CSN Login
Members Online: 3

You are here


Posts: 2
Joined: Dec 2010

I was officially diagnosed with Grade 1 uterine cancer. I am already scheduled for a total hysterectomy on 12/22/10. I just turned the big 40 and went and had my yearly check up. I told the doc about pain I was having. So he did a sonogram, then biopsy, two days later a D and C then three days later I get the call to discuss my test results. Two days later I am sitting in the GYN Oncologist office at OU discussing the date of my surgery. I am heartbroken. I have had three miscarriages, no children and that hope of creating a miracle is being taken from me next week.
This is all moving so fast...I am scared to death, nervous, angry, shocked. The doctors state they do not know if I will have to have treatments afterward until they get the results back to see how progressed it is. My mother passed away in 2003 of cancer. I have that lingering in the back of my mind also...Thanks for listening. Delinda

Posts: 683
Joined: Apr 2010

Hello my love: Oh boy, I do know how you are feeling. Everything you are feeling is normal. Grade 1 cancer is an early stage, but like you mentioned, you will know better after surgery. I know it must be very difficult at such a young age, but later when every thing is better you can probably think of adopting. Please do not be too hard on yourself, try to concentrate on getting better and as time goes by, you will learn to deal with this horrible disease better. On this board you will get lots of good advice. My best regards to you and the rest of your family, your operation will soon be over and the healing process will begin. You will be surprised to see how well you will do. I am sending positive thoughts and I am going to give you a big hug so you can get over any anger, shock and frustrations so you can get positive and go forward. (Can you feel that hug?)

Lots of comfort. J

Posts: 134
Joined: May 2010

I am so sorry that this has happened to you. We on this site all know how scary this is. I was diagnosed last Nov and I know firsthand how it feels. I lost my mom to breast cancer so I thought that if I ever got sick it would be that. It was a shock to be diagnosed with uterine cancer. I know too that things happen real fast but after surgery take a breath and see exactly what your docs say. We are ready to help you in any way we can. We can give you encouragement. My friend you will get through this.We will help. Post often and let us help.

upsofloating's picture
Posts: 473
Joined: Dec 2009

I am so sorry you have the need to be here, a wondeful supportive place that no one wants to come to. Your doc moved very quickly and got you to a gyn-onc -- that is essential for the best management of this disease. Grade 1 is least aggressive and slowest advancing cancer cell type. That said, it is possible it has been ther undetected for awhile and could have been implicated in your miscarriages. The gyn cancers are the most difficult to detect and diagnose. The Stage (extent) of your cancer is what will be determined with surgery. After that you will have amuch better picture of what is going on and future treatment. Counselling may be quite helpful for you to deal with all the issues weighing on you, so do consider this a part of your healing process.
My thoughts and prayers are with you. Come here as often as you need.

Posts: 2
Joined: Dec 2010

I'm about a month ahead of you with the same journey. I had my operation on November 18 and our stories are similiar in the detection. I never had a miscarriage but I never have been pregnant and I'm 43. It is very scary. I don't think anything in my life will have be the same. Everything has changed my outlook on life, who my real friends are, who I know loves me, even the way the air and the wind feel and smell.
I was very blessed that mine came back at stage 1 and I don't have to go thru therapy. But two days after this news I got put back in the hospital with a infection and they had to make another incision to get it drained. But I'm on the mends and you will be too. It's very important that you are prepared for the operation I was not prepared for how much help I was going to need. Go on the sight Hyster Syster and you can buy a device that will help you get up out of bed. It will be life saver. You need to drink tons of water after the surgery to heal so you will have to get up many times out of bed to use the bathroom. It is very important to keep positve helpful people around you. And to ask lots of questions to your doctor. Write them all down and have someone go with you because it is very overwhelming and a couple of times I walked out of the office and 10 minutes later I was remembering something I wanted to ask. Stay positive take each result one visit at a time. Lots of love and positive energy I'm sending you are not alone.
I have a list of foods that are healing if you would like them that I have focused on eating. It has kicked this infection out the door.

Terry (ladybugplace)

Ro10's picture
Posts: 1579
Joined: Jan 2009

I hope the medicines are helping you. I am happy that your pathology came back as Stage 1 and you do not need any further treatment. You are right that after a cancer diagnosis you look at everything differently. Hope you continue to improve each day. In peace and caring.

