Board Rules

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keep_on_going
keep_on_going Member Posts: 21
edited March 2014 in Breast Cancer #1
Hello All,
I am new to this site & discussion boards in general. By reading the postings the last few days, it is obvious that someone made a faux pas. I don't wish to offend anyone or break any rules, formal or informal. Any advice? It would be welcome.
I am looking forward to getting to know you.
Cathy

Comments

  • chenheart
    chenheart Member Posts: 5,159
    #2
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    I don't want to belong to a club that would have me as a member!
    Welcome to the club you never wanted to join! We really are an amazing group of mostly women~ strong and compassionate, and we do "get it" with regards most things BC! Sometimes, our COM-passion just becomes PASSION, and it spills over and, being that we are a Big Family, and not professional writers or even editors, what one says doesn't always come out the way the poster intended. Generally, no harm, no foul! Our feathers get ruffled, some apologize in case they think they may have been offending someone, others wonder if they should take a break from the boards, others try and mitigate the whole mess, while the majority doesn't have a clue as to what the fuss was about in the first place!

    There are "terms and conditions" when we join CSN~ you can certainly click on that and see the guidelines.

    It's just that we are people in a place we never wanted to be, fighting a disease we never wanted to have, and on any given day, well, our sensitivities are sometimes more obvious than on other days. It comes and goes~ we really are here as an empathetic, caring, informative large army of warrior-survivors. But in some ways, we ae also like 8th graders! This place is our Homeroom, we know who the smart ones are, the shy ones, the sarcastic ones, the social butterflies, etc etc. We acknowledge the room and then we hang with our friends, and try not to join a clique! So to speak.

    So~ my name is Claudia, I am an 8 year surivor, and I live in California! Tell us about yourself~ and once again, welcome to the family!

    Hugs,
    Chen♥
  • m_azingrace
    m_azingrace Member Posts: 399
    #3
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    Rare
    First, welcome, Cathy. Occasionally something is said that another takes offense at, or becomes defensive about. These occurances are rare, since mostly the members here do support one another. The main rule is to respect other peoples' opinions, beliefs or lifestyle choice, even if you don't happen to agree. Please do not be afraid of posting your thoughts. Gracie
  • keep_on_going
    keep_on_going Member Posts: 21
    #4
    Options
    chenheart said:

    I don't want to belong to a club that would have me as a member!
    Welcome to the club you never wanted to join! We really are an amazing group of mostly women~ strong and compassionate, and we do "get it" with regards most things BC! Sometimes, our COM-passion just becomes PASSION, and it spills over and, being that we are a Big Family, and not professional writers or even editors, what one says doesn't always come out the way the poster intended. Generally, no harm, no foul! Our feathers get ruffled, some apologize in case they think they may have been offending someone, others wonder if they should take a break from the boards, others try and mitigate the whole mess, while the majority doesn't have a clue as to what the fuss was about in the first place!

    There are "terms and conditions" when we join CSN~ you can certainly click on that and see the guidelines.

    It's just that we are people in a place we never wanted to be, fighting a disease we never wanted to have, and on any given day, well, our sensitivities are sometimes more obvious than on other days. It comes and goes~ we really are here as an empathetic, caring, informative large army of warrior-survivors. But in some ways, we ae also like 8th graders! This place is our Homeroom, we know who the smart ones are, the shy ones, the sarcastic ones, the social butterflies, etc etc. We acknowledge the room and then we hang with our friends, and try not to join a clique! So to speak.

    So~ my name is Claudia, I am an 8 year surivor, and I live in California! Tell us about yourself~ and once again, welcome to the family!

