CSN Login
Members Online: 1

You are here

Looking for others who may be survivors of leiomyoscarcoma of the uterus.

Posts: 1
Joined: Dec 2010

Hi... I was diagnosed with leiomyoscarcoma of the uterus in Sept of 2010. I had a complete hysterectomy, then 28 treatments of radiation to the pelvis. I know it's aggressive and that the statistics for survival is not good. Looking for others in the same situations.

hopeful girl 1
Posts: 454
Joined: May 2010

Try not to look at stats! Everyone and every case is different, and stats don't take into account, lifestyle, overall health, age, eating habits etc.

Did you have a CA125 cancer marker test? What is your number after surgery and radiation?

Hugs and healing.


Kaleena's picture
Posts: 1786
Joined: Nov 2009

Hello Victory2.

Sorry about your diagnosis. If you look on page 7 of this site with regard to a post created by Wing and a Prayer around November 18, 2009 and you may have some information you are looking for.

My best to you.

jazzy1's picture
Posts: 1385
Joined: Mar 2010

Sorry to hear of the reason you came to this site, but know you'll gain much strength and knowledge from others.

I agree, don't get in a tizzy over the statistics. In my case I never asked my doc, but my hubbie did during our first appt....I in turn covered my ears to not listen to docs response.

Sign in my doctors office --


Best to you and plse keep us posted on your progress....

Posts: 25
Joined: Mar 2010

I am sorry to hear of your diagnosis. I like you have been diagnosed with leiomyosarcoma.(November, 2008) You are right, it is a rare and aggressive cancer. Has anyone on your medical team suggested chemotherapy as an additional treatment option? I took three months of Gemzar and Taxotere, had 25 external and 3 internal radiation treatments, then three more months of Gemzar and Taxotere. If I may ask, where are you located? There are many reputable treatment facilities that specialize in sarcomas. There is also a leiomyosarcoma site that you may find beneficial. I would agree with the others that have posted.....be careful of statistics. Personally, I like to know what I am dealing with but I refuse to let that information destroy my faith. I could (or you could) be that one person (that one statistic) that defies all others. Hope is our lifeline and I cling to it daily.

Blessings2U's picture
Posts: 6
Joined: Aug 2013

I have had no recurrence and it has been 4 years and 9 months. I am in vibrant health and much happier than I ever was before. If you would like to hear more about my story, search Uterine Leiomyosarcoma - Integrative and Natural Treatments. I've got a Facebook page for ladies with ULMS and the talk is all positive about things that strengthen the immune system and improve your quality of life. Blessings!

Subscribe to Comments for "Looking for others who may be survivors of leiomyoscarcoma of the uterus."