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Colon Cancer stage 4 can someone give my dad hope??

elaine77's picture
elaine77
Posts: 30
Joined: Jul 2010

Hi
My dad was diagnosed with stage 4 colon cancer 1 year ago. He had 8 months of chemo and the hipec/hot chemo. Everything I read online is so negative and grim is there anyone out there that can give us hope?

La.Grammy
Posts: 35
Joined: Apr 2010

It has been 2 years for my husband & he is still going strong.
Since his surgery in Sept 2008 he has gained back about 50 pounds, this is all while doing chemo. We will find out on Monday if he will start radiation for the mets to his ribs.
The 1st doctor that we saw told us he had a 10% chance of being alive in 2 years.
He didn't listen to him and 2 years later he is still here.
Don't believe everything you read online.
Never ever give up!
Jeannie

elaine77's picture
elaine77
Posts: 30
Joined: Jul 2010

Thank you for your words of hope!

Kerry S's picture
Kerry S
Posts: 607
Joined: Dec 2009

There are more of us stage 4 folks making it fine. This March my colon surgeon told me “you are going to be around for a long time”. I am 28 months from DX. The idiot doc that did my chemo said I would be dead by now. I don’t even smell bad yet.

It is up to his docs and his attitude.

nancy k
Posts: 2
Joined: Jul 2010

I was dx back in Mar 09. My onc practically wrote up my toe tag. On my 2nd time around with chemo but still going strong and have no plans to leave . Good luck to you, great attitude. Only God knows for sure!

John23's picture
John23
Posts: 2140
Joined: Jan 2007

Re:
"Everything I read online is so negative and grim is there anyone
out there that can give us hope?"

No-one likes a "doomsayer", but ignoring reality can cause
complacency, and you can't afford to be complacent when
it comes to fighting cancer. "Hope is good, but reality is better."

Cancer -is- negative and grim; It's a terminal disease, as statistics
indicate.

26% make it 5 yrs or more doing absolutely nothing after surgery.
Of those that do chemo, the stats are 28%. (The 2% advantage is offset
by neurological problems, second cancers, heart failures, etc).
There are exceptions to that, of course.

A single cancer cell can take between 1 and 2 years to grow large
enough to be identified as a cancer cell; Try to keep that in mind
as time passes; you do not want to be "blind-sided" by false hope.

Take a real deep breath and understand the seriousness of cancer.
Try as hard as you can to understand and comprehend the real
statistics of the survival rate.

Yes, statistics can be tweaked and skewed to fit an argument, but
they are -real- figures representing the survival rate (those numbers
are echoed here, as you are noticing with our membership).

You have to know and understand what you are fighting, because
you can't fight successfully anything that you can't comprehend
the power of....

Once you accept the seriousness, and the likely outcome, you
can fight cancer in any manner you feel it should be fought.

Do your absolute best not to allow fear to drive you to do things that
are not in your best interest.

There are good physicians that can do wonders with chemo
and radiation, and there are good alternatives also. But.... there
are quacks and snake oil among them all.

Try not to put all your trust in any one physician, or any one type
of practice or remedy, regardless of what that might be..

Take your time to research as much as you can, and try to build
the immune system up as much as possible to enable the body to fight.

There are no guarantees with life, but it's not something most
of us thought we'd ever be thinking about right now.

Things will be fine.

Good health,

John

PhillieG's picture
PhillieG
Posts: 4907
Joined: May 2005

I'm in my 50's and have been living with Stage IV Colon Cancer for over 6 1/2 years now. I am not totally rid of it yet (or possibly will not be rid of it ever) but I have been living a mostly happy, enjoyable life through out this ordeal. It's not always great but it's far from being all bad.

While cancer stinks, please remember that cancer is NOT a terminal disease.
Many people get through cancer and go on to live a long time.

I don't think it does a person much good to be looking too deeply into statistics, the data is usually real old and it's also somewhat skewed. Rarely do people have the exact same responses to treatments or to the disease either.