    Hugs,
    Chen♥

    6 years & ticking
    I'm a Florida girl
    I was diagnosed in May 2005. In March of 2006, I found out I had mets to the bone. My cancer was ER-, PR-,HER2+. I was initialy treated with AC/T then radiation. I've been on Herceptin since 3/09. I was on Zometa until Jan. 2010. I had to stop because of complications.
    Last October, I had some new "hot spots" and had 2 rounds of chemo. I've finally got my hair & energy back from that insult.
    I was cruising around the internet last week & ran across this sitr. I don't think it was here when I was doing my initial searches. Or maybe I wasn't looking for anything with the word survivor in it. Glad to meet you.
    Cathy
  • keep_on_going
    keep_on_going Member Posts: 21
    #5
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    m_azingrace said:

    Rare
    First, welcome, Cathy. Occasionally something is said that another takes offense at, or becomes defensive about. These occurances are rare, since mostly the members here do support one another. The main rule is to respect other peoples' opinions, beliefs or lifestyle choice, even if you don't happen to agree. Please do not be afraid of posting your thoughts. Gracie

    Nice to meet u
    And thanks for your word of wisdom.
    Cathy
  • KathiM
    KathiM Member Posts: 8,028 Member
    #6
    Options
    The only rule I can think of.....
    Treat others as you would like to be treated...tollerance, as my mom always said...

    That includes mis-typing, mis-spelling, and mis-behaving (as long as it is me that is doing it...lol...I misbehave as much as possible...ROFL)!

    I am over 4 years post treatment on rectal cancer (dx Thanksgiving, 6 years ago), and breast cancer (dx 6 months later, stage II). Just into my yearly scans for all...

    Others have shared what matters...sometimes we get so caught up in fighting the beast (my pet name for cancer), that we fight with just everybody...loved ones, strangers, everyone....as Gracie said, it IS a rather rare occurance, but it does happen...on the colorectal board, where I am active, as well...

    Welcome to the board! Sorry you have a reason to be here!

    Hugs, Kathi
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    #7
    Options
    KathiM said:

    The only rule I can think of.....
    Treat others as you would like to be treated...tollerance, as my mom always said...

    That includes mis-typing, mis-spelling, and mis-behaving (as long as it is me that is doing it...lol...I misbehave as much as possible...ROFL)!

    I am over 4 years post treatment on rectal cancer (dx Thanksgiving, 6 years ago), and breast cancer (dx 6 months later, stage II). Just into my yearly scans for all...

    Others have shared what matters...sometimes we get so caught up in fighting the beast (my pet name for cancer), that we fight with just everybody...loved ones, strangers, everyone....as Gracie said, it IS a rather rare occurance, but it does happen...on the colorectal board, where I am active, as well...

    Welcome to the board! Sorry you have a reason to be here!

    Hugs, Kathi

    Hi!
    For the actual board rules, they are on the site for you to read under CSN terms and conditions on the bottom of the page. But, the main rule is just to treat others as you would like to be treated. Kind of like the rule of life in general.

    I am Jan and got diagnosed with bc last year and went through a lumpectomy, followed by rad treatments.


    I wish it had never happened, but, I figure there is a reason behind everything. I am still waiting for the reason. LOL

    I wish you the best and welcome you to the board. Look forward to reading more about you.


    Big hugs, Jan
  • Miss Murphy
    Miss Murphy Member Posts: 302
    #8
    Options
    Golden Rule
    Hi Cathy and welcome. I too didn't find this discussion group till nearly a year after my dx in 2008 so I'm 2 1/2 years out from dx. And I wish I had found it earlier - in the beginning, I think my way of dealing was a lot of denial or not thinking about it!

    I think we're all like a family, disfuctional at times but when push comes to shove, we're always there for each other! There is always good advice from those that have been there done that and plenty of support and hugs to go around.

    Glad you found us. Take care. Hugs, Sally
  • keep_on_going
    keep_on_going Member Posts: 21
    #9
    Options
    KathiM said:

    The only rule I can think of.....
    Treat others as you would like to be treated...tollerance, as my mom always said...

    That includes mis-typing, mis-spelling, and mis-behaving (as long as it is me that is doing it...lol...I misbehave as much as possible...ROFL)!

