Jul 19, 2010 - 10:58 am
Just got the results of my pet scan. Finished radiation 2 months ago for NPC. Had several lymphnodes enlarged and metabolicly active and a spot on my thyroid.
The new results are: The nasopharyngeal mass is no longer identified as a discrete structure. Metabolic activity now appears normal. Of the lymph nodes,the ones on the right side are not metabolicly active anymore and only one of two on the left side is still large at 13x13 mm, but metabolic activity went from 3.6 SUV to 2.7, the other on the left side is also mot active..
The only concern atm is : "There is a subtle focus of increased activity associated withe the right lobe of the thyroid gland. Peak activity now measures 3.5 SUV compared to 4.8 SuV previously."
Medical oncologist says to wait 2 months and then get another PET scan, and that he will discuss the results with my ENT and that a neck dissection(?) is a possibility either soon or after the next PET, if there is no improvement. Med oncologist did schedule an appointment for me, with the gastroenteroligist, to have my peg tube removed. However, he wants me to keep the power port for a year.
From your experiences...How bad is this? Any suggestions on things I should discuss with the doctors and questions I should be asking?