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A little disappointed with new ENT today

Hondo's picture
Hondo
Posts: 6643
Joined: Apr 2009

Well I am a little disappointed with my New ENT visit today, not that they had made a mistake and schedule 4 people for the 8:30am appointment, anyone can make a mistake.

He came in to the room and I could see he was in a hurry but sometimes that is normal. He sprayed my sinus in prep to do a scope, and left for about 20 minutes, when he returned he forgot that he sprayed my sinus and sprayed it again. Oh so I am well and numb now, He started doing the scope and looking at the same thing that he saw 3 weeks before and said, there might be a re-occurring NPC their. I said what; he said it’s possible that you might have a re-occurring cancer. I said Doc, last month MD Anderson did a PET that said I was NED, and a few weeks ago the Mayo Clinic did a biopsy that said NO cancer, you read those reports.

He told me he does not have any copies of their reports, I told him yes you do I gave them to you the first time I came here remember I handed them to you and you read them right here in this room. I am here because of an infection of the Mastoids not for Cancer, I don’t have cancer remember. He looked very confused at that point, I am hoping that it was only because he over booked his self that morning and forgot what he told me on my last visit.

My big concern here is that the doctor did not remember anything from my first visit, not a very good sign and my warm fuzzy feeling is now cold. Did not accomplish anything on this visit but a lot of cost to travel to Houston. I believe I will pray about this a lot more and see if it is Gods way of letting me know I need to look for another ENT.

The only good thing so far about this is that we have found the problem with my head pain and for this I am very thankful.

Take care everyone
Hondo

Kent Cass
Posts: 1898
Joined: Nov 2009

your ENT was overbooked, etc., Hondo. Musta been kinda awkward, and frustrating. Bottom-line: very unprofessional of him to lose track of the info on the patient he was seeing. Bigtime. And, you're supposed to entrust your care to him? NO WAY!

My ENT, which is my 2nd since the C showed, told me on an early post-treatment office visit that I should get my PEG out ASAP if I wasn't using it, but might wanna consider keeping the Power Port for the rest of my life. Hmmm. Not gonna live very long, Doc? I told him I had no plans on keeping the Port, because of the monthly flushing hassle, which he was unaware of even being part of having a Port. And, on a later visit, he was all enthusiastic about his determination that I should get the Port out ASAP- like he'd forgotten what was said on an earlier visit.

And, my first ENT, who did the office needle- he said the first thing he'd do is install a tracheaostomy! I told him that was not acceptable, and explained to him why. And his response was to suggest I go back up to Chicago, where I had a lotta work done on me when I was a teenager. And now, 20-months post-treatment, I never did get the trachea, and here I am.

Sorry to hear about this, Hondo. MD Anderson! That is disappointing. As for the message from above- yes, and do what your heart tells you to.

Believe

kcass

Hondo's picture
Hondo
Posts: 6643
Joined: Apr 2009

It sad but its life, I need to keep looking and praying to find one like yours. This ENT was not MD Anderson, he was with the Texas Medical Center, my next step is to try MD Anderson.

Take care my friend

Noellesmom
Posts: 1856
Joined: Aug 2010

You've come too far to screw around with someone like this. Yes, anyone can be overbooked, anyone can make a mistake and anyone, with a professional demeanor, can get things back under control and not rely on the patient, who may or may not be able to do so, to get things straight.

Onward you go.

Hondo's picture
Hondo
Posts: 6643
Joined: Apr 2009

You are right I have came too far to giving up now, I have contacted MD Anderson and waiting on a reply from them for an ENT Visit.

Will keep you all posted

sweetblood22's picture
sweetblood22
Posts: 3228
Joined: Jan 2010

Wow Hondo. I don't even know what to say other than I don't think I'd be going back to him.

sweetblood22's picture
sweetblood22
Posts: 3228
Joined: Jan 2010

Wow Hondo. I don't even know what to say to that other than I don't think I'd be going back to him. :(

Hondo's picture
Hondo
Posts: 6643
Joined: Apr 2009

Yep I sure have had some bad luck with ENT’s but its OK I know the right one is out there somewhere it just takes time to find Him or Her.

