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one down 7 to go!!!!

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Hey Guy's had first round of R-CHOPS, 8 hrs. in fact, you know it's a long day when your IPOD runs out of a full charge!!! hahahaha. The worst part was I just had my port put in yesterday, but once it heals I know I'm going to appreciate that I had it put in this time! I have to go back tomorrow for that shot that hurts like hell, can't think of the name, sorry. Going to try to work tomorrow, till I can't. Keep the faith! Vinny

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

VINNY, I HAD MINE TODAY AND IT DID NOT HURT AT ALL. JUST A SLIGHT BEE STING FEEL,
THATS ALL. ITS CALLED NEULESTRA TO BUILD UP THE WHITE BLOOD CELLS. THEY TOLD ME TOMORROW I WOULD HAVE SOME BONE SORENESS DUE TO THE STIMULATION OF THE BONE MARROW. THEY SAID TYLENOL SHOULD HELP SOME.DO NOT USE ASPIRIN. JOHN

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

Congrats on the 1st down! Hopefully you both are feeling good. I was very fortunate and did not have to have the shots because my counts stayed good. I have heard from people the bone soreness gets pretty bad at times, but I AM A WIMP....I admit it.

My docs office has individual rooms with just a few rooms that have more than one chair and each room has a tv and lots of movies to choose from, and of course the recliners make it easy to sleep some of the day away....between the trips to the bathroom.

Have a good evening and go celebrate, nice dinner etc.

Take care, and again congrats on one down!

Beth

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

hey Beth thanks for the comments,I wish I can go have a nice dinner and all, but chemo just makes ne feel so sick, I always feel like I have to throw up, wierd when you hear so many people saying that they just feel tired..........like I always say a day at a time!

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

on my way to get my shot! thanks for the info

merrywinner's picture
merrywinner
Posts: 627
Joined: Aug 2009

You guys are becoming our new dynamic duo. Keep up the good work. It's funny how we can all have roughly the same treatment but each person is treated in different ways. I did not have a port. The reasons not to have one were valid for me but I will not go into them because it could worry or concern others and it was unique to me. For example when you both talked about the Muga scan and I didn't have that but instead had an echo cardiogram, I now understand why that was. Since I am being treated at Mayo Clinic I guess I will trust their decisions when it comes to my case. Again best of luck. Mary

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

it really is funny how we all react differently, John and I are going to kick this cancer right in the butt!!!!! hahahahaha thanks again Mary

yesyes2
Posts: 592
Joined: Jul 2009

Congrats on your first RCHOP. Yes the first one is a really long day. But each one after does get shorter. As far as the Neulasta injection goes I had no bone pain with it at all. I had the injections given in my abdomen as I really don't like shots in my arm. If the nurse knows what she/he is doing it doesn't hurt at all and I was told only 30% of people experience really bad bone pain. As a guard against the bone pain I was told by the Oncology dept at Stanford to use Clariten antihistomine. Don't know why it works but people tell me it does. Start the day before chemo and I believe take it for 5 to 7 days. I did not take it because as I said I had no problem. There were a few days I awoke with pain in my lower back but no big deal. Ask your onc when you go for your injection tomorrow. And you really will learn to appreciate your port. Did you get a power port?

Blessings to you,
Leslie

kayebadoe's picture
kayebadoe
Posts: 81
Joined: May 2010

I have had 2 of those shots and it didn't hurt. I have a little bone pain, but not sure its from the shot or just my regular arthritis or fibromyalgia.

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

yes it's the new one, how long did you leave your tape on after the procedure, the tape over the stitches.... thanks Leslie...

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Vinny, Dr. told me to leave my tape on for 2 days. Did you ever say what your lymphoma diagnosis was? Mine is the follicular type. You may have said in another post but I read so many posts, which is why we are on here to begin with to learn what we can from others and help one another. Just be careful with that port, don't want any kind of infection around that area. I am sure you already know that, but I was told that by so many people after I had it put in.

