Welcome to plh4gail, LeesburgKate, and elaineG
Comments
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e komo mai - welcome
Welcome to the board. I hope we can provide support and information to you along this difficult journey. This board has been a pillar for us for the past 23 months.
Aloha,
Kathleen0 -
Thank's so much!
Thank you so much! It's been a hard 4 months. I want to think I'm an optimist and look for the positive but what the heck...I can't help but wonder what's the next curveball, missle, or brick coming my way. I seem to have been glued to my computer today with all of the information and inspitation all of you share. This (right up there with my family and treatment) has got to be the best thing I have found for recovery! I promise I will be checking on here daily. As you can read in my information, I went through the simultaneous radiation/chemo pump in July and August. I had my resection October 8th and woke up with an iliostomy, although temporary, still hard to get used to. Now after 3 weeks post op my iliostomy isn't working as intended and I go back to surgery November 12 to reverse it. I'm so happy about that, but at the same time I don't want to delay my upcoming chemo which will happen. Now, after reading all the comments about the different chemotherapies, I'm wondering which one I will be receiving and how I will tolerate it.....well, the important thing on this day is I'm ready to get it and the surgery started. And I hope I wake tomorrow with the same motivation.
Just wondering....does anyone else live emotionally moment to moment at times like I do?
Thank's soo much, Gail0 -
Roller Coasterplh4gail said:Thank's so much!
Thank you so much! It's been a hard 4 months. I want to think I'm an optimist and look for the positive but what the heck...I can't help but wonder what's the next curveball, missle, or brick coming my way. I seem to have been glued to my computer today with all of the information and inspitation all of you share. This (right up there with my family and treatment) has got to be the best thing I have found for recovery! I promise I will be checking on here daily. As you can read in my information, I went through the simultaneous radiation/chemo pump in July and August. I had my resection October 8th and woke up with an iliostomy, although temporary, still hard to get used to. Now after 3 weeks post op my iliostomy isn't working as intended and I go back to surgery November 12 to reverse it. I'm so happy about that, but at the same time I don't want to delay my upcoming chemo which will happen. Now, after reading all the comments about the different chemotherapies, I'm wondering which one I will be receiving and how I will tolerate it.....well, the important thing on this day is I'm ready to get it and the surgery started. And I hope I wake tomorrow with the same motivation.
Just wondering....does anyone else live emotionally moment to moment at times like I do?
Thank's soo much, Gail
It's a emotional roller coaster. Would be great if I didn't have a fear of roller coasters!!!
Yeppers, hang in there. Glad to see you in one way, being we're here for each other, sorry that you here because of the insidious cancer.
Winter Marie0 -
emotional roller coasterplh4gail said:Thank's so much!
Thank you so much! It's been a hard 4 months. I want to think I'm an optimist and look for the positive but what the heck...I can't help but wonder what's the next curveball, missle, or brick coming my way. I seem to have been glued to my computer today with all of the information and inspitation all of you share. This (right up there with my family and treatment) has got to be the best thing I have found for recovery! I promise I will be checking on here daily. As you can read in my information, I went through the simultaneous radiation/chemo pump in July and August. I had my resection October 8th and woke up with an iliostomy, although temporary, still hard to get used to. Now after 3 weeks post op my iliostomy isn't working as intended and I go back to surgery November 12 to reverse it. I'm so happy about that, but at the same time I don't want to delay my upcoming chemo which will happen. Now, after reading all the comments about the different chemotherapies, I'm wondering which one I will be receiving and how I will tolerate it.....well, the important thing on this day is I'm ready to get it and the surgery started. And I hope I wake tomorrow with the same motivation.
Just wondering....does anyone else live emotionally moment to moment at times like I do?
Thank's soo much, Gail
Gail,
I hope that all goes well on November 12 and that chemo proceeds as planned.
Yes, this is an emotional roller coaster. My husband has been fighting Stage 3c for 22 months. This month, he got a NED (no evidence of disease) scan so we are currently living a bit lighter. I know the way we have gotten through this is day by day. The fear seemed to come in when projecting the future. I think for both of us we tried (and sometimes I had to try very, very hard) to find something positive in the day. On days when he felt good we just soaked it up.
Glad you found us.
Aloha,
Kathleen0 -
Radio Chemo, l will start with it this week!plh4gail said:Thank's so much!