Best wishes to your Dad.
-phil

elaine77's picture
elaine77
Posts: 30
Joined: Jul 2010

I really appreciate the time and words of encouragement that everyone has shared with me. You have given me such hope out there. I wish everyone and their families the absolute best please keep me posted on your progress.

hoya1973's picture
hoya1973
Posts: 37
Joined: May 2010

I also appreciate the reinforcement of hope. I am a recent stage IV dx and through 7 rounds of chemo so far. Every day is special and I remain optomistic for many years to come. I only wish there were more frequent status reports but the PET scans are expensive...

elaine77's picture
elaine77
Posts: 30
Joined: Jul 2010

hoya1973 keep strong best of luck to you keep us posted

geotina's picture
geotina
Posts: 2118
Joined: Oct 2009

My hubby was diagnosed 3/09, Stage IV, mets (lots) to liver and lungs. He is alive and well and we are currently at our cottage for a weekend (even with the rain). Does he still have cancer, yes, does he still work full time, yes. Does he enjoy life, yes. In fact, we are taking a trip in August.

If you look at the date of publication on the internet stuff, it is usually a few years old, so my best advise is, stop reading. Took me some time, but I haven't looked at it in six months or so. Just read about treatment, procedures he is about to undergo. Better yet, come on here, post a new discussion, and people who have had that procedure will respond with their personal experience. It's not medical advise, just their experience so you have a good idea what to expect from people who have gone through it.

Some people do very well with this disease, some do not, its a crap shoot but I can tell you we do not sit around waiting for the other shoe to drop, if it does, we will deal with it then.

Best regards - Tina

Lisa_R's picture
Lisa_R
Posts: 59
Joined: Oct 2009

i am 3 years strong with st 4 c c ...

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Encouragement has to come from deep within. We can tell you anything you want to hear but unless you actually feel it, there is nothing that we can do for someone. You see people die from this disease, it's going to happen, we can only hope that we are in the 26 percentile that will live.

I am stage !V, I am NED, and everyday I wake up with a good attitude, not because I make myself feel that way but because I do. I am thankful for today, and with that attitude you take care of tomorrow!

Live for today....tomorrow is around the corner!

Hugs!

drookID
Posts: 20
Joined: May 2010

We are currently spending a week long vacation with my dad who was diagnosed almost 7 years ago (stage 4 over five years ago). He has never been NED, but has lived life to the fullest every day!

elaine77's picture
elaine77
Posts: 30
Joined: Jul 2010

Thank you everyone I am glad everyone is doing so well. Ok so I am new to this what does NED mean? Also has anyone done the hipec? Does anyone see any drs in the city that they can recommend?

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

NED, no evidence of disease, what city?

elaine77's picture
elaine77
Posts: 30
Joined: Jul 2010

In Manhattan

geotina's picture
geotina
Posts: 2118
Joined: Oct 2009

If you are in Manhatten, Sloan is one of the best hospitals. I think it is #2 in the country. Many on this board treat at Sloan and some travel a long distance for tretment there. If you need the names of their doctors start a new discussion and they will come on and let you know.

#1 in the country is M. D. Andeson in Houston.

Best Regards - Tina

Left Coaster's picture
Left Coaster
Posts: 25
Joined: Jul 2010

As it stands right now stage IV colorectal cancer is not curable. This is a fact. It is also a fact that people are living longer these days with the disease. Looking at the treatment as treating a chronic disease rather then a terminal one is becoming more of a norm in my world. What I mean by this is that I am young (relatively speaking) and with that comes a higher white cell count that can manufacture the cells that will fight off the disease and the chemicals introduced to kill the cancer and/or slow the growth of the tumors. Be diligent in monitoring the disease and insist on treatment as quickly as possible when there is a recurrence. I have lived long enough to be the first patient my Neurosurgeon has seen with colorectal mets to the brain (does that make me a **** head?, ha ha pardon the lanuage I couldn't resist).

Enjoy now and stay informed.

PhillieG's picture
PhillieG
Posts: 4907
Joined: May 2005

You have your facts mixed up. You say that "As it stands right now stage IV colorectal cancer is not curable. This is a fact. It is also a fact that people are living longer these days with the disease."