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

they told me to let the tape come off on it's own, that you don't want to pull it off, I have Large B cell Lymphoma stage 4.......

gypsy22
Posts: 17
Joined: Jun 2010

My mom has Large B cell stage 4 as well. I am a long distance caregiver. I travel for her R-Chop and shot. I want her closer yet I did not want to wait any longer for her treatment.

We are having our 3rd round next week. One of the hardest for me to handle is the unknown. She had no symptoms so it has been real hard for me to understand.

Thanks for allowing me to see how others are going with this treatment.

yesyes2
Posts: 592
Joined: Jul 2009

I had a very over caring intervention radiologist who installed my port so the procedure for me would be totally unique to me. I had to keep my port dry for 1 wk and go to the hospital daily for him to change the dressings, 8 days. He even came in on the weekends and to out patient oncology the day I started my chemo to redress the port. Stitchs came out on day 8. And I had to wait 5 days before accessing the port for chemo. See what I mean, totally unique to me. My port goes up into my jugular in my neck, a little different also. And I will keep my port in for ever, also a little different.

Try and enjoy your day. Hope the anti nausia drugs kick in for you. You have already been through a lot.

Blessings,
Leslie

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

thanks alot Leslie, you take care too.....

merrywinner's picture
merrywinner
Posts: 627
Joined: Aug 2009

Glad to hear your moving right along and are 1/8 done. Sorry to hear about the nausea. I did have little bits of it usually when I thought about eating but they would pass quickly.I did become the pickiest eater ever even with the Prednisone and never had any appetite and my taste buds were all fouled up. Oddly I craved fruit to the extreme. Hope all continues to go well and you can make it to work if that's your goal. Don't have any feedback on the shots. I never had to have any although they were watching it. My white count would drop but would rebound quickly on it's own. They called it my window or pattern. Days 10 thru 14 were when this occurred and it stayed that way throughout the entire regime. All the best. Mary

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

Thanks for the response Mary,love to hear the feed back!

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

I ate about 5-6 peaches every day during chemo, couldn't get enough of them. Course I gained 30 pounds during chemo 4.5 months.

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

really, my last bout with chemo I lost 30lbs. I was on Cysplatin....... that is what they give me for my head and neck, I'm getting nervious because I bulked up and gained about 20 lbs. because of what happened last time, oh well we will see.................

yesyes2
Posts: 592
Joined: Jul 2009

Vinny, I didn't gain weight on my RCHOP but lost 6 pounds. Guess I always like to buck the trends. Because I was so fearful of gaining a lot of weight I really watched what I put in my mouth, tried to eat good healthy foods. But really rarely ever felt like eating as nothing but sugars tasted good. So are pastries a good health food?

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

ARE AWESOME!

LOL. I ate LOTS of peaches, yogurt and everything else in between...........and don't forget the fig newtons!

EAT ON!! LOL

Beth

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

Eat when you want to my friend. Your body needs all the help it can get to fight this stuff. I gained 30 pounds, but I desperately needed it. I am probably at a much healthier weight now.

I hope your feeling ok for the weekend. I know this is the beginning of the bad time for you. My heart goes out to you for having to deal with this, but you CAN do this!
Rest, take a load off and do what you can when you feel like it.

Take care,

Beth

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Just finished up my first round this past Tuesday and my butts a drangin'. It actually seems to get a little worse everyday. I feel like somebody beat me with a big stick and then dragged me down the road. I can relax but not fall asleep. It is all so new to me as it is to so many others out there. I know it affects people in different ways. Just wish I wasn't so tired.

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

So sorry you're dragging honey, but what you are feeling is normal. Unfortunately this next week is going to be really tough for you. It truly will be better the last week.

Hopefully the next round won't blind side you like this one will. Sleeping will get easier after the prednisone is out of your system. Try benedryl to help you relax. My onc let me take it, but you may want to check with your chemo nurses.

I wish I could tell you you'll get your energy back sooner, but cancer is wicked and so is the treatment.

Take care my friend.

