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I need urgent help

piums
Posts: 1
Joined: Nov 2010

HI I am very new to this and very scared...

I am 29 years old and I have a lung cancer stage 3B. It seems i am in a critical condition. if I am expected to live couple of years ... how does it work. How long will i be asked to do treatments and what will my life be like. should I give up chemo so I can have a quality life or continue chemo? Will my hair drop, will it grow? I am terrified to see the doctor next week and discuss my options.

I don't know what it will be like to live knowing that there is a time limit ... is life going to be normal. Will I have to do treatments until I die ...

Please help me. tell me anything you can...

with much love,
Piums

z's picture
z
Posts: 1413
Joined: May 2009

Hello, Sorry you have to be here. I had Stage 1A NSCL and had the vats. I posted on an old thread with a Stage III B 8 year survivor. It says oxygen and Stage IIIB, buts thats not the poster, I want you to read the poster if you scroll down some. I hope this helps. Lori

z's picture
z
Posts: 1413
Joined: May 2009

Piums, If you do a search on CSN member wicker_women, she is an 8 year survivor and if you click on her picture it will take you to her about me page, which she will explain what treatment she had. I know there are more so, if you do a search on CSN Content like put in IIIB it should bring up the posts that have IIIB in them. Lori

Miss Bella's picture
Miss Bella
Posts: 19
Joined: Oct 2010

Dear piums,
I am so sorry about your diagnosis, I know you are scared.
Now take a deep breath. One thing at a time. You say you have stage IIIB. So I believe from that that you have non small cell lung cancer in a lung and in lymphnodes on the same side AND on the other side. NO metastases have been found. Don't know how large your main tumor is or if you have more than one in the same lung? There are MANY treatments. Chemo. Many different kids. Often they start with a platinum based chemo like Cisplatin in combination with some other chemo. If radiation is an option they may add Etoposide as the second chemo drug. It all depends on you situation. Some chemo will make you loose your hair BUT it will grow back. Mine came back curly and soft.
You are young and strong so your body will probably hold up well.Or do you have other medical issues?

"There is a time limit...." Nope. There IS NO TIME LIMIT!!! Check the bottom of your feet. Do you see an expiration date?

Get yourself a digital recorder so you can record your meeting with the onc, that way you can focus on the meeting and not note taking. Do you have someone to come with you? Write down your questions in advance. Find out how large the tumor is what lymph nodes, locations etc. Get copies of all scans (they will make a cd for you), all reports etc. Start making your own file.
Find out what treatment options they offer, ask about the side effects and so on. Ask for a copy of the pathology report so you know what kind of cancer you have.
Then comeback here and we can talk about what they have suggested. People here may have been on the same treatment.

There is life and there is hope. You will be able to laugh again. Soon.

Miss Bella

stayingcalm's picture
stayingcalm
Posts: 656
Joined: Feb 2007

What Miss Bella said covers it all, you're in good hands!

hdbilly1's picture
hdbilly1
Posts: 24
Joined: Nov 2010

hi plums, i was diagnosed on jan 29th of this year (stage IIb) and had the upper lobe of my right lung removed and then went through chemo. i would have to say that yes the chemo is rather unpleasant but just keep looking forward to getting the last cycle over with. i too almost said no to any more chemo but looked at it like God wants me to know what it feels like to be on this side of cancer for a reason. maybe so that i could go on to help other cancer patients get through their troubling times. i did complete my chemo and i'm sure glad i did. when it is all over, you will really appreciate life alot more. i know how scared you are because i too was petrified but when it's done you will feel better. i went on to have one of the best fun summers i have ever had in my life and you can too. the picture on my profile was taken just a couple of weeks ago. does it look like i was having fun? only if you could have been there!!!!! there is life after cancer and i think it is even more intense because now i don't take it for granted. i wake up every morning and thank God for one more day, live as if it were my last and when i go to bed, i pray that he will allow me to do it all over again the next day. hang in there and don't give up. keep fighting the big fight. i know that there are alot of things that you cannot control right now but take control of the things that you can. i wasn't going to let the chemo take my hair so i had my head shaved. wouldn't you know it, my hair just grew back in and i never really lost a single hair to the chemo!!!!! they have come so far with the chemo drugs and treatments so don't let it scare you. you will only feel bad for a little while and then it goes away until the next treatment but you will get through it. just don't give up!!!!! i am always here to talk with. my thoughts and prayers will be with you, bill zepp

barryd2
Posts: 5
Joined: May 2010

I was diagnosed THREE YEARS AGO with Stage IIIa nsclc... and I'm still alive and kickin'... I had chemo for about four or five months, then surgery, and then radiation and chemo... It's no fun, but I've been cancer free for more than two years now... every case is, of course, different, but thinking positive is a big help... for the first couple of weeks, it was pretty scary, and I wound up taking Xanax almost every day, but then things started to calm down... Best of luck to you...

Barry

NayPaul's picture
NayPaul
Posts: 230
Joined: Oct 2010

Plums,

Sorry about your diagnosis.

my 40 year old wife was diagnosed with stage 4 lung cancer on september 10.... after our initial shock, we realized, that this is not a death sentence. I don't know about your overall health outside of the cancer, but please don't pay too much attention to the numers. I am a mathematician. There are so many variables to consider. The numbers tell you only medians and five yar survival rates. It does not tell u range, or how you will react to treatment.

