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My onc visit today

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

So, first we discussed my Oxy infusion reaction again ... he called in my infusion nurse (like I wouldn't tell him the truth or something? .. where did he get that from Dr. House?) and the 3 of us discussed what the reaction symptoms were and how they were resolved. Blah, blah, blah, blah, blah. (or like the Peanuts cartoon ... wah ... wah ... wah). My infusion nurse is a bit goofy like me so between the 2 of us, the doctor actually had a hard time not cracking a smile. I caught him a couple of times when he pretended to look down at my chart ... he'd cracked a smile. So, he decided to write for the 25mg benadryl push at the beginning, with the dex ... and a second 25mg push at the half way mark next time to head off any reaction. But, he did call in all the infusion room nurses and manager to tell them that he wanted the crash cart in the infusion room when I was there! I said ... "what?? Are you trying to crash my party?" yep ... he cracked a smile.

So, seems my liver is enlarged and somewhat tender. Let's hope that's just cause it's working out the chemo. Blood tests are lower but, still doing good enough to do chemo so no biggie.

CEA is another story damnit. It just doesn't want to stop rising or go down. It's now up to 11.3 It wasn't even that high when I went in for emergency surgery. It's never been that high. Let's hope that's due to the dying cancer cell phenomena. We discussed my hernia, blockage and probable adhesions. He told me to look for a good surgeon .... HA! I reminded him that I am in the middle of chemo so I thought it could wait. Ha! ... caught him faking the ol' check the chart routine ... he smiled. I just know one of these days, I'm going to get a laugh out of him. It's my new mission in life!

PS ... gearing up for chemo on Monday ... means I'm going be feeling ... well you know. and .. I don't have a clue what turkey will smell or taste like on FOLFOX ... but, it might be interesting to find out.

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

I hope your taste buds come back in time for that turkey, we end up giving up so much to treating cancer, that I hope you don't have to give up your yummy turkey taste buds on Thursday.
I'm glad the benadryl will come into play for you early on in your chemo, that's a good thing.
And crap, sorry about your CEA, but as you said hoping it the dying cancer cell thingie (can't pronounce phenomena correctly so figured, why spell it?).
Thinking of you, and sending prayers your way.
Winter Marie

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

I hoping for that cell dying thingie too!

AnneCan
Posts: 3692
Joined: Oct 2009

Keep up the good spirits! You may even get a full smile from him one day! Sorry to hear about your liver + your CEA. I hope they both turn out to be nada. Will you have your turkey next Thurs? If so you probably will enjoy it by then (at least I hope so; what do I know?) Good luck!

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

I'm still debating having turkey ... I need to make up my mind before Monday though as by Tuesday I won't want to do anything. If I commit to it by Monday then I have to follow through because I'm like that. ha! HUG to you Ann, you're such a great support, I appreciate it.

bruins1971's picture
bruins1971
Posts: 227
Joined: Nov 2010

Thankfully my oncologist is letting me skip a week so that I can enjoy Thanksgiving plus it turned into a nice three weeks in between chemo's...good luck

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

You are lucky to skip the week. Enjoy the turkey.

Hey, I'm not trying to pick you up of anything ... but, you look really familiar as does your name. Are you from the L.A. area?

okthen's picture
okthen
Posts: 232
Joined: Jun 2010

Lori...he's (onc) probably like the rest of us and your humor pops in his mind throughout the day...which then results in a smile, or an actual laugh. (o:
No chemo for Jack this week,,,and he doesn't even like turkey...doesn't seem fair...haha
Youre in my thoughts...daily...hugs!
Chriss

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

Are you offering to let Jack take my chemo for me so I can enjoy turkey? ;)

Chriss, tell me about your avatar pic ... I love it and I want that crown, so royal!

okthen's picture
okthen
Posts: 232
Joined: Jun 2010

Lori, Sorry...it's a no go with Jack. (o:
I'd take it for you, but make note, that is coming from the mouth of someone whose never had it....but I would forgo the turkey to help you out if I could.

Not sure about the avatar pic...just something I liked that my Aunt had on her facebook page. I, like her, am SURE that at one time we were Royals. (o:
She is just done with her Chemo for breast cancer and I think she wanted to change her pic to something magical. She's an amazing woman! I'm proud of her for all she's been through too.
Have a great weekend!!
Chriss

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Lori,
You're beautiful and funny.... nice combination!! Your onc must love you. To have folks like you who can still laugh in the midst of this is a real gift. I hope the chemo is doing its job.

Thinking of you.

Aloha,
Kathleen

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

I love when I see your signature! I always picture you wearing a grass skirt and coconut shell bra with tiki torches glowing behind you while you type. Hope you are doing well.

Lovekitties's picture
Lovekitties
Posts: 3348
Joined: Jan 2010

Goodness girl you try to keep everyone in stitches...hope your doc realizes what an exceptional patient you are.

I am sure that you will get him to laugh out loud before you are done with him, even if you have to resort to a whoopie cushion or candy wax lips!