Thank you so much! It's been a hard 4 months. I want to think I'm an optimist and look for the positive but what the heck...I can't help but wonder what's the next curveball, missle, or brick coming my way. I seem to have been glued to my computer today with all of the information and inspitation all of you share. This (right up there with my family and treatment) has got to be the best thing I have found for recovery! I promise I will be checking on here daily. As you can read in my information, I went through the simultaneous radiation/chemo pump in July and August. I had my resection October 8th and woke up with an iliostomy, although temporary, still hard to get used to. Now after 3 weeks post op my iliostomy isn't working as intended and I go back to surgery November 12 to reverse it. I'm so happy about that, but at the same time I don't want to delay my upcoming chemo which will happen. Now, after reading all the comments about the different chemotherapies, I'm wondering which one I will be receiving and how I will tolerate it.....well, the important thing on this day is I'm ready to get it and the surgery started. And I hope I wake tomorrow with the same motivation.
Just wondering....does anyone else live emotionally moment to moment at times like I do?
Thank's soo much, Gail
I will appreciate any information about that, was it hard? was it manageable ?you can use, PM to don't interfere this thread.
thank you in advance.
Pepe.Barcelona.0 -
Thanks
Thank you for starting this post. I've noticed some new posters as well. Just wanted to welcome you all to the best group of people and to let you know that you are now a part of a great family. If you would like to do a small introduction of yourself and condition that would be good so we can help you through your journey. Once again welcome, plh4gail, LessburgKate and ElaineG. Always feel free to post any thoughts or concerns and jubilations.
Kim0 -
You can do it toopepebcn said:Radio Chemo, l will start with it this week!
I will appreciate any information about that, was it hard? was it manageable ?you can use, PM to don't interfere this thread.
thank you in advance.
Pepe.Barcelona.
It was easier in the beginning than in the end. I actually worked for the first 3 weeks. I am an ER RN. Then about week 3/4 I called in one day and then knew that was it for me. By week 5 I was pretty tired, but it was the diarrhea that was at it's worse at that time I had to go on the BRAT diet, could only eat white rice, white toast, and bananas, no applesauce. About week 5 lasting for 3 weeks I could feel the effects of the radiation on my pelvic area. And boy did that hurt I'm sorry to say. Felt like a very bad UTI. .....I wish you the best with it and I know if I can do it so can you! I didn't miss a radiation treatment, although I had some rough days in the end. I got to where I just took my nausea meds on schedule and that helped a lot too. Much luck and lot's of hugs, ....Gail0 -
Sounds so much like me.Kathleen808 said:emotional roller coaster
Gail,
I hope that all goes well on November 12 and that chemo proceeds as planned.
Yes, this is an emotional roller coaster. My husband has been fighting Stage 3c for 22 months. This month, he got a NED (no evidence of disease) scan so we are currently living a bit lighter. I know the way we have gotten through this is day by day. The fear seemed to come in when projecting the future. I think for both of us we tried (and sometimes I had to try very, very hard) to find something positive in the day. On days when he felt good we just soaked it up.
Glad you found us.
Aloha,
Kathleen
Sounds so much like me. Moment to moment. That's how most of my days go, and I too look for something each day to be grateful for. It's so good to know it's not only me.
Thank's so much, Gail0 -
Hi to everyone and thanks!Annabelle41415 said:Thanks
Thank you for starting this post. I've noticed some new posters as well. Just wanted to welcome you all to the best group of people and to let you know that you are now a part of a great family. If you would like to do a small introduction of yourself and condition that would be good so we can help you through your journey. Once again welcome, plh4gail, LessburgKate and ElaineG. Always feel free to post any thoughts or concerns and jubilations.
Kim
Thank you all for your welcome to the group. I have now updated my profile with some information about myself - briefly as follows - stunned during a colonoscopy on July 12 this year to be told I had cancer in my colon, surgery on 4 August, then staging (early Dukes C/Stage 3), and now undergoing chemo, and awaiting each cycle with lots of different feelings - especially as my emotions seem all over the place these days - reading your welcomes had me all weepy!! I chanced upon your site when googling for info about Oxaliplatin side effects.
I live in the UK (Scotland) and it's good to speak to people from other parts of the world about something we all have in common!!
Elaine0 -
WelcomeelaineG said:Hi to everyone and thanks!
Thank you all for your welcome to the group. I have now updated my profile with some information about myself - briefly as follows - stunned during a colonoscopy on July 12 this year to be told I had cancer in my colon, surgery on 4 August, then staging (early Dukes C/Stage 3), and now undergoing chemo, and awaiting each cycle with lots of different feelings - especially as my emotions seem all over the place these days - reading your welcomes had me all weepy!! I chanced upon your site when googling for info about Oxaliplatin side effects.
