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cancer survivor x 4's picture
cancer survivor x 4
Posts: 183
Joined: Sep 2009

Good Morning Long-Term Survivors,
just wanted to know if anyone is dealing with adhesion pain? The adhesions in the breast are nothing, but the adhesions from the de-bulking surgery are what hurt. I know I should not be complaining. Things could be alot worse. I am trying to get some of the long-term survivors from the ovarian cancer board and the breast cancer board to join out group. Also, I fight intermediate depression, but then I kick myself in the *** for feeling sorry for myself, when there are others suffering alot more. Head Games. Paula

abrub's picture
Posts: 2108
Joined: Mar 2010

My first surgeries were over 3 years ago, and I continued to have pain from adhesions. To add insult to injury (on the adhesions front) in June I had abdominal surgery to repair my incisional hernia from my 2007 surgeries, and the pains have been worse. I, too, wonder if I'll ever be free of those belly ouches.

I've been cancer-free since 2007.

I had appendix cancer, and had major debulkings, colon resections, TAH-BSO, omenectomy, and intraperitoneal chemo. Now I'm told I'm a "spider web" of adhesions.

However, I'm glad they found the cancer, and that I'm now NED and in what should be long-term remission.


KathiM's picture
Posts: 8077
Joined: Aug 2005

YEA!!! We are grateful you are here!!!

Hugs, Kathi

Posts: 18
Joined: Jul 2012

I had appendix cancer in 2004 with 2 surgeries and a major abdominal debunking surgery in 2007.

I haven't found any discussions on this. Just wondering if anyone else has had this trouble? I take glycolax every day and try to reduce the amount of bulky food I eat. I can't honestly say what helps or hurts. I've been playing this guessing game for 6 years, luckily I am still here to be in the game! It took a couple of years of quietly suffering with it, and a trip to the ER along with a one week hospital stay, before I realized what was happening and what I needed to do for myself. Not even the gastro specialist could diagnose what was happening in the early years when I went in for help. In the end I've learned to stop eating immediately when the pain hits and try to drink plenty of fluids as tolerated. It is something I just have to ride out. I am usually back to normal in 5-7 days.

Also, has anyone had scar tissue after a lung resection? My surgery was in 2010 and I still have a lot of pain from that surgery. It is slowly getting better, but seems to feel worse when I get fatigued.

I am currently stable with new scans in a few weeks;)

Thanks for your time and enjoy your day!

LaundryQueen's picture
Posts: 682
Joined: Mar 2011


I posted a similar response on the ovarian board about how I have dealt with adhesions in my belly.

I do abdominal massage aka "visceral massage." I started doing this about 2 1/2 months after surgery or maybe sooner. I figured that if the debulking surgery didn't metastasize the disease, the massage wasn't going to spread it either.

I do the massage in a hot bath with Epsom salts. I told my integrative physician what I was doing and he agreed that it was a good idea. He said to work clockwise first, then counterclockwise.

Unfortunately, it is impossible to reach all of the areas that need help but I have noticed the difference right away. I stopped being constantly aware of the tightness in my belly. The massage was somewhat uncomfortable at first but not uncomfortable anymore.

I think there should be research done on visceral massage as "belly rehab" to see if there is any noticeable reduction in bowel obstructions in the group doing the visceral massage. I read somewhere that after de-bulking surgery, 50% of the patients will have a bowel obstruction. I certainly don't want to be one of them!

Posts: 20
Joined: Apr 2011

Excuse my ignorance, but what s debulking surgery?

Posts: 20
Joined: Apr 2011

Excuse my ignorance, but what s debulking surgery?

carolenk's picture
Posts: 909
Joined: Feb 2011

I am not yet a long-term survivor but I can answer the question about de-bulking surgery.

That's what a surgeon does when he/she needs to remove as much visible cancer from the pelvis/abdominal cavity. I had it done to remove ovarian cancer that crawled all over my innards. It's more extensive than a hysterectomy.

There is a lot of scarring & adhesions that form w/ a high risk of bowl obstruction even if the cancer is gone. Do a Google search if you want the gorey details.

Personally, I hate the term. Couldn't they have thought up a different name?

Tethys41's picture
Posts: 1371
Joined: Sep 2010

I have heard that castor oil packs with heat help eliminate the adhesions. I don't know if it's true, but I've had very little trouble with adhesions.

Marnel's picture
Posts: 42
Joined: Mar 2012

I am taking castor oil (Nordic Naturals). I take a teaspoon every morning and I absolutely hate fish. This stuff tastes like lemon...lots of benefits from castor oil. Also..when I had my debulking surgery my belly pain was horrible. My daughter (a chinese medicine doc) recommended the book "Unwinding the Belly". It's all about belly massage and breathing. Helped immensely.

Tethys41's picture
Posts: 1371
Joined: Sep 2010

I think what you are taking is fish oil. Which is a wonderful supplement for any cancer survivor to be on. Castor oil is used topically for adhesion and scar reduction. Have I mentioned how non-existant my surgical scars are as a result of using castor oil? If castor oil is taken orally, it works as a laxative.

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