Hope that the liver tenderness and the CEA are 'good' side effects of chemo working.

Even if no turkey next Thursday, you can celebrate on another day when you feel more like eating.

Take care and keep working on a plan to get the doc to laugh!

Hugs,

Marie who loves kitties

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Take care and enjoy turkey,s day with or without turkey, ( from my point of view not to have to eat turkey is a blessing! LOL ).
Hope everything goes well next infusion.
Hugs.

Friendinpenn's picture
Friendinpenn
Posts: 70
Joined: Oct 2010

I've had a bad reaction as well to the Oxiplilatin on Novemeber 10th, and it was so bad for me that I can no longer take it, (this would have been my 14th treatment on it) so I'm back on the irrectecan as of Wednesday this week...

That very morning of the reaction, I kidded my Onclolgist on the 10th after she told me my lab work numbers looked good by saing to her: "So you're gonna send me to the chair today" !!! She cracked up like I had never seen her do!!!

And then of course I had the severe alergic reaction to the oxiplilatin that afternoon...

So Wednesday this week, I had my wife resereve that very chair with my jacket on it because even though I was going back to "the chair"... I've learned in life that instead of running from your fears to run towards them...and I did...

And yesterday with my 5-fu pump I went to my cabin in the woods built a cozy crackling fire inside and listened to the cold rain outside in the Northern Pennsylvania Mountains...and I was glad to have the experience...hope all of you are doing well...

Your "FriendinPenn"

maglets's picture
maglets
Posts: 2596
Joined: Jun 2006

oxy the very devil of a drug....we haven't met mr penn.....just saying hi and welcome to the forum....I too have a cozy shack in northern Ontario but it takes me 12 hours to get there.....lol summer only

hugs maggie

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

It's good to see you posting. Sorry your reaction was so bad. That part of my post that I put Blah, blah, blah??? that's when the doc was talking about risk of death and all that fun stuff ... blah, blah, blah.

Bout your chair? I have been allowed to have my own designated chair too. I always take the one closest to the emergency exit, which fortunately is also the one right in front of the nurses station. One thing I do, but don't remember doing, during a reaction is stand up. Part of it is because it feels like my body is on fire but of course the nurses joke that I'm going to make a break for the exit and the next time they are going to strap me into my seat.

You should post some pix of your cabin on your expression page. It sounds wonderful. I was raised a southern, midwestern, native American, Italian girl (don't they call that a heinz 57 for short?) and I do miss the homey things like nature, woods, lakes, cabins and farms since I left for the big city experience of L.A. as a teen. Nothing better than nature, peace and a fire on a cold rainy day. I really miss my childhood on my granddaddy's farm. I actually remember the day they put a bathroom inside and the outhouse just became a part of the lanscape and not the place that you had to get dressed in coats and boots to weather the snow when you had to go so bad in the mornings. I think it is probably one of my earliest childhood memories as I must of been about 3 years old.

I'm just curious since your not doing the oxy anymore. How much different is it with just the 5FU? Since I may have to drop the oxy myself, I'm thinking it might be a lot easier. I have a lot of side effects but, I can't be sure which is the oxy and which is the 5FU.

Annabelle41415's picture
Annabelle41415
Posts: 6549
Joined: Feb 2009

Sorry that you are having such problems with the treatment but that chemo can be some hard stuff. My CEA went up on chemo too, but my doctor said it can do that and it did go back down. Hope you are able to enjoy your turkey. Waiting all year for it and then not being able to taste it would just not be fair. Hope you do well on Monday.

Kim

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

Thanks for the well wishes. I hope you are doing well. It's always good to see a post from you.

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

I'm with you, Lori...I just hope to be able to sit up for an hour in the daytime and another hour or so at night, as much as I can do. Radiation continues to knock me down and by the holiday, I will be at 28 of 30, so for all intensive purposes, Thanksgiving is over....think the wife is going to have a couple of slices turkey and make a couple of things...maybe I can have a bite or two if I'm feeling like I can.

Just want to spend some time with her - then I'll go lay down and let her get on the phone with her sisters:) That'll get me off the hook, LOL:)

Hope you enjoy your day and that you can enjoy something to eat, regardless of what it is.

Gobble, Gobble
-Craig

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

Maybe we should have an anti-turkey day.

28 of 39 ... whoa ... that's got to be adding up. Sorry you'll miss the turkey but, glad your wife has her sister to call for company. Funny you signed your post Gobble, Gobble. That's always how the kids and I address each other on Thanksgiving. It's really funny at first but, I noticed that newcomers to our house on Thanksgiving got tired of it after a while. We used to play that you couldn't speak to someone unless you said Gobble, Gobble first. Yep, Gobble 2 times before you spoke or everyone would go "aaaawwwwwwnnnnk" like the noise when you get a wrong answer on a gameshow. Actually it sounded more like a flock of turkeys yelling. So, "aaaaaaawwwwwnnnnk" about not having turkey this year!