I live in the UK (Scotland) and it's good to speak to people from other parts of the world about something we all have in common!!
Elaine
Welcome to you 3 from me as well. I am the sister of one of the girls on the forum here and new myself. I have to say I am absolutely shocked at the "faces" of this disease. So many young beautiful girls, and attractive men. In my mind I just had an image of an older demographic for this disease, especially since the age that a colonoscopy is recommend has traditionally been age 50. I do think doc's need to start suggesting baseline colonosocopy at age 40 as so many on here are in that age group. Anyway, welcome to each of you and I cannot being to tell you how much I have benefitted from this group in the short amount of time I have been on here.0 -
Cynthiacwork said:Welcome
Welcome to you 3 from me as well. I am the sister of one of the girls on the forum here and new myself. I have to say I am absolutely shocked at the "faces" of this disease. So many young beautiful girls, and attractive men. In my mind I just had an image of an older demographic for this disease, especially since the age that a colonoscopy is recommend has traditionally been age 50. I do think doc's need to start suggesting baseline colonosocopy at age 40 as so many on here are in that age group. Anyway, welcome to each of you and I cannot being to tell you how much I have benefitted from this group in the short amount of time I have been on here.
In response to your mention of this diease and the younger group here is a link from a Boston news station about that very issue:
http://www.thebostonchannel.com/video/25589634/detail.html
It seems that while the incidence of colorectal cancer is declining, those diagnosed under 40 are on the increase.0 -
I'm back on the ice curling after treatment!elaineG said:Hi to everyone and thanks!
Thank you all for your welcome to the group. I have now updated my profile with some information about myself - briefly as follows - stunned during a colonoscopy on July 12 this year to be told I had cancer in my colon, surgery on 4 August, then staging (early Dukes C/Stage 3), and now undergoing chemo, and awaiting each cycle with lots of different feelings - especially as my emotions seem all over the place these days - reading your welcomes had me all weepy!! I chanced upon your site when googling for info about Oxaliplatin side effects.
I live in the UK (Scotland) and it's good to speak to people from other parts of the world about something we all have in common!!
Elaine
Elaine,
Just wanted to let you know that there is good quality of life, even after Oxaliplatin! I'm a curler (in upstate NY)and I only missed one season of curling. I'm now awaiting the Scots Tour that will be coming our way in January, and I hope to curl against the Scottish women.
A side note - I was raised by a Scottish nanny, so I feel "adopted Scot"!
Best wishes,
Alice0 -
Hiabrub said:I'm back on the ice curling after treatment!
Elaine,
Just wanted to let you know that there is good quality of life, even after Oxaliplatin! I'm a curler (in upstate NY)and I only missed one season of curling. I'm now awaiting the Scots Tour that will be coming our way in January, and I hope to curl against the Scottish women.
A side note - I was raised by a Scottish nanny, so I feel "adopted Scot"!
Best wishes,
Alice
Hi there Alice
It's heartening to hear stories like yours - back to active life so soon! Looking forward to next spring, when I will be chemo free. What a coincidence your Scottish connections too! Good luck with your curling tournament.
All the best
Elaine0 -
Hi ElaineelaineG said:Hi
Hi there Alice
It's heartening to hear stories like yours - back to active life so soon! Looking forward to next spring, when I will be chemo free. What a coincidence your Scottish connections too! Good luck with your curling tournament.
All the best
Elaine
My paternal grandparents both came from Scotland to live here in Canada. They met over here. Our Christmas is filled with Scottish-type sweets. I was brought up to believe the Scots are made of tough stock, so you will do well.0 -
Alice what hell are you doing in Scotland in January?abrub said:I'm back on the ice curling after treatment!
Elaine,
Just wanted to let you know that there is good quality of life, even after Oxaliplatin! I'm a curler (in upstate NY)and I only missed one season of curling. I'm now awaiting the Scots Tour that will be coming our way in January, and I hope to curl against the Scottish women.
A side note - I was raised by a Scottish nanny, so I feel "adopted Scot"!
Best wishes,
Alice
Come to Barcelona!
LOL.
Hugs to everybody!0 -
Welcome:
Just wanted to jump in and say Welcome to the Board. It is a club we wish you didn't have to join but are here to help you in any way possible. Ask away and someone will be on to relate their experience. Many people on here know as much or more than the docs especially relating to side effects, different cocktails, etc.
Looking forward to chatting with each of you.
Take care - Tina0
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