All the best to you
Hondo

oldcamper
Posts: 27
Joined: Oct 2010

Hondo,

Hey do we have the same ENT? Mine gets going but I wouldn't trust anybody else when it comes to surgery time. I am located in Texas so I am sure they are not the same Doc. Mine Forgets what he did but he does keep the paperwork and reviews it before speaking. Most important is hang in there.

Kevin

Hondo's picture
Hondo
Posts: 6643
Joined: Apr 2009

You never know this guy is in Houston, but he forgets what he did with the paper work so can’t be the same guy…..

All I can do is laugh about it so I don’t get mad. Lol

Take care
Hondo

ekdennie's picture
ekdennie
Posts: 236
Joined: Aug 2010

Hey hondo, where do you live? I am in OKC and I have a great ENT. he is supposed to be the best in the region (excluding Texas). let me know if you want his number. he has been a blessing in my life!
elizabeth

CajunEagle's picture
CajunEagle
Posts: 408
Joined: Oct 2009

Just a little personal experience. Look into Mary Bird Perkins Center here in Baton Rouge...(maybe you already have). They have been absolutely wonderful and totally on top of things for me during my treatment and continuing follow-up. I'm sitting here trying to think of at least one mess up on their part, and can't think of one. I, and a bunch of folks I know, have been very fortunate to be patients of MBP.

Larry

nkimber's picture
nkimber
Posts: 46
Joined: Oct 2010

Hi Hondo, I am so sorry to hear about your experience.... Believe me, I know how important it is to have a doc you believe in, and who believes in you. I am still on a search for the right oncologist and have an appointment with a new one next week, even though I'm in the middle of treatment. I refuse to see my current doc again. I'm praying that this experience with the new doc next week is exactly what I need.

As for the ENT, I cannot say enough amazing things about mine. He always remembers our last visits (or at the very least reads up on his notes before entering the room), remembers that I don't go by my legal first name, and has the best bedside manner I could hope for. He always listens and he spent almost an hour with me during my last appointment, answering my pleading questions and alleviating my concerns, when he was already running almost an hour late to his next appt. If you want his name I'll be happy to share, if you're willing to come up to the DC area since he's at Johns Hopkins.

I'll keep praying that you find exactly what you need!

Nicole

Glenna M's picture
Glenna M
Posts: 1576
Joined: May 2009

I agree with Sweet on this, I would be looking for another ENT. I can understand the error in booking appointments, he doesn't book them, his staff does. But to come into the exam room completely unprepared and so flustered that he sprays you twice, doesn't remember ever seeing the reports you gave him...completely UNACCEPTABLE!!!

Just my opinion...

Glenna

rozaroo
Posts: 665
Joined: Apr 2010

So sorry that your appointment ended up such a negative note. It is sad that he did not even
take the time to read your file before hand. Time to move on. Best of luck my friend!

Hondo's picture
Hondo
Posts: 6643
Joined: Apr 2009

I would love to visit John Hopkins but a little too far and too cold for this Cajun; I am like the geese I fly south for the winter where it is warm that is why I go to Honduras.

Take care

Hondo's picture
Hondo
Posts: 6643
Joined: Apr 2009

I might just try Mary Bird if nothing happens with MD Anderson, I got to give it one more try.

Thanks for the tip my friend
Hondo

Hondo's picture
Hondo
Posts: 6643
Joined: Apr 2009

I live in Lafayette Louisiana, it might be a little too far to OKC, but thanks anyway

Skiffin16's picture
Skiffin16
Posts: 8298
Joined: Sep 2009

Tim,

I think that he needed a smack on the back of his head. That might have cured his CRS moment he was going through....

