Chest tube is out! Confusing biopsy pathology

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Kathryn_in_MN
Kathryn_in_MN Member Posts: 1,252 Member
edited March 2014 in Colorectal Cancer #1
It has been a crazy week of medical appointments. On top of my constant fatigue (most likely caused by the thyroid issue), the collapsed lung seems to have made the fatigue worse. My body is using up energy it didn't have enough of to do the repair. And the pain wears me down too. We thought the tube could come out yesterday, but I still had a small pneumothorax. So I had to go back for another chest x-ray today. I've kind of lost count of them, but I think since Friday today's makes #10. Today's was the winner! I was able to get the chest tube out. Some of the pain was due to the tube, so that is better. Some is due to the lung puncture and the irritation it caused to the pleural cavity, and the irritation the tube caused their too. I'm just happy the dang thing is out!

I also had a thyroid ultrasound today. And I went to nuclear medicine to get my radioacitve iodine pill. Tomorrow I go back for the uptake testing and scan. And tomorrow afternoon I have to go see my oncologist. He said last week he didn't need to see me again before chemo. But after he found out about the lung puncture that changed. I'm not sure if I'll get chemo Friday now or not. I might have to wait till the next week. I have a small hole in my chest where the tube was. I can take the bandage off tomorrow, but the surgeon said to expect a little drainage for a couple days. It is pretty small, but they still might not want to let me start chemo this tired with an open wound. I don't like the idea of knowing those 3 lymph nodes are positive for cancer, and I'm doing nothing.

A friend of mine at Duke oncology talked to a (somewhat) famous doctor there for me. She told me he would review my records. Now I just have to find out what he needs. I really want to get those nodes removed, but my oncologist just wanted to jump into chemo. He didn't mention if we'd remove them later or not. I've only had just the one appointment with him when he told me the news. I really expected it to be what it was, but even so, I wasn't prepared enough for the shock to ask my usual questions and retain all information like I usually do. Tomorrow I'm going in with a few questions for him. And afterwards I'm staying for the colon and rectal cancer support group. I'm hoping that a guy I know from the group shows up. He was stage IIIc and clear after FOLFOX. Then his scan (6 months or 12 months, I don't remember) showed one lymph node enlarged and lit up. He has the same oncologist as I do. His node was removed, and then he did FOLFIRI and Avastin. Last I saw him was in June and he was done with chemo and NED again. We didn't have group in July or August. I'm hoping he is still NED. And I want to find out when he had the node out - before or after chemo.

I was reading my pathology report, and it concerns me a bit. It sounds to me like maybe they didn't even get into the lymph node. NO actual lymphoid tissue seen. A few skeletal muscle bundles. And the description of the shape of the cells being consistant with colon cancer. Is there any chance that the biopsy just got pieces from the peritoneum and not from the lymph node? Otherwise, why are there muscle bundles, but no lymph tissues? Is there a chance I have peritoneal mets? If there is that chance, I want surgery to remove the nodes and take a look at the peritoneum. I know that often those mets don't show on scans. I want HIPEC if there are any.

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  • tootsie1
    tootsie1 Member Posts: 5,044 Member
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    *hugs*
    If you end up coming to Duke, let me know. It's not that far from me!

    *hugs*
    Gail
  • AnneCan
    AnneCan Member Posts: 3,673 Member
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    Kathryn
    Nice new hairdo!

    I am glad you got the tube out + I hope that everything can be figured out soon for you! Take good care.
  • C Dixon
    C Dixon Member Posts: 201
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    HIPEC and Hair
    When Dr. Clary was poking around in my peritoneal cavity before the resection, he saw no disease and no scar tissue from the HIPEC. He said we needed to give Dr. Blazer some credit for that. I really liked Blazer and I am very happy with Duke. Their nurses are the best but the hospital rooms are not. They definitely put their money in what is walking around in shoes and their operating rooms. All I mean is that the hospital is kind of old. They are building a new one for cancer patients but I am sure it won't be finished for a few years.

    I like your hair. It looks like a lot of ot has grown back so that at least at that length, it is normal looking and feeling. Mine is still not even but when I put my fingers in it, it feels normal.

    Take Care,

    Catherine
  • pepebcn
    pepebcn Member Posts: 6,331 Member
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    C Dixon said:

    HIPEC and Hair
    When Dr. Clary was poking around in my peritoneal cavity before the resection, he saw no disease and no scar tissue from the HIPEC. He said we needed to give Dr. Blazer some credit for that. I really liked Blazer and I am very happy with Duke. Their nurses are the best but the hospital rooms are not. They definitely put their money in what is walking around in shoes and their operating rooms. All I mean is that the hospital is kind of old. They are building a new one for cancer patients but I am sure it won't be finished for a few years.

    I like your hair. It looks like a lot of ot has grown back so that at least at that length, it is normal looking and feeling. Mine is still not even but when I put my fingers in it, it feels normal.

    Take Care,

    Catherine

    Yeah you got very nice look!
    At last! no problen with the tube! haha!
    Have a bi hug!