Cyberknife Treatment--Side Effects
Thanks!
Comments
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No Major Side Effects Here
I had CK treatment almost 3 months ago now and I too had some urgency issues (and still do) but I did/do not consider it a major problem. No ED or any other problems.
I had a problem w/urinary frequency before treatment which led to the discovery of my PCa. The frequency problem continued and I also developed a minor urgency problem following treatment. I was took Hytrin (major headaches), Ditropan (no apparent effect) and Flomax (dried up my ejaculate, which is a known side effect of Flomax) before treatment to control frequency but stopped taking all of them in lieu of taking saw palmetto extract, both before and after treatment, which has controlled the frequency and urgency problems to my satisfaction.
I'm due to take my 1st PSA follow-up test tomorrow and will report the results here as soon as I get them.0 -
Thanks!Swingshiftworker said:No Major Side Effects Here
I had CK treatment almost 3 months ago now and I too had some urgency issues (and still do) but I did/do not consider it a major problem. No ED or any other problems.
I had a problem w/urinary frequency before treatment which led to the discovery of my PCa. The frequency problem continued and I also developed a minor urgency problem following treatment. I was took Hytrin (major headaches), Ditropan (no apparent effect) and Flomax (dried up my ejaculate, which is a known side effect of Flomax) before treatment to control frequency but stopped taking all of them in lieu of taking saw palmetto extract, both before and after treatment, which has controlled the frequency and urgency problems to my satisfaction.
I'm due to take my 1st PSA follow-up test tomorrow and will report the results here as soon as I get them.
Thanks to all above who have responded. I'm taking your comments into consideration for my own decision to do CK or not.0 -
Go For CK!jmadison said:Thanks!
Thanks to all above who have responded. I'm taking your comments into consideration for my own decision to do CK or not.
You're speaking to the choir here but, if you're eligible, I highly encourage you to go for CK!
You can troll this forum for threads (one very recent) about the substantial risks of surgery which can not only result in permanent ED (which may require a penile implant) but also MAJOR urinary and bowel dysfunction (which may require a urinary sphincter implant and/or multiple surgeries and many years to remedy). Why subject yourself to that kind of risk when it's unnecessary?
The argument often given for surgery is that you can have radiation after surgery but can't have surgery after radiation. Frankly, that is not true. Surgery is difficult but not impossible after radiation treatment BUT surgery to remove the prostate following radiation treatment is usually unnecessary, because surgery following radiation does not achieve any a better result than simply doing followup radiation, chemo and/or hormone treatment which is what you'd have to do after a failed surgery anyway. And, don't let anyone fool you, you still have the same risk of failure (return of the cancer) after surgery as you do following radiation. Radiation does present a minor risk of acquiring a 2ndary cancer later, but if you have followup radiation after surgery, which is quite common, that risk is the same.
There are certain situations when surgery is the best choice for treatment, but early stage Pca is not one of them. If you have early stage PCa, there is absolutely no reason to remove the prostate surgically in order to treat your PCa because CK can effectively attack the cancer with virtually no side effects and with the same prognosis for recovery as surgery. So, the choice for me was a no brainer.
As far as I know, we've got 4 members of the CK club here currently (the 3 who have already posted here and ViperFred who doesn't post very often is another) and I'm looking forward to welcoming you as a new member.
Good luck & best wishes!0 -
bdhiltonbdhilton said:jmadison
My 2 cents is that you explore all options available to you and make an informed decision with what you feel will work best for you....Best to you in this journey…
Thanks for you comment. I have been exploring other options in addition to CK...proton therapy, surgery, HIFU...and considering watchful waiting.
Best regards,
JMadison0 -
Let Us Know What You Decidejmadison said:bdhilton
Thanks for you comment. I have been exploring other options in addition to CK...proton therapy, surgery, HIFU...and considering watchful waiting.
Best regards,
JMadison
I believe that all of us who chose CK looked at all the same options you are considering nd decided that CK was the best for us.
Of course, that may not be the case for you. So, please let us know which treatment method you choose and why. Good luck!0 -
CK Side EffectsYTW said:CK side effects
I completed my CK treatment in August. Unlike Kongo, I had a few (minor) side effects. After my 3rd treatment, I had heavy urgancy to urinate that lasted about a week and began to subside. My URO prescribed Flomax and after about 3 weeks, the problem cleared up. If you decide on CK, I would advise asking your URO for Flomax and begin taking it BEFORE treatment.