    I am over 4 years post treatment on rectal cancer (dx Thanksgiving, 6 years ago), and breast cancer (dx 6 months later, stage II). Just into my yearly scans for all...

    Others have shared what matters...sometimes we get so caught up in fighting the beast (my pet name for cancer), that we fight with just everybody...loved ones, strangers, everyone....as Gracie said, it IS a rather rare occurance, but it does happen...on the colorectal board, where I am active, as well...

    Welcome to the board! Sorry you have a reason to be here!

    Hugs, Kathi

    Golden Rule
    Great one to live by & write by. As for mis-spelling. I could get a F on spelling & grammer every time. Hurray for spell check. Glad to met you, Kathi..I wish you the best inyour scans.
    Cathy
  • ladyg
    ladyg Member Posts: 1,577
    #10
    Options
    Hi and welcome
    but I am sorry you need to be here. I found this board right after my dx and am so glad I did. I have gotten a lot of useful information and learned things my drs. never told me about. I have also vented, mourned and laughed here. I think you will find you can post your thoughts and feelings freely. I know I have.

    Hugs
    Georgia
  • turquoisea
    turquoisea Member Posts: 14
    #11
    Options
    chenheart said:

    I don't want to belong to a club that would have me as a member!
    Welcome to the club you never wanted to join! We really are an amazing group of mostly women~ strong and compassionate, and we do "get it" with regards most things BC! Sometimes, our COM-passion just becomes PASSION, and it spills over and, being that we are a Big Family, and not professional writers or even editors, what one says doesn't always come out the way the poster intended. Generally, no harm, no foul! Our feathers get ruffled, some apologize in case they think they may have been offending someone, others wonder if they should take a break from the boards, others try and mitigate the whole mess, while the majority doesn't have a clue as to what the fuss was about in the first place!

    There are "terms and conditions" when we join CSN~ you can certainly click on that and see the guidelines.

    It's just that we are people in a place we never wanted to be, fighting a disease we never wanted to have, and on any given day, well, our sensitivities are sometimes more obvious than on other days. It comes and goes~ we really are here as an empathetic, caring, informative large army of warrior-survivors. But in some ways, we ae also like 8th graders! This place is our Homeroom, we know who the smart ones are, the shy ones, the sarcastic ones, the social butterflies, etc etc. We acknowledge the room and then we hang with our friends, and try not to join a clique! So to speak.

    So~ my name is Claudia, I am an 8 year surivor, and I live in California! Tell us about yourself~ and once again, welcome to the family!

    Hugs,
    Chen♥

    Hi Chen
    Apparently we have more things in common.. we are both connected somehow to Victor Frankln and we are both named Claudia :) ... is there a word in English for when two people share the same name? in Spanish we would say we are "tocayas".. jeje

    I am happy to read about this post.. I am also new to this site and was kinda lost with the lately posts and definitly don't want to hurt anybody's feelings..

    Hugs
  • Marsha Mulvey
    Marsha Mulvey Member Posts: 597 Member
    #12
    Options
    ladyg said:

    Hi and welcome
    but I am sorry you need to be here. I found this board right after my dx and am so glad I did. I have gotten a lot of useful information and learned things my drs. never told me about. I have also vented, mourned and laughed here. I think you will find you can post your thoughts and feelings freely. I know I have.

    Hugs
    Georgia

    Cathy, nice to meet you
    It's nice to meet you and have you here with us. I'm Marsha and have the same type of cancer as you. I was diagnosed in February with ER-PR-HER2+. I have mets to nodes, liver, bones, and skin.
    We've had some of the same treatments too, originally I was on Taxol, Herceptin, and Zometa. Then dropped the Taxol, and now recently added Taxotere. I've had no surgery or rads.

    You are bound to have much experience that will be valuable to others here. Please join in and don't feel as though you have to walk on egg shells.