Hope you're feeling better soon.

jararno's picture
jararno
Posts: 189
Joined: May 2010

As for the Turkey....I pretty much only ate Turkey and mashed potatoes during the whole 12 rounds of Folfox. I made sure that I didn't get sick of it so I can still enjoy a Turkey meal.

Due to a bad reaction on my 11th treatment, I was assigned a seat near the nurses station for my 12th treatment....They really kept an eagle eye on me! They also gave me lots of premeds and slowed the infusion down. Hope things work Ok for you!

Take Care,

Barb

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

Sounds so good. Yum. Probl;em I'm having is if I can stand the smell (not often) of something cooking, everything taste like .... well .... unless it's really sweet or very spicy. I'm going to try some turkey though. Last time I ate eggs they tasted like dead baby chickens. I hope that turkey doesn't tast like a dead bird. Imagine that!

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Would you kind enough to post in my thread what are you doing this weekend, and how I would survive without my wife 10 days? My God what a friend!
LOLLOLLOL!

maglets's picture
maglets
Posts: 2596
Joined: Jun 2006

eggs were my go to on oxy....so sorry they taste like dead chickens.....have you found anything that appeals?

maggie

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

I'm even getting sick of my favorite teas. waaaaah But, after a few days I can go with sweet or spicy foods. It's like sugar or chili peppers kill the dead animal taste. It's funny but, I was vegan for 3 years and everything (not just meats)tastes the same way meats smelled when I wasn't eating them. Very gamy and dead. Weirdest thing to have that come back only in a taste instead of just the smell. It's just not very appetizing.

maglets's picture
maglets
Posts: 2596
Joined: Jun 2006

how bout cucumbers and carrots and dip?

milkshake

smoothie?

cracker?

applesauce

hugs....mags

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

LOL!
and HUGS.

AnneCan
Posts: 3692
Joined: Oct 2009

I guess it would be worse if the eggs tasted like live chickens!

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

Could you imagine, tasting the feathers? That's one thing when eggs cook when I'm doing chemo, it smells like chicken feathers burning. What's up with that?
But, Ann, if it were live chickens you could always use the feet as toothpicks!

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

broiled potatoes on a four tortilla were my salvation...save the turkey until you can enjoy it. I was in the hospital two turkeys ago, and we had Thanksgiving when I got out.

BUT I can't stand turkey, I go for the sides!

Take care!

Kenny H.'s picture
Kenny H.
Posts: 503
Joined: Aug 2010

I lucked out also. They moved my #3 treatment back a week since my disconnect day is thurs and they will be closed. Get to enjoy T-day with all the family. I deep fry em!

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

Kenny how glad you must be to have a week off! Woo hoo. Enjoy that deep fried turkey.

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

sorry , don't want to offend but don't you would prefer something more tender? partridges ,quails, tender poulette, or so ,just remain me to an ostrich!
( in joke mode) LOL. Yankees! LOL.
Love all of you Americans!hahahaha!

AnneCan
Posts: 3692
Joined: Oct 2009

Turkey is so yummy! I am not American, either. The little birds I have had tend to be bony; turkey is so moist when cooked properly.

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Remember we like small tings in Europe!
Hugs!.

AnneCan
Posts: 3692
Joined: Oct 2009

You just haven't met the right turkey!

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

house this Christmas to try a real one so I will tell you.LOL.

chicoturner's picture
chicoturner
Posts: 285
Joined: Apr 2009

Ah Lori, might as well keep laughing! or at least try to get them to laugh! I have a lot of feet issues since my Oxy days and see a pediatrist (spelling...?<&%$@!) He won't smile either, but next time I will put smiley face stickers on the bottom of my feet!!! Hang in there! Jean

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

idea ... I think I'll put a smiley face sticker on my liver so next time he goes to palpitate it, he'll be caught by surprise!

ron50's picture
ron50
Posts: 1729
Joined: Nov 2001

I'm glad I did not have some of the modern chemos(the old ones did more than enough damage).Every second week I took a drug called levamisole and it was vile and I mean puke for hours vile. The only food I could stand was instant rolled oats made on milk with a hearty dollop of honey. I had the dubious distinction of being one of the few to get fat on chemo.:) Ron.

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

with the addition of the steroids for nausea management, I got fat on chemo as well! :)
mary

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Lori it's so good to see your spirits are up. Thank's for the fun, smiles, and inspiration.

Gail

ktlcs's picture
ktlcs
Posts: 360
Joined: Jan 2010

One of the best attitudes and sense of humor! Love your posts but sorry you are going through this. My husband actually had a designated private room at chemo due to his mobility issues, so we could close the door if we wanted to (I often did so I could work while he got his infusion) But as a college basketball fan during March madness I would watch the games. One game was so close I kept yelling at the TV, the nurses all came running meds in hand only to find out it was me not the patient!

I learned to control myself after that

Kathy

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

Charger games. Drive my dog nuts cause I wake her up when she's napping. Thank goodness I have infusions on Mondy mornings when there aren't any games on.

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