Another problem was very loose stools but by taking Gasex and Immodiam, the problem was solved. I am now a bit past 3 months post CK and have virtually zero problems. By the way, my age is 71 and in otherwise, good health......Best of luck........Jimmy/Cleveland..........
I'm concerned about the side effects since I had a lot of problems with urinating before I was diagnosed with Prostate Cancer. I'm worried that the cancer may be cured but the problems with urinating may get worse. I've been on Flomax for 3 years. Any thoughts? Maybe Robotic Surgery would be a better option? Thanks0 -
Lower urinary tract symptomsphil9200 said:CK Side Effects
I'm concerned about the side effects since I had a lot of problems with urinating before I was diagnosed with Prostate Cancer. I'm worried that the cancer may be cured but the problems with urinating may get worse. I've been on Flomax for 3 years. Any thoughts? Maybe Robotic Surgery would be a better option? Thanks
Significant lower urinary tract symptoms are one of the exclusionary cretiria for Brachytherapy; but I had thought that SBRT was more precisely targeted and had no such collateral penetration. I'm glad medications are helping you, otherwise what are the other options? balloon dilatation ? TURP of radiated prostate?0 -
RP is not better!phil9200 said:CK Side Effects
I'm concerned about the side effects since I had a lot of problems with urinating before I was diagnosed with Prostate Cancer. I'm worried that the cancer may be cured but the problems with urinating may get worse. I've been on Flomax for 3 years. Any thoughts? Maybe Robotic Surgery would be a better option? Thanks
If you're worried about urination following treatment, RP is definitely NOT better than CK or anything else for that matter.
Of all of the currently available treatments, CK provides the most accurate method of radiation delivery with the least potential for causing the types of tissue damage that result in urination and other problems following treatment and all of the men here (including me) who have received CK report no or just minimal side effects following treatment.
RP is at the opposite end of the scale in terms of risk and can potentially cause the MOST problems of all kinds following treatment, including extended periods of urinary incontinence and, in the worst case, the need for the implant of an artificial urinary sphincter. If you haven't seen the following article about the risks of prostate surgery, I urge you to read it before taking any action to pursue RP for treatment:
http://www.hifurx.com/prostate-cancer/prostate-cancer-after-effects
Good luck!0 -
Philphil9200 said:CK Side Effects
I'm concerned about the side effects since I had a lot of problems with urinating before I was diagnosed with Prostate Cancer. I'm worried that the cancer may be cured but the problems with urinating may get worse. I've been on Flomax for 3 years. Any thoughts? Maybe Robotic Surgery would be a better option? Thanks
Welcome to the forum. Before anyone can give you any thoughts on your questions I think we need a bit more information about your situation such as what your cancer diagnosis is in terms of stage, Gleason Score, latest PSA, number of positive cores, and so forth. It would also be helpful to know about the urinary issue. Is it caused by BPH? If so, what is the size of your prostate? Have you taken anything besides Flomax?
K0 -
Urinating and surgeryphil9200 said:CK Side Effects
I'm concerned about the side effects since I had a lot of problems with urinating before I was diagnosed with Prostate Cancer. I'm worried that the cancer may be cured but the problems with urinating may get worse. I've been on Flomax for 3 years. Any thoughts? Maybe Robotic Surgery would be a better option? Thanks
Hey Phil,
I had an enlarged prostate and had the problems of frequent urination at night (2 to 3 times per night) and very low flow (it took a loooong time to wizz ... I would stand at a public urinal at a ball game and listen to guys behind me complain).
One of the positive side effects of the surgery was that I no longer need to get up at night and I wizz like a race horse. I did not know this would be a side effect when I chose surgery, and I am not advocating you chose surgery for this reason; however, in my case it was an unexpected positive.
Good luck and best wishes in your fight with PCa.0 -
Cyberknife Treatment-side effects
I am a newbie and have recently completed my five sessions of Cyberknife treatment. I had a early stage issue and reviewed virtually every alternative available. Cryo was the first one aimed my way and I quickly negated that after reading about its after effects. I then reviewed 8 week radiation treatments , spoke to several individuals and decided against that also. I was set to have DaVinci surgery in mid-December 2011, but an important family issue caused me to postpone it. I then received a call from a good friend in Maryland who suggested Cyberknife. After looking into it deeply, I decided that would be the method I would use.
