How are you Pepe?

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AnneCan
AnneCan CSN Member Posts: 3,673 Member
edited March 2014 in Colorectal Cancer #1
I know you were having your 1st radiation treatment today; how are you doing?

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  • AnneCan
    AnneCan CSN Member Posts: 3,673 Member
    #2
    OOPS!
    Just saw your other post; glad you are doing well.
  • pepebcn
    pepebcn CSN Member Posts: 6,331 Member
    #3
    Hi Anne .
    For the moment easy and fast! Wish chemo would be like that! Ahhhh l have forgotten....... wen I was in the changing room my port pump
    dropped down and get disconnected ! thanks God It was in the hospital and 20 minutes later everything was solved!Hahaha!
    Hugs dear!
  • khl8
    khl8 CSN Member Posts: 807
    #4
    pepebcn said:

    Hi Anne .
    For the moment easy and fast! Wish chemo would be like that! Ahhhh l have forgotten....... wen I was in the changing room my port pump
    dropped down and get disconnected ! thanks God It was in the hospital and 20 minutes later everything was solved!Hahaha!
    Hugs dear!

    alittle hint to help that
    alittle hint to help that not happen again, Wrap a piece of tape around the tubing and make a flag out of it, then put a safety pin through the flag part and fasten to your shirt, then if the pump falls, it will be stopped by the shirt and not be pulled out.

    Kathy
  • pepebcn
    pepebcn CSN Member Posts: 6,331 Member
    #5
    khl8 said:

    alittle hint to help that
    alittle hint to help that not happen again, Wrap a piece of tape around the tubing and make a flag out of it, then put a safety pin through the flag part and fasten to your shirt, then if the pump falls, it will be stopped by the shirt and not be pulled out.

    Kathy

    Kathy great suggestion will do it tomorrow !
    the problem is that to be radiated I was naked!!!! LOL!
    Hugs!
  • plh4gail
    plh4gail CSN Member Posts: 1,238 Member
    #6
    pepebcn said:

    Kathy great suggestion will do it tomorrow !
    the problem is that to be radiated I was naked!!!! LOL!
    Hugs!

    That is a good idea Kathy. I
    That is a good idea Kathy. I just hung mine on my shoulder andf neck like a purse. And Pepe tuck it close between your side and arm while you're laying on the radiation table. They need to give you a hospital gown :)...... Stay strong and healthy, you can do it!...Gail
  • AnneCan
    AnneCan CSN Member Posts: 3,673 Member
    #7
    pepebcn said:

    Kathy great suggestion will do it tomorrow !
    the problem is that to be radiated I was naked!!!! LOL!
    Hugs!

    In that case
    You don't want to be pinning it to anything - ouch!
  • pepebcn
    pepebcn CSN Member Posts: 6,331 Member
    #8
    AnneCan said:

    In that case
    You don't want to be pinning it to anything - ouch!

    Aghhhhhhhhh! What a
    pain!!!!!!
    LOL
  • pepebcn
    pepebcn CSN Member Posts: 6,331 Member
    #9
    plh4gail said:

    That is a good idea Kathy. I
    That is a good idea Kathy. I just hung mine on my shoulder andf neck like a purse. And Pepe tuck it close between your side and arm while you're laying on the radiation table. They need to give you a hospital gown :)...... Stay strong and healthy, you can do it!...Gail

    They do, but it was in the changing room when l was
    getting my clothes off!. You mean the machine between my body and my arm?, impossible! I have to stretch my arms over my head!.
    Hugs.
  • plh4gail
    plh4gail CSN Member Posts: 1,238 Member
    #10
    pepebcn said:

    They do, but it was in the changing room when l was
    getting my clothes off!. You mean the machine between my body and my arm?, impossible! I have to stretch my arms over my head!.
    Hugs.

    Oh. Well I guess that
    Oh. Well I guess that wouldn't work. When my pelvis was radiated for the colorectal area my arm were at my sides with hands on the tummy. They need to put a small bedside close next to you where it will be close to you maybe?....Gail
  • pepebcn
    pepebcn CSN Member Posts: 6,331 Member
    #11
    plh4gail said:

    Oh. Well I guess that
    Oh. Well I guess that wouldn't work. When my pelvis was radiated for the colorectal area my arm were at my sides with hands on the tummy. They need to put a small bedside close next to you where it will be close to you maybe?....Gail

    I will se tomorrow
    what they suggest !
    Hugs!
  • khl8
    khl8 CSN Member Posts: 807
    #12
    plh4gail said:

    That is a good idea Kathy. I
    That is a good idea Kathy. I just hung mine on my shoulder andf neck like a purse. And Pepe tuck it close between your side and arm while you're laying on the radiation table. They need to give you a hospital gown :)...... Stay strong and healthy, you can do it!...Gail

    Gail,
    In your case, pin it
    Gail,
    In your case, pin it to your bra!
  • khl8
    khl8 CSN Member Posts: 807
    #13
    plh4gail said:

    That is a good idea Kathy. I
    That is a good idea Kathy. I just hung mine on my shoulder andf neck like a purse. And Pepe tuck it close between your side and arm while you're laying on the radiation table. They need to give you a hospital gown :)...... Stay strong and healthy, you can do it!...Gail

    I wish I could take credit
    I wish I could take credit for it, but my oncology nurse showed me this trick. during the day I pinned it to my bra and then when I had to change my clothes, I would lay the pump down while I was sitting, then transfer the pin to my pajamas or whatever it was I was changin into it, and it also felt more secure when I was sleeping. I never had the feeling that I would pull the needle out of my port.

    Kathy
  • jararno
    jararno Member Posts: 186
    #14
    khl8 said:

    alittle hint to help that
    alittle hint to help that not happen again, Wrap a piece of tape around the tubing and make a flag out of it, then put a safety pin through the flag part and fasten to your shirt, then if the pump falls, it will be stopped by the shirt and not be pulled out.

    Kathy

    ID Badge Clip
    I used one of those plastic ID Badge Clips with snaps to snap around the part of the tubing where the tubes screw together then I clipped the metal part to the top of my shirt. It worked very well for those many times that I forgot to take the pump when I got up. The tape and safety pin sound great too! I wish those pumps could be made to be a little easier to drag around! I called mine "Grace", just because there was no graceful way to handle it!


    Take Care!

    Barb
  • Sundanceh
    Sundanceh CSN Member Posts: 4,392 Member
    #15
    plh4gail said:

    That is a good idea Kathy. I
    That is a good idea Kathy. I just hung mine on my shoulder andf neck like a purse. And Pepe tuck it close between your side and arm while you're laying on the radiation table. They need to give you a hospital gown :)...... Stay strong and healthy, you can do it!...Gail

    Pepe
    Just wear the pump around your waist - you can have it sit on your thigh during the treatment.

    Also, no gowns should be worn for radiating the lung area. Shirt off at all times and the technicians should tell you this. They need to see your tatoos to line you up properly in the linear accelerator.

    -Craig
  • plh4gail
    plh4gail CSN Member Posts: 1,238 Member
    #16
    Good ideas
    Such good ideas for you Pepe. You are in good hands here for sure. I remember jumping out of bed to the sound of my alarm, only to be jerked back because I left my pump laying on the bed. Talk about wide eyed and scared. I did mine 3 months ago. You're going to do great!

    Smiles, Gail

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