    Welcome friend.
    Marsha
  • Scotch Freckles
    Scotch Freckles Member Posts: 273 Member
    #13
    Options
    I'm a Kathy with a K
    Cathy

    Welcome to the club no one wants to be a member of. I was diagnoised in 2002, went through 4 chemos, 6 wks rads, oh ya a lumpectomy, and I began all this of April fools day. I have been able to ask questions and make statements I would probably never make to anyone else. I don't disclose much of myself. You will gain knowledge of every kind, enjoy everyone's input, laugh, dance, cry, wine, share, and what ever else. We all have and still do all the above.

    Scotch Freckles
  • Gabe N Abby Mom
    Gabe N Abby Mom Member Posts: 2,413
    #14
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    Nice to meet you Cathy. I'm
    Nice to meet you Cathy. I'm a newbie. Dx in Aug with triple neg IBC, therefore starting with Chemo.

    I would agree with what everyone else said. We're all here looking for support, a way to deal with this monster, and answers from someone who's "been there done that". Personally, I have found all of that and more. I'm sure you will too. The people here are truly compassionate, and will give unconditional support, along with excellent advice.

    I hope you get all that and more as well.

    Hugs to you,

    Linda
  • Boppy_of_6
    Boppy_of_6 Member Posts: 1,138
    #15
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    Gabe N Abby Mom said:

    Nice to meet you Cathy. I'm
    Nice to meet you Cathy. I'm a newbie. Dx in Aug with triple neg IBC, therefore starting with Chemo.

    I would agree with what everyone else said. We're all here looking for support, a way to deal with this monster, and answers from someone who's "been there done that". Personally, I have found all of that and more. I'm sure you will too. The people here are truly compassionate, and will give unconditional support, along with excellent advice.

    I hope you get all that and more as well.

    Hugs to you,

    Linda

    Welcome
    Welcome Cathy,sorry you need to be here but you will be glad you found it. I have had many questions answered here some before I even had to ask. My name is Janice, I was dx in Jan.10 with IDC caught early, had lumpectomy in March, finished chemo in July, rads in Sept now a couple of months into 5 yrs. on Tamoxifen. Glad to meet you. God Bless
    (((Hugs))) Janice
  • keep_on_going
    keep_on_going Member Posts: 21
    #16
    Options
    Thanks for the warm welcomes
    I'm looking forward to getting to know you better & sharing our experiences as we journey down this rocky road.
    Cathy
  • keep_on_going
    keep_on_going Member Posts: 21
    #17
    Options
    Thanks for the warm welcomes
    I'm looking forward to getting to know you better & sharing our experiences as we journey down this rocky road.
    Cathy
  • keep_on_going
    keep_on_going Member Posts: 21
    #18
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    Sorry
    I thought the first one got lost in cyberspace. I never have any patience
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #19
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    keep_on_going said:

    Sorry
    I thought the first one got lost in cyberspace. I never have any patience

    Cathy .. Welcome to our band of WARRIORS ---
    We come from all ends of the world, walks of life - with 1 common goal .. we have this beast inside of us .. breast cancer.

    There are no rules that will separate any of us - like any other family or siblings - There are no 'Faux Pas' topics here - We are opened 24 hours a day, 7 days a week, and cummulative have over 100 years of experience between us, Gals and guys!

    We pratice tolerance, patience and LOVE.

    Let us know if there is anything we can do to support you during your battle with breast cancer.

    Strength and Courage:


    ••.•´¯`•.••Vicki Sam ••.•´¯`•.••
  • Brooklynchele
    Brooklynchele Member Posts: 123
    #20
    Options
    Hi Cathy
    I'm Michele. I'm still a newbie here. I was diagnosed with triple negative July 5th of this year. I've had a lumpectomy and a partial mastectomy. My chemo was discontinued after 2 infusions.

    I have found that this site is full of many very caring people. It's been a nice place to come to for ideas, questions or just to connect with someone that "understands".

    I'm sorry we had to meet this way but welcome.

    Hugs,
    Michele

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