Outside of being a bit tired (mainly from the voiding practices prior to treatment and two hours of driving a day), I have basically no other issues. A bit of a slower flow and a little more frequent bowel movement is all I noticed.
So far, so good and I am initially very pleased that I made it my final choice.0 -
Good luck!budoinst said:Cyberknife Treatment-side effects
I am a newbie and have recently completed my five sessions of Cyberknife treatment. I had a early stage issue and reviewed virtually every alternative available. Cryo was the first one aimed my way and I quickly negated that after reading about its after effects. I then reviewed 8 week radiation treatments , spoke to several individuals and decided against that also. I was set to have DaVinci surgery in mid-December 2011, but an important family issue caused me to postpone it. I then received a call from a good friend in Maryland who suggested Cyberknife. After looking into it deeply, I decided that would be the method I would use.
Outside of being a bit tired (mainly from the voiding practices prior to treatment and two hours of driving a day), I have basically no other issues. A bit of a slower flow and a little more frequent bowel movement is all I noticed.
So far, so good and I am initially very pleased that I made it my final choice.
Welcome to the Forum.
Sorry you need to be here w/us but I'm happy to learn that you were able to avoid surgery and chose CK to treat your cancer, like many of us here have already done.
Let us know how you're doing as time goes on.
Ciao!0 -
Welcome to the clubbudoinst said:Cyberknife Treatment-side effects
I am a newbie and have recently completed my five sessions of Cyberknife treatment. I had a early stage issue and reviewed virtually every alternative available. Cryo was the first one aimed my way and I quickly negated that after reading about its after effects. I then reviewed 8 week radiation treatments , spoke to several individuals and decided against that also. I was set to have DaVinci surgery in mid-December 2011, but an important family issue caused me to postpone it. I then received a call from a good friend in Maryland who suggested Cyberknife. After looking into it deeply, I decided that would be the method I would use.
Outside of being a bit tired (mainly from the voiding practices prior to treatment and two hours of driving a day), I have basically no other issues. A bit of a slower flow and a little more frequent bowel movement is all I noticed.
So far, so good and I am initially very pleased that I made it my final choice.
Budo, as another CK survivor I would like to welcome you to the club. I completed my CyberKnife treatments in June 2010 and have no side effects. Hope you continue to have smooth sailing.
K0 -
Bud,budoinst said:Cyberknife Treatment-side effects
I am a newbie and have recently completed my five sessions of Cyberknife treatment. I had a early stage issue and reviewed virtually every alternative available. Cryo was the first one aimed my way and I quickly negated that after reading about its after effects. I then reviewed 8 week radiation treatments , spoke to several individuals and decided against that also. I was set to have DaVinci surgery in mid-December 2011, but an important family issue caused me to postpone it. I then received a call from a good friend in Maryland who suggested Cyberknife. After looking into it deeply, I decided that would be the method I would use.
Outside of being a bit tired (mainly from the voiding practices prior to treatment and two hours of driving a day), I have basically no other issues. A bit of a slower flow and a little more frequent bowel movement is all I noticed.
So far, so good and I am initially very pleased that I made it my final choice.
Welcome to the PCa forum and congrats on completing your SBRT tx by CK. It must be a relief to be looking at that in the rear view mirror!
Most CSN newcomers (patients and patient advocates) are encouraged to share their or their loved one’s PCa history. I invite you to consider sharing yours. Doing so helps others better understand your PCa stats, tumor staging/risk level, tx decision process/choice and journey. This info may include facts such as age @ PCa dx, PSA history, factors leading to biopsy, biopsy results including % of involved cores/cancer volume, prostate volume, and any 2nd opinion pathology results/reports obtained from a lab specializing in analyzing PCa biopsy specimen slides. In your case, it might be informative to understand which CK protocol and dosing was used for your tx, i.e. consecutive day vs alternate day, total Gy and # of fractions delivered. You may also wish to clarify your statement “Outside of being a bit tired (mainly from the voiding practices prior to treatment…)” Perhaps your CK treatment required a bowel cleanse prior to each session?
