Pleomorphic Xanthoasytrocytoma (aka PXA)

sunshine123
sunshine123 Member Posts: 5
edited March 2014 in Brain Cancer #1
Hi again,
I cannot believe I have not had any posts on (Pleomorphic Xanthoasytrocytoma) PXA tumors, but on the other had it is a "rare" type. Please if you know of anyone dealing with or had dealt with this type of tumor please reply.

Thank you,
Sunshine123

Comments

  • stayingcalm
    stayingcalm Member Posts: 650
    #2
    Hi, Sunshine!
    You may want to message Andy30 who appears to have the same dx. There's also a thread called pxa, it's old, but it mentions a couple of websites - caringbridge, and www.virtualtrials.com. Wish I could offer more help!
  • sunshine123
    sunshine123 Member Posts: 5
    #3
    stayingcalm said:

    Hi, Sunshine!
    You may want to message Andy30 who appears to have the same dx. There's also a thread called pxa, it's old, but it mentions a couple of websites - caringbridge, and www.virtualtrials.com. Wish I could offer more help!

    PXA
    Thanks, i will check it out.
    Have a great evening!
    Sunshine123
  • audra pxa
    audra pxa Member Posts: 5
    #4
    sunshine123 said:

    PXA
    Thanks, i will check it out.
    Have a great evening!
    Sunshine123

    Me Too!
    I have been dagnosed with PXA since 2000 with a couple more recurrences....always so hard to connect with others who have it. Like you said, it is so rare. I know a few that I have connected with thru Caring Bridge. I hope you are doing well and would love to know your story.

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