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NHL Second Treatment

Long Dawg's picture
Long Dawg
Posts: 9
Joined: Jun 2010

Hi all
I have my second treatment today, I'm not looking forward to the next few days of recovery.
I want everyone who reads to know that I'm well aware that some people posting on this board have it much worse than I do and while I complain about feeling like crap during my recovery I read your posts and it puts my situation in perspective.
It's not likely I'll ever have surgery and if all goes well I will be done with this in a few months. From what I've read, some of you have been dealing with different types of cancers for years and years and it breaks my heart.
I hope only the best for everyone here.
Steve

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Hey Steve, nothing wrong with saying whats on your mind here, remember plenty of rest, play that guitar to keep your mind off things! Cancer sucks no matter what type you have.... feel well Vinny

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

I go for my 2nd treatment next week. I got follicular stage 4 nhl. I know the treatments are no fun, but needed to make us better. Yes, alot of people have it worse than others and I feel the same way as you do and my heart goes out to them as well. I have heard it is the cancer to have if we must have a cancer. I HAVE ALSO HEARD THE ONC NURSES SAY ITS NOT IF WE GET CANCER ANYMORE BUT WHEN AND HOW BAD WILL IT BE. It is sad to say that cancer is on the rise and not on the decline. Exactly what type of cancer do you have and what stage is it? John

Long Dawg's picture
Long Dawg
Posts: 9
Joined: Jun 2010

NHL B 1st stage, the treatment is R-CHOP

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

STEVE I THOUGHT WITH STAGE ONE THEY JUST USED LOCAL RADIATION. I guess I didn't know as much as I thought. I thought chemo was used when it was in various part of the body??. I am again assuming you have it in just one node of your body. I have stage 4 and I get the R-cvp. 6 rounds with 5 to go. No radiation though. Good luck with the second round and keep us posted. John

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

John,

When I was diagnosed I also was in stage 1 and we did the cvp&r. I think it has more to do with symptoms and how it's affecting your life. I didn't do radiation until I relapsed. My onc gave me the choice of doing radiation after we finished chemo but he didn't feel I needed it and quite frankly I was tired. I just wanted to heal.

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

I read so much and with this chemo brain it really is rough trying to remember everything I read. I guess the chemo brain and tiredness last even after a couple of weeks out from the chemo. I know I still feel only about 80%. I remember the onc dr. saying to me that if the tumors were just in the stomach area I would just have the radiation. They found an infected node in the groin area and 1 with a slight upgrade in the shoulder area too. Then the bone marrow also showed it as well. It put me at stage 4 follicular. That elimanated the radiation. Just wondering why I only feel 80% and over 2 weeks out from my first round. The chemo should be out of the body by now. John

yesyes2
Posts: 592
Joined: Jul 2009

Hi John,
Sorry your still not feeling yourself after your first chemo. You need to realize that what your experiencing is perfectly normal and expected. There is no way you would feel 100% after a cycle. By next Monday you'll probably be about 90% of your old self. As you know chemo is cumulative so with each session you will have more and more fatigue and be further and further away from 100%. Usually by the last 2 cycles your fatigue levels will be really really bad. But when you are finished with chemo your energy will slowly return. I don't know if you ever do return to 100%. I have done chemo several times and never did return to where I started. I'm currently 4 1/2 months out from RCHOP and am still dealing with low energy, but it is getting better. Even though the drugs are out of your system in a short period of time it still takes alot of time for your body to rebuild.
Leslie

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

John,

Sorry you're not at 100, but 80% is damn good while being poisoned. I was never at 100, but anything was better than the 2nd week of treatments.

Take lots of naps and rest and drink, then do it again. Don't expect too much from yourself John. This stuff is cumulative and the tired piles on top of tired. This stuff is hard and definitely takes it's toll on a body. Be gentle with yourself.

Enjoy the final few days before the crazy starts again! Enjoy the 4th!

cookingirl's picture
cookingirl
Posts: 183
Joined: May 2010

Hi - haven't been online in awhile - I go for my 3rd chemo of 6 next week with R-CVP. Just home from 9 days in the hospital - I have Follicular B cell, stage 4 NHL as you do. Mine is in the bone marrow and a tumor the size of a grapefruit in my abdomen - was hoping two chemos would reduce the size, but I'm still very puffy in the middle. Dr. can't figure out my abdominal and back pain that never seems to go away. Will NOT do Morphine again - it really made me loopy for the pain in the hospital. Have you had any such pain?

Good luck with the treatments - I was completely fatigued from the 1st, but just a little with the second - almost didn't notice it at all. Cookingirl from FL

bytheC's picture
bytheC
Posts: 2
Joined: Feb 2010

Hi Steve, I am a survivor of NHL. I had my last Chemo treatment on 5/24/10. I soon will began a maintenanace program. I want you to know that yes, cancer does change the life you had but also you will find along the way so many things to be thankful for. Your emotions will be like the tide flowing. They will come and go. Do rest and do only the things you feel like you want to do. Give your treatments a chance to let you go into remission. Each treatment I took left me a little more drained but the worst was the predisone treatments. I was one of the few that gained weight going through chemo . Have faith and fight, Life is more than worth it ! If I can answer any questions, please feel free to email me !

Long Dawg's picture
Long Dawg
Posts: 9
Joined: Jun 2010

Thank you for your kind words and concern. I hope your NHL is behind you for good.
Today has been a good day so far, I may need a nap before going to the local fireworks tonight. The AC is on and I'm staying inside for now.
Why is the Predisone so harsh, I take mine in the mourning so I can feel crappy all day and sleep at night. Tomorrow is my last dose of Predisoe.
Peace

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

Are you tapering the prednisone down? I took 100 mg every day for 3 days, then reduced one pill a day till day 7 and made it much easier. My onc told me I could do 5 days but I would crash and burn.

It's a hard drug. Don't drink ANY caffeine after 8 am LOL.

Good luck to you!

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