have mixed emotions about the delay for me but am enjoying Ice Coffee ( my Favorite Beverage) Don't mean to rub it in, I'll be back in your shoes Monday 1/10/11
Rest well my friend Peace Love and Joy!!
Tom

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Good for you Tom, have a sip of something iced in my name :) mmmm

:) Gail

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

Gail,

Maybe my carriage is blessed or I am just lucky.

I was tempting fate and had the kids left over icecream today, very minor lip tingle and no throat knives. So then I tried the left frozen coke. I bit more intense but I got around it by using a straw. My side effects with regard tingles got better on treatment 5, I get the bottle off tomorrow arvo.

Seriously pretend you are in the same carriage, pretend you will have the easist of runs on number 6. Maybe all the positive thinking helps.

love your friend Pete

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

I will do all that Pete! Thank's for the ride :)

Gail

P_I_T_A's picture
P_I_T_A
Posts: 133
Joined: Oct 2009

I too, had the luxury of doing my chemo during the coldest months of the year. Not very fun. 1/4 of the way finished, not bad at all. The neuropathy does stink (I only made it through 8 rounds of Oxi.) My Onc, for whatever reason, said he thought I had gotten the benefit from it that I needed and wasn't too concerned with not finishing all 12. Every single time I drank, it was with a straw, very slowly, nothing colder than room temp. That seemed to help a good bit. Don't get soft drinks eating out because even without ice, it will come out cold out of the fountain. Cottonmouth isn't too uncommon, along with the occasional 'lockjaw' with certain things. There wasn't anything in particular that I could pin down just happened from time to time. I set a goal to have the biggest bowl of ice cream I could get my hands on once I could tolerate it. About a month after I was done with treatments, I ate probably a half a carton of dolce ice cream. Stomach didn't tolerate all that dairy too well the following day after going so long without, but oh was it worth it! Just take each treatment one at a time, and it will be over before you know it.

-DJ

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

I'm sorry about the side effects, but you can do it!

*hugs*
Gail

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Well here I am again, waking up from a late evening nap. Just get so tired, but I have no doubt I will sleep the night away. Yep, had the finger tingles all day again. It felt so good to do the dishes earlier. And the gloves have got to help, I wore them almost the whole day. I can't even think about ice cream yet. It's funny, that feeling isn't there until something cool touches it. Okay, it's bedtime, now that naptime is over :)

peacelove&happiness,
plh4gail

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Gail and Lisa sorry to hear about your tiredness and all. I wish I could do something to help. Hugs!!

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

You're a blessing!

:)

khl8
Posts: 810
Joined: Nov 2009

Gail,
Hang in there, and keep the faith! It is a roller coaster at times. You can do it and you will!

Kathy

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Dang chemo, but you're right....I will do it! I will be a winner in this.

Gail

coolvdub's picture
coolvdub
Posts: 410
Joined: Aug 2009

Gail,

Sorry the side effects are beatin' up on you right now. You will get through this, and before you know it, you will be done. Just rest,rest,rest and stay positive, sometimes easier said than done. Just remember the pay off at the end when you beat this, is o worth it. Hugs and prayers for you dear.

Don

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Thank you Don! I can't wait till this chemo is over, and hopefully that will wrap it up for me. (finger's crossed now, and knocking on the floor). It is easier said than done, but with the support I get here, it helps get me up on those down days and inspires me to help other's always.

plh4gail, and plh to you

djm_2010
Posts: 52
Joined: Dec 2010

Hello Gail,
I'm on my 2nd round of xelox on thurs and I'm also afraid of the side effects. So far I had issues with oxaplatin and can only tolerate warm water. Luckily I live in the Philippines and it's hot right now so issues with cold weather is nil. I'm have 8 sessions of xelox and there are 7 more to go. LBM is an issue with me with xelox but can be treated with anti diarrhea pills. For my hand and foot syndrome there's none so far except for dry skin and dark fingernails. I just use lots of lotion and dark nail polish. I just pray to God that I will tolerate this symptoms and he will see me thru this journey. Take care and God Bless you!

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

I guess all we can do is hang in there the best we can. I'm taking it one day at a time, trying not to look too far ahead, it just worries me. Take it easy and rest, you can only do what you can do.

Take care, Gail

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