My wife for example is going through chemo and we r at disney for a week. She goes from nine in the morn till past midnight....the chemo has made all of her obvious cancer symptoms disappear.

My point is.... I don't know what your new "normal" will be, but it can certainly be very tolerable.

Rosi's picture
Rosi
Posts: 69
Joined: Dec 2009

Hey, God is great, he will never give give you a pain that you can`t take it and I am praying for you, that what ever treatment you take, God will be with you, He will be holding you in his arms.
That`s is what is doing with my husband, he has 4 stage met to his brain and after almost 2 years we still going day by day.
God bless you

phelangelica
Posts: 17
Joined: Nov 2010

This is not a death sentence. First of all, theres great medical advances for you to explore that can keep you alive for decades. The stats are outdate.

Second of all, your body can be strengthened with a healthy diet and exercise and supplement program. There is no reason why a smart and otherwise healthy 29 year old woman cant beat cancer! You can beat it. One day at a time.

Okay! first, go ahead and panic a bit and say holy s*T! i dont want to die! Then, with that conviction, do your first two jobs: One is to decide whether you like your oncologist. Get a second opinion and decide which doctor makes you feel warm and confident. if neither do, maybe start treatment with the better of the two but try to find another doc.

The other job is to say goodbye to sugar. Stopping all sugar consumption can help to arrest cancer growth, thats important esp since you have not started chemo yet. Even if the docs office offers ginger ale and saltines. Dont drink any soda or eat processed white crackers like that. Simple starches become sugar.

Grab these books:

How To Prevent and Treat Cancer With Natural Medicine http://www.amazon.com/Prevent-Treat-Cancer-Natural-Medicine/dp/1573223433/ref=sr_1_1?ie=UTF8&s=books&qid=1289582420&sr=8-1

the cancer fighting kitchen, http://www.amazon.com/Cancer-Fighting-Kitchen-Nourishing-Big-Flavor-Treatment/dp/1587613441/ref=sr_1_1?ie=UTF8&qid=1289582506&sr=8-1 which has a great index of ingredients that counter inflammation and a million tips on how to adjust flavors and textures to support cancer patients through treatments.

Be in touch!

stayingcalm's picture
stayingcalm
Posts: 656
Joined: Feb 2007

As I understand it, Phelangelica, sugar is not quite the ogre it's popularly held to be. Moderation is the key (not that I follow that - I eat whatever the heck I want to eat :-)). Too much sugar and you make too much insulin, which can cause cell growth. Take away all sugar and you won't produce enough insulin for your body. Don't give up your desserts so fast!
Happily munching,
Stayingcalm

Dapsterd's picture
Dapsterd
Posts: 291
Joined: Jun 2010

I have nsclc, adenocarcinoma, stage IIIB. It will be at the minimum a 9 mo. battle.

I know when a person gets dx, it is doom and gloom in their eyes. But IIIB this type is very treatable. I just finished my 22 weeeks of chemo and earlier 10 weeks of radiation. Chemo and rdiation at the same time was the worse. To me, the carbo and taxol once a week was not too bad at all.

I feel great and people have said I look great, so I take this as the cancer has resided, so I will keep all posted!

1st-line treatment is complete about two weeks ago, I will get a PET scan on this Monday Nov. 22. this should tell much of where I am at in this recovery/treatment.

Best to all
Dave

DEBBIEWPB
Posts: 1
Joined: Nov 2010

dear piums

this is the first time i have posted a comment but felt I had to. I had stage 4 lung cancer. The tumor was so big they couldn't operate so they started me on chemo - actually they put me in the hospital for 3 days to have a "strong chemo drip". I was told I would not have any hair on my entire body. . .that wasnt totally true but yes I lost the hair on my head! remember, it does grow back and looking forward, getting a haircut in the future is no big deal when the stylist cuts shorter than you asked for. . .you have been bald and beautiful!

back to important stuff. . .I was 45 when the doctor told me the reasons I was having back pains was because I had a tumor ...the tumors fingers were hitting the back wall of my lungs and that was causing my pain. Then it all begain. . . I forgot to mention I had smoked for over 25 years.

I decided I was going to see my grandson grow up and nothing and no body was going to stop me! Attitude for me - - my faith - - my daughter - by boyfriend (now husband) and family and friends ALL helped me get through this! After my chemo, then I had the radiation and then all felt like the tumor was small enough that I could have the upper right portion of my right lung removed...if I wanted it removed. I said schedule the surgery!

Most important - I have been cancer free for 13 years this week! You can do this! There is life and happiness after the chemo, radiation and surgery . . .I have so much to be Thankful for and so do all survivors!

Peace be with you. . . .have a positive attitude!

stayingcalm's picture
stayingcalm
Posts: 656
Joined: Feb 2007

I'm glad you felt the need to post - 13 years, wow! That gives a lot of us more hope, thanks!

NayPaul's picture
NayPaul
Posts: 230
Joined: Oct 2010

Thank you for posting. Hope is a great thing.

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