Oct 03, 2010 - 8:08 am
I have read a lot of success stories about Wilms Tumor where the tumor was diagnosed at early staging (I or II), but what about successs stories of Stage IV Wilms? I've met some Stage V survivors, but have learned that each tumor is staged separately in Wilms V and oncologists consider Stage IV to have worse outcomes. My 4 year old has Stage IV. He had a radical nephrectory, but had positive nodes in the abdomen, lung mets (both lungs) heart mets, and mets to the nodes around the clavicle. I have NOT come across a single success story of long term survival of Stage IV. And, I have not read stories without long term complications in young stage IV Wilms.