CRS, for those that need further expanation = Can't Remember Sh*t....

JG

ratface's picture
ratface
Posts: 1320
Joined: Aug 2009

Time to find a new doctor. I changed mine because he was not outright truthful in his initial diagnosis. Told me as I was being wheeled in for my first biopsy that he knew I had cancer the first time he saw me, this after his nurse called and gave me "Negative" results on a needle aspiration. Never went back and changed treatment facilities entirely. You are a tolerant good hearted person but leave his butt in the dust!

Hondo's picture
Hondo
Posts: 6643
Joined: Apr 2009

It is best to find out before hand that you and the doctor don’t match-up then after he does his dance on you. I am frustrated but also glad I found out now.

Thanks

Hal61's picture
Hal61
Posts: 655
Joined: Dec 2009

Hi Hondo, sorry you have to spend your time, and your money, for such a visit. When I sign in on the "sign in" sheet, I often notice that one to two other people have the same appointment time with the same doctor, especially my ENT.

Like others have mentioned, my ENT flips through my record before he begins. This ENT should have regained his composure enough to apologize. That's what I do when I screw up at my job, what most of us do.

I've had some great docs, and know you have also. I hope your visit causes the ENT to think. And especially I hope your next visit with him or another ENT finds you with a more caring and professional person.

best, Hal

Hondo's picture
Hondo
Posts: 6643
Joined: Apr 2009

I got to say my first visit with this ENT was great, he found the problem as to why I was having so much Pain in my head, but this time it was more like Doctor Jackal and Mr hide, not even the same person.

But I did pray and ask God if this was the right ENT for me to please let me know. Looks like he did, oh the power of pray.

Thanks my friend

sportsman
Posts: 97
Joined: Feb 2010

Sounds like you definitely new a new ENT to me. I fired my original ENT after going through my surgery and chemo and radiation. I want someone who at least has some compassion for me and is concerned about my care. Unfortunately some of these people are about seeing as many patients as they can see and how much money they can make. I may sound bitter but that is just the way it is. I have now found a ENT that has true concern for me and takes time to answer my questions. I realize all these people are very busy people, however they are treating human beings and should have a good bedside manner. After all they may walk in our shoes someday themselves.

Hondo's picture
Hondo
Posts: 6643
Joined: Apr 2009

You are so right after all I am not asking anything for free, I am paying him for what he is doing so at lease give me some quality time when I drive 300 miles for an appointment.

I think I will do a Willie Nelson and get on the road again looking.

Jan Trinks's picture
Jan Trinks
Posts: 477
Joined: Apr 2009

Hondo:

What a doofus he sounds like. I wouldn't have warm fuzzies either and you know what a basketcase I can be! Fortunately, Charlie's ENT was great and was the one who found the cancer in the first place. As a matter of fact, when he got the biopsy report back and called the onc. office for an appt. they told Charlie he was booked for six weeks; Charlie called the ENT's office back, told them, the recept. called and they told her the same thing and when the recept. told the ENT; he said that s--- isn't going to get it and he called and then called Charlie and told him you and your wife be there at 10:45 Monday morning; this was on a Thurs. But hey, at least they don't book 4 people at the same time! The girls at the onc. office were very nice, it was just that Charlie's onc. is so great and sometimes hard to get in with; but we were blessed. I'll be praying for you too, and I wholeheartedly agree with the rest; I don't believe I'd be seeing this doofus again! Good Luck! God Bless!

Jan (Basketcase)

Hondo's picture
Hondo
Posts: 6643
Joined: Apr 2009

I was looking for a word to fit him and I believe you hit the nail right on the head.
Doofus, I like it.

donna340
Posts: 72
Joined: Nov 2010

What you are going thru.... If he gets that overwhelmed over having four (4) appointments at 8:30am. What is he going to do under real stress! I agree I think God is telling you to find a new ENT doctor!

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