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Pleomorphic Xanthoasytrocytoma (aka PXA)

sunshine123
Posts: 5
Joined: Jul 2010
Aug 20, 2010 - 1:59 pm

Hi again,
I cannot believe I have not had any posts on (Pleomorphic Xanthoasytrocytoma) PXA tumors, but on the other had it is a "rare" type. Please if you know of anyone dealing with or had dealt with this type of tumor please reply.

Thank you,
Sunshine123
stayingcalm's picture
stayingcalm
Posts: 654
 Joined: Feb 2007
Aug 21, 2010 - 11:27 am

You may want to message Andy30 who appears to have the same dx. There's also a thread called pxa, it's old, but it mentions a couple of websites - caringbridge, and www.virtualtrials.com. Wish I could offer more help!
sunshine123
Posts: 5
 Joined: Jul 2010
Aug 22, 2010 - 7:38 pm

Thanks, i will check it out.
Have a great evening!
Sunshine123
audra pxa
Posts: 5
 Joined: Sep 2010
Sep 23, 2010 - 12:41 pm

I have been dagnosed with PXA since 2000 with a couple more recurrences....always so hard to connect with others who have it. Like you said, it is so rare. I know a few that I have connected with thru Caring Bridge. I hope you are doing well and would love to know your story.
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