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Had PET/CT scan- update: got results

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi,

I went in today (Mon, 8/30) and had my PET/CT scan. The last one was on 5/10/10 & that showed everything fairly stable since I started the Gemzar, Avastin, & Xeloda in mid March. My CEA count has steadily been coming down from around 100 to 38 until 2 weeks ago, when it went up to 81. It went up over 4 weeks & I had a two week vacation from chemo while on my family vacation. Hard to believe just missing two weeks of chemo would make it shoot up like that, but who knows. Since the 81 CEA reading, I've now had two treatments of Gemzar and Avastin and have completed almost 2 weeks of taking Xeloda. So, we shall see what this scan shows. I have an appt. w/ my onc tomorrow (Tuesday)late afternoon, so I'll find out my results then.

Funny... I really wasn't even nervous for this scan- that's probably the first time in three years I really didn't feel too worried. Definitely, I've been thinking about it, but it just isn't spooking me this time. I'll update when I have the results-

Hugs to all,
Lisa
----------------------------------------------------
UPDATE Tuesday, 8/31: Got results

My PET/CT scan results are what they call "mixed results". Nothing really bad and nothing has spread to any new locations (always a relief). The CT portion showed no change in size in any of my lung or liver nodules- so that is considered stable. The PET portion showed decreased metabolic activity in the "innumerable pulmonary nodules", except for the hilar node, which had increased uptake. The report called that a positive response to therapy. The liver had increased metabolic uptake, with two new areas of uptake showing this time. Nothing in those areas showed on the CT portion, just on the PET portion. The area along where I had my resection (called the resection margin) has a fairly large amount of increased uptake, but no change in actual nodules. I believe I have six areas in the liver of increased metabolic activity. I had really been wondering about the rectum. In my February scan, it showed metabolic activity and an approx cm. lesion in the place of my initial tumor. The May scan didn't even mention the rectum at all, so onc and I didn't know if it had disappeared or if they had just failed to mention it. This time, there is metabolic activity with a slightly increased level, but no mention of any actual lesion or nodule. It even said it could represent physiological changes in the rectum, but I should follow up with my colorectal specialist. I am getting a referral to the specialist for a scope exam of the area in the rectum (always a fun treat- not :)

Overall, I'm kind of ho hum about the results. I am relieved, as always, that nothing has spread to any new locations, but don't really know if the results mean the current chemo is working or not. Lungs doing slightly better and liver doing slightly worse. Nothing drastic anyhow. Onc wants me to rescan in two months to follow up & we will keep doing the same chemo for now.

Onward and forward again...
Lisa

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

I'm with you! I have my CEA test done tomorrow!

Sonia32's picture
Sonia32
Posts: 1078
Joined: Mar 2009

Good luck with your cea test for tomorrow.

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Hey Lisa, I'm crossing everything that I've got that can actually be crossed that the results from today's PET/CT scan don't show anything new or any drastic changes. Good for you to just not get nervous about it... that doesn't do anyone any good and it will be what it will be... still, easier said than done!

I follow your progress and fight against this monster since we both seem to have a similar pattern. We both have the mets in our lungs and over all they are usually pretty stable. Mine were stable for the past ALMOST 3 years, without chemo or any kind of treatment... then two of the mets just up and decided to grow, hence I'm on the Xeloda. There's also, what appears to be a growth in my kidney (???) so we are going to see if it responds to the Xeloda... if not and it continues to grow, then we will RFA it and just get rid of it. In a way, I kind of hope it does not respond to the Xeloda because that would mean it's a single new primary (Kidney cancer) and RFA would be the end of that... meanwhile it would mean that the colon cancer has not spread. I have a PET/CT scheduled for Sept 10th to get these answers, so I know what you are going through... you are just a week or so ahead of me ;)

So, I will definitely be waiting to hear what your results are and I'm sending out energy that it's all ok and under control... despite the rise in the CEA. That is definitely one area we differ in. The highest my CEA has ever been (and that was at the worst) was 18. Usually, it's around 1.5 - 2.0.... right now, the last test a week or so ago, it was at 5.9, down from 8.0... but still not coming down really quickly. So when you talk 100, down to 38, up to 81... well, we really can't compare our CEA readings because everyone is so unique and different... there's just no comparison.

Will pop in tomorrow and check for your post!

Cheryl

Sonia32's picture
Sonia32
Posts: 1078
Joined: Mar 2009

My friend hugs!, will be praying that your scan shows everything to be stable. Will look out for your update.

khl8
Posts: 810
Joined: Nov 2009

Lisa,
fingers and toes crossed for you!

Kathy

Jaylo969
Posts: 827
Joined: Jan 2010

Here's hoping and praying that all goes well and test results are good.

-Pat

ktlcs's picture
ktlcs
Posts: 360
Joined: Jan 2010

kinda like twister, that you get good news from the scan

Kathy

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pepebcn
Posts: 6352
Joined: Aug 2010

from Barcelona!

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Buzzard
Posts: 3073
Joined: Aug 2008

Be blessed tomorrow....love to all of you....Clift

luv3jay's picture
luv3jay
Posts: 534
Joined: May 2009

Lisa, as always I'm hoping and praying for good results. Be blessed, my friend.

Sheri

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Annabelle41415
Posts: 6691
Joined: Feb 2009

Hoping that all is going well with scan. Thinking about you.

Kim

AnneCan
Posts: 3692
Joined: Oct 2009

Your attitude is fantastic. I hope you get great results tomorrow.

mommyof2kds's picture
mommyof2kds
Posts: 522
Joined: Mar 2009

keeping you in my thoughts and prayers Lisa. I will be thinking of you tomorrow.