As I’m sure you’re aware, a growing number of patients, advocates, medical professionals and physicians in the PCa community believe that AS/AM (active surveillance/active monitoring) is a very viable and appropriate plan of action for men dx’d with low - moderate risk PCa. Of course, choices related to PCa are always a highly personal decision.
Good luck on your journey.
mrs pjd0 -
Doing the Homeworkmrspjd said:Bud,
Welcome to the PCa forum and congrats on completing your SBRT tx by CK. It must be a relief to be looking at that in the rear view mirror!
Most CSN newcomers (patients and patient advocates) are encouraged to share their or their loved one’s PCa history. I invite you to consider sharing yours. Doing so helps others better understand your PCa stats, tumor staging/risk level, tx decision process/choice and journey. This info may include facts such as age @ PCa dx, PSA history, factors leading to biopsy, biopsy results including % of involved cores/cancer volume, prostate volume, and any 2nd opinion pathology results/reports obtained from a lab specializing in analyzing PCa biopsy specimen slides. In your case, it might be informative to understand which CK protocol and dosing was used for your tx, i.e. consecutive day vs alternate day, total Gy and # of fractions delivered. You may also wish to clarify your statement “Outside of being a bit tired (mainly from the voiding practices prior to treatment…)” Perhaps your CK treatment required a bowel cleanse prior to each session?
As I’m sure you’re aware, a growing number of patients, advocates, medical professionals and physicians in the PCa community believe that AS/AM (active surveillance/active monitoring) is a very viable and appropriate plan of action for men dx’d with low - moderate risk PCa. Of course, choices related to PCa are always a highly personal decision.
Good luck on your journey.
mrs pjd
Hello jmadison:
Guys like us have so many choices today, but these choices are separated by whether you are a true low, intermediate or high risk patient, your age, documented cure rates and then your personal perceptions of both having cancer and treatment side effects. Some guys get through their ordeal without any side effects, but not a high percentage.
In any event, the one truth I continue to support is that the vast majority of us have some time to make our decisions. When guys do their homework, treatment choices become much more obvious.
Whatever your choice, I strongly recommend you work with the absolute best doctor/oncologist you can find. This is a huge factor in success or any kind.
Best wishes,
robert10 -
Cyber knife side effectsrobert1 said:Doing the Homework
Hello jmadison:
Guys like us have so many choices today, but these choices are separated by whether you are a true low, intermediate or high risk patient, your age, documented cure rates and then your personal perceptions of both having cancer and treatment side effects. Some guys get through their ordeal without any side effects, but not a high percentage.
In any event, the one truth I continue to support is that the vast majority of us have some time to make our decisions. When guys do their homework, treatment choices become much more obvious.
Whatever your choice, I strongly recommend you work with the absolute best doctor/oncologist you can find. This is a huge factor in success or any kind.
Best wishes,
robert1
My husband had cyber knife treatment last September 2011, with only mild side effects a week later. Now, more than 6 months later, he is having severe problems. For the last two weeks he has had pain , burning, urgency, and blood in the urine. He was prescribed an antibiotic and flomax for a week, which did not relieve his symptoms. Yesterday we back to the doctor. He did a cistscope to check his bladder, a sonogram, and urine test. He said that husband does not have an infection, and took him off of the other meds, and put him on vesicare. He said that symptoms are a result of the cyber knife surgery last September. He still has all of the symptoms, and cannot sleep because of the pain and having to constantly go to bathroom. Has anyone else had this, or have any advise ? Please let us know, as he is miserable. Thanks0 -
Try The Accuray Patient's ForumMrs rec said:Cyber knife side effects
My husband had cyber knife treatment last September 2011, with only mild side effects a week later. Now, more than 6 months later, he is having severe problems. For the last two weeks he has had pain , burning, urgency, and blood in the urine. He was prescribed an antibiotic and flomax for a week, which did not relieve his symptoms. Yesterday we back to the doctor. He did a cistscope to check his bladder, a sonogram, and urine test. He said that husband does not have an infection, and took him off of the other meds, and put him on vesicare. He said that symptoms are a result of the cyber knife surgery last September. He still has all of the symptoms, and cannot sleep because of the pain and having to constantly go to bathroom. Has anyone else had this, or have any advise ? Please let us know, as he is miserable. Thanks
I had CK done in Sept 2010, a year before your husband, and have not had any such problems.
