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Tomorrow... 3 month results!

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Ok, this is weird... we all talk about scanxiety, which we get when we have to get our regular CAT scans... wondering if the treatments are doing what they are suppose to or does the cancer have the upper hand. I have heard many folk say how anxious they are when going to get these scans, even though, they aren't getting the results until they meet with their oncologist, which is not usually the same day as the scan.

I had my first CAT scan on Friday, since I started the Xeloda 4 cycles ago. This scan is to get results for three things:

1) are there any new growths anywhere that we were not aware of on the previous scan?

2) are the two tumours in the lungs that showed they were starting to grow, now started responding to the Xeloda and are showing signs of shrinking?

3) The growth in my kidney... has it responded to the Xeloda, or is it merrily growing away on it's own, oblivious to any Xeloda chemo running through my system?

The first point is a given... they check for new growths every time we get a scan. So that doesn't freak me out. The second point, my gut feeling is that of course the two tumours are responding to the chemo... why wouldn't they?? Not only that, all the little tiny ones that were being very lazy and not doing anything for the last three years, they should be shrinking away to nothing (says my gut feeling).

The third point... that's the enigma. IF it is responding to the Xeloda, then we will know that it is a spread of the colon cancer, which means that the damn bugger has spread to my adrenal gland (which I had surgically removed, multiple nodules in both lungs (which I'm hoping the Xeloda is dealing with) and now a spread to the kidney (which hopefully the Xeloda will deal with that as well). If the growth in the kidney is NOT responding to the Xeloda, then they feel that will mean this is a new primary cancer (Kidney Cancer). We will then discuss the treatment plan for that, of which we were talking just blasting it away with an RFA procedure and be done with it.

Soooo... the results, no matter what they are will mean there's more to do. Continuation of the Xeloda plus an RFA procedure, or ???

Soooooo... wish me luck, gang!! I think what I'd like it to be is a new primary cancer. That we can deal with with the RFA procedure and then I can at least be relieved that the colon cancer has not spread :)

Cheryl

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

I'm sure about your gut feeling gets right!
Good vibs!

Annabelle41415's picture
Annabelle41415
Posts: 6691
Joined: Feb 2009

Good luck on your results. Nobody likes the scans or waiting for the results. They do tend to keep us on edge. Keep us posted.

Kim

HollyID's picture
HollyID
Posts: 951
Joined: Dec 2009

Good luck, girl! We're all in your corner.

Love and Hugs,

Holly

maglets's picture
maglets
Posts: 2596
Joined: Jun 2006

hello darling girl...I was so glad/sad to see you posting here again after my stint in the northern woods. You have been missed...my girl.
I am so sorry to hear of your latest complications.

Sending you big Canadian hugs, a Timmie's and all best wishes for good results.....

by the way you look like a million bucks...love your photo

hugs, mags

AnneCan
Posts: 3692
Joined: Oct 2009

Wishing you all the best with your results.

tootsie1's picture
tootsie1
Posts: 5061
Joined: Feb 2008

Cheryl,

You are always so perky, no matter what you're going through or waiting to find out about. I love seeing your happy face in your pictures!

Hoping to hear positive results!

*hugs*
Gail

luv3jay's picture
luv3jay
Posts: 534
Joined: May 2009

Sending positive thoughts your way.

Sheri

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

"TAKE A DEEP BREATH...... BREATHE..." hummmm...seems I've heard that before...LOL. Those darn scans you just can't help but wonder.... and think all kinds of stuff. So while were thinking lets just stay thinking good.... like you're doing and like you always do. Heck... you already got a game plan for the "ifs"...... gotta stay one step ahead..... AGAIN... you always do!!!! Take care my friend and let us know as soon as you can.

Jennie

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Cheryl,

You know I'm hoping you hear good news on your scan. We've talked before about how we've had some similarities, especially in the lungs. Hoping all goes well- will be looking for your results.

Take care,
Lisa

Lori-S's picture
Lori-S
Posts: 1286
Joined: Sep 2010

Good luck to you!

Sonia32's picture
Sonia32
Posts: 1078
Joined: Mar 2009

Thinking of you Cheryl.

Hugs Sonia

Lovekitties's picture
Lovekitties
Posts: 3356
Joined: Jan 2010

Hoping for the best possible news for you on the results!

Marie who loves kitties

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Good luck and let us know soon!

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Wow... we need a shot of good news and hope around here.... I was beginning to wonder if the moon and stars had collided or something. Not only am I ecstatic about today's results, but I'm thrilled that it can show others, especially the new folk who are probably wondering if the news is going to be bad, one by one.

Well, I'm here to turn it around... I started it and I want others to join in and we can have one great big Group Celebration!!