It IS curable. Maybe not always but it is sometimes curable. It can also become a chronic disease like you said but to say that it is not curable is just plain incorrect.
-phil

Left Coaster's picture
Left Coaster
Posts: 25
Joined: Jul 2010

I'm sorry maybe my oncologist is not aware of this cure you speak of, what is it?

PhillieG's picture
PhillieG
Posts: 4907
Joined: May 2005

It's called surgery and chemo.
It's also called surgery and juicing.
It's also called surgery and TCM.

Not everyone who has stage IV colon cancer dies from it.
I'm surprised your oncologist is not aware of that.
True, there is no pill that magically "cures" cancer but to suggest that if you have stage IV CC that no one gets through it is plain reckless at best and of no use to anyone on the site. What stage are you? I see no info about any diagnosis you have. Do you even have cancer?

Or maybe we just have a bunch of people on the site who are dead and don't know it yet?

amyb15's picture
amyb15
Posts: 109
Joined: Jun 2009

phil, you make me laugh. we can always count on you to tell it like it is!!!!!

Amy

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

My Onc, told me at my last visit, that after "surgery" should that happen, he expects me to be NED for 5 years, and after that date, CURED. I'm stage IV, and I'm looking forward to the words CURED!!!

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

Sometimes we get in the mindset that there isn't hope. Colon cancer stage IV here.
I'm proof there's hope, I got diagnosed Feb 06. Told there was no hope, go home enjoy your life. I did chemo anyway. I was told I wouldn't be eligible for surgery, ever. My oncologist is now talking about surgery. (I'll find out August 16th). My oncologist was also telling me he thinks I'll be just fine. I've done incredibly well with chemo.
So yes, there is hope for your dad. You just have to plug away, one day at a time. There will be depressing moments, well, heck, he has cancer after all. That in it's self is pretty depressing, and then they tell you it's stage IV, more depressing. But look forward, believe in the future, because for many of us, the future can be many more years, of a continued happy life.
The most important thing, is positive attitude, and well, I've believed this since I was diagnosed, a few prayers, doesn't hurt either.
Here for you.
Winter Marie

elaine77's picture
elaine77
Posts: 30
Joined: Jul 2010

Thank you for all your words of support and all of your encouraging stories. Wishing everyone the best!

Fb489
Posts: 69
Joined: Sep 2009

enter scouty in the search box, she is an 8 year stage 4 survivor.
all of her postings will come up.
I will find the old post from her of stage 4 roll call. look for that post.

zenmonk
Posts: 198
Joined: Nov 2009

I think last time we had a stage 4 survivors roll call it was numerous pages long. Stage 4 survivor here and there is alot of hope.

taipei
Posts: 33
Joined: Aug 2008

Hi Elaine, I was dx cc met to liver and lungs on Jun 2003, colon,liver,lungs resection, and sugeries for obstruction and twice hernia, and many many chem. my last onc visited March this year, was told healthy by the doc. Yes, there is hope and mircle, and I prais the good Lord. God bless you dad and his family.

Winnie in Houston

Mathtutor234
Posts: 16
Joined: Jun 2010

Hi,
I don't know if this is cause for hope or not, but I have an old post here detailing the five things I tried in addition to radiation, chemo, and surgery. I had a terminal diagnosis, and recovered, but have recently had a reoccurence of cancer high up on my spine. But the original cancer in my colo-rectal area is no longer detectable. If you don't want to scroll through the old posts you can just go to my web site which is www.randallscancerhelp.webs.com. Good luck and best wishes.

serrana
Posts: 163
Joined: Apr 2009

Phil You are my hero I quote you alot and read everything you write Grateful thanks
I noticed that my NCI oncs changed their body language when I got mets, withdrew slightly, seemed to feel they were failing or something. So now I am trying to support them in the idea that IV is not the time to throw in the towel and withdraw it is time to gear up the troops, the faith, the support and ENJOY life. After 4 years and almost never NED I know this to be true.
Greatest appreciation to you Phil
Serrana

elaine77's picture
elaine77
Posts: 30
Joined: Jul 2010

Hey Randall how are you doing I read your medical update on your website Im sending prayers your way

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