Although not unheard of, they are very rare and I am sorry that your husband is experiencing them. The men (including me) here who have received CK treatment w/in the past year or so, have not reported any such problems.
I suggest that you go to Accuray's (the maker of CK) Patient Forum, where there is a greater range of knowledge and experience about CK available. You an find the site here:
http://www.cyberknife.com/Forum.aspx?g=topics&f=2586
Please let us know here what the cause and solution are as soon as you are able.
Good luck!0 -
Cyber knife side effectsSwingshiftworker said:Try The Accuray Patient's Forum
I had CK done in Sept 2010, a year before your husband, and have not had any such problems.
Although not unheard of, they are very rare and I am sorry that your husband is experiencing them. The men (including me) here who have received CK treatment w/in the past year or so, have not reported any such problems.
I suggest that you go to Accuray's (the maker of CK) Patient Forum, where there is a greater range of knowledge and experience about CK available. You an find the site here:
http://www.cyberknife.com/Forum.aspx?g=topics&f=2586
Please let us know here what the cause and solution are as soon as you are able.
Good luck!
Thank you so much for your reply, I will check it out. I did read on another site of a man who was experiencing similar, but much milder symptoms. I hope that something can be done to relieve him, the doctor acted like he would just have to live with it. Thanks!0 -
Risks and patient safety re CyberKnife (aka SBRT)Mrs rec said:Cyber knife side effects
Thank you so much for your reply, I will check it out. I did read on another site of a man who was experiencing similar, but much milder symptoms. I hope that something can be done to relieve him, the doctor acted like he would just have to live with it. Thanks!
Mrs rec,
From wife to another, welcome to the CSN PCa discussion board. From reading your post, it seems that your current RO (the same doctor that provided the CyberKnife tx?) has confirmed that the painful symptoms your husband is experiencing resulted from his CK treatment. Did he say how/why this might have occurred? Apparently that RO (radiation oncologist) has been unable to provide solutions to mitigate the painful side effects/symptoms. I strongly recommend that you seek 2nd opinions ASAP from another RO as well as from a knowledgeable urologist who can do a complete evaluation to determine exactly what is causing your husband’s symptoms and provide some answers/solutions to mitigate the painful side effects.
Here’s some info that probably won’t be found on either the Accuray or CyberKnife websites about risks and patient safety re CyberKnife (aka SBRT): Last year, the respected American Society for Radiation Oncology (ASTRO) released a summary paper titled “Quality and Safety Considerations in Stereotactic Radiosurgery (SRS) and Stereotactic Body Radiation (SBRT) Therapy.” The document was commissioned by ASTRO and approved by their Board of Directors to address patient safety.
ASTRO’s executive summary paper states: “Given that very high-dose fractions of radiation are delivered, the margin of error for SRS and SBRT is significantly smaller than that of conventional radiotherapy and therefore special attention and diligence is required. A SMALL ERROR IN TARGET LOCALIZATION FOR ANY 1 FRACTION RISKS UNDER TREATMENT OF PORTIONS OF THE TUMOR BY 20% OR MORE, AND INADVERTENT OVER DOSAGE OF ADJACENT NORMAL TISSUES COULD ESCALATE THE RISK OF SERIOUS INJURY TO A MUCH GREATER DEGREE THAN AN EQUIVALENT TREATMENT ERROR IN A COURSE OF RADIOTHERAPY WHERE A SUBSTANTIALLY LOWER DOSE PER FRACTION IS USED [IG/IMRT].”
I have posted this info before and know it is not what you want to read but, without knowing more about your husband’s PCa history, stats, his clinical staging, the CK tx protocol used, dosing, the expertise & skill of his radiation team, including the radiation oncologist, the dosimetrist/physicist, the CK technician, etc., its difficult to know for certain whether your husband may have suffered permanent or temporary injury and/or collateral tissue damage from his CK/SBRT tx. I hope you find some answers soon, and that the symptoms are short term, treatable, and the pain resolves quickly.
Best of luck to you both.
M (mrs pjd)
wife of PCa survivor0
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