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Recently diagnosed with Gleason score of 9

SV
Posts: 136
Joined: Sep 2010

My biopsy last week revealed a few fives and sixes but the ugliest was a score of 9. The strange thing though is my PSA score of 5 about six months ago. Because of the high Gleason score, my urologist suggested the DaVinci surgery and a second opinion. After numerous recommendations and a consultation with Dr. Kawachi at City of Hope we agreed to his soonest surgery date of October 28 2010. When asking him about diets and so forth, along with the suggestions of garlic, tofu, cooked tomatoes, yogurt and so forth, the seemed to emphasize staying slim and active.

I am 58 year old recently retired competing athlete so I am in great physical shape and well aware of the powers of positive thought. Something else interesting is Dr Kawachi pointing to my girlfriend and saying that she is my best weapon. There is no disagreement there as she has not flinched for one second when it came to standing by my side to beat this disease. She also subscribes to the notion, if you can believe it, you can achieve it.

So far, I only know of the horror stories posted on the internet regarding the outcome of Gleason 9 cases and how there is not much to look forward to after surgery. It is my belief that in due time, I will return to a fully functioning man only minus semen. Is there any positive stories out there to support this possibility?

SV
Posts: 136
Joined: Sep 2010

Thanks. Did they put you on Lupron?

SV
Posts: 136
Joined: Sep 2010

I'm currently at UCLA undergoing three treatments of SBRT for the recently detected rapidly doubling PSA. (microscopic lesion in pubic bone revealed in PSMA scan) But my most recent PSA test indicates that the PSA rise has now dramaticaly slowed.

1. I realize that the PSA rise can fluctuate but is this much slowing normal?

2. If my PSA slowed to a crawl would it have even been necessary to treat?

3. Could my bodies immune system have eventually killed the cancer?

  1/7/20 2/14/20 9/16/20 12/8/20   12/8/20     3/10/21      4/6/21         4/28/21        5/18/21  
Total PSA
<=3.101 ng/mL
1.950 0.180 <0.008 <0.008 <0.008 0.130 0.290 0.390 0.440

 

 

Old Salt
Posts: 802
Joined: Aug 2014

The PSA data suggest that the SBRT is having an effect by killing cancerous cells producing PSA.

Too many variables to make further conclusions.

VascodaGama's picture
VascodaGama
Posts: 3352
Joined: Nov 2010

Yes, it is too early to consider an opinion. Can you please paste here the report on the PSMA-PET exam (some images would be better). I wonder if they detected any deep lymph node invasion. Those located in the areas behind the bladder/ureters hard to be identified due to blurred image (a cause typical in excretion of the contrast).

Let's hope for the best.

VG

SV
Posts: 136
Joined: Sep 2010

Those PSA test results were from before radiation. I wanted a more precise baseline so had that last PSA test done the day before radiation. I just finished my three-day SBRT treatments yesterday. I'll get tested again in another month. I am still curious about the same issue regarding the PSA testing done prior to radiation:

1. I realize that the PSA rise can fluctuate but is this much slowing normal, as in good news?

2. If my PSA slowed to a crawl would it have even been necessary to treat?

3. Could my bodies immune system have eventually killed the cancer without radiation?

VascodaGama's picture
VascodaGama
Posts: 3352
Joined: Nov 2010

Hi again,

I received your mail. Accordingly, apart from the spot on bone (recently treated by SBRT) all other findings were negative.  In any case, I think that the PSA was quite low (less than 0.1 ng/ml) which may not be proper for  a PSMA PET. You risked false negatives, however,  the exam lasted 99 minutes since injection which could balance for the lack of prostatic cells activity. The PSMA ligand is supposed to "react" in prostatic cells but some do not react that much to the membrane antigen so, a higher PSA could assure a higher efficacy of this exam.

I think you are caring well your PCa case. The facilities you use ant team of doctors are also super. Let's hope that the SBRT is successful and gives you peace of mind. 

I will wait for your next report. 

Best

VG

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