The three month scan could not be any better!! My oncologist had said that we were going to start off on the Xeloda (pronounced Za-Lauda... I had no idea!) but if that didn't show any sign of shrinkage then it would be back to the pump with the infusion of chemo. She felt that if we saw any sign of shrinkage then that is exactly where we would want to be at three months on Xeloda. Well... shrinkage we had! The worst of the problem tumours shrunk by 1/3!!! That's right... in three months, each of the tumours shrunk by 1/3 of their size they were three months ago. So the lung tumours are responding very very well to the Xeloda.

The kidney growth is also shrinking so I said, "Rats... I guess that means that it IS a colon met" and she said, "Not necessarily. If it is kidney cancer, it's quite possible that it is responding to the Xeloda because this particular chemo is being used for more and more different cancers." Either way, she says she doesn't really care what kind of cancer it may or may not be... she would just like it out of there. Soooo, since it is showing signs of responding to the chemo and shrinking, we are going to stay on the Xeloda for another 4 cycles (3 months) and will have another scan in December. As long as the kidney tumour is shrinking that's fine... but the minute it stops shrinking, then off with it's head! We are going to have it zapped by RFA. The reason for letting it shrink rather than go in right now and zap it.... the smaller it is, the less Dr. So has to zap... and as long as it's shrinking, it's not hurting anything :)

So I beez doing the Happy Shrinking Dance :D

Thank you, thank you for all your wonderful thoughts and good energy!!

Huggggggs,

Cheryl

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

Sounds like a great plan, Cheryl. Congrats on the good news and hope it continues to favors you:)

-Craig

Sigma34's picture
Sigma34
Posts: 207
Joined: Jul 2009

I will do the dance with you.

Peace and Calm,

Christine~

PGLGreg's picture
PGLGreg
Posts: 741
Joined: Jul 2006

On the pronunciation question, Za-Lauda is hard to believe. I found a phonetic rendering Zel-O-duh and an audio recording of Kelsey Grammer saying it, here:
http://www.breastcancer.org/dictionary/x/Xeloda_t.jsp .

Would I be wishing you good luck if I hope you have kidney cancer? Well, whatever exactly good luck is, I hope you have it.

--Greg

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Hehehe... you beez speaking Americanese!! You say Zel-O-duh and we say Za-Lauda :) That does not surprise me... we speak two different versions of the English language (Americanese and Canadianese) ... throw in some accents and I bet there are other versions of how people pronounce it, too!

What I was getting at is, I had never actually pronounced it. Here, we type the word, so never have to say it. When talking to my oncologist, we don't call it by the American brand name... it is referred to as Capecitabine, which is even harder for me to pronounce.

Capecitabine

Brand Name: Xeloda®

Drug Type:

Capecitabine is an anti-cancer ("antineoplastic" or "cytotoxic") chemotherapy drug. Capecitabine is classified as an "antimetabolite." (For more detail, see "How Capecitabine Works" section below).

What Capecitabine Is Used For:

Metastatic colon or rectal cancer
Metastatic breast cancer
Note: If a drug has been approved for one use, physicians may elect to use this same drug for other problems if they believe it may be helpful.

How Capecitabine Is Given:

Taken as a pill by mouth.
Take after food (within 30 minutes of a meal) with water. (Usually taken in a divided dose 12 hours apart).
Tablets come in 2 sizes; 150mg and 500mg.
Do not crush, chew or dissolve tablets.
The amount of Capecitabine that you will receive depends on many factors, including your height and weight, your general health or other health problems, and the type of cancer or condition being treated. Your doctor will determine your dose and schedule.

So, yes, if you are American I suppose you do pronounce it Zel-O-duh, but my oncologist and I are not American, so alas, we don't pronounce that way, or how Kelsey Grammar pronounces it (who also happens to be American). I bet you someone with an English accent would sound different again ;)

Hahaha... funny you should mention that about Good Luck. I didn't really know what would have been a good result... saying that the growth in the kidney was a colon met and can be treated with Xeloda or that it is a Kidney primary cancer, in which case we would get rid of it via RFA. On the one hand, the last thing I like hearing is we have found another met in a totally different area of the body... but I also don't want to hear I have multiple cancers ;)

I do much better in my little world of Denial. It's a peaceful place

Cheryl

tootsie1's picture
tootsie1
Posts: 5061
Joined: Feb 2008

Oh, Cheryl!

That's great news!!! Love it!

*hugs*
Gail

AnneCan
Posts: 3692
Joined: Oct 2009

The only better thing is diappearance, which I am convinced is coming your way. Also I guess, non-existence in the first place. Anyway I am thrilled for you + wish you continued success!

TLG320
Posts: 168
Joined: Oct 2009

Let's keep the good news coming. Thrilled to hear the great results!

FYI - my husband's oncologist pronounces it "za-lauda" too. We're in Baltimore, MD, but his onc is originally from Ireland, for what its worth.

Happy for you!
Tashina

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

If I hadn't of had chemo today, I'd be doing a happy dance jig for you as well.
Wonderful news. I've been on Xeloda since February, and my tumors, they just shrink, shrink, shrink.
Keep on shrinking.