Ro10's picture
Posts: 1579
Joined: Jan 2009

So sorry you will be needing a hysterectomy. I hope that after surgery you remain stage 1. We all remember the scared, nervous, angry and shocked feelings. You have had everything happen so fast. All your feelings are very normal. Remember to just take one day at a time, and wishing you the best after your hysterectomy. In peace and caring.

hopeful girl 1
Posts: 454
Joined: May 2010


You have come to the right place for encouragement and support, from all of us who know what you are feeling and going thru'.

Please take comfort in that we have all been there, and have made it thru' the surgery, and even subsequent treatments (chemo/radiation).

I was diagnosed in Feb 2010 when I had an endometrial biopsy, more tests followed, ct, pet scan, etc and I had surgery in March 2010. I was uterine 3C, so I needed 6 chemos as well as 25 radiations. My last chemo was Nov 2nd of this year. Right now I am just waiting for my blood counts to return to normal.

It's very scarey but you will get thru' this. Have faith and take things one step at a time.

We are all here for you. These boards helped me so much, and made me feel like if others had made it thru' maybe I could too. It was very comforting. You can do this!

Keep us posted!



LadyMuse's picture
Posts: 3
Joined: Dec 2010


I just registered on this site today and came across this post. I had the same thing happen to me in 2006. I know I'm one in a million people who have this, but I know that fear. I know that paralyzing fear and laced with the knowledge of not being able to have children. it can be so hard.

The good news is in time you do get through it. From the very little I've seen this site is so supportive, the members so positive and that's one of the keys to recovery. I know it's hard now, and will be for some time, but you will heal. Your heart will heal too.

I am so sorry to read that you suffer with this, and will send love and hope to you today and everyday to help you get through this. You are thought of, and loved.

LadyMuse (sue)

PS. A candle for you (http://www.gratefulness.org/candles/message.cfm?l=eng&cid=12273595)
I found that chanting the names of those closest to me, helped me a great deal. *hugs

Posts: 26
Joined: Sep 2010

Delinda first of all I want to let you know that this site is wonderfull. My prayers are with you during all of this. I am 30 years old I was diagnosed in September of 2010. We where trying to have a baby and was having some difficulty. Went for help and things just sorta fell into place. We had been trying for about 2 years now. I had my hystro November 11th, 2010. I was diganosed with Grade 2 stage 2 cancer. This week I have to meet with a Dr about getting radiation treatments done. Sleeping in a recliner or with a body pillow where about the only way I could get any sleep after my hysto. Having someone there to help you and getting plenty of rest helped a lot to heal as well. Instead of thinking of what you can't have stay postive and focus on what you do have. Ask lots of questions and if you do not understand something keep asking it till you do understand it. This site was great when I was confused and had questions. The chat room also helped when I needed a good laugh. Stay postive and get lots of rest. I will be thinking of you.


clscurnutt's picture
Posts: 26
Joined: Nov 2009

You are definitely among friends here. We've all been through the anxiety you are now experiencing. So sorry it has to be at holiday time, but taking care of this business as early as possible is best. I was diagnosed in May 2010 and had hysterectomy on my 60th b'day. You will be in all of our thoughts and prayers on Wednesday and beyond. This group of women are the best support system you can find. I'm thankful for them every day.

Songflower's picture
Posts: 631
Joined: Apr 2009

Everything you are feeling is normal. The anxiety and fear. You will feel better when the results come back. Sometimes a therapist is very helpful. When you have someone to just let all the fears out it helps. You can fight better if your feelings are worked through.

We are here if you need us.


Posts: 14
Joined: Nov 2010

You won't read this for a few days, but I hope your surgery went well. When I was diagnosed last March, I'd never had surgery before, so I understand your fear. But as the others have said, with an early stage cancer your chances are good that you'll not need further treatment--and along with the others in this discussion group, I'll be hoping that's the case! Now just focus on healing, both the physical damage and the fear.

Eileen M's picture
Eileen M
Posts: 2
Joined: Dec 2010

The good thing about this site is that we arent the only one's to have gone through this. I Know exactly how you feel, I was diagnosed about 2 weeks ago having stage 1 uterine cancer, I just turned 38 on the 15th of Dec and I dont have any kids. Which deep down in my heart I was hopeing to still have a chance to have at some point. Im in acceptance now but I stilll feel very sad, angry and shocked. Just wanted to let you know that I feel your pain and everyone here have given awsome advice that have made feel more accepting of it. Its better to be alive and well. God Bless

Subscribe to Comments for "scared...."