Beth

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

As long as there is light at the end of the tunnel I know I can do it. We ALL can do it!!!!!

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

We can and will do it..... like everyone said rest when you got to rest, it's all part of the rocky road, I'm hurting in the ribs for some reason, and my port is still sore.... I'm going to work one more week until my next treatment then I'm going out, the 35 minute car ride to and from work is the worst because I,m so tired.... keep the faith bro!

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

Vinnie,

I too have a 45 minute commute to and from work. I would kind of zone out at stop lights and people would honk at me to go. After the 3rd treatment I stayed home and basically quit driving. I taught a 15 year old (my adopted surrogate kid) how to drive a stick so she could be my chauffer. LOL that was fun!

But she was out of school for the summer and she enjoyed the practice and I had a great time riding haning on to the "oh ****" bar LOL. So, if at all possible? Find a chauffer.

Take care!
Beth

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Beth, How long are these drugs supposed to be working in the body? I mean for each round. Do they do their job in a few days and get excreted out of the body and then we are left with the rebuilding process of the blood cells. I am not really sure how the process works.i had the R-CVP. 5 days of 100mg of prednisone to boot. Do you realize that shot that builds up our wbc,neulastra is up in the thousands of dollars. Thank goodness for insurance. I am retired so don't have to worry about driving if I don't have too. Just not used to being torn down like this when all my life I would get up and go for 18 hours at a time. John

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

John,

The second week after chemo is by far the worst. With mine I got treatment on thurs. the jaw pain started sunday evening for about 3-4 days. Then the next week I was exhausted and generally hurt like you describe.........being hit by a truck. The last 7 days I got back to feeling more like myself.

I never did the shots, my counts stayed good.

Tired is such an insufficient word when it comes to chemo. It's not a level that is easy to describe. I equalled it to the most physically tired you've ever been like working an 18 hour day times 10.

Just know it won't last forever and I finally really understood why babies cry when they are tired....I did too.

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Beth, When I said shot I meant the day(24 hrs) after chemo they gave me the shot just so my wbc would not go low. It may be something new. My wbc was normal before the chemo, but they said it would drop in the coming weeks.As a matter of fact all my cell counts were normal range.I am sure they have dropped some now as tired as I have been feeling.As we know the chemo kills good cells along with the cancer cells. The theory is the cancer cells are very slow to regrow, but our good cells regenerate very fast. The neulastra shot stimulates the baby wbc to mature faster so we won't be left without any defense system.

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

My wife get's me to my treatments, but she has to work, someone has to pay the bills hahahahaha,

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Tomorrow is my last day of the prednisone for this round. I hope I get some of my strenght back after that is over.I know the chemo drugs have a lot to do with it too. It is hot here in NC along with the humidity so staying indoors isn't so bad.I got some soreness in my lower back along the hip area right now. Keep drinking the water to flush this crap out of the system, you don't want it to set in the kidneys and bladder. It can cause a lot of irritation.

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

thanks for the thought's, I have danced with the devil once so this time should be a piece of cake!!!!! hahahahaha

shaysha's picture
shaysha
Posts: 3
Joined: Oct 2016

Hello all, I see posts here related to 2006, 2009, 2010 and a few 2011 and am inquiring if this is an active thread. My spouse, just before foregoing a 6th 28 day chemo treatment is now to undergo this new R-CVP regimen....this one every 21 days x 6 treatments. I'd like to hear from others about what to expect.

Blessings, Shaysha 

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3495
Joined: May 2012

Welcome to you Shaysha and your husband.

Although there is no "offical" protocol for when a thread is active, this one is indeed old and long, which renders getting to the end a little unwieldy. Why not start your own ? 

Follicular is a very common NHL, and there shold be many writers who have done R-CVP. It would be of assistance if you were to elaborate on his specifics (staging, clinical history, what the previous treatment was, etc.).

This link details R-CVP pretty well. You can ckick on each drug and study each in detail:  http://chemocare.com/chemotherapy/acronyms/r-cvp.aspx

max 

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