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To Susafina

hopeful girl 1
Posts: 454
Joined: May 2010

Susafina,

Hi there.

As I recall you are about 4 plus months out past end of your treatment. I know you were
hoping for your hemoglobin to start climbing.

Just wondering-did you return to work after treatments and if so at what time span?

I am still struggling wiht my counts.

Platelets just went from 34,000 to 84,000 which was a good jump but my white, neutrophils and hemoglobin came down again. The rollercoaster ride that is my counts.

My oncologist will release my restrictions when counts are more normal.

Hugs,

Thanks,
Cindy

susafina
Posts: 134
Joined: May 2010

CINDY,
I am so glad that your counts are going in the right direction. Slow and steady is the name of the game. As soon as my Absolute neurotrophil count was above 1000, I was OK to work. I worked on and off throughout treatment. But I got to tell you that it is not easy, Now almost 6 months post chemo I am not that great. I still have neuropathy of my hands and feet, which is driving me crazy. Ya Know I thoughr that all would be normal again after treatment was done, but I was wrong.
Tomorrow is my 6th month post treatment exam I am really nervous but I will let you know if all is well and I hope that my hemoglobin goes up.
SUE

fuzzytrouble's picture
fuzzytrouble
Posts: 213
Joined: Feb 2009

Susafina, I have neuropathy also and my GP gave me a pill to help with the pain. You can really hurt yourself without knowing it because of the numbness of your hands and feet. I have been taking Gabapentin (hope the spelling is right) It is a pain blocker and not a pain killer. I especially like it at night because that's when I get the pain in my legs and feet. My hands are not as bad yet. I hope it doesn't get worse when I start treatment again. I hope this information might help you. I still can't wear regular shoes, I have to wear Croc's.
Hugs to you,
Sharon

susafina
Posts: 134
Joined: May 2010

Thanks for the info Sharon. Hey I need to get a pair of crocs. I did not think of them. Especially the fuzzy ones. It is really annoying. Even though the docs swear it will get better it is still annoying and painful!
SUE

hopeful girl 1
Posts: 454
Joined: May 2010

Sue,

I have alittle neuropathy in my feet and hands. When I get out of the bed in the morning my feet hurt until I walk for a bit, and after my 6th chemo, the palms of my hands became more sensitive and I swear they are just alittle puffy.

I really didn't ask my oncologist about it, because he doesn't worry much about the little stuff.

I go for my next bloodtest this week, I hope platelets climb some more and that my white counts go back up. Right now neutrophils are at 700 and even tho' I had a hemoglobin transfusion after my 6th chemo, and it made it go up to 11.2 it is back down to 9.5 or something like that.

I wish you well with you 6 month appointment and can't wait to hear how the appointment goes for you.

Cindy

susafina
Posts: 134
Joined: May 2010

Hi Cindy,
Thanks for asking about my checkup. All is well. My CEA is 5 thank goodness!! I will have another CT scan in Jan since my last one was in JUNE. I am keeping the faith in hoping that your counts keep rising until everything is back to normal. The neuropathy is just still annoying. Mt docs say that they peek 6 months after treatment and should be starting to get better. I really hope so. they told me that it should be better by next spring. But I don't want to wait that long!!
SUE

hopeful girl 1
Posts: 454
Joined: May 2010

Sue,

Your CA125 is a 5-that's great. Yah! That's the same number mine was at my last bloodtest as well. I hope mine stays a 5 too.

My counts are looking like they are starting to recover. As of my last bloodtest on Monday Dec 13th the counts are:

Platelets are now up to 168,000
Hemoglobin is 9.9
WBC still low at 1.4
Neutrophils are now 900

I go for another bloodtest next week.

Happy holiday season to all.

Hugs!

Cindy

susafina
Posts: 134
Joined: May 2010

Hey Cindy,

Your blood counts are better than mine!! Good for you! I am jealous. Your hemoglobin is better than mine alredy. Keep it coming. I like your idea of renting some good christmas tapes. Sounds like a good thing to do.
I am just really bummed out that my walking is so bad because of the neuropathy that I haven't been shopping much and I love to shop. I am just one of those people that really gets caught up in all the Christmas preparation and am mad because this year I just can't do it. I went shopping yesterday in Roosevelt Field and nearly cried because I just had such a hard time. It is just plain frustrating. I hope that it will be better next year.
But anyway keep positive thoughts and keep doing what you are doing to get those counts up.

SUE

hopeful girl 1
Posts: 454
Joined: May 2010

Sue,

Hi there.

I love to watch Christmas movies......there are a lot on Lifetime channel too if you have cable. I find them very relaxing and gets me in the spirit.

I am sorry to hear your neuropathy is giving you trouble, and made your Christmas shopping less enjoyable this year. I understand....I did mine all online this year, and I normally enjoy getting out there to buy the gifts as well (although I don't like to do it when the crowds are huge). So I understand.....

I have alittle bit of it in my hands and feet. I mostly feel in my feet when I get up if I have been off my feet for a while and it will hurt when I first start walking. My ankles and bottom of my feet.

Also after the 6th chemo my hands were more bothered than any of the other chemos, and the palms of my hands feel kind of strange. They were alittle puffy I think for awhile too.

I also have to go and have an ultrasound done on my thyroid also-because there was an incidental found on a ct during the summer that my oncologist was not overly concerned with but said we would check on after chemo ended. So I am scared about that.

I go for another bloodtest this week....they want my white count up higher before I return to work.

Cindy

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