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Sending good vibes, prayers AND keeping everything crossed so that scan comes back good!!! Let us know as soon as you can. Looking forward to those GOOD results. You take care

Jennie

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Sundanceh
Posts: 4408
Joined: Jun 2009

:)

angelsbaby's picture
angelsbaby
Posts: 1171
Joined: May 2008

vibes coming your way .

michelle

dorookie
Posts: 1736
Joined: Jul 2007

I am so happy to hear you werent nervous, thats a good sign i think. Please keep us updated.

HUGS
Beth

Aud's picture
Aud
Posts: 480
Joined: Oct 2009

holding you in the Light for good results from your scan.
~Audrey

grammadebbie's picture
grammadebbie
Posts: 456
Joined: Jun 2009

Hi Lisa, I'm continuing to pray for you....healing, peace, comfort wisdom.

Big Hugs and Prayers,

Debbie

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chicoturner
Posts: 285
Joined: Apr 2009

Lisa, your closing line said it all " onward and forward again"! Congratulations! You being hum drum only means you have learned to live with it all! I watch friends with new dx and remember my dx days. Nothing but fear and drama (rightly deserved, but none the less drama).
I am still fighting hard and I know you are too, but maybe it is kind of nice to not be in a panic all the time. Anyway, I hope you understand what I mean, you are such an inspiration to me and many others here. My prayer for all of us is that we can have peace and good health. My prayers are with you. Jean

sasjourney
Posts: 395
Joined: Jul 2010

Lisa,

I'm glad that the results were good and nothing else showed up...that is wonderful! YOu are doing all the right things. My prayers and thoughts go out to you. Your faith in God is what keeps you so calm and He is always with you and will take care of you.

Big hugs to you,
Sara

AnneCan
Posts: 3692
Joined: Oct 2009

These results sound good to me - I know we all would like to be rid of it completely but I am glad things are stable for you. You are inspirational!

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Well, I see what you mean by "mixed results". It's nothing to get really excited over and throw a celebration... on the other hand, there's nothing to panic over and try other treatments. It just is what it is... and you've been in this battle for so long, it goes to show your system definitely knows how to keep things stable.

Well, that's a relief that it's over and you've got your results and it's now full sails ahead. I know there's probably a thread around here somewhere but how are you tolerating your current chemo regime? I had a heck of a time with my Xeloda regime the first 2 cycles, but Cycle 3 and 4 seem to be going really well and I don't appear to be having much in the way of side affects at all. So I'm pleased about that, considering I have at least 4 more to go through ;)

Ok... onwards it is!!

Cheryl

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Cheryl,

I'm sending you a PM.

tootsie1's picture
tootsie1
Posts: 5063
Joined: Feb 2008

Well, Lisa. I'm glad it wasn't a horrible report. I know you'd be happier with no activity whatsoever, but you do have a fabulous attitude.

As always, you are in my prayers. Keep us posted about things!

*hugs*
Gail

luv3jay's picture
luv3jay
Posts: 534
Joined: May 2009

Well, I'm definitely pleased to not hear *bad* news.

Sheri

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Thanks, everyone, for checking in, caring, commenting, praying, etc.
You are all great, as always. :)

Today seems like just another ordinary day & I guess that's good, that I'm not obsessing over the scan results, treatment, etc. Just got back a while ago from dropping my 14 yr old off at the high school for her 3rd day of school- boy, that morning drop off routine is a mess! 4,000 kids at the high school and they have just one parking lot that they allow parents to drop off kids in. When my son was there, they used two parking lots- this takes an eternity! Hopefully, it will get easier- things are always the craziest the first week.
Anyhow, hugs to you all- my wish is for all of you to be able to go about your day doing whatever it is you do & not have to worry or stress too much about nasty old cancer!

Love ya,
Lisa

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Comparing to where you WERE and where you are NOW..... WAY GOOD! Your choices are proving to be the right ones. Keep up the good work girl!!!

Jennie

just4Brooks's picture
just4Brooks
Posts: 988
Joined: Jun 2009

All an all I would say the PET at CT scan went well. Nothing new is always good in my book!!

Good luck with the butt thing
Brooks

WinneyPooh's picture
WinneyPooh
Posts: 318
Joined: Jul 2009

Lisa, i spent several weeks after my last scan thinking my cancer had spread only to find out after follow up test that i was actually almost cancer free.

So my point is wow, radiologist will write confusing notes on these scans and only a team of doctors and transribist, and a boat load of new doctors can evr tell us what is what, i think it would be more fun if they would just use words like no change but instead they use ten other words like uptake, and grossly, strained, margin, and so on and so on.

I am glad you are feeling optimistic and that is the key.

Winnie

lesvanb's picture
lesvanb
Posts: 911
Joined: May 2008

that the results were as good as they were for you Lisa. I greatly appreciate your attitude and tenaciousness.

all the best, Leslie

Nana2's picture
Nana2
Posts: 255
Joined: Mar 2010

I like what Jean said about the drama. It's true. In the beginning it's so overwhelming and scary and then after a year of it, everything just becomes part of your "new normal" as they say. I admire all of you who are living with this disease and keeping sane. I know it's God for you as it is for me. Back to "life" until the next scan right?
God bless ya,
April

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Dear Lisa,
You are really amazing. I know that in the midst of this you are still a mom and wife. I will continue to keep you in my prayers.

Aloha,
Kathleen

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