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good news today

karenbeth's picture
karenbeth
Posts: 194
Joined: Sep 2010

My BF had his 3 month post radiation MRI and we got excellent news--the mets, and there were at least 2 dozen of them, have virtually "melted away," in the doctor's words. We are very relieved. He is supposed to start chemo soon, but has developed a severe dislike of his oncologist, so we are looking for a new one first. He is also dragging his feet, I feel, because he is dreading the chemo so much. We had a little argument over that because I am very proactive and like to move things quickly along, and he takes things more slowly. But I am going to focus on the good stuff, at least for today.

Dapsterd's picture
Dapsterd
Posts: 291
Joined: Jun 2010

Hello Friend...I had Chemo at same time as radiation, and that is the worse, but I did not know until I finished 35 radiations that the radiation treatment IS worse than my chemo!

I am on carbo/taxol once/week for 22 weeks, I have 8 left to go, not to bad with side effects.

Keep moving forward!

Dave

karenbeth's picture
karenbeth
Posts: 194
Joined: Sep 2010

What problems did you have with the WBR? He got thru it ok, although he experienced a lot of residual fatigue, as well as withdrawal from the decadron. I am afraid of what the long term effects may be, but am trying not to think about it.
The oncologist is thinking he should start on carbo, but we are also considering cisplatin. He is probably going to choose carbo, because he wants to try to work in between sessions and the cisplatin would make him too sick. I'm glad to hear it is not affecting you badly, altho I know it is different for everyone. He would do 3 days every 21 days for 4 times total. We are waiting because he also had surgery on a detached retina and we need clearance from that.

Chemo at the same time as radiation must be rough. Good luck to you. I hope you have good supports.
Karen

Dapsterd's picture
Dapsterd
Posts: 291
Joined: Jun 2010

I did not have WBR, I have no Brain Mets from at least the original brain MRI this past June. I also do not have any symptoms of Brain Mets at this time. My radiation was on my chest and back only to treat the middle lymph nodes and upper right lobe baseball tumor.

Best of wishes !!
Dave

warriorprincess
Posts: 4
Joined: Sep 2010

Great news!! Glad the tumours have responded so well!
I am on chemo (carboplatin and etoposide), 3 days every 3 weeks for 6 rounds. I'm still working full time. the first few times I took the 3 days off, then took just the carbo day off, and now I'm working right through. In fact, I've been coping so well that I'm doing a quick business trip to Europe straight after my next round of chemo. So, your BF shouldn't dread chemo too much. Just make sure you get good anti nausea drugs, and if the ones you get aren't working, go back and ask for different ones. and take them proactively... don't wait until vomiting starts to take them. and ginger gummy bears work well too!

karenbeth's picture
karenbeth
Posts: 194
Joined: Sep 2010

I'm glad to hear you are doing well with the chemo...Frank is going to start the same regimen very soon, so I'm glad to hear it's not that bad (tho I know it's different for everyone)--they originally proposed Cisplatin, but since he really needs to be able to work in between sessions, they said Carboplatin would be the better bet. We are waiting on a 2nd opinion on his brain biospy (we switched oncologists, and he wants another opinion) and also for him to get clearance from his eye doctor (he is also being treated for a detached retina...don't even ask). But I'm glad you can travel and have what sounds like a relatively 'normal' life--good luck!

nancycauston
Posts: 9
Joined: Oct 2010

That is great news! I have home pallitive nursing care. I dumped my primary nurse, just did not want her around. Very cold and in a hurry. I felt like I was disrupting her day. Don't worry about your partner dragging his feet. He will be buried in appointments as a matter of routine at this stage of the game. He will have no choice but to abandon the dragging feet. I find that having cancer is a job at some points. I did three medical appointments today, but all were in the same building.

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