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Cheryl,

This is wonderful news!!!!! SO glad for you!!!

Lisa

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Hehehe... I came right here to this topic to post the good news and thought I was starting a new trend... but I see we have other good news too... so the trend has definitely started!! We need to have more good news stories to offset the sad ones that we've had kick us all in the stomach over and over again this past month or so.

But good news is out there... and I wish it for every single one of us!

Cheryl

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

yeah!! I don't get a scan but every 6 months, and CEA check every 3. CEA this time around was good also!

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Cheryl,
Thanks for sharing those fantastic results!!! You're the girl!!!!! Yes! Keep going my friend!

Aloha,
Kathleen

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

You Canadian isn't ? how would you pronounce it in French ?LOL!

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

Do the Happy Dance!! :-) Wonderful news, take care! - Cynthia

Hatshepsut's picture
Hatshepsut
Posts: 340
Joined: Nov 2006

Cheryl:

I'm delighted to read your posts about your treatment progress. It certainly sounds like you have a good doctor who not only has an effective treatment plan in place for you but also supports your healing with a positive attitude.

I hope you can do something for yourself to celebrate.

Hatshepsut

maglets's picture
maglets
Posts: 2596
Joined: Jun 2006

all good news....yeaaaahhhhhhhh good for you and here's to the happy shrinking dance.....keep shrinking you little monsters.

golly gosh in my neck of the woods in Ontario we say zel o dah.....go figure?

mags

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Here it is, the next day, and I'm still doing the Happy Shrinking Dance.... and taking my 1650mg of ZAAAA-LOOOOAD-AHHHH with great glee and enjoyment! Now, maybe if I dance long enough not only will it shrink those little monsters, but will work on shrinking ME too???

Mags and Hats... I sooooo want to catch up with the two of you, and will do so in email or PMs real soon!! I'm planning on working from home tomorrow, so maybe that will be our lucky day . I tell you... the Happy Shrinking Treatments have not seemed to slow me down... or maybe I'm just too stubborn to accept that I should slow down and rest a bit???

Anywho.... am soooo glad to see both of you posting again, and ya, I'm just as guilty for not having been posting for eons, but hey, we are here posting away so that gives us some sort of Brownie points, no??

Hahahaha... I actually am enjoying the ribbing/teasing about pronounciations of the oral form of chemo formally known as "The Pill" :D But never fear, my little pretties... I have an idea brewing for a new topic which I'll get to this evening.

Right now... I'm on the run!! Had a fabulous meeting this morning with a local "oldies but goldies" radio station and setting up a bunch of radio ads/interviews/ticket giveaways, etc. for the theatre I'm publicist for. Of course it ran later than I planned so I'm now half an hour late for getting to the office of the other theatre I'm involved with, Theatre Under The Stars, which is our summer outdoor theatre. The season is over now for that one, so us poor administrators are busy tying up loose ends for the season before we start working on the next one. I'm doing the Happy Happy Dance for that theatre (aka TUTS) because we had a hugely successful season. It's really worrisome when you put on full length Broadway musicals in a theatre where weather is very much a huge element as to the success or failure of the season. We are nutz... we do TWO of these musicals (this year, Joseph and the Amazing Technicolor Dreamcoat and Singin' In The Rain) in rep with each other. The size of the theatre, in the middle of the most gorgeous rainforest park in Vancouver, seats 1200 people, literally under the stars. The expenses to do this? $1 million!! So is it any wonder a few of us lose sleep when we see a cloud in the sky during the 7 week run?? . Well, the figures are in... we brought in $1.6 million this year, so two new musicals will go on next summer... hence why the work is never done and I must dash off to the office in the park. But I stopped in at home first to pick up my little darlin' mini-schnauzer, Bridget. Yes, Bridget comes with me to the office :) :) I spend so much time there if they said I couldn't bring her, well... the theatre would lose out on one of their most dedicated workers (I say "worker" because I do this for love... not for money.... I won't let them pay me because it will upset my very nice income of a Retirement Pension and a Government Disability Pension). So the theatre(s) lucky out big time ... and they know it :)

So why the ongoing babble?? Because those of you who know me know that is just me... I babble and can jump from one thought to another and somehow they all are connected in some weird, offbeat way. My passion for the theatre + my involvement with the Vancouver theatre community + my good friends Ms and Mr. ZA-LOAD-UH = shrinking tumours and an overall positive attitude = fairly decent health.

Hahaha... does that make sense, or should I be cutting back on the happy pills?? :D

Cheryl

Paula G.'s picture
Paula G.
Posts: 596
Joined: Apr 2009

just read your posts and I couldn't be happier. Well I would only be happier if it was ALL GONE! Thanks for the update and good news. I love reading your posts, Paula

tootsie1's picture
tootsie1
Posts: 5061
Joined: Feb 2008

Babble away, my dear! I'm so glad to have you doing well and back her posting.